Helen & Douglas House | |
---|---|
Geography | |
Location | Oxford, England |
Organisation | |
Care system | Charity |
Funding | Non-profit hospital |
Type | Specialist |
Patron | The Queen |
Services | |
Emergency department | No |
Speciality | Palliative, respite, end-of-life and bereavement care to children |
Helipad | No |
History | |
Opened | 1982 |
Links | |
Website | www |
Lists | Hospitals in England |
Helen & Douglas House is a registered hospice charity (no. 1085951) [1] based in Oxford, England, providing palliative, respite, end-of-life and bereavement care to life-limited children and their families.
Helen House was the world's first children's hospice, set up in 1982 next to All Saints Convent by an All Saints Sister Frances Ritchie to provide respite care to the families of children with life-limiting conditions. [2] Douglas House was set up in 2004 [3] and was the world's first hospice built specifically for young adults. Queen Camilla is the charity's patron. [4] The charity has been featured in two BBC documentary series, in 2007 and 2009. [5]
The hospice provides specialist palliative and respite care for children as well as end of life and bereavement care.
The care is provided by a team of doctors, nurses, carers and therapists, and is supported in the main by donations from the public, with only approximately 15% of the £5 million annual budget coming from the public sector. [6]
The hospice announced in June 2018 that it would discontinue the Douglas House care services for young adults effective immediately, due to lack of funding. [7] [8]
Palliative care is an interdisciplinary medical caregiving approach aimed at optimizing quality of life and mitigating suffering among people with serious, complex, and often terminal illnesses. Within the published literature, many definitions of palliative care exist. The World Health Organization (WHO) describes palliative care as "an approach that improves the quality of life of patients and their families facing the problems associated with life-threatening illness, through the prevention and relief of suffering by means of early identification and impeccable assessment and treatment of pain, illnesses including other problems whether physical, psychosocial, and spiritual". In the past, palliative care was a disease specific approach, but today the WHO takes a broader patient-centered approach that suggests that the principles of palliative care should be applied as early as possible to any chronic and ultimately fatal illness. This shift was important because if a disease-oriented approach is followed, the needs and preferences of the patient are not fully met and aspects of care, such as pain, quality of life, and social support, as well as spiritual and emotional needs, fail to be addressed. Rather, a patient-centered model prioritizes relief of suffering and tailors care to increase the quality of life for terminally ill patients.
Marie Curie is a registered charitable organisation in the United Kingdom which provides hospice care and support for anyone with an illness they’re likely to die from, and those close to them, and campaigns for better support for dying people. It was established in 1948, the same year as the National Health Service (NHS).
Royal Trinity Hospice is the oldest hospice in the United Kingdom; it was founded in 1891 by a member of the Hoare banking family. It is located in Clapham Common, London, England, and provides specialist palliative care. In 2019, Royal Trinity Hospice was rated "Outstanding" by the Care Quality Commission, the highest rating that can be awarded. The hospice provides palliative and end of life care for patients in an inpatient unit at their Clapham Common headquarters and in the community, wherever patients may be living. In 2018, Trinity cared for 2,500 patients; in addition, the hospice provided pre- and post-bereavement support for over 900 carers.
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Martin House is a charity that provides hospice care for children and young people across West, North and East Yorkshire. It provides family-led care to children and young people with life-limiting and life-threatening illnesses, either at the hospice or in families' own homes.
Frances Dominica Ritchie OBE, DL, FRCN (Hon) is a British nurse and Anglican religious sister, specializing in palliative care. She founded Helen & Douglas House, two hospices ("respices") for seriously ill young people.
A children's hospice is a hospice specifically designed to help children and young people who are not expected to reach adulthood with the emotional and physical challenges they face, and also to provide respite care for their families.
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Shooting Star Children's Hospices is an English children's hospice charity. The charity cares for babies, children and young people with life-limiting conditions, and their families, across Surrey, south-west London and north-west London. They provide specialist clinical and holistic care to families from diagnosis to end of life and throughout bereavement.
In the United States, hospice care is a type and philosophy of end-of-life care which focuses on the palliation of a terminally ill patient's symptoms. These symptoms can be physical, emotional, spiritual, or social in nature. The concept of hospice as a place to treat the incurably ill has been evolving since the 11th century. Hospice care was introduced to the United States in the 1970s in response to the work of Cicely Saunders in the United Kingdom. This part of health care has expanded as people face a variety of issues with terminal illness. In the United States, it is distinguished by extensive use of volunteers and a greater emphasis on the patient's psychological needs in coming to terms with dying.
Hospice care is a type of health care that focuses on the palliation of a terminally ill patient's pain and symptoms and attending to their emotional and spiritual needs at the end of life. Hospice care prioritizes comfort and quality of life by reducing pain and suffering. Hospice care provides an alternative to therapies focused on life-prolonging measures that may be arduous, likely to cause more symptoms, or are not aligned with a person's goals.
Children's Hospice South West (CHSW) is a registered charity that provides palliative, respite, end of life and bereavement care for life-limited and terminally ill children and their families from the South West England region. It oversees three of the 41 children's hospices in the United Kingdom.
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Naomi House and Jacksplace are the hospices for children and young people in the Wessex region. The hospices are located at Sutton Scotney, near Winchester, Hampshire, England. It is also known as The Wessex Children's Hospice Trust, (No.1002832). Naomi House and Jacksplace provide care to more than 300 children and young people with life-limiting and life-threatening conditions. The care and support that Naomi House offers is claimed to be unique in central southern England. They offer respite care, emergency support, a hospice at home service, end of life care and family support.
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Zoe's Place Baby Hospice, operating as Zoe’s Place Trust, is a United Kingdom based registered charity founded by Professor Jack Scarisbrick in 1995. It provides palliative and respite care for very or terminally ill babies and children up to five years old.
Havens Hospices is a charity (No:1022119) which runs hospice services in Essex. It is intended to support and provide palliative care to babies, children, young adults and adults. Havens Hospices offers community based support to families in Essex and runs two hospice services: Fair Havens Hospice and Little Havens Hospice.
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