List of people with ME/CFS

Last updated

This is a list of notable people who have been diagnosed with or suspected to have myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).

Contents

Confirmed diagnosis

NameOccupationNationality
Michelle Akers [1] Former Olympic soccer playerAmerican
Karin Alvtegen [2] AuthorSwedish
Paul Atherton [3] Television and film producer British
Elisabeth Tova Bailey [4] AuthorAmerican
Ann Bannon [5] AuthorAmerican
Richie Barnett [6] Rugby League player and television presenterNew Zealander
Henrik Berggren [7] Lead singer in the band Broder Daniel Swedish
Emma Blackery [1] YouTuber and singer-songwriterBritish
Susan Blackmore [1] Writer and lecturerBritish
Howard Bloom [1] Publicist and writerAmerican
Olaf Bodden [8] Professional soccer playerGerman
Jennifer Brea [9] Documentary filmmaker and activistAmerican
Ricky Carmichael [10] Motocross racerAmerican
Cher [1] [11] Recording artist, actress, director, and record producerAmerican
Pema Chödrön [12] Buddhist nunAmerican
Susanna Clarke [13] AuthorBritish
Tom Clarke [14] Politician British
Neil Codling [15] Keyboard player for the band Suede British
Dianna Cowern [16] YouTuber and science communicator American
Merryn CroftsDrama student whose death was caused by ME/CFS [17] British
Michael Crawford Actor and singerBritish
Mia Diekow [18] Musician, voice actress, patient advocateGerman
Laura Dundovic [19] Former Miss Universe Australia Australian
Blake Edwards [1] [20] Film director, screenwriter and producerAmerican
Florian-Ayala Fauna [21] [22] Artist, musician, music producerAmerican
Flea (Michael Balzary) [23] Bassist of the Red Hot Chili Peppers Australian-American
Clare Francis [24] Yachtswoman and novelistBritish
Luke Ford [25] Journalist and BloggerAustralian-American
Ilko-Sascha Kowalczuk [26] German historian and authorGerman
Leigh Hatcher [27] Journalist and news presenter Australian
Susan Harris [28] Television writer and producer American
Jens Höing [29] Racing driver German
Laura Hillenbrand [1] [30] Author American
Andy Hunt [1] [31] Association footballer British
Keith Jarrett [1] Jazz pianist American
Leonard A. Jason [32] Professor of psychology at DePaul University American
Stephan Jenkins [33] Lead singer of Third Eye Blind American
Brynmor John [34] [35] [36] PoliticianBritish
Roger King [37] NovelistBritish living in US
Trip Lee RapperAmerican
Peter Marshall [38] Squash playerBritish
Brooks Mileson [39] BusinessmanBritish
Sophia Mirza [40] A woman who was the first to have CFS listed as a cause of death in the UK [40] British
Stuart Murdoch [41] Musician, lead singer in the band Belle and Sebastian British (Scottish)
Stevie Nicks [42] American singer-songwriterAmerican
Andrew Oldcorn [43] Golfer British
Ronald Page [44] the plaintiff of Page v Smith British
Amy Peterson [1] Short track speed skater American
Martin Phillips [31] Association footballer British
David Puttnam [45] British film maker and producerBritish
John Rutter [46] ComposerBritish
Ali Smith [1] [47] AuthorBritish
Casey Stoner MotoGP world championAustralian
Amy Studt MusicianBritish
Ari Taub Olympic Greco-Roman wrestlerCanadian
Marina Weisband [48] PoliticianGerman
Naomi Weisstein [49] Author and neuroscientist American
Ken Wilber [50] AuthorAmerican
Chris Willsher [1] Singer with The Bus Station Loonies British
Katharine Windsor [51] Duchess of KentBritish
Yvette Cooper [52] [53] PoliticianBritish
Miranda Hart [54] Actress, comedian and writerBritish
Bradley Simmonds [55] Radio DJ, hostNew Zealander
Marina Diamandis [56] Singer-SongwriterBritish

Suspected cases

NameOccupationNationality
Harlan Ellison [57] [58] Science-fiction writerAmerican

See also

References

  1. 1 2 3 4 5 6 7 8 9 10 11 12 Lisman SR; Dougherty K (2007). Chronic Fatigue Syndrome For Dummies. John Wiley & Sons. pp.  297–302. ISBN   978-0-470-11772-9.
  2. ↑ Svenska Dagbladet, interview 2017-12-08 (in Swedish)
  3. ↑ "What About ME?" (Trailer). United Kingdom: Double D Productions. 2010. Event occurs at 3:57. Archived from the original on May 25, 2012. Retrieved 2012-05-16.
  4. ↑ Bailey, Elisabeth Tova (20 February 2011). "A Green World Deep in Winter: The Bedside Terrarium". The Yale Journal for Humanities in Medicine. Archived from the original on 2016-03-04.
  5. ↑ Cain, Paul (2007). "Ann Bannon". Leading the parade: Conversations with America's most influential lesbians and gay men. Scarecrow Press, Inc. pp. 155–163. ISBN   0-8108-5913-0
  6. ↑ "Our stories". ME Auckland. Retrieved 1 February 2016.
  7. ↑ "Henrik Berggren drabbad av kroniskt trötthetssyndrom" (Article in Swedish) http://www.aftonbladet.se/nojesbladet/musik/a/dKwyA/henrik-berggren-drabbad-av-kroniskt-trotthetssyndrom
  8. ↑ "Documentary "Der müde Stürmer"" (in German). Archived from the original on 2011-10-02. Retrieved 2008-12-09.
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  11. ↑ "Interview with Cher". BBC.co.uk. 2006-11-05. Archived from the original on September 26, 2004. Retrieved 2007-10-16.
  12. ↑ Shambhala Publications (2010). "About Pema Chödrön".
  13. ↑ "Susanna Clarke cancels book tour". Adweek.com. Archived from the original on 3 May 2018. Retrieved 27 February 2020.
  14. ↑ "MPs call for action on ME". BBC. 1999-05-12. Retrieved 2008-12-12.
  15. ↑ Cohen, J (2001-03-23). "Billboard Bits: Fatboy Slim, Suede, Keb' Mo'". Billboard . Retrieved 2008-12-09.
  16. ↑ "An Update On Dianna's Health". Youtube. 6 March 2023. Retrieved 7 March 2023.
  17. ↑ "'Vindication' for woman who wanted ME on death certificate". BBC News . 27 July 2018.
  18. ↑ deutschlandfunkkultur.de (29 December 2022). "Krisen bewältigen - Die Kraft der Hoffnung". Deutschlandfunk Kultur (in German). Retrieved 2024-07-31.
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  23. ↑ Fitzpatrick, R (2004). Red Hot Chili Peppers: Give It Away: The Stories Behind Every Song. Da Capo Press. pp.  140. ISBN   1-56025-579-X.
  24. ↑ "Clare Francis: A brief biography" . Retrieved 2008-12-09.
  25. ↑ "A Painful Life Lesson from Chronic Fatigue Syndrome | Luke Ford".
  26. ↑ ""Ich habe 24 Stunden am Tag Schmerzen. Immer."". Stern. 2024-07-19. Retrieved 2025-03-19.
  27. ↑ "I'm Not Crazy, I'm Just A Little Unwell" . Retrieved 2008-12-09.
  28. ↑ "Biography for Susan Harris". Internet Movie Database . Retrieved 2007-10-16.
  29. ↑ Cohen, J (2009-03-23). "Billboard Bits: Fatboy Slim, Suede, Keb' Mo'". Jens Höing . Retrieved 2008-12-09.
  30. ↑ "A Sudden Illness". The New Yorker . 30 June 2003. Retrieved 2011-12-14.
  31. 1 2 "Torquay's Phillips hangs up boots". BBC. 2007-05-17. Retrieved 2008-12-10.
  32. ↑ Tuller, D (2008-04-30). "Expert Q&A, Learning Firsthand about Chronic Fatigue Syndrome". The New York Times . Archived from the original on 2009-10-13. Retrieved 2012-04-26.
  33. ↑ Vaziri, Aidin (21 July 2017). "Frankly, 3EB's Stephan Jenkins is older, wiser and doesn't give a damn". San Francisco Chronicle . p. 1. Retrieved 8 September 2023.
  34. ↑ Hooper, Malcolm; Williams, Margaret (February 2010). Magical Medicine: How to make a disease disappear (PDF) (Report).
  35. ↑ "Parliamentary business". Parliamentary Debates (Hansard) . House of Commons. 1999-05-12. col. 270.
  36. ↑ Twisk, F. N.; Maes, M. (2009). "A review on cognitive behavorial therapy (CBT) and graded exercise therapy (GET) in myalgic encephalomyelitis (ME) / chronic fatigue syndrome (CFS): CBT/GET is not only ineffective and not evidence-based, but also potentially harmful for many patients with ME/CFS". Neuro Endocrinol Letters. 30 (3): 284–299. PMID   19855350.
  37. ↑ King, Roger (2012). Love and Fatigue in America. University of Wisconsin Press. p. 254. ISBN   978-0-299-28720-7.
  38. ↑ Marshall P; Kehoe N (2001-03-16). Shattered: A Champion's Fight Against a Mystery Illness. Mainstream Publishing. ISBN   978-1-84018-395-5.
  39. ↑ Murray, E (2008-11-04). "Gretna owner Mileson dies". The Guardian . London. Retrieved 2008-12-09.
  40. 1 2 Hooper, R (2006-06-16). "First official UK death from chronic fatigue syndrome". New Scientist . Retrieved 2008-09-11.
  41. ↑ Ryan Prior (5 October 2018). "Indie pop sensation's disease became his muse". CNN . Retrieved 2020-11-04.
  42. ↑ Off The Record (2000-09-24). "Stevie Nicks Interview".
  43. ↑ Spencer, Peter (1998-05-01). "CFS: A suitable case for treatment" (PDF). The Psychologist . Vol. 11, no. 5. British Psychological Society. pp. 223–6. Retrieved 2024-10-19.
  44. ↑ Endeshaw, Assafa (1998). "Foreseeability of Nervous Shock to a 'Primary Victim' who Suffers no Physical Injury" (PDF). Mountbatten Journal of Legal Studies: 51. Retrieved 17 April 2025.
  45. ↑ Sarah Boseley (2004-04-27). "Puttnam tells of 16 years with ME". The Guardian . London. Retrieved 2009-01-06.
  46. ↑ Donald McLeod (25 January 2010). "Composer of the Week: John Rutter". YouTube . Retrieved 2013-10-10.
  47. ↑ France, Louise (2005-05-22). "Life stories: Ali Smith". Guardian Unlimited. London. Retrieved 2007-10-16.
  48. ↑ Julia Dobrowski: "Habe gerade einen Rollstuhl beantragt": Marina Weisband über die Folgen ihres Chronischen Fatigue-Syndroms, in: , 10 January 2022, retrieved 21 September 2022.
  49. ↑ Jesse Lemisch; Naomi Weisstein (1997). "Remarks on Naomi Weisstein". Archived from the original on 2008-05-22. Retrieved 2008-04-24.
  50. ↑ Ken Wilbur (2006). "Meditate and Eat Your Veggies".
  51. ↑ Wills S (September 21, 2022). "Famous faces at Queen Elizabeth II's funeral and which royals did not attend and why".
  52. ↑ "Who is Yvette Cooper? Labour leadership contender guide". BBC News . 10 September 2015. Retrieved 30 November 2024.
  53. ↑ Gordon, Bryony (5 June 2011). "Hay festival: Yvette Cooper talks of battle with ME". The Daily Telegraph. Retrieved 30 November 2024.
  54. ↑ Acheson, Lucy (8 October 2024). "Miranda Hart: Lyme disease left me bed-bound". BBC News . Retrieved 17 January 2025.
  55. ↑ Mauger, Rebecca (17 July 2024). "Ōmokoroa: Radio station run from CFS/ME sufferer's bed". The New Zealand Herald . Retrieved 28 February 2025.
  56. ↑ Grow, Kory (12 July 2023). "MARINA OPENS UP ABOUT TIRING ILLNESS: 'IT'S BEEN HARD TO REMEMBER WHAT HEALTHY FEELS LIKE'". Rolling Stone . Retrieved 18 November 2025.
  57. ↑ "alt.fan.harlan-ellison FAQ". Archived from the original (TXT) on 2000-07-08.
  58. ↑ "Interview with Harlan Ellison | Nightdive Studios". nightdivestudios.com. Retrieved 2025-07-31.
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