List of people with ME/CFS

Last updated

This is a list of notable people who have been diagnosed with or suspected to have myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).

Contents

Confirmed diagnosis'

NameOccupationNationality
Michelle Akers [1] Former Olympic soccer playerAmerican
Karin Alvtegen [2] AuthorSwedish
Paul Atherton [3] Television and film producer British
Elisabeth Tova Bailey [4] AuthorAmerican
Ann Bannon [5] AuthorAmerican
Richie Barnett [6] Rugby League player and television presenterNew Zealander
Henrik Berggren [7] Lead singer in the band Broder Daniel Swedish
Emma Blackery [1] YouTuber and singer-songwriterBritish
Susan Blackmore [1] Writer and lecturerBritish
Howard Bloom [1] Publicist and writerAmerican
Olaf Bodden [8] Professional soccer playerGerman
Jennifer Brea [9] Documentary filmmaker and activistAmerican
Ricky Carmichael [10] Motocross racerAmerican
Cher [1] [11] Recording artist, actress, director, and record producerAmerican
Roger Cicero [12] Jazz and pop musicianGerman
Pema Chödrön [13] Buddhist nunAmerican
Susanna Clarke [14] AuthorBritish
Tom Clarke [15] Politician British
Neil Codling [16] Keyboard player for the band Suede British
Dianna Cowern [17] YouTuber and science communicator American
Merryn CroftsDrama student whose death was caused by ME/CFS [18] British
Michael Crawford Actor and singerBritish
Mia Diekow [19] Musician, voice actress, patient advocateGerman
Laura Dundovic [20] Former Miss Universe Australia Australian
Blake Edwards [1] [21] Film director, screenwriter and producerAmerican
Florian-Ayala Fauna [22] [23] Artist, musician, music producerAmerican
Flea (Michael Balzary) [24] Bassist of the Red Hot Chili Peppers Australian-American
Clare Francis [25] Yachtswoman and novelistBritish
Luke Ford [26] Journalist and BloggerAustralian-American
Leigh Hatcher [27] Journalist and news presenter Australian
Susan Harris [28] Television writer and producer American
Jens Höing [29] Racing driver German
Laura Hillenbrand [1] [30] Author American
Andy Hunt [1] [31] Association footballer British
Keith Jarrett [1] Jazz pianist American
Leonard A. Jason [32] Professor of psychology at DePaul University American
Stephan Jenkins [33] Lead singer of Third Eye Blind American
Brynmor John [34] [35] [36] PoliticianBritish
Roger King [37] NovelistBritish living in US
Trip Lee RapperAmerican
Peter Marshall [38] Squash playerBritish
Brooks Mileson [39] BusinessmanBritish
Sophia Mirza [40] A woman who was the first to have CFS listed as a cause of death in the UK [40] British
Stuart Murdoch [41] Musician, lead singer in the band Belle and Sebastian British (Scottish)
Stevie Nicks [42] American singer-songwriterAmerican
Andrew Oldcorn [43] Golfer British
Amy Peterson [1] Short track speed skater American
Martin Phillips [31] Association footballer British
David Puttnam [44] British film maker and producerBritish
John Rutter [45] ComposerBritish
Ali Smith [1] [46] AuthorBritish
Casey Stoner MotoGP world championAustralian
Amy Studt MusicianBritish
Ari Taub Olympic Greco-Roman wrestlerCanadian
Marina Weisband [47] PoliticianGerman
Naomi Weisstein [48] Author and neuroscientist American
Ken Wilber [49] AuthorAmerican
Chris Willsher [1] Singer with The Bus Station Loonies British
Katharine Windsor [50] Duchess of KentBritish
Yvette Cooper [51] [52] PoliticianBritish

Suspected cases

NameOccupationNationality
Charles Darwin [53] Naturalist, geologist, and biologistBritish
Florence Nightingale [53] Founder of modern nursingBritish

See also

Related Research Articles

<span class="mw-page-title-main">ME Association</span> UK charitable organization

The ME Association is a UK health charitable organization that provides information, advocacy, and services to persons and families affected by ME/CFS, and raises funds for research into ME/CFS. It has been reported to be one of the two largest UK charities for ME/CFS.

<span class="mw-page-title-main">History of ME/CFS</span> Aspect of medical history

Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) has a long history with an evolution in medical understanding, diagnoses and social perceptions.

Management of ME/CFS focuses on symptoms management, as no treatments that address the root cause of the illness are available. Pacing, or regulating one's activities to avoid triggering worse symptoms, is the most common management strategy for post-exertional malaise. Clinical management varies widely, with many patients receiving combinations of therapies. The prognosis of ME/CFS is poor, with recovery considered “rare”.

<span class="mw-page-title-main">Controversies related to ME/CFS</span>

Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is an illness with a history of controversy. Although it is classified as an organic disease by a majority of researchers, it was historically assumed to be psychosocial, an opinion still held among many physicians. The pathophysiology of ME/CFS remains unclear, there exist many competing diagnostic criteria, and some proposed treatments are controversial. There is a lack of education and accurate information about the condition among a significant number of medical practitioners, which has led to substantiated accusations of patient neglect and harm.

<span class="mw-page-title-main">Clinical descriptions of ME/CFS</span> Case definitions of the illness

Clinical descriptions of ME/CFS vary. Different groups have produced sets of diagnostic criteria that share many similarities. The biggest differences between criteria are whether post-exertional malaise (PEM) is required, and the number of symptoms needed.

The Lightning Process (LP) is a three-day personal training programme developed and trademarked by British osteopath Phil Parker. It makes unsubstantiated claims to be beneficial for various conditions, including ME/CFS, depression and chronic pain.

Graded exercise therapy (GET) is a programme of physical activity that starts very slowly and gradually increases over time, intended as a treatment for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Most public health bodies, including the CDC and NICE, consider it ineffective, and its safety is disputed. However, GET still enjoys support among a minority of clinicians and organizations.

David Sheffield Bell is an American physician who has done extensive research on the clinical aspects of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). He has also conducted evaluations and research in pediatric ME/CFS and written numerous articles about the condition.

Daniel Peterson is an American physician in private practice in the state of Nevada, and has been described as a "pioneer" in the treatment of Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). He graduated from the University of Rochester School of Medicine, Rochester, New York, in 1976 and was an intern and resident at the University of Utah Medical Center from 1976 to 1979. In 1979, he became a diplomate of the American Board of Internal Medicine. He is president of Sierra Internal Medicine of Incline Village, established in 1981.

The Chronic Fatigue Syndrome Advisory Committee (CFSAC) was formed in response to the use of funds by the United States Centers for Disease Control and Prevention in the study of chronic fatigue syndrome (CFS). The CFSAC was charted under the Public Health Service Act of the US and funded by the United States Department of Health and Human Services (HHS). The CFSAC advises the Secretary of Health and Human Services on issues related to its mandate, including issues related to access and care for individuals with CFS, research, public health, clinical care and education regarding CFS. In November, 2008, support for CFSAC activities was changed to the Office on Women's Health, a division of the Office of Public Health and Science. It held it first meeting in 2003.

<span class="mw-page-title-main">Myalgic encephalomyelitis/chronic fatigue syndrome</span> Chronic medical condition

Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a disabling chronic illness. People with ME/CFS experience profound fatigue that does not go away with rest, as well as sleep issues and problems with memory or concentration. The hallmark symptom is post-exertional malaise, a worsening of the illness which can start immediately or hours to days after even minor physical or mental activity. This "crash" can last from hours or days to several months. Further common symptoms include dizziness or faintness when upright and pain.

Jennifer Brea is an American documentary filmmaker and activist. Her debut feature, Unrest, premiered at the 2017 Sundance Film Festival and received the US Documentary Special Jury Award For Editing. Brea also co-created a virtual reality film which premiered at the Tribeca Film Festival.

Rosamund Vallings is a medical doctor, known as one of the leading authorities on Chronic Fatigue Syndrome (ME/CFS) in New Zealand.

<span class="mw-page-title-main">Post-exertional malaise</span> Worsening of symptoms with activity

Post-exertional malaise (PEM), sometimes referred to as post-exertional symptom exacerbation (PESE) or post-exertional neuroimmune exhaustion (PENE), is a worsening of symptoms that occurs after minimal exertion. It is the hallmark symptom of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and common in long COVID and fibromyalgia. PEM is often severe enough to be disabling, and is triggered by ordinary activities that healthy people tolerate. Typically, it begins 12–48 hours after the activity that triggers it, and lasts for days, but this is highly variable and may persist much longer. Management of PEM is symptom-based, and patients are recommended to pace their activities to avoid triggering PEM.

International May 12th Awareness Day, also known as International ME/CFS Awareness Day is held every year to raise awareness of myalgic encephalomyelitis/chronic fatigue syndrome, fibromyalgia, multiple chemical sensitivity, Gulf War syndrome and other chronic immunological and neurological diseases (CIND).

Idiopathic chronic fatigue (ICF) or chronic idiopathic fatigue or insufficient/idiopathic fatigue is a term used for cases of unexplained fatigue that have lasted at least six consecutive months and which do not meet the criteria for myalgic encephalomyelitis/chronic fatigue syndrome. Such fatigue is widely understood to have a profound effect on the lives of patients who experience it.

<span class="mw-page-title-main">DecodeME</span> Genetic study on ME/CFS

DecodeME is an ongoing genome-wide association study searching for genetic risk factors for Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). With a planned recruitment of 25,000 patients, it is expected to be the largest such study to date. Recruitment closed on 15 November 2023 and results are expected in 2025.

The Open Medicine Foundation (OMF) is a US-based charity that funds research into the illnesses myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), fibromyalgia, post-treatment Lyme disease syndrome, and long COVID.

<span class="mw-page-title-main">2-day CPET</span> Medical test for post-exertional malaise

A 2-day CPET is a cardiopulmonary exercise test given on two successive days to measure the effect of post-exertional malaise (PEM) on a patient's ability to exercise. PEM is a cardinal symptom of myalgic encephalomyelitis/chronic fatigue syndrome and is common in long COVID as well.

The PACE trial was a large and controversial trial which compared the effects of cognitive behavioural therapy (CBT), graded exercise therapy (GET), adaptive pacing therapy, and specialist medical care for people with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).

References

  1. 1 2 3 4 5 6 7 8 9 10 11 12 Lisman SR; Dougherty K (2007). Chronic Fatigue Syndrome For Dummies. John Wiley & Sons. pp.  297–302. ISBN   978-0-470-11772-9.
  2. ↑ Svenska Dagbladet, interview 2017-12-08 (in Swedish)
  3. ↑ "What About ME?" (Trailer). United Kingdom: Double D Productions. 2010. Event occurs at 3:57. Archived from the original on May 25, 2012. Retrieved 2012-05-16.
  4. ↑ Bailey, Elisabeth Tova (20 February 2011). "A Green World Deep in Winter: The Bedside Terrarium". The Yale Journal for Humanities in Medicine. Archived from the original on 2016-03-04.
  5. ↑ Cain, Paul (2007). "Ann Bannon". Leading the parade: Conversations with America's most influential lesbians and gay men. Scarecrow Press, Inc. pp. 155–163. ISBN   0-8108-5913-0
  6. ↑ "Our stories". ME Auckland. Retrieved 1 February 2016.
  7. ↑ "Henrik Berggren drabbad av kroniskt trötthetssyndrom" (Article in Swedish) http://www.aftonbladet.se/nojesbladet/musik/a/dKwyA/henrik-berggren-drabbad-av-kroniskt-trotthetssyndrom
  8. ↑ "Documentary "Der müde Stürmer"" (in German). Archived from the original on 2011-10-02. Retrieved 2008-12-09.
  9. ↑ "The story and stigma of a baffling illness: Jen Brea speaks at TEDSummit". TED Blog. 27 June 2016. Retrieved 18 July 2019.
  10. ↑ Perez AJ (2007-10-12). "Illness curtails Carmichael's motocross farewell". USA Today . Retrieved 2012-04-25.
  11. ↑ "Interview with Cher". BBC.co.uk. 2006-11-05. Retrieved 2007-10-16.
  12. ↑ "German jazz singer Roger Cicero dies, aged 45". Deutsche Welle. 29 March 2016. Retrieved 21 July 2018.
  13. ↑ Shambhala Publications (2010). "About Pema Chödrön".
  14. ↑ "Susanna Clarke cancels book tour". Adweek.com. Archived from the original on 3 May 2018. Retrieved 27 February 2020.
  15. ↑ "MPs call for action on ME". BBC. 1999-05-12. Retrieved 2008-12-12.
  16. ↑ Cohen, J (2001-03-23). "Billboard Bits: Fatboy Slim, Suede, Keb' Mo'". Billboard . Retrieved 2008-12-09.
  17. ↑ "An Update On Dianna's Health". Youtube. Retrieved 7 March 2023.
  18. ↑ "'Vindication' for woman who wanted ME on death certificate". BBC News. 27 July 2018.
  19. ↑ deutschlandfunkkultur.de. "Krisen bewältigen - Die Kraft der Hoffnung". Deutschlandfunk Kultur (in German). Retrieved 2024-07-31.
  20. ↑ Herald Sun (November 22, 2010). "TV dating host battles with fatigue".
  21. ↑ Harris K (December 16, 2010). "Blake Edwards, Versatile, Volatile Movie Director, Dies at 88". Archived from the original on December 18, 2010.
  22. ↑ A Blaze Ansuz staff (9 August 2019). "Hermetic Resistance: An Interview With Post-Industrial Artist Florian-Ayala Fauna". A Blaze Ansuz. WordPress . Retrieved 15 August 2019.
  23. ↑ Rodrigo (May 12, 2017). "CVLT Nation interviews Florian Ayala Fauna -". CVLT Nation. Blast Beat Network. Retrieved 13 May 2017.
  24. ↑ Fitzpatrick, R (2004). Red Hot Chili Peppers: Give It Away: The Stories Behind Every Song. Da Capo Press. pp.  140. ISBN   1-56025-579-X.
  25. ↑ "Clare Francis: A brief biography" . Retrieved 2008-12-09.
  26. ↑ "A Painful Life Lesson from Chronic Fatigue Syndrome | Luke Ford".
  27. ↑ "I'm Not Crazy, I'm Just A Little Unwell" . Retrieved 2008-12-09.
  28. ↑ "Biography for Susan Harris". Internet Movie Database . Retrieved 2007-10-16.
  29. ↑ Cohen, J (2009-03-23). "Billboard Bits: Fatboy Slim, Suede, Keb' Mo'". Jens Höing . Retrieved 2008-12-09.
  30. ↑ "A Sudden Illness". The New Yorker . 30 June 2003. Retrieved 2011-12-14.
  31. 1 2 "Torquay's Phillips hangs up boots". BBC. 2007-05-17. Retrieved 2008-12-10.
  32. ↑ Tuller, D (2008-04-30). "Expert Q&A, Learning Firsthand about Chronic Fatigue Syndrome". The New York Times . Archived from the original on 2009-10-13. Retrieved 2012-04-26.
  33. ↑ Vaziri, Aidin (21 July 2017). "Frankly, 3EB's Stephan Jenkins is older, wiser and doesn't give a damn". San Francisco Chronicle . p. 1. Retrieved 8 September 2023.
  34. ↑ Hooper, Malcolm; Williams, Margaret (February 2010). Magical Medicine: How to make a disease disappear (PDF) (Report).
  35. ↑ "Parliamentary business". Parliamentary Debates (Hansard) . House of Commons. 1999-05-12. col. 270.
  36. ↑ Twisk, F. N.; Maes, M. (2009). "A review on cognitive behavorial therapy (CBT) and graded exercise therapy (GET) in myalgic encephalomyelitis (ME) / chronic fatigue syndrome (CFS): CBT/GET is not only ineffective and not evidence-based, but also potentially harmful for many patients with ME/CFS". Neuro Endocrinol Letters. 30 (3): 284–299. PMID   19855350.
  37. ↑ King, Roger (2012). Love and Fatigue in America. University of Wisconsin Press. p. 254. ISBN   978-0-299-28720-7.
  38. ↑ Marshall P; Kehoe N (2001-03-16). Shattered: A Champion's Fight Against a Mystery Illness. Mainstream Publishing. ISBN   978-1-84018-395-5.
  39. ↑ Murray, E (2008-11-04). "Gretna owner Mileson dies". The Guardian. London. Retrieved 2008-12-09.
  40. 1 2 Hooper, R (2006-06-16). "First official UK death from chronic fatigue syndrome". New Scientist . Retrieved 2008-09-11.
  41. ↑ Ryan Prior (5 October 2018). "Indie pop sensation's disease became his muse". CNN. Retrieved 2020-11-04.
  42. ↑ Off The Record (2000-09-24). "Stevie Nicks Interview".
  43. ↑ Spencer, Peter (1998-05-01). "CFS: A suitable case for treatment" (PDF). The Psychologist . Vol. 11, no. 5. British Psychological Society. pp. 223–6. Retrieved 2024-10-19.
  44. ↑ Sarah Boseley (2004-04-27). "Puttnam tells of 16 years with ME". The Guardian. London. Retrieved 2009-01-06.
  45. ↑ Donald McLeod. "Composer of the Week: John Rutter". YouTube . Retrieved 2013-10-10.
  46. ↑ France, Louise (2005-05-22). "Life stories: Ali Smith". Guardian Unlimited. London. Retrieved 2007-10-16.
  47. ↑ Julia Dobrowski: "Habe gerade einen Rollstuhl beantragt": Marina Weisband über die Folgen ihres Chronischen Fatigue-Syndroms, in: , 10 January 2022, retrieved 21 September 2022.
  48. ↑ Jesse Lemisch; Naomi Weisstein (1997). "Remarks on Naomi Weisstein". Archived from the original on 2008-05-22. Retrieved 2008-04-24.
  49. ↑ Ken Wilbur (2006). "Meditate and Eat Your Veggies".
  50. ↑ Wills S (September 21, 2022). "Famous faces at Queen Elizabeth II's funeral and which royals did not attend and why".
  51. ↑ "Who is Yvette Cooper? Labour leadership contender guide". BBC News. 10 September 2015. Retrieved 30 November 2024.
  52. ↑ Gordon, Bryony (5 June 2011). "Hay festival: Yvette Cooper talks of battle with ME". The Daily Telegraph. Retrieved 30 November 2024.
  53. 1 2 Vallings, R (2019-12-18). "Chronic Fatigue Syndrome". Journal of Primary Health Care. 11 (4). The Royal New Zealand College of General Practitioners: 295–9. Retrieved 2022-09-24.
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