The Centers for Disease Control and Prevention (CDC) is the national public health agency of the United States. It is a United States federal agency under the Department of Health and Human Services, and is headquartered in Atlanta, Georgia.
Congenital rubella infection (CRI) occurs when a fetus contracts the rubella virus via maternal-fetal transmission. It can result in various outcomes ranging from asymptomatic infection to congenital defects to miscarriage and fetal death. Congenital rubella syndrome (CRS) refers to a congenital rubella infection that results in various presentations of birth anomalies. If infection occurs 0–11 weeks after conception, the infant has a 90% risk of being affected. If the infection occurs 12–20 weeks after conception, the risk is 20%. Infants are not generally affected if rubella is contracted during the third trimester. Congenital rubella syndrome was discovered in 1941 by Australian Norman McAlister Gregg.
The Agency for Toxic Substances and Disease Registry (ATSDR) is a federal public health agency within the United States Department of Health and Human Services. The agency focuses on minimizing human health risks associated with exposure to hazardous substances. It works closely with other federal, state, and local agencies; tribal governments; local communities; and healthcare providers. Its mission is to "Serve the public through responsive public health actions to promote healthy and safe environments and prevent harmful exposures." ATSDR was created as an advisory, nonregulatory agency by the Superfund legislation and was formally organized in 1985.
March of Dimes is a United States nonprofit organization that works to improve the health of mothers and babies. The organization was founded by President Franklin D. Roosevelt in 1938, as the National Foundation for Infantile Paralysis, to combat polio. The name "March of Dimes" was coined by Eddie Cantor. After funding Jonas Salk's polio vaccine, the organization expanded its focus to the prevention of birth defects and infant mortality. In 2005, as preterm birth emerged as the leading cause of death for children worldwide, research and prevention of premature birth became the organization's primary focus.
A cancer registry is a systematic collection of data about cancer and tumor diseases. The data are collected by Cancer Registrars. Cancer Registrars capture a complete summary of patient history, diagnosis, treatment, and status for every cancer patient in the United States, and other countries.
Web conferencing is used as an umbrella term for various types of online conferencing and collaborative services including webinars, webcasts, and web meetings. Sometimes it may be used also in the more narrow sense of the peer-level web meeting context, in an attempt to disambiguate it from the other types known as collaborative sessions. The terminology related to these technologies is exact and agreed relying on the standards for web conferencing but specific organizations practices in usage exist to provide also term usage reference.
The American Association for Cancer Research (AACR) is the world's oldest and largest professional association related to cancer research. Based in Philadelphia, the AACR focuses on all aspects of cancer research, including basic, clinical, and translational research into the etiology, prevention, diagnosis, and treatment of cancer. Founded in 1907 by 11 physicians and scientists, the organization now has more than 52,000 members in 130 countries and territories. The mission of the AACR is to prevent and cure cancer through research, education, communication, collaboration, science policy and advocacy, and funding for cancer research.
The European Centre for Disease Prevention and Control (ECDC) is an agency of the European Union (EU) whose mission is to strengthen Europe's defences against infectious diseases. It covers a wide spectrum of activities, such as: surveillance, epidemic intelligence, response, scientific advice, microbiology, preparedness, public health training, international relations, health communication, and the scientific journal Eurosurveillance. The centre was established in 2004 and is headquartered in Solna, Sweden.
The Information Security Forum (ISF) is an independent information security body.
EUROCAT founded in 1979, is a high quality network of population-based congenital anomaly registries across Europe for the monitoring, surveillance and research of congenital anomalies.
The Norwegian Institute of Public Health (NIPH) is a Norwegian government agency and research institute, and is Norway's national public health institute. It is subordinate to the Ministry of Health and Care Services. NIPH acts as a national competence institution in public health in a broad sense for governmental authorities, the health service, the judiciary, prosecuting authorities, politicians, the media and the general public, international organisations and foreign governments. The institute has around 1400 employees.
The Association of Public Health Laboratories (APHL) is a membership organization in the United States representing the laboratories that protect the health and safety of the public. APHL serves as a liaison between public health laboratories and federal and international agencies. Membership consists of local, state, county, and territorial public health laboratories; public health environmental, agricultural and veterinary laboratories; and corporations and individuals with an interest in public health and laboratory science. APHL is a non-profit, 501(c)(3) organization with a history of over fifty years.
Obesity Canada - Obésité Canada (OC), formerly known as the Canadian Obesity Network - Réseau canadien en obésité (CON-RCO), is a Canadian charitable organization. It connects members of the public affected by obesity, researchers, health professionals and others with an interest in obesity.
The Canadian Stroke Network (CSN) is a non-profit healthcare organization.
Workplace health surveillance or occupational health surveillance (U.S.) is the ongoing systematic collection, analysis, and dissemination of exposure and health data on groups of workers. The Joint ILO/WHO Committee on Occupational Health at its 12th Session in 1995 defined an occupational health surveillance system as "a system which includes a functional capacity for data collection, analysis and dissemination linked to occupational health programmes".
Surveillance for communicable diseases is the main public health surveillance activity in China. Currently, the disease surveillance system in China has three major components:
The Surveillance, Epidemiology, and End Results (SEER) program of the National Cancer Institute (NCI) is a source of epidemiologic information on the incidence and survival rates of cancer in the United States.
The North American Association of Central Cancer Registries, Inc. (NAACCR), established in 1987, is a collaborative umbrella organization for cancer registries, governmental agencies, professional associations, and private groups in North America interested in enhancing the quality and use of cancer registry data. All central cancer registries in the United States and Canada are members.
The European Society for Paediatric Infectious Diseases (ESPID) is a non-profit medical association registered in Germany that focuses on paediatric infectious diseases. Since its founding in 1983, it has grown to include over 1300 members, from all over Europe and beyond. ESPID forms the basis for European clinicians and scientists interested in all aspects of infectious diseases in children and their prevention. The society is engaged in a number of activities including the organization of multicentre trials, international exchange of paediatric infectious disease fellows, educational activities, and an annual scientific conference.
Wladimir Wertelecki is a Pediatrician and Medical Geneticist who in 1974 established one of the first free-standing Departments of Medical Genetics at the new South Alabama University College of Medicine in Mobile, Alabama, U.S.A. Since 1996 and following his retirement as Chairman and Emeritus Professor of Medical Genetics, Pediatrics and Pathology, he continues his investigations of developmental anomalies and their prevention as Project Scientist at the Department of Pediatrics, University of California San Diego. Since 1996, his research focused mainly on alcohol and ionizing radiation impacts on congenital anomalies. He is the author over 135 scientific reports. In 2000, he established the OMNI-Net Ukraine Programs to investigate reproductive risks posed by exposures to alcohol and Chornobyl ionizing radiation. OMNI-Net Ukraine established a population-based registry for the epidemiological surveillance of congenital anomalies and qualified to become full member of EUROCAT, a network of over 38 such registries across Europe. OMNI-Net Ukraine is the sole full member of EUROCAT conducting such investigations in regions formerly ruled by the USSR. OMNI-Net Ukraine also implements a variety of collaborative investigations with experts from the UCSD, Emory and other Universities sponsored by the Collaborative Initiative on Fetal Alcohol Spectrum Disorders funded by then National Institute on Alcohol Abuse and Alcoholism (NIH). Many components of the OMNI-Net Ukraine programs introduced by Wertelecki, were previously implemented in Alabama. He established a regional network of clinics across southern Alabama and West Florida and in 1978 organized the Southern Genetic Group which expanded into the South-Eastern Regional Genetics Group enhancing genetic services in six states. Wertelecki also contributed to the efforts by local Native-Americans to gain Federal Recognition as Native-Americans in Alabama. In 1992, he made a presentation to the US Senate regarding the reproductive risks posed by the Chornobyl radiation. Following an initial sponsorship by USAID, he established OMNI-Net programs in Ukraine, a not-for-profit network to provide training and to engage Ukrainian professionals to conduct monitoring of the frequency of birth defects. OMNI-Net teams promptly detected an epidemic of spina bifida and associated malformations collectively known as neural tube defects (NTD). The frequency of these malformations and the associated child mortality are persistently the highest in Europe. From the start, OMNI-Net advocates for Ukrainian authorities to introduce folic acid fortification programs, a measure that will significantly reduce the epidemic and related mortality. Flour fortification with folic acid is safe, effective and affordable as shown by implementations adopted by 80 countries. Currently, a legislative initiative to establish an NTD prevention program is under consideration by the Ukrainian National Parliament. OMNI-Net has also documented that thousands of pregnant women continue to accumulate in their bodies, through eating, drinking, and inhaling, radioactive elements (nuclides). Whole body counts of incorporated Cs-137 by pregnant women are much higher than in women residing away from Chornobyl radiation impacted regions. OMNI-Net teams seek national and international partners to elucidate the inherent risks of such facts. Although some reports state that Chornobyl radiation is not biologically harmful, OMNI-Net researchers note that such studies did not include pregnant women with known levels of incorporated nuclides. The association of incorporated levels of Cs-137 with prevalence of birth defects remains to be clarified. Another frequent known cause of birth defects in Ukraine is alcohol consumption by pregnant women. Since 2006, OMNI-Net has implemented an international initiative focused on fetal alcohol spectrum disorders. In summary, OMNI-Net is effectively a catalist for joint scientific collaborations of Ukrainian and International investigations.
