Shared lives

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Shared Lives, which is also known as Adult Placement in some areas, is a UK form of support and accommodation for adults with need wherein approved individuals or families open their lives to aid older or disabled persons.

Disability impairments, activity limitations, and participation restrictions

A disability is an impairment that may be cognitive, developmental, intellectual, mental, physical, sensory, or some combination of these. It substantially affects a person's life activities and may be present from birth or occur during a person's lifetime.

Disabilities is an umbrella term, covering impairments, activity limitations, and participation restrictions. An impairment is a problem in body function or structure; an activity limitation is a difficulty encountered by an individual in executing a task or action; while a participation restriction is a problem experienced by an individual in involvement in life situations. Disability is thus not just a health problem. It is a complex phenomenon, reflecting the interaction between features of a person’s body and features of the society in which he or she lives.

Over 10,000 Shared Lives carers in the UK provided care to people with a wide range of disabilities, illnesses and support needs, including people with learning disabilities, people with mental health problems, older people, care leavers (government wards aging out of care), disabled children becoming young adults, parents with learning disabilities and their children, and ex-offenders. Shared Lives carers are recruited, trained, approved, monitored and paid by one of the UK’s 150 regulated Shared Lives schemes.

Learning disability range of neurodevelopmental conditions

Learning disability or a learning disorder is a condition in the brain that causes difficulty and struggle to comprehend or process information and can be caused by several different factors. Given the "difficulty learning in a typical manner", this does not exclude the ability to learn in a different manner. Therefore, some people can be more accurately described as having a "learning difference", thus avoiding any misconception of being disabled with a lack of ability to learn and possible negative stereotyping. In the UK, the term "learning disability" generally refers to an intellectual disability, while difficulties such as dyslexia and dyspraxia are usually referred to as "learning difficulties".

Mental disorder distressing thought or behavior pattern

A mental disorder, also called a mental illness or psychiatric disorder, is a behavioral or mental pattern that causes significant distress or impairment of personal functioning. Such features may be persistent, relapsing and remitting, or occur as a single episode. Many disorders have been described, with signs and symptoms that vary widely between specific disorders. Such disorders may be diagnosed by a mental health professional.

In law, a ward is someone placed under the protection of a legal guardian.

The goal of Shared Lives is to match the individuals in need of service with others who will be compatible to them to act as 'extended family'. While generally the individual in need of support will move into the home of the carer, sometimes service is provided in their own homes, as day support, as breaks for unpaid family carers, as home from hospital care and as a stepping stone for someone who wants to get their own place.

Users

According to a Care Quality Commission report for 2009-2010, more than 10,788 people in England used Shared Lives. While the Care Quality Commission showed minor increases from the prior year, Information Centre statistics collated through different methodology showed a 36% increase in the same period. 13% of users were over 65, with the vast majority (76%) consisting of persons between 18 and 64 with learning disability. Mental health problems (7%) and physical disabilities (3%) were less represented.

The Care Quality Commission (CQC) is an executive non-departmental public body of the Department of Health and Social Care of the United Kingdom. It was established in 2009 to regulate and inspect health and social care services in England.

Use of Shared Lives is also increasing in Wales, with a 30% rise to 303 households in 2008-2009,[ citation needed ] while use in Scotland doubled between 2006 and 2009. [1]

Regulation

Shared Lives Schemes in the UK are regulated under:

Health and Social Care Act 2008

The Health and Social Care Act 2008 is an Act of the Parliament of the United Kingdom.

The Public Services Reform (Scotland) Act 2010 was an Act of the Scottish Parliament making changes to the organization of public services in Scotland. Among other provisions, it set up the development body for the arts and creative industries Creative Scotland, and the inspectorate Social Care and Social Work Improvement Scotland, which now operates under the name of the Care Inspectorate.

Shared Lives Plus

Shared Lives Plus (www.sharedlivesplus.org.uk) is the UK network for family-based and small-scale ways of supporting adults to live independently and to contribute to their families and communities. Its members are Shared Lives carers and workers, Homeshare programmes and micro-enterprises, which include a range of very small community-based services that share adult placement values and ethos.

NHS England announced the allocation of £1.75 million to support to 6 to 10 Clinical commissioning groups to develop Shared Lives schemes which:

Shared Lives Plus is to support this programme. [2]

Notes

  1. "Dementia in Scotland" (PDF). Alzheimer Scotland. April 2011. p. 6. Retrieved 6 May 2012.
  2. "NHS to bankroll development of Shared Lives support for adults in England". Community Care. 14 April 2016. Retrieved 14 April 2016.

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Care in the Community is the British policy of deinstitutionalization, treating and caring for physically and mentally disabled people in their homes rather than in an institution. Institutional care was the target of widespread criticism during the 1960s and 1970s, but it was not until 1983 that the government of Margaret Thatcher adopted a new policy of care after the Audit Commission published a report called 'Making a Reality of Community Care' which outlined the advantages of domiciled care.

Developmental disability is a diverse group of chronic conditions that are due to mental or physical impairments that arise before adulthood. Developmental disabilities cause individuals living with them many difficulties in certain areas of life, especially in "language, mobility, learning, self-help, and independent living". Developmental disabilities can be detected early on and persist throughout an individual's lifespan. Developmental disability that affects all areas of a child's development is sometimes referred to as global developmental delay.

Mental health trust

A mental health trust provides health and social care services for people with mental health disorders in England.

The Mental Welfare Commission for Scotland is a non-departmental public body, responsible for safeguarding the rights and welfare of people in Scotland with a learning disability, mental illness or other mental disorder. The Commission was original established by the Mental Health (Scotland) Act 1960.

North West Boroughs Healthcare NHS Foundation Trust is an NHS foundation trust providing mental health, learning disability and community health services in fifteen boroughs of North West England. The Trust delivers mental health and learning disability services in Halton, Knowsley, St Helens, Warrington and Wigan, as well as community-based physical health services in Halton, Knowsley, St Helens and Sefton. It also provides services to improve outcomes for people with mental vulnerabilities within the criminal justice system across Greater Manchester, working in partnership with Mitie Care and Custody and Cheshire and Greater Manchester Community Rehabilitation Company.

Care Inspectorate (Scotland)

The Care Inspectorate was set up in April 2011 by the Scottish Government as a single regulatory body for social work and social care services, including child protection and the integration of children's services. The new organisation took on work in these areas previously carried out by:

Liverpool Personal Service Society (PSS) is a UK charity covering North West England, Staffordshire, North Wales and Scotland. The charity provides a range of community based social and healthcare services, enabling people of all ages and needs to live independently within a community setting.

Turning Point is a health and social care organisation that works across mental health, learning disability, substance misuse, primary care, the criminal justice system and employment. In 2017, Turning Point won the contract to deliver sexual health services across 3 London boroughs and Autism Plus joined the Turning Point group. Many of Turning Point services are regulated by the Care Quality Commission.

Social care in England is defined as the provision of social work, personal care, protection or social support services to children or adults in need or at risk, or adults with needs arising from illness, disability, old age or poverty. The main legal definitions flow from the National Health Service and Community Care Act 1990 with other provisions covering responsibilities to informal carers. That provision may have one or more of the following aims: to protect people who use care services from abuse or neglect, to prevent deterioration of or promote physical or mental health, to promote independence and social inclusion, to improve opportunities and life chances, to strengthen families and to protect human rights in relation to people's social needs.

The National Collaborating Centre for Mental Health (NCCMH) is a collaboration between the Royal College of Psychiatrists and the Centre for Outcomes Research and Effectiveness at University College London (UCL). The NCCMH aims to promote the role of evidence synthesis in making informed judgments about healthcare policy. The NCCMH has a history of developing guidelines, conducting systematic reviews and developing implementation guidance for commissioners and service providers. Formed in 2001, on 1 April 2016 a new guideline development centre, the National Guideline Alliance, based at the Royal College of Obstetricians and Gynaecologists took over the clinical guideline programme that had been run by NCCMH.

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Heritage Care

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For many elderly carers of a relative who has a learning or other disability, future planning is an issue. The population of older parents who have children with a learning disability is growing and many of their children are likely to outlive them. In many cases the caring role can span up to seven decades, ending only with their death. Governments and other service providers cannot ignore the pressing needs of this population and their parent and sibling carers. In most countries, family carers provide inexpensive care for a person with a learning disability and other disabilities. This trend is set to continue in England. Demographic changes and the health needs of these two growing populations must be considered against government policy constraints and limited in-home and external care options in order to avoid a crisis. The consequences of not supporting these family carers will to lead to crisis management, increase in distress and care giving burdens, and increased spending on unsuitable crisis placements. Housing and financial guidance are issues for caregivers.

Disability is an issue that directly affects a significant proportion of the population of the United Kingdom. Section6(1) of the Equality Act 2010 defines disability as:

"A person has a disability for the purposes of the Act if he or she has a physical or mental impairment and the impairment has a substantial and long-term adverse effect on his or her ability to carry out normal day-to-day activities."

Professor Lord Darzi's review of the NHS in 2008 introduced the idea of personal health budgets (PHBs) in the English National Health Service. Since October 2014 people eligible for NHS Continuing Healthcare were given the legal right to have a personal health budget. NHS England’s Five Year Forward View called for a ‘major expansion’ of the scheme. NHS Choices describes personal health budgets as a way "to give people with long-term conditions and disabilities greater choice and control over the healthcare and support they receive."

The Care Provider Alliance is an informal alliance of 11 leading umbrella bodies in social care in the UK.

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