Spinal Injuries Association

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Overview: Spinal Injuries Association (SIA) is a UK-wide charity offering support, expertise and unique connections for spinal cord injured people, their friends and families. Working with a team of clinical specialists, support network coordinators and trusted legal and care partners, SIA aims to ensure a fulfilled life for everyone affected by spinal cord injury (SCI).

Based in Milton Keynes, United Kingdom, SIA’s services are available across the country. The charity has a membership of over 14,000 and is free to join. ₁ In the financial year 2021/22, the charity delivered more than 1400 support sessions and handled over 3000 calls to its free helpline. ₁ Of the charity’s 62 staff members and 20 volunteers, 45% have a spinal cord injury. ₁

Contents 1 History 2 Clinical specialist team 3 Support network coordinators 4 Campaigning and advocacy 5 Research 6 Fundraising 7 References 8 External links


1) History

SIA was founded in 1974 by Baroness Masham of Ilton, herself spinal cord injured following a riding accident, to address the lack of specialist medical care available to newly spinal cord injured people and the inadequate information and advice available to those leaving hospital.

An active member of the House of Lords and a dedicated, passionate campaigner on health and disability, Baroness Masham remains SIA’s president.

2) Clinical specialist team

Made up of specialist nurses, counsellors and an occupational therapist, SIA’s clinical specialist team provide free advice, information and support to SCI people and their families. The team also offer educational and training opportunities for healthcare professionals such as GP’s and those working in general healthcare settings on treating and caring for the unique and specific needs of patients with spinal cord injuries.


3) Support network coordinators

Led by people with spinal cord injuries themselves, SIA’s team of support network coordinators work in specialist spinal centres, hospitals and within local communities across the country to offer practical and emotional support and a positive insight into life beyond SCI, from the point of injury onwards.

The team also enable connections between SCI people and SIA’s trusted partners and business members working in the legal, financial and care sectors.

4) Campaigning and advocacy

Alongside contributing information to and delivering national campaigns such as Stop the Pressure Day, SIA provides the secretariat for the All-Party Parliamentary Group (APPG) on SCI which offers MPs an insight into issues facing the SCI community and how they can help address them.

SIA’s advocacy team assist and support on healthcare and social care casework.

5) Research

‘What Matters?’ report - SIA asks members to take part in an annual survey to determine the main barriers preventing them from living fulfilled lives. The findings are published in a yearly report and help form the basis for the charity’s activities over the course of the year. ₂

SIA supports research and innovation related to spinal cord injury and following rigorous review from their clinical specialist team, provides opportunities for members to get involved in projects requiring participants.

6) Fundraising

SIA receives income from corporate partnerships and membership, sponsorship, trusts and foundations, special events, community and challenge events, individual donations and legacies. In the financial year 2021/22, the charity raised £2,905,051.

7) References

₁ Spinal Injuries Association SIA_Annual_Report_22_Sig.pdf (spinal.co.uk) (PDF) spinal.co.uk

₂ ‘What Matters?’ report SIA_What_Matters_Report_2022.pdf (spinal.co.uk) (PDF) spinal.co.uk

8) External links

spinal.co.uk (official website) Spinal Injuries Association, registered charity no. 1054097 Charity overview, SPINAL INJURIES ASSOCIATION - 1054097, Register of Charities - The Charity Commission

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