The Inheritance (2014 film)

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The Inheritance is a 2014 documentary feature film about Huntington's disease written by Bridget Lyon and directed by Jeffrey McDonald. [1] Based in New Zealand and telling the story of Lyon's family, it features interviews with prominent researchers and advocates in the Huntington's disease field including Charles Sabine, Michael R. Hayden, Jeff Carroll and Edward Wild. It premiered at the 2014 New Zealand International Film Festival [2] and has attracted media coverage in New Zealand and Australia. [3] [4] [5]

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Huntingtons disease Inherited neurodegenerative disorder

Huntington's disease (HD), also known as Huntington's chorea, is a neurodegenerative disease that is mostly inherited. The earliest symptoms are often subtle problems with mood or mental abilities. A general lack of coordination and an unsteady gait often follow. It is also a basal ganglia disease causing a hyperkinetic movement disorder known as chorea. As the disease advances, uncoordinated, involuntary body movements of chorea become more apparent. Physical abilities gradually worsen until coordinated movement becomes difficult and the person is unable to talk. Mental abilities generally decline into dementia. The specific symptoms vary somewhat between people. Symptoms usually begin between 30 and 50 years of age but can start at any age. The disease may develop earlier in each successive generation. About eight percent of cases start before the age of 20 years, and are known as juvenile HD, which typically present with the slow movement symptoms of Parkinson's disease rather than those of chorea.

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Charles Sabine

Charles Edward Sabine, is an Emmy Award-winning television journalist who worked for the US Network NBC News for twenty-six years, before becoming a global spokesman for patients and families suffering degenerative brain diseases. He is active throughout advocacy and charity sectors across four continents and founder of the Hidden No More Foundation. He has 2 children, Roman and Sabrina.

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Edward Wild (neuroscientist) British neurologist

Edward Wild, also known as Ed Wild, is a British neurologist and neuroscientist in the field of Huntington's disease and advocate for scientific outreach to the public. He co-founded the Huntington's research news platform HDBuzz in 2010. He is a professor of neurology at UCL Institute of Neurology and is an associate director of the UCL Huntington's Disease Centre. He is also a consultant neurologist at the National Hospital for Neurology and Neurosurgery in London.

References

  1. "The Inheritance (2014)". IMDB. Retrieved 29 March 2016.
  2. "Updates". The Inheritance Documentary. Retrieved 29 March 2016.
  3. "The Inheritance Documentary". Media. Retrieved 29 March 2016.
  4. "The scary truth behind Silk Road and Huntington's disease inheritance". ABC News. 12 November 2014. Retrieved 15 April 2016.
  5. "Living every day with Huntington's". stuff.co.nz. 5 August 2014. Retrieved 15 April 2016.