Wonders & Worries

Last updated
WondersWorries Logo Stacked-Color.png
Wonders & Worries
FormationAugust 8, 2001
FounderMeredith Cooper, MA, CCLS, LPC and Melissa Hicks, MS, CCLS, LPC, RPT
Location
  • Austin, Texas
Staff
18
Website www.wondersandworries.org

Wonders & Worries is a nonprofit organization (501(c)(3)) based in Austin, Texas, that provides professional support for children through a parent's illness, such as cancer, multiple sclerosis, diabetes, Lou Gehrig's disease, posttraumatic stress disorder and Alzheimer's disease. [1] [2]

Contents

Services are provided without charge in English or Spanish by a Certified Child Life Specialist to families in Central Texas. [3] Pilot programs have been implemented in Raleigh, North Carolina; [4] Ottawa, Canada; [5] and San Antonio, Texas. A randomized clinical trial for the organization's curriculum is underway. [6]

History

Wonders & Worries was launched with the support of the Lance Armstrong Foundation (LAF), which provided funding in spring 2001 to conduct a pilot support group for children who had a parent with cancer. [7] LAF provided an additional grant in fall 2001 to expand services to include a school-age support group, an adolescent support group, individual counseling for children who have a parent with cancer, and quarterly social functions to reunite Wonders & Worries clients. [8]

Services

Individual Sessions: for children aged 2–18yrs

Group Sessions: helping children aged 5+ meet other children coping with similar experiences

Child/Parent Relationship Training Classes: teaching parents how to reconnect with their children during an illness or following a loss

Informal Support / Recreational Group Activities – allowing families to enjoy being together in a fun, relaxing environment

Bereavement Support Sessions – helping families prepare for the end of life and gain skills that will help them cope with the loss [9]

See also

Related Research Articles

Post-traumatic stress disorder (PTSD) is a mental and behavioral disorder that develops from experiencing a traumatic event, such as sexual assault, warfare, traffic collisions, child abuse, domestic violence, or other threats on a person's life or well-being. Symptoms may include disturbing thoughts, feelings, or dreams related to the events, mental or physical distress to trauma-related cues, attempts to avoid trauma-related cues, alterations in the way a person thinks and feels, and an increase in the fight-or-flight response. These symptoms last for more than a month after the event. Young children are less likely to show distress, but instead may express their memories through play. A person with PTSD is at a higher risk of suicide and intentional self-harm.

<span class="mw-page-title-main">Grief</span> Response to loss in humans and other animals

Grief is the response to the loss of something deemed important, particularly to the loss of someone or some living thing that has died, to which a bond or affection was formed. Although conventionally focused on the emotional response to loss, grief also has physical, cognitive, behavioral, social, cultural, spiritual and philosophical dimensions. While the terms are often used interchangeably, bereavement refers to the state of loss, while grief is the reaction to that loss.

Palliative care is an interdisciplinary medical caregiving approach aimed at optimizing quality of life and mitigating suffering among people with serious, complex, and often terminal illnesses. Within the published literature, many definitions of palliative care exist. The World Health Organization (WHO) describes palliative care as "an approach that improves the quality of life of patients and their families facing the problems associated with life-threatening illness, through the prevention and relief of suffering by means of early identification and impeccable assessment and treatment of pain, illnesses including other problems whether physical, psychosocial, and spiritual". In the past, palliative care was a disease specific approach, but today the WHO takes a broader patient-centered approach that suggests that the principles of palliative care should be applied as early as possible to any chronic and ultimately fatal illness. This shift was important because if a disease-oriented approach is followed, the needs and preferences of the patient are not fully met and aspects of care, such as pain, quality of life, and social support, as well as spiritual and emotional needs, fail to be addressed. Rather, a patient-centered model prioritizes relief of suffering and tailors care to increase the quality of life for terminally ill patients.

Livestrong can refer to:

Lawrence Einhorn is an American oncologist at Indiana University School of Medicine. A pioneer in cancer treatment research, Einhorn developed cisplatin-based chemotherapy regimens that increased cure rates while minimizing toxic side effects.

The Livestrong Foundation is a United States nonprofit organization that provides support for people affected by cancer. The foundation, based in Austin, Texas, was established in 1997 by cancer survivor and former professional road racing cyclist Lance Armstrong, as the Lance Armstrong Foundation. The Livestrong brand was launched by the foundation in 2003. Armstrong resigned from the foundation in 2012 after his admission of doping, leading to the rebranding of the entire organization as Livestrong Foundation.

<i>Its Not About the Bike</i> Book by Lance Armstrong

It's Not About the Bike: My Journey Back to Life is a 2000 autobiographical book by American cyclist Lance Armstrong with Sally Jenkins.

<span class="mw-page-title-main">Grief counseling</span> Therapy for responses to loss

Grief counseling is a form of psychotherapy that aims to help people cope with the physical, emotional, social, spiritual, and cognitive responses to loss. These experiences are commonly thought to be brought on by a loved person's death, but may more broadly be understood as shaped by any significant life-altering loss.

The "war on cancer" is the effort to find a cure for cancer by increased research to improve the understanding of cancer biology and the development of more effective cancer treatments, such as targeted drug therapies. The aim of such efforts is to eradicate cancer as a major cause of death. The signing of the National Cancer Act of 1971 by United States president Richard Nixon is generally viewed as the beginning of this effort, though it was not described as a "war" in the legislation itself.

<span class="mw-page-title-main">Lance Armstrong</span> American cyclist (born 1971)

Lance Edward Armstrong is an American former professional road racing cyclist. He achieved international fame for winning the Tour de France a record seven consecutive times from 1999 to 2005, but was stripped of his titles after an investigation into doping allegations, called the Lance Armstrong doping case, found he used performance-enhancing drugs over his career. Armstrong is currently banned for life from all sanctioned bicycling events.

Chai Lifeline is a chesed organization founded in 1987 by Rabbi Simcha Scholar to help families with "children battling a deadly disease."

<span class="mw-page-title-main">Ormylia Center</span>

The Ormylia Center/Foundation is located in Chalkidike, Northern Greece and its Panagia Philanthropini Center aims to make a profound difference in the lives of many underprivileged women and children living in remote communities in the area. The foundation aims to contribute towards the well being of mankind through charitable actions. The two centers of the foundation are the Panagia Philanthropini and the Art Diagnosis Center.

The Collaborative Ependymoma Research Network (CERN) Foundation is a nonprofit organization composed of scientists and adult and pediatric cancer researchers who work together to develop new treatments for ependymoma, a type of primary brain or spinal cord tumor that occurs in both children and adults, and improve the outcomes and care of patients. The organization is headquartered in Dayton, Ohio, USA.

<span class="mw-page-title-main">Lance Armstrong doping case</span> Doping scandal in professional cycling

United States Anti-Doping Agency v. Lance Armstrong, the Lance Armstrong doping case, was a major doping investigation that led to retired American road racing cyclist Lance Armstrong being stripped of his seven consecutive Tour de France titles, along with one Olympic medal, and his eventual admission to using performance-enhancing drugs. The United States Anti-Doping Agency (USADA) portrayed Armstrong as the ringleader of what it called "the most sophisticated, professionalized and successful doping program that sport has ever seen."

Trauma focused cognitive behavioral therapy (TF-CBT) is an evidence-based psychotherapy or counselling that aims at addressing the needs of children and adolescents with post traumatic stress disorder (PTSD) and other difficulties related to traumatic life events. This treatment was developed and proposed by Drs. Anthony Mannarino, Judith Cohen, and Esther Deblinger in 2006. The goal of TF-CBT is to provide psychoeducation to both the child and non-offending caregivers, then help them identify, cope, and re-regulate maladaptive emotions, thoughts, and behaviors. Research has shown TF-CBT to be effective in treating childhood PTSD and with children who have experienced or witnessed traumatic events, including but not limited to physical or sexual victimization, child maltreatment, domestic violence, community violence, accidents, natural disasters, and war. More recently, TF-CBT has been applied to and found effective in treating complex posttraumatic stress disorder.

<span class="mw-page-title-main">Winston's Wish</span>

Winston's Wish is a childhood bereavement charity in the UK. The charity offers a wide range of practical support and guidance to bereaved children, their families and professionals. The charity currently supports 40,000 bereaved children and young people per year.

Tu Nidito, meaning “your little nest” in Spanish, is a non-profit agency in Tucson, Arizona that provides support for children affected by serious medical conditions and death. The programs they offer include grief support for children and young adults that have experienced the death of a loved one, support for children with serious medical conditions, and support for children and teenagers that have a parent diagnosed with a serious medical condition, such as cancer.

<span class="mw-page-title-main">Omega Phi Gamma</span> American collegiate Asian-Interest fraternity

Omega Phi Gamma is an Asian-Interest fraternity. They strive to promote brotherhood, leadership, and service within the Asian-American community, and continue to maintain the highest levels of excellence while encouraging the growth of strong and successful men.

Child bereavement occurs when a child loses someone of importance in their life. There is substantial research regarding grief in adults, but there is less focus in literature about grief among children. Children will experience instances in their life that could involve losing a parent, sibling, or friend through suicide, unintentional injury, homicide, or natural causes. The levels of grief and bereavement differ among children, including uncomplicated and complicated bereavement. Unlike adults, children may experience and express their grief and bereavement through behaviors, and are less likely to outwardly express their emotions. The children who experience bereavement and grief can receive treatment involving group intervention, play therapy, and cognitive behavioral therapy. Different forms of treatment for children experiencing bereavement and or grief can help to reduce symptoms of anxiety, depression, social adjustment, and posttraumatic stress. Research has shown that it is important to be aware of the difficulties in predicting how losing a closed one can impact a child’s emotionality and how their coping abilities will differ across ages and cultures.

<span class="mw-page-title-main">Children's Cancer Foundation (Australia)</span>

The Children's Cancer Foundation is a registered Australian charity that supports children with cancer and their families.

References

  1. "Wonders & Worries: A family's illness. A child's journey". Hospice of Wake County. Retrieved 12 June 2013.
  2. "General Cancer Resources" . Retrieved 12 June 2013.
  3. Taylor, Lyndsey (February 28, 2013). "Kids with seriously ill parents find support". Community Impact Newspaper. Retrieved 12 June 2013.
  4. "Hosopice of Wake County creates children's counseling program". Wake Living Published Quarterly. November 23, 2010. Retrieved 12 June 2013.
  5. "It's Personal-Cancer Foundation News". Ottawa Regional Cancer Foundation. Retrieved 12 June 2013.
  6. "Wonders & Worries: A Clinical Trial of a Psychosocial Intervention for Children Who Have a Parent With Cancer - Full Text View - ClinicalTrials.gov". clinicaltrials.gov. Retrieved 2016-07-28.
  7. Balletta, Nick (18 January 2013). "Balletta: After All the Lies Can Lance Armstrong 'EmergeStrong?". CNBC .
  8. "Livestrong Milestones". Livestrong Foundation. 12 March 2016.
  9. "Wonders & Worries Services".