Alzheimer's Foundation of America

Last updated
Alzheimer's Foundation of America
Founded2002 (2002)
Coordinates 40°45′13″N73°59′57″W / 40.753685°N 73.999164°W / 40.753685; -73.999164
Area served
United States
Key people
Bert E. Brodsky (Founder & Chair)
Charles J. Fuschillo Jr. (President & CEO)
Website www.alzfdn.org

The Alzheimer's Foundation of America (AFA) is an American nonprofit organization based in New York City whose mission is to provide support, services and education to individuals, families and caregivers affected by Alzheimer's disease and related dementias nationwide, and fund research for better treatment and a cure. [1] AFA unites more than 2,000 member organizations from coast-to-coast that are dedicated to meeting the educational, social, emotional and practical needs of individuals with Alzheimer's disease and related illnesses, and their caregivers and families. Member organizations include grassroots Alzheimer's agencies, senior centers, adult daycare center, home healthcare agencies, long-term care residences, research facilities, and other dementia-related groups. AFA holds Charity Navigator's highest rating of 4 stars. [2]

Contents

Disease background

Experts believe that an estimated 5.5 million Americans have Alzheimer's disease. [3] The number of people with Alzheimer's disease doubles for every 5-year interval beyond age 65. [4] [5] The Centers for Disease Control issued a report in 2017 showing that Alzheimer's-related deaths increased by 54.5% between 1999 and 2014. [3]

Unless the disease can be effectively treated or prevented, the number of Americans with Alzheimer's disease will increase significantly; projections are that as many as 13.8 million Americans ages 65 and over will be affected by the year 2050. [3] On January 4, 2011, President Barack Obama signed into law the National Alzheimer's Project Act (NAPA), requiring the Secretary of the U.S. Department of Health and Human Services (HHS) to establish the National Alzheimer's Project to, in part, create and maintain an integrated national plan to overcome Alzheimer's disease; and accelerate the development of treatments that would prevent, halt or reverse the course of Alzheimer's disease. In May 2012, HHS released its "National Plan to Address Alzheimer's Disease". [6]

Leadership

The Alzheimer's Foundation of America was founded by Bert E. Brodsky after his experiences serving as a caregiver for his mother, Anne, who lived with Alzheimer's disease from 1980-92. Eric J. Hall was the founding CEO of the organization and put together the infrastructure which still exists to this day. He felt at that time there was little information available and nowhere to turn to for help and founded AFA with the goal of ensuring no other family living with Alzheimer's disease would have to go through the journey alone. [7]

The Alzheimer's Foundation of America's current President & Chief Executive Officer is Charles J. Fuschillo Jr.

Programs and services

The Alzheimer's Foundation of America's core programs/services [8] include:

Research and grants

AFA provides grant funding to support research toward a cure and/or better treatment for Alzheimer's disease. [18]

AFA also awards grants to its member organizations to support services in local communities. [19]

Publications

The Alzheimer's Foundation of America publishes:

The Alzheimer's Foundation of America also published a children's book, Dancing With Granddad: An Alzheimer's Story for Children and Their Families as an educational resource that adults can use to talk to a young child about Alzheimer's disease. [22]

Collaborations

The Alzheimer's Foundation of America is a member of Leaders Engaged on Alzheimer's Disease (LEAD), [23] and an Executive Committee Organization of Friends of the National Institute on Aging. [24]

Related Research Articles

<span class="mw-page-title-main">Dementia</span> Long-term brain disorders causing impaired memory, thinking and behavior

Dementia is a syndrome associated with many neurodegenerative diseases, characterized by a general decline in cognitive abilities that impacts a person's ability to perform everyday activities. This typically involves problems with memory, thinking, behavior, and motor control. Aside from memory impairment and a disruption in thought patterns, the most common symptoms of dementia include emotional problems, difficulties with language, and decreased motivation. The symptoms may be described as occurring in a continuum over several stages. Dementia ultimately has a significant effect on the individual, their caregivers, and their social relationships in general. A diagnosis of dementia requires the observation of a change from a person's usual mental functioning and a greater cognitive decline than might be caused by the normal aging process.

<span class="mw-page-title-main">Alzheimer's Society</span> United Kingdom care and research charity

Alzheimer's Society is a United Kingdom care and research charity for people with dementia and their carers. It operates in England, Wales and Northern Ireland, while its sister charities Alzheimer Scotland and Alzheimer Society of Ireland cover Scotland and the Republic of Ireland respectively.

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<span class="mw-page-title-main">Caregiver</span> Person helping another with activities of daily living

A caregiver, carer or support worker is a paid or unpaid person who helps an individual with activities of daily living. Caregivers who are members of a care recipient's family or social network, and who may have no specific professional training, are often described as informal caregivers. Caregivers most commonly assist with impairments related to old age, disability, a disease, or a mental disorder.

As populations age, caring for people with dementia has become more common. Elderly caregiving may consist of formal care and informal care. Formal care involves the services of community and medical partners, while informal care involves the support of family, friends, and local communities. In most mild-to-medium cases of dementia, the caregiver is a spouse or an adult child. Over a period of time, more professional care in the form of nursing and other supportive care may be required medically, whether at home or in a long-term care facility. There is evidence to show that case management can improve care for individuals with dementia and the experience of their caregivers. Furthermore, case management may reduce overall costs and institutional care in the medium term. Millions of people living in the United States take care of a friend or family member with Alzheimer’s disease or a related dementia.

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<span class="mw-page-title-main">Family Caregiver Alliance</span> American nonprofit organization

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<span class="mw-page-title-main">Alzheimer Society of Canada</span> Canadian health charity

The Alzheimer Society of Canada (ASC) is a Canadian health charity for people living with Alzheimer's disease and other dementias. Active in communities right across Canada, the Society partners with Alzheimer Societies in every Canadian province to offer information, support and education programs for people with dementia, their families and caregivers. The Alzheimer Society of Canada acts as the national voice for the thousands of Canadians living with dementia and advocates on their behalf for positive change. The Society also funds young and established Canadian researchers working to find the causes and a cure through the Alzheimer Society Research Program.

Memory Bridge, founded in 2004 as The Foundation for Alzheimer's and Cultural Memory, is an American nonprofit organization that creates programs that connect people with Alzheimer's disease to family, friends, and other people in their local community.

Caregiver syndrome or caregiver stress is a condition that strongly manifests exhaustion, anger, rage, or guilt resulting from unrelieved caring for a chronically ill patient. This condition is not listed in the United States' Diagnostic and Statistical Manual of Mental Disorders, although the term is often used by many healthcare professionals in that country. The equivalent used in many other countries, the ICD-11, does include the condition.

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<span class="mw-page-title-main">Mercè Boada Rovira</span> Catalan neurologist

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References

  1. "Mission & History". 4 April 2017.
  2. "Charity Report - Alzheimer's Foundation of America - Charity Navigator". www.charitynavigator.org.
  3. 1 2 3 Taylor, Christopher A. (1 June 2019). "Deaths from Alzheimer's Disease — United States, 1999–2014". MMWR. Morbidity and Mortality Weekly Report. 66 (20): 521–526. doi:10.15585/mmwr.mm6620a1. PMC   5657871 . PMID   28542120 via www.cdc.gov.
  4. "Basics of Alzheimer's Disease and Dementia". National Institute on Aging.
  5. 10 Things You Should Know, PBS Newshour, May 29, 2013
  6. "National Plan to Address Alzheimer's Disease". ASPE. 23 November 2015.
  7. "Alzheimer's Foundation of America: Making a Difference Since 2002" (PDF). Alzfdn.org. Retrieved 2021-03-21.
  8. "Alzheimer's Foundation of America: Making a Difference Since 2002" (PDF). Alzfdn.org. Retrieved 2021-03-21.
  9. "Alzheimer's Foundation of America | Caregiving Resources". Alzfdn.org. 2017-03-30. Retrieved 2019-06-01.
  10. "Alzheimer's Foundation of America | Memory Screening". Alzfdn.org. Retrieved 2019-06-01.
  11. Kim, Kyndrell (January 23, 2021). "Pandemic isolation detrimental to those with Alzheimer's". KSNV. Retrieved March 23, 2021.
  12. "Caregiver Support Groups". Alzfdn.org. Retrieved 2019-06-01.
  13. "Educational Workshops & Training". Alzfdn.org. Retrieved 2021-03-21.
  14. "AFA Teens and AFA on Campus". Archived from the original on 2013-12-28. Retrieved 2014-02-07.
  15. Sisson, Paul (February 12, 2018). "Alzheimer's educational tour to kick off in San Diego on Feb. 20". San Diego Union-Tribune . Retrieved July 2, 2018.
  16. "Alzheimer's Foundation of America | Education and Resource Center". Alzfdn.org. Retrieved 2019-06-01.
  17. Murray, Rheana (July 16, 2021). "Take a tour of this dementia-friendly home aiming to help people with Alzheimer's". The Today Show . Retrieved September 14, 2021.
  18. "Our Research Projects". 10 January 2018.
  19. "Grant Information". 23 March 2021.
  20. "Alzheimer's Foundation of America | Alzheimer's TODAY Magazine". Alzfdn.org. Retrieved 2021-09-14.
  21. "E-Newsletter". 4 April 2017.
  22. Bowen, Alison (October 19, 2020). "How to talk to children about a relative diagnosed with Alzheimer's". Chicago Tribune . Retrieved March 23, 2021.
  23. "Leaders Engaged on Alzheimer's Disease (LEAD Coalition)". Leaders Engaged on Alzheimer's Disease. 24 November 2017.
  24. "FoNIA Executive Committee Organizations". Friends of the National Institute on Aging. 23 March 2021.