Medical Apartheid

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Medical Apartheid
Medical Apartheid (book cover).jpg
Paperback edition cover
Author Harriet A. Washington
CountryUnited States
LanguageEnglish
Subject Unethical human experimentation in the United States
GenreNon-fiction
PublisherDoubleday
Publication date
9 January 2007
Media typePrint, e-book
Pages512 pp.
ISBN 978-0385509930

Medical Apartheid: The Dark History of Medical Experimentation on Black Americans from Colonial Times to the Present is a 2007 book by Harriet A. Washington. It is a history of medical experimentation on African Americans. From the era of slavery to the present day, this book presents the first detailed account of black Americans' abuse as unwitting subjects of medical experimentation. [1] [2]

Contents

Synopsis

Medical Apartheid traces the complex history of medical experimentation on Black Americans in the United States since the middle of the eighteenth century. Harriet Washington argues that "diverse forms of racial discrimination have shaped both the relationship between white physicians and black patients and the attitude of the latter towards modern medicine in general". [3]

The book is divided into three parts: the first is about the cultural memory of medical experimentation; the second examines recent cases of medical abuse and research; while the last addresses the complex relationship between racism and medicine. Some topics discussed are well-known, such as the Tuskegee syphilis experiment (1932–1972), in which African Americans with the disease were intentionally denied treatment (without being told) in order to allow the progression of the disease so it could be observed in all stages, but other episodes are less well known to the general public. [3] The book also mentions cases of medical experimentation in Africa and their links to African-American cases.

Topics covered

James Marion Sims

James Marion Sims, born in Hanging Rock, South Carolina, was widely considered to be the "father of gynecology". Washington uses her book to expose Sims by detailing the misdiagnosis of the medical conditions which his patients suffered from during his medical training and the mistreatment of black slave women that led to his medical breakthrough.

In the beginning of its excerpt on Sims, the book details how he would blame the wrong parties for diseases and infections, such as neonatal tetanus. Neonatal tetanus is a bacterial disease which is caused by animal manure and it grows in wounds such as umbilical stumps. Instead of blaming the slave owners for not providing proper and clean living areas for these slaves to live in, Sims blamed slave women's supposed laziness as the cause of their diseases.

Washington also mentioned the exploitation of black slave bodies when she talked about the mistreatment of black infants during the 1800s. Sims used their bodies for tetany experiments. [4] Sims determined through his research that the cause of tetany in the babies was a result of the movement of skull bones during birth. In order to test his theory, he took a black baby and, using a shoemaker's tools, opened the baby's brain based on his belief that black babies' skulls grew faster than the skulls of white babies, preventing their brains from growing or developing. Most of the babies died and he blamed their deaths on their supposed lack of intelligence.

The most infamous example of Sims' medical malpractice was his research on vesicovaginal fistulas. Sims acquired four female slaves and used their bodies in order to find a cure for the complication of childbirth. Sims put the slave women through painful surgeries without giving any of them anesthesia and he was eventually able to find the cure. As Washington said in the book, "he claimed that his procedures were 'not painful enough to justify the trouble and risk of attending the administration,' but this claim rings hollow when one learns that Sims always administered anesthesia when he performed the perfected surgery to repair the vaginas of white women in Montgomery a few years later. Sims also cited the popular belief that blacks did not feel pain in the same way as whites." (7) Despite this, he received much fame and attention for his breakthrough. Because of his use of black women, Sims was eventually able to help white women who experienced vesicovaginal fistulas, but black women still did not have access to these treatments and many of them died from the same disease that the slave women helped to cure. Along with not giving them anesthesia, he mistreated the women, making them completely undress, then kneel on their hands and knees while doctors examined their vaginas.

Awards

Medical Apartheid won the 2007 National Book Critics Circle Award for Nonfiction. Harriet Washington has been a fellow in ethics at the Harvard Medical School (HMS), a fellow at the Harvard School of Public Health, and a senior research scholar at the National Center for Bioethics at Tuskegee University. [5]

See also

Related Research Articles

<span class="mw-page-title-main">Gynaecology</span> Science of the treatment of diseases of the female sexual organs and reproductive tract

Gynaecology or gynecology is the area of medicine that involves the treatment of women's diseases, especially those of the reproductive organs. It is often paired with the field of obstetrics, forming the combined area of obstetrics and gynaecology (OB-GYN).

<span class="mw-page-title-main">Tuskegee Syphilis Study</span> 1932–1972 human experiment in Alabama, United States

The Tuskegee Study of Untreated Syphilis in the Negro Male was a study conducted between 1932 and 1972 by the United States Public Health Service (PHS) and the Centers for Disease Control and Prevention (CDC) on a group of nearly 400 African American men with syphilis. The purpose of the study was to observe the effects of the disease when untreated, though by the end of the study medical advancements meant it was entirely treatable. The men were not informed of the nature of the experiment, and more than 100 died as a result.

<span class="mw-page-title-main">Fistula</span> Abnormal connection between two epithelialized surfaces, often organs

In anatomy, a fistula is an abnormal connection joining two hollow spaces, such as blood vessels, intestines, or other hollow organs to each other, often resulting in an abnormal flow of fluid from one space to the other. An anal fistula connects the anal canal to the perianal skin. An anovaginal or rectovaginal fistula is a hole joining the anus or rectum to the vagina. A colovaginal fistula joins the space in the colon to that in the vagina. A urinary tract fistula is an abnormal opening in the urinary tract or an abnormal connection between the urinary tract and another organ. An abnormal communication between the bladder and the uterus is called a vesicouterine fistula, while if it is between the bladder and the vagina it is known as a vesicovaginal fistula, and if between the urethra and the vagina: a urethrovaginal fistula. When occurring between two parts of the intestine, it is known as an enteroenteral fistula, between the small intestine and the skin as an enterocutaneous fistula, and between the colon and the skin as a colocutaneous fistula.

<span class="mw-page-title-main">Obstetric fistula</span> Hole that develops in the birth canal as a result of childbirth

Obstetric fistula is a medical condition in which a hole develops in the birth canal as a result of childbirth. This can be between the vagina and rectum, ureter, or bladder. It can result in incontinence of urine or feces. Complications may include depression, infertility, and social isolation.

Medical torture describes the involvement of, or sometimes instigation by, medical personnel in acts of torture, either to judge what victims can endure, to apply treatments which will enhance torture, or as torturers in their own right. Medical torture overlaps with medical interrogation if it involves the use of professional medical expertise to facilitate interrogation or corporal punishment, in the conduct of torturous human experimentation or in providing professional medical sanction and approval for the torture of prisoners. Medical torture also covers torturous scientific experimentation upon unwilling human subjects.

<span class="mw-page-title-main">J. Marion Sims</span> American physician and gynecologist (1813-1883)

James Marion Sims was an American physician in the field of surgery. His most famous work was the development of a surgical technique for the repair of vesicovaginal fistula, a severe complication of obstructed childbirth. He is also remembered for inventing the Sims speculum, Sims sigmoid catheter, and the Sims position. Against significant opposition, he established, in New York, the first hospital specifically for women. He was forced out of the hospital he founded because he insisted on treating cancer patients; he played a small role in the creation of the nation's first cancer hospital, which opened after his death.

Joice Heth was an African-American woman who was exhibited by P.T. Barnum with the false claim that she was the 161-year-old nursing mammy of George Washington. Her exhibition under these claims, and her public autopsy, gained considerable notoriety.

<span class="mw-page-title-main">Vesicovaginal fistula</span> Female urogenital fissure

Vesicovaginal fistula (VVF) is a subtype of female urogenital fistula (UGF).

The health of slaves on American plantations was a matter of concern to both slaves and their owners. Slavery had associated with it the health problems commonly associated with poverty. It was to the economic advantage of owners to keep their working slaves healthy, and those of reproductive age reproducing. Those who could not work or reproduce because of illness or age were sometimes abandoned by their owners, expelled from plantations, and left to fend for themselves.

<span class="mw-page-title-main">History of surgery</span>

Surgery is the branch of medicine that deals with the physical manipulation of a bodily structure to diagnose, prevent, or cure an ailment. Ambroise Paré, a 16th-century French surgeon, stated that to perform surgery is, "To eliminate that which is superfluous, restore that which has been dislocated, separate that which has been united, join that which has been divided and repair the defects of nature."

<span class="mw-page-title-main">Nazi human experimentation</span> Unethical experiments on human subjects

Nazi human experimentation was a series of medical experiments on prisoners by Nazi Germany in its concentration camps mainly between 1942 and 1945. There were 15,754 documented victims, of various nationalities and age groups, although the true number is believed to be more extensive. Many survived, with only a quarter of documented victims killed. Survivors generally experienced severe permanent injuries.

<span class="mw-page-title-main">Unethical human experimentation in the United States</span>

Numerous experiments which are performed on human test subjects in the United States are considered unethical, because they are performed without the knowledge or informed consent of the test subjects. Such tests have been performed throughout American history, but some of them are ongoing. The experiments include the exposure of humans to many chemical and biological weapons, human radiation experiments, injections of toxic and radioactive chemicals, surgical experiments, interrogation and torture experiments, tests which involve mind-altering substances, and a wide variety of other experiments. Many of these tests are performed on children, the sick, and mentally disabled individuals, often under the guise of "medical treatment". In many of the studies, a large portion of the subjects were poor, racial minorities, or prisoners.

African countries have been sites for clinical trials by large pharmaceutical companies, raising human rights concerns. Incidents of unethical experimentation, clinical trials lacking properly informed consent, and forced medical procedures have been claimed and prosecuted.

<span class="mw-page-title-main">Harriet A. Washington</span> American journalist and historian

Harriet A. Washington is an American writer and medical ethicist. She is the author of the book Medical Apartheid, which won the 2007 National Book Critics Circle Award for Nonfiction. She has also written books on environmental racism and the erosion of informed consent in medicine.

<span class="mw-page-title-main">Eunice Rivers Laurie</span> American nurse (1899–1986)

Eunice Verdell Rivers Laurie (1899–1986) was an African American nurse who worked in the state of Alabama. She is known for her work as one of the nurses of the U.S. Public Health Service Syphilis Study in Macon County from 1932 to 1972.

Unethical human experimentation is human experimentation that violates the principles of medical ethics. Such practices have included denying patients the right to informed consent, using pseudoscientific frameworks such as race science, and torturing people under the guise of research. Around World War II, Imperial Japan and Nazi Germany carried out brutal experiments on prisoners and civilians through groups like Unit 731 or individuals like Josef Mengele; the Nuremberg Code was developed after the war in response to the Nazi experiments. Countries have carried out brutal experiments on marginalized populations. Examples include American abuses during Project MKUltra and the Tuskegee syphilis experiments, and the mistreatment of indigenous populations in Canada and Australia. The Declaration of Helsinki, developed by the World Medical Association (WMA), is widely regarded as the cornerstone document on human research ethics.

<span class="mw-page-title-main">Statue of J. Marion Sims</span>

J. Marion Sims is a bronze sculpture depicting the American physician of the same name by Ferdinand Freiherr von Miller.

Anarcha Westcott was an enslaved woman who underwent a series of experimental surgical procedures conducted by physician J. Marion Sims, without the use of anesthesia, to treat a combination of vesicovaginal fistula and rectovaginal fistula. Sims's medical experimentation with Anarcha and other enslaved women, and its role in the development of modern gynaecology, has generated controversy among medical historians.

Race adjustment, also known as race-correction, is the calculating of a result which takes into account race. It is commonly used in medical algorithms in several specialties, including cardiology, nephrology, urology, obstetrics, endocrinology, oncology and respiratory medicine. Examples include the eGFR to assess kidney function, the STONE score for the prediction of kidney stones, the FRAX tool, to evaluate the 10-year probability of bone fracture risk, and lung function tests, to identify the severity of lung disease.

References

  1. Medical Apartheid: The Dark History of Medical Experimentation on Black Americans from Colonial Times to the Present Google Books.
  2. Alondra Nelson. Unequal Treatment: How African Americans have often been the unwitting victims of medical experiments The Washington Post, January 7, 2007.
  3. 1 2 Medical Apartheid: The Dark History of Medical Experimentation on Black Americans from Colonial Times to the Present Social History of Medicine (2007) 20 (3): 620-621.
  4. Holland, Brynn (4 December 2018). "The 'Father of Modern Gynecology' Performed Shocking Experiments on Slaves". HISTORY. Retrieved 2018-12-13.
  5. Medical Apartheid