International Bureau for Epilepsy

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International Bureau for Epilepsy
International Bureau for Epilepsy Logo IBE-Social-300.png
International Bureau for Epilepsy Logo
IBE logo

The International Bureau for Epilepsy (IBE) is a non-for-profit started in 1961 [1] which aims to improve the social condition and quality of life of people with epilepsy. [2] The organization addresses social problems such as employment, education, driving license restrictions and public awareness. [3] Its members are from both the lay public and a professional background. [4] IBE has a network of 140 chapters in 100 countries [5] and often collaborates with the International League Against Epilepsy (ILAE) to increase understanding about epilepsy. [6]

Contents

The organization along with the World Health Organization and ILAE runs the "Global Campaign Against Epilepsy". [7] This campaign was started in 1997 to increase countries efforts to deal with issues facing those with epilepsy. [8]

Global Chapters

The International Bureau for Epilepsy consists of chapters representing national epilepsy associations globally, organized into seven regional structures. [9]

International Epilepsy Day

Each year on the second Monday of February the IBE and the ILAE organize International Epilepsy Day, aimed at raising awareness and which drives the implementation of the World Health Organization's (WHO) 10-year Intersectoral Global Action Plan on Epilepsy and other Neurological Disorders (IGAP). [10]

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Epilepsy is a group of non-communicable neurological disorders characterized by recurrent epileptic seizures. An epileptic seizure is the clinical manifestation of an abnormal, excessive, and synchronized electrical discharge in the neurons. The occurrence of two or more unprovoked seizures defines epilepsy. The occurrence of just one seizure may warrant the definition in a more clinical usage where recurrence may be able to be prejudged. Epileptic seizures can vary from brief and nearly undetectable periods to long periods of vigorous shaking due to abnormal electrical activity in the brain. These episodes can result in physical injuries, either directly such as broken bones or through causing accidents. In epilepsy, seizures tend to recur and may have no detectable underlying cause. Isolated seizures that are provoked by a specific cause such as poisoning are not deemed to represent epilepsy. People with epilepsy may be treated differently in various areas of the world and experience varying degrees of social stigma due to the alarming nature of their symptoms.

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References

  1. "Mission, Objectives and Strategy for Epilepsy". International Bureau for Epilepsy. Archived from the original on 8 January 2014. Retrieved 10 January 2014.
  2. "'About Us'". International Bureau for Epilepsy. 11 April 2024.
  3. "IBE - International Bureau for Epilepsy". European Patients Forum. 17 April 2024.
  4. "International epilepsy organisations" . Retrieved 10 January 2014.
  5. Trinka, Eugen (7 September 2020). "Joint Statement for the International League Against Epilepsy (ILAE) and the International Bureau for Epilepsy (IBE)" (PDF). World Health Organisation. Retrieved 11 April 2024.
  6. "Epilepsy.org" . Retrieved 14 May 2014.
  7. al.], Jerome Engel ... [et (2005). Epilepsy global issues for the practicing neurologist. New York, N.Y.: Demos Medical Pub. p. 138. ISBN   9781934559123.
  8. Prasher, edited by Vee P.; Kerr, Mike P. (2008). Epilepsy and intellectual disabilities. New York: Springer. p. 212. ISBN   9781848002593.{{cite book}}: |first= has generic name (help)
  9. "IBE Chapters". International Bureau for Epilepsy. 11 April 2024.
  10. "International Epilepsy Day". International Epilepsy Day. 17 April 2024.