African Palliative Care Association

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African Palliative Care Association
AbbreviationAPCA
Formation2004
Founded at Arusha, Tanzania
Type Non-governmental organisation
Focus Palliative care, health systems strengthening
Headquarters Kampala, Uganda
Region served
Africa
Executive Director
Dr. Eve Namisango
Website africanpalliativecare.org

The African Palliative Care Association (APCA) is a pan-African non-governmental organisation headquartered in Kampala, Uganda, dedicated to promoting and supporting the integration of palliative care into health systems across Africa. Founded in 2004 following the Cape Town Declaration (2002), APCA works to ensure access to pain relief and palliative care as a human right for all Africans with life-limiting illnesses. [1]

Contents

APCA serves as the continental coordinating body for palliative care development, providing technical assistance, advocacy, and capacity building to member organisations across sub-Saharan Africa. The association currently operates under a 2020–2030 Strategic Framework aligned with the World Health Organization's health system building blocks and Universal Health Coverage (UHC) goals, and is set to contribute to the SDGs health goals. [2] In 2024–2025, APCA marked its 20th anniversary, celebrating two decades of advocacy that contributed to the integration of palliative care into national health policies in over 20 African countries. [3]

History

Origins and foundation (2002–2004)

APCA's origins trace to November 2002, when 28 palliative care trainers from 15 African countries convened in Cape Town, South Africa, to address the critical need for regional cooperation in palliative care development. This meeting produced the Cape Town Declaration, which established palliative care, pain management, and symptom control as fundamental human rights for adults and children with life-limiting illnesses. [4] [5]

Following two years of interim coordination, APCA was formally established in Arusha, Tanzania in 2004 as a pan-African non-governmental organisation, with initial support from the Diana, Princess of Wales Memorial Fund and the Open Society Foundations. [6]

Expansion and institutional development (2005–2019)

During its first decade, APCA focused on developing training curricula, establishing national palliative care associations, and advocating for policy changes regarding access to essential medicines, particularly opioids for pain management. The organisation developed key partnerships with Human Rights Watch, the World Health Organization, and the African Union, [7] [8] as well as with other global and regional hospice palliative care associations.

Under founding Executive Director Dr. Faith Mwangi-Powell (2004–2012), APCA established the Palliative Care Handbook for Africa and developed training programmes reaching thousands of healthcare workers across the continent. [9]

Strategic transformation and 20th anniversary (2020–present)

In 2020, APCA launched its current Strategic Framework (2020–2030), shifting focus from palliative care as a standalone service to comprehensive chronic care integrated within national health systems and UHC schemes.This framework emphasises the WHO building blocks: [10]

APCA marked its 20th anniversary in 2024, celebrating two decades of advocacy and programming that contributed to the integration of palliative care into national health policies in over 20 African countries and the establishment of palliative care education in numerous medical and nursing schools. [11] In October 2025, the organisation marked a leadership transition with the retirement of executive director Dr. Emmanuel Luyirika after 13 years of service. [12]

Mission and strategic framework

APCA's mission is to ensure that palliative and comprehensive chronic care are widely understood and integrated into health systems at all levels, to reduce pain and suffering across Africa. The organisation's 2020–2030 Strategic Framework is built on four strategic objectives: [13]

  1. Increasing knowledge and awareness: Developing tailored information resources and convening forums to address the continuum of care from health promotion to disease prevention, diagnosis, treatment, rehabilitation, and palliation.
  2. Strengthening health systems: Supporting national policy frameworks, health workforce development, and integration of palliative care into primary healthcare and UHC schemes.
  3. Building the evidence base: Supporting research priorities, expanding the African Palliative Care Research Network (APCRN), and establishing the APCA Centre of Research and Excellence.
  4. Ensuring sustainability: Developing diversified financing mechanisms, tiered membership structures, and hybrid funding models to ensure organisational and programmatic sustainability.

Leadership

Current executive director

Dr. Eve Namisango has served as Executive Director since October 2025, succeeding Dr. Emmanuel Luyirika following his retirement after 13 years of service. Dr. Namisango previously served as APCA's Head of Programmes and Research, where she led the development of the African Children's Palliative Care Outcome Scale (APCA C-POS)—a novel outcome measure now used in over 2,000 children across three demonstration sites in Uganda and adapted for use in Europe, Asia, and the Middle East. [14] [15]

Dr. Namisango is a researcher in palliative care outcomes and implementation science, with experience in health systems strengthening across Africa. She has led multi-country initiatives and partnerships with institutions including King's College London, the University of Leeds, and the National Institute for Health Research (NIHR). Under her leadership, APCA continues to advance digital health innovations such as the Mpalliative app and research translation into policy. [16]

Previous executive directors

Governance

APCA is governed by a Board of Directors comprising representatives from across Africa, including palliative care practitioners, policymakers, legal experts, and civil society leaders. The Board provides strategic oversight while the Kampala-based Secretariat manages day-to-day operations, regional technical assistance, and coordination with national palliative care associations. [19]

How APCA works

APCA functions as a pan-African coordinating body and technical assistance hub, operating through four primary mechanisms: [20]

Membership and network coordination

APCA operates a tiered membership structure comprising:

As of 2024–2025, APCA's membership includes over 6,300 individuals and institutions across Africa and globally. [21]

Technical assistance and health systems integration

APCA provides demand-driven technical assistance to governments and health systems through policy development, standard setting, and systems strengthening. The organisation employs a "catalyst" model, working alongside national governments to build sustainable capacity rather than establishing parallel service delivery systems. [22]

Knowledge management and learning

APCA serves as the continental repository for palliative care evidence through the APCA African Palliative Care Database, communities of practice, and editorial oversight of the Africa edition of ehospice, an online global palliative care news platform. [23]

Advocacy and coalition building

APCA coordinates multi-stakeholder advocacy targeting medicines access, policy integration, and human rights engagement with the African Commission on Human and Peoples' Rights. [24]

Programmes and activities

Capacity building and technical assistance

APCA provides technical assistance to ministries of health to develop national palliative care policies and integrate services into disease-specific programmes including HIV/AIDS, cancer, and non-communicable diseases. The organisation has supported over 31 training institutions to integrate palliative care into medical and nursing curricula. [25]

Medicines access and policy advocacy

A core focus involves advocating for improved access to essential controlled medicines for pain management. APCA has supported seven countries—Botswana, Ghana, Eswatini, Rwanda, Mozambique, Kenya, and Nigeria—to establish local oral morphine reconstitution capabilities. [26] APCA continues to support other countries, including the Democratic Republic of the Congo and Togo, which are currently in the process of doing so.

Research and evidence generation

APCA hosts the African Palliative Care Research Network (APCRN), which has grown to over 400 members. The organisation has implemented 45 research projects resulting in over 200 peer-reviewed publications, including in The Lancet Global Health . In 2025, APCA launched the APCA Centre of Research and Excellence, establishing regional hubs at Makerere University (East Africa), University of Ibadan (West Africa), University of Cape Town (Southern Africa), and Cairo University (North Africa). [27] [28]

Service delivery support

Through the True Colours Trust Small Grants Programme, APCA has awarded 295 sub-grants to palliative care providers across 29 African countries, supporting 1,873 adult patients and 137 children with palliative care services in the 2024–2025 period alone. [29]

Digital health innovation

APCA partnered with Leeds University and MRT IT Peaks to develop the Mpalliative app, enabling patients and families to self-report symptoms from home with real-time data transmission to clinicians. This innovation won the 2025 APCA Innovation Award. [30]

Partnerships and collaborations

APCA collaborates with multilateral organisations, governments, and civil society groups including: [31]

Partner typeOrganisations
World Health Organization (WHO)Technical collaboration on normative guidelines and essential medicines lists
African Union & Africa CDC Integration of palliative care into continental health strategies
Academic institutions Makerere University, University of Cape Town, King's College London, University of Leeds, University of Navarra (ATLANTES Global Observatory)
Philanthropic partnersTrue Colours Trust, Open Society Foundations, Global Partners in Care, Irish Hospice Foundation
Professional networksWorldwide Hospice Palliative Care Alliance (WHPCA), International Association for Hospice and Palliative Care (IAHPC), International Children's Palliative Care Network (ICPCN)
Government partnershipsMinistries of Health in Botswana, Kenya, Malawi, Rwanda, Uganda, Zambia, and others

Impact and recognition

APCA's advocacy and technical assistance have contributed to: [32]

Publications

APCA has produced several key resources for palliative care development in Africa: [35]

References

  1. "About APCA". African Palliative Care Association. Retrieved 3 March 2026.
  2. "APCA Strategic Framework 2020–2030". African Palliative Care Association. 2020.
  3. APCA Celebrates 20 Years. Annual Report 2024–2025 (Report). African Palliative Care Association.
  4. "The Palliative Care Trainers Declaration of Cape Town November 13, 2002". Journal of Palliative Medicine. 6 (3): 339–340.
  5. "Cape Town Declaration". African Palliative Care Association.
  6. "Partners: APCA". True Colours Trust. Retrieved 3 March 2026.
  7. Human Rights Watch (2010). "Needless Pain: Government Failure to Provide Palliative Healthcare for Children in Kenya".
  8. "Palliative Care as a Human Right". Open Society Foundations. Retrieved 3 March 2026.
  9. "Dr. Faith Mwangi-Powell". Girls Not Brides. Retrieved 3 March 2026.
  10. "Comprehensive Chronic Care: APCA Strategic Direction 2020–2030". African Palliative Care Association.
  11. APCA 20th Anniversary Commemorations. Annual Report 2024–2025 (Report).
  12. Luyirika, E. Message from the Executive Director. Annual Report 2024–2025 (Report).
  13. "APCA Strategic Plan 2020–2030". African Palliative Care Association.
  14. Dr. Eve Namisango appointed Executive Director (Report). APCA Communications. October 2025.; Foreword from the Executive Director. 8th International African Palliative Care Conference Report (Report). 2025.
  15. Using the novel African Children's Palliative Care Outcome Scale. Annual Report 2024–2025 (Report).
  16. Head of Programmes and Research. Annual Report 2024–2025 (Report).
  17. ehospice (August 2012). "Merging medicine and management, Dr Emmanuel Luyirika".
  18. "Dr. Faith Mwangi-Powell appointed CEO of Girls Not Brides". Girls Not Brides. 2019.
  19. "Governance". African Palliative Care Association. Retrieved 3 March 2026.
  20. "How We Work". African Palliative Care Association. Retrieved 3 March 2026.
  21. APCA Membership. Annual Report 2024–2025 (Report).
  22. Technical Assistance Framework. APCA Strategic Plan 2020–2030 Implementation Guide (Report).
  23. "ehospice Africa". African Palliative Care Association. Retrieved 3 March 2026.
  24. "Resolution on the Right to Palliative Care in Africa". African Commission on Human and Peoples' Rights. ACHPR/Res. 392 (LX) 2017.
  25. Health Workforce Development. APCA Achievements 2004–2025 (Report).
  26. Access to Essential Medicines. Annual Report 2024–2025 (Report).
  27. Building the Evidence Base. APCA Achievements 2004–2025 (Report).
  28. Report on the Official Launching of the Centre of Research and Excellence. 8th International African Palliative Care Conference (Report). 2025.
  29. Service Delivery. Annual Report 2024–2025 (Report).
  30. Medical Products, Vaccines, and Technologies. Annual Report 2024–2025 (Report).; Innovation Awards. 8th International African Palliative Care Conference Report (Report). 2025.
  31. "Partners and Collaborators". African Palliative Care Association. Retrieved 3 March 2026.
  32. APCA Achievements 2004–2025 (Report).
  33. "Resolution 392 (LX) 2017". African Commission on Human and Peoples' Rights.
  34. "APCA Atlas for Palliative Care in Africa 2025". University of Navarra ATLANTES Global Observatory.
  35. "Publications and Resources". African Palliative Care Association. Retrieved 3 March 2026.