American Association on Intellectual and Developmental Disabilities

Last updated

American Association on Intellectual and Developmental Disabilities
AbbreviationAAIDD
Founded1876
06-0636098 [1]
Legal status 501(c)(3) [1]
PurposeTo promote progressive policies, sound research, effective practices, and universal human rights for people with intellectual and developmental disabilities.
Location
Dan Zhang [3]
Margaret Nygren [3]
Revenue (2020)
$2,970,307 [4]
Expenses (2020)$3,176,466 [4]
Employees (2020)
15 [4]
Volunteers (2020)
20 [4]
Website www.aaidd.org
Formerly called
Association of Medical Officers of American Institutions for Idiotic and Feebleminded Persons,
American Association for the Study of the Feebleminded,
American Association on Mental Deficiency,
American Association on Mental Retardation

The American Association on Intellectual and Developmental Disabilities (AAIDD) is an American non-profit organization focusing on intellectual disability and related developmental disabilities. AAIDD has members in the United States and more than 50 other countries.

Contents

History

The AAIDD was founded in 1876 by Édouard Séguin, [5] and is the oldest professional association concerned with intellectual and developmental disabilities. AAIDD advocates for the equality, dignity, and human rights of people with intellectual and developmental disabilities, and for their full inclusion and participation in society. It is headquartered in Silver Spring, Maryland, a suburb of Washington, D.C.

The name of the association [6] has changed five times in its history, reflecting the changes in thinking about the conditions known today as intellectual disabilities:

Mission and goals

The AAIDD's stated mission is to promote progressive policies, sound research, effective practices, and universal human rights for people with intellectual and developmental disabilities. [7]

The association's goals are to: [7]

  1. Enhance the capacity of professionals who work with individuals with intellectual and developmental disabilities.
  2. Promote the development of a society that fully includes individuals with intellectual and developmental disabilities.
  3. Sustain an effective, responsive, well managed, and responsibly-governed organization.

It also has various sub-groups with more specific interests, such as the Religion and Spirituality Interest Network, "an interfaith, interdisciplinary association of professional ordained and lay people who journey with persons with developmental disabilities and their families." [8]

Publications

The AAIDD publishes books, evidenced-based assessment tools, and three peer-reviewed journals.

Journals

The AAIDD encourages a diversity of contributions from different traditions of inquiry and disciplines; [9] all papers must meet the journals' criteria for rigor and peer review to be considered for publication.

Books and assessment tools

The AAIDD publishes essential books and tools for professionals and others in the field of intellectual and developmental disabilities. The organization's most well-known book is its definition manual, first published in 1910 and now in its 12th edition: Intellectual Disability: Definition, Diagnosis, Classification, and Systems of Support. [13] [14]

It also publishes Supports Intensity Scales (SIS), a group of assessment tools that evaluate the practical support requirements of people with intellectual disabilities. It is available in a child version (SIS-C) and an adult version (SIS-A, 2nd ed.). Both versions assess someone's needed level of support, but adjust for differences in age-related expectations. For example, a child would be expected to have a full-time, live-in caretaker (i.e. a parent or guardian) while for an adult that would qualify as extra support. The assessment is done through semi-structured interviews with those who can give insight to the daily life of the person being assessed, up to and including the person themselves when appropriate. The SIS measures support needs in multiple areas of daily life, including housing, education, employment, medical services, and social activities. Assessors rate different categories according to the frequency of support (e.g., none, at least once a month), amount of support (e.g., none, less than 30 minutes), and type of support (e.g., monitoring, verbal gesturing) that a person requires. The overall Supports Intensity Level is determined based on the Total Support Needs Index, which is a standard score generated from the individual ratings. [15]

Education

As the oldest professional organization in the field of intellectual and developmental disabilities, [16] AAIDD offers educational opportunities to the global disability community, [17] including an annual conference, webinars, and professional research exchanges.

The association's YouTube channel provides short educational videos on topics related to intellectual and developmental disabilities. [18]

See also

Related Research Articles

Developmental disability is a diverse group of chronic conditions, comprising mental or physical impairments that arise before adulthood. Developmental disabilities cause individuals living with them many difficulties in certain areas of life, especially in "language, mobility, learning, self-help, and independent living". Developmental disabilities can be detected early on and persist throughout an individual's lifespan. Developmental disability that affects all areas of a child's development is sometimes referred to as global developmental delay.

"The normalization principle means making available to all people with disabilities patterns of life and conditions of everyday living which are as close as possible to the regular circumstances and ways of life or society." Normalization is a rigorous theory of human services that can be applied to disability services. Normalization theory arose in the early 1970s, towards the end of the institutionalisation period in the US; it is one of the strongest and long lasting integration theories for people with severe disabilities.

Self-advocacy is the act of speaking up for oneself and one's interests. It is used as a name for civil rights movements and mutual aid networks for people with intellectual and developmental disabilities. The term arose in the broader civil rights movements of the 1960s and 1970s, and is part of the disability rights movement. Today there are self-advocacy organizations across the world.

Supported living or supportive living refers to a range of services and community living arrangements (CLAs) designed with individuals with disabilities and their families to support disabled citizens to attain or retain their independence or interdependence in their local communities. Supported living is recorded in the history of the NASDDDS, celebrating its 50th anniversary. Community Supported Living Arrangements (CSLA) was a landmark federal multi-state demonstration to illustrate the federal role in community living in the US. Supported living is considered a core service or program of community living programs funded through federal-state-local partnerships.

<span class="mw-page-title-main">Best Buddies International</span>

Best Buddies International is an American nonprofit 501(c)(3) organization. It consists of volunteers that create opportunities for people with intellectual and developmental disabilities (IDD). The program's main purpose is to allow volunteers to be paired up with a buddy with an intellectual and developmental disability and provide them with a friend or a mentor. Best Buddies is the world's largest organization dedicated to ending the social, physical and economic isolation of the 200 million people with IDD. It is an international movement that has spread to over 54 countries worldwide.

The Council on Quality and Leadership is a U.S. organization which provides accreditation and training for agencies providing services for people with intellectual, psychiatric, and developmental disabilities. It was established in 1969.

<span class="mw-page-title-main">Intellectual disability</span> Generalized neurodevelopmental disorder

Intellectual disability (ID), also known as general learning disability in the United Kingdom and formerly mental retardation, is a generalized neurodevelopmental disorder characterized by significantly impaired intellectual and adaptive functioning. It is defined by an IQ under 70, in addition to deficits in two or more adaptive behaviors that affect everyday, general living. Intellectual functions are defined under the DSM-5 as reasoning, problem‑solving, planning, abstract thinking, judgment, academic learning, and learning from instruction and experience, and practical understanding confirmed by both clinical assessment and standardized tests. Adaptive behavior is defined in terms of conceptual, social, and practical skills involving tasks performed by people in their everyday lives.

<span class="mw-page-title-main">Paul Wehman</span>

Paul Wehman is a professor of counseling and special education at the School of Education, Virginia Commonwealth University. He also is Director of the Rehabilitation Research and Training Center.

The Family Movement, also known in the past as the Parent Movement, is an arm of the disability rights movement, a larger social movement. The Family Movement advocates for the economic and social rights of family members with a disability. Key elements include: social inclusion; active participation; a life of meaning; safety; economic security; accessibility and self-determination. The family movement has been critical in closing institutions and other segregated facilities; promoting inclusive education; reforming adult guardianship to the current supported decisionmaking; increasing access to health care; developing real jobs; fighting stereotypes and reducing discrimination.

Intermediate Care Facilities for Individuals with Intellectual Disabilities (ICF/IID), formerly known as Intermediate Care Facilities for Mental Retardation (ICF/MR), is an American Medicaid-funded institutional long-term support and service (LTSS) for people with intellectual disabilities or related conditions. Section 1905(d) of the Social Security Act enacted benefits and made funding available for "institutions" for individuals with intellectual or related conditions. According to federal law 42 CFR § 440.150 the purpose of ICD/IIDs is to "furnish health or rehabilitative services to persons with Intellectual Disability or persons with related conditions."

The Vineland Adaptive Behavior Scale is a psychometric instrument used in child and adolescent psychiatry and clinical psychology. It is used especially in the assessment of individuals with an intellectual disability, a pervasive developmental disorder, and other types of developmental delays.

Michael Lee Wehmeyer is the Ross and Marianna Beach Distinguished Professor in Special Education in the Department of Special Education at the University of Kansas. His research focuses on self-determination and self-determined learning, the application of positive psychology and strengths-based approaches to disability, and the education of students with intellectual or developmental disabilities. He is Director and Senior Scientist at Kansas University's Beach Center on Disability. He formerly directed the Kansas University Center on Developmental Disabilities.

Gunnar Dybwad (1909–2001) was an American professor and advocate for the rights of people with disabilities, particularly developmental disabilities. He is best known for his support for the social model of disability, reframing disability accommodations as a matter of civil rights, not medical treatment. The American Association on Intellectual and Developmental Disabilities gives out the Dybwad Humanitarian Award annually in his honor.

<span class="mw-page-title-main">Sakineh (Simin) M. Redjali</span> Iranian–American psychologist and author

Sakineh Simin M. Redjali (Persian: سکینه سیمین رجالی; born 1934 is an Iranian–American psychologist and author. Simin Redjali was the first female professor of National University of Iran.

<span class="mw-page-title-main">Steven Reiss</span>

Steven Reiss (1947–2016) was an American psychologist who contributed original ideas, new assessment methods, and influential research studies to four topics in psychology: anxiety disorders, developmental disabilities, intrinsic motivation, and the psychology of religion.

National Core Indicators (NCI) is a collaborative effort between the National Association of State Directors of Developmental Disabilities Services (NASDDDS), ADvancing States and the Human Services Research Institute (HSRI) in the United States. The purpose of the program, which began in 1997, is to support state human services systems to gather a standard set of performance and outcome measures that can be used to track their own performance over time, to compare results across states, and to establish national benchmarks.

Intellectual functioning refers to the "general mental ability that includes reasoning, planning, problem solving, abstract thinking, comprehending complex ideas, learning quickly and learning from experience". Significantly limited or impaired intellectual functioning characterizes intellectual disabilities.

H. Carl Haywood was an American psychologist who researched motivational influences on learning and development, intellectual and cognitive development, cognitive education, learning, neuropsychology, and dynamic/interactive assessment of learning potential.

A Qualified Intellectual Disability Professional, often referred to as a QIDP for short is a professional staff working with people in community homes who have intellectual and developmental disabilities and was previously known as a Qualified Mental Retardation Professional or QMRP. The change in terminology was implemented after the Centers for Medicaid and Medicare Services (CMS) modified the State Operations Manual Appendix J - Guidance to Surveyors: Intermediate Care Facilities for Individuals with Intellectual Disabilities The changes were implemented after President Obama signed Rosa's Law.

References

  1. 1 2 "American Association on Intellectual and Developmental Disabilities". Tax Exempt Organization Search. Internal Revenue Service. Retrieved October 10, 2019.
  2. "Contact Us". American Association on Intellectual and Developmental Disabilities. Retrieved October 21, 2019.
  3. 1 2 "Board of Directors". American Association on Intellectual and Developmental Disabilities. Retrieved July 13, 2023.
  4. 1 2 3 4 "Form 990: Return of Organization Exempt from Income Tax". American Association on Intellectual and Developmental Disabilities. Guidestar. July 22, 2021.
  5. "The American Association on Intellectual and Developmental Disabilities (AAIDD) Diagnostic Criteria for Intellectual Disability" . Retrieved April 9, 2019.
  6. "About AAIDD". aaidd.org. Retrieved May 23, 2019.
  7. 1 2 "Mission". aaidd.org. Retrieved April 9, 2019.
  8. "About us". AAIDD Religion & Spirituality Network. January 23, 2017. Retrieved July 27, 2022.
  9. "Journals". aaidd.org. Retrieved May 23, 2019.
  10. "American Journal on Intellectual and Developmental Disabilities". Allen Press. Retrieved July 27, 2022.
  11. "Intellectual and Developmental Disabilities". Allen Press. Retrieved July 27, 2022.
  12. "Inclusion". Allen Press. Retrieved July 27, 2022.
  13. Intellectual Disability: Definition, Classification, and Systems of Supports. American Association on Intellectual and Developmental Disabilities. (12th ed.). Silver Spring, MD: American Association on Intellectual and Developmental Disabilities. 2010. ISBN   978-0-9983983-6-5. OCLC   1252731833.{{cite book}}: CS1 maint: others (link)
  14. "Intellectual Disability: Definition, Diagnosis, Classification, and Systems of Supports, 12th Edition". www.aaidd.org. American Association on Intellectual and Developmental Disabilities. Retrieved July 13, 2023.
  15. "Product Information". aaidd.org. Retrieved May 23, 2019.
  16. "Intellectual Disability".
  17. "Education". aaidd.org. Retrieved May 23, 2019.
  18. "aaiddvideos". YouTube. Retrieved May 23, 2019.