American Association on Intellectual and Developmental Disabilities

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American Association on Intellectual and Developmental Disabilities
AbbreviationAAIDD
Founded1876
06-0636098 [1]
Legal status 501(c)(3) [1]
PurposeTo promote progressive policies, sound research, effective practices, and universal human rights for people with intellectual and developmental disabilities.
Location
Melissa DiSipio [3]
Margaret Nygren [3]
Revenue (2023)
$4,219,682 [4]
Expenses (2023)$3,739,078 [4]
Employees (2023)
15 [4]
Volunteers (2023)
20 [4]
Website www.aaidd.org
Formerly called
Association of Medical Officers of American Institutions for Idiotic and Feebleminded Persons,
American Association for the Study of the Feebleminded,
American Association on Mental Deficiency,
American Association on Mental Retardation

The American Association on Intellectual and Developmental Disabilities (AAIDD) is an American non-profit organization focusing on intellectual disability and related developmental disabilities. AAIDD has members in the United States and more than 50 other countries.

Contents

History

The AAIDD was founded in 1876 by Édouard Séguin, [5] and is the oldest professional association concerned with intellectual and developmental disabilities. It is headquartered in Silver Spring, Maryland, a suburb of Washington, D.C.

The name of the association [6] has changed five times in its history, reflecting the changes in thinking about the condition known today as intellectual disability:

Mission and Goals

The AAIDD's stated mission is to promote progressive policies, sound research, effective practices, and universal human rights for people with intellectual and developmental disabilities. [7]

The association's goals are to: [7]

  1. Enhance the capacity of professionals who work with individuals with intellectual and developmental disabilities.
  2. Promote the development of a society that fully includes individuals with intellectual and developmental disabilities.
  3. Sustain an effective, responsive, well managed, and responsibly-governed organization.

It also has various sub-groups with more specific interests, such as the Religion and Spirituality Interest Network, "an interfaith, interdisciplinary association of professional ordained and lay people who journey with persons with developmental disabilities and their families." [8]

Understanding Intellectual Disability

The organization's most well-known publication is its definitional and diagnostic manual, first published in 1910 and now in its 12th edition: Intellectual Disability: Definition, Diagnosis, Classification, and Systems of Support. [9] [10]

Researchers and clinicians affiliated with AAIDD provided input to the development of the World Health Organization's (WHO) International Classification of Diseases, 11th Revision (ICD-11) behavioral indicators that could be used to guide clinical judgement in determining the presence and severity of deficits in intellectual functioning and adaptive behavior for the purpose of making a diagnosis of disorders of intellectual development when standardized assessments are not available or feasible. [11] When field tested by the WHO, the behavioral indicators were found to have good clinical utility and excellent inter-rater reliability. [12]

Publications

The AAIDD publishes books, evidenced-based assessment tools, and three peer-reviewed journals.

Journals

The AAIDD encourages a diversity of contributions from different traditions of inquiry and disciplines; [13] all papers must meet the journals' criteria for rigor and peer review to be considered for publication.

Books and Assessment Tools

The AAIDD publishes essential books and tools for professionals and others in the field of intellectual and developmental disabilities.

It also publishes Supports Intensity Scales (SIS), a group of assessment tools that evaluate the practical support requirements of people with intellectual disabilities. It is available in a child version (SIS-C) and an adult version (SIS-A, 2nd ed.). Both versions assess someone's needed level of support, but adjust for differences in age-related expectations. The assessment is done through semi-structured interviews with those who can give insight to the daily life of the person being assessed, up to and including the person themselves when appropriate. The SIS measures support needs in multiple areas of daily life, including standardized subscales in home living, community living, health and safety, learning, work, advocacy, and social activities and additional scales addressing exceptional medical and behavioral support needs. Assessors rate different categories according to the frequency, amount, and type of support that a person requires. The individual's overall Supports Intensity Profile is generated based on their subscale Standard Scores, which are indexed and percentile ranked. [17] [18]

Education

As the oldest professional organization in the field of intellectual and developmental disabilities, [19] AAIDD offers educational opportunities to the global disability community, [20] including an annual conference, webinars, and professional research exchanges.

The association's YouTube channel provides short educational videos on topics related to intellectual and developmental disabilities. [21]

See also

Related Research Articles

A mental disorder, also referred to as a mental illness, a mental health condition, or a psychiatric disability, is a behavioral or mental pattern that causes significant distress or impairment of personal functioning. A mental disorder is also characterized by a clinically significant disturbance in an individual's cognition, emotional regulation, or behavior, often in a social context. Such disturbances may occur as single episodes, may be persistent, or may be relapsing–remitting. There are many different types of mental disorders, with signs and symptoms that vary widely between specific disorders. A mental disorder is one aspect of mental health.

The diagnostic category pervasive developmental disorders (PDD), as opposed to specific developmental disorders (SDD), was a group of disorders characterized by delays in the development of multiple basic functions including socialization and communication. It was defined by the Diagnostic and Statistical Manual of Mental Disorders (DSM), and the International Classification of Diseases (ICD).

Pervasive developmental disorder not otherwise specified (PDD-NOS) is a historic psychiatric diagnosis first defined in 1980 that has since been incorporated into autism spectrum disorder in the DSM-5 (2013).

Developmental disability is a diverse group of chronic conditions, comprising mental or physical impairments that arise before adulthood. Developmental disabilities cause individuals living with them many difficulties in certain areas of life, especially in "language, mobility, learning, self-help, and independent living". Developmental disabilities can be detected early on and persist throughout an individual's lifespan. Developmental disability that affects all areas of a child's development is sometimes referred to as global developmental delay.

Emotional and behavioral disorders refer to a disability classification used in educational settings that allows educational institutions to provide special education and related services to students who have displayed poor social and/or academic progress.

<span class="mw-page-title-main">Learning disability</span> Range of neurodevelopmental conditions

Learning disability, learning disorder, or learning difficulty is a condition in the brain that causes difficulties comprehending or processing information and can be caused by several different factors. Given the "difficulty learning in a typical manner", this does not exclude the ability to learn in a different manner. Therefore, some people can be more accurately described as having a "learning difference", thus avoiding any misconception of being disabled with a possible lack of an ability to learn and possible negative stereotyping. In the United Kingdom, the term "learning disability" generally refers to an intellectual disability, while conditions such as dyslexia and dyspraxia are usually referred to as "learning difficulties".

The Council on Quality and Leadership is a U.S. organization which provides accreditation and training for agencies providing services for people with intellectual, psychiatric, and developmental disabilities. It was established in 1969.

<span class="mw-page-title-main">Intellectual disability</span> Generalized neurodevelopmental disorder

Intellectual disability (ID), also known as general learning disability and formerly mental retardation, is a generalized neurodevelopmental disorder characterized by significant impairment in intellectual and adaptive functioning that is first apparent during childhood. Children with intellectual disabilities typically have an intelligence quotient (IQ) below 70 and deficits in at least two adaptive behaviors that affect everyday, general living. According to the DSM-5, intellectual functions include reasoning, problem solving, planning, abstract thinking, judgment, academic learning, and learning from experience. Deficits in these functions must be confirmed by clinical evaluation and individualized standard IQ testing. On the other hand, adaptive behaviors include the social, developmental, and practical skills people learn to perform tasks in their everyday lives. Deficits in adaptive functioning often compromises an individual's independence and ability to meet their social responsibility.

Research published from 2000 to 2020 illustrates increased prevalence rates of sexual violence against people with intellectual disabilities, compared to the general population.:61 The World Health Organization (WHO) funded a study which concluded that 15% of the adult population worldwide in 2012 had a disability, putting them at increased risk of physical, sexual, and intimate partner violence. Of that 15%, 6.1% had intellectual disability with 5.5% experiencing sexual violence. In another 2012 report, the WHO found that worldwide, children with intellectual disabilities experienced a 4.6 times greater risk of sexual violence than those without disability.

<span class="mw-page-title-main">Paul Wehman</span>

Paul Wehman is a professor of counseling and special education at the School of Education, Virginia Commonwealth University. He also is Director of the Rehabilitation Research and Training Center.

Edward Gary Carr was an internationally recognized pioneer in autism treatment research. He applied studies about the functions that self-injurious behaviors served and contributed substantially to the development and refinement of positive behavior support. In addition, he assessed the benefits of teaching sign language to children with expressive and receptive language disorders as seen in children with autism. He was the Director of the Research & Training Center on Positive Behavior Support for Autism & Developmental Disabilities at Stony Brook University.

Autism, also called autism spectrum disorder (ASD) or autism spectrum condition (ASC), is a neurodevelopmental disorder characterized by symptoms of deficient reciprocal social communication and the presence of restricted, repetitive, and inflexible patterns of behavior that are impairing in multiple contexts and excessive or atypical to be developmentally and socioculturally inappropriate. Other common signs include difficulty with social interaction, verbal and nonverbal communication, along with perseverative interests, stereotypic body movements, rigid routines, and hyper- or hypo-reactivity to sensory input. Autism is clinically regarded as a spectrum disorder, meaning that it can manifest very differently in each person. For example, some are nonspeaking, while others have proficient spoken language. Because of this, there is wide variation in the support needs of people across the autism spectrum.

Intermediate Care Facilities for Individuals with Intellectual Disabilities (ICF/IID), formerly known as Intermediate Care Facilities for Mental Retardation (ICF/MR), is an American Medicaid-funded institutional long-term support and service (LTSS) for people with intellectual disabilities or related conditions. Section 1905(d) of the Social Security Act enacted benefits and made funding available for "institutions" for individuals with intellectual or related conditions. According to federal law 42 CFR § 440.150 the purpose of ICD/IIDs is to "furnish health or rehabilitative services to persons with Intellectual Disability or persons with related conditions."

The Vineland Adaptive Behavior Scale is a psychometric instrument used in child and adolescent psychiatry and clinical psychology. It is used especially in the assessment of individuals with an intellectual disability, a pervasive developmental disorder, and other types of developmental delays.

Michael Lee Wehmeyer is the Ross and Marianna Beach Distinguished Professor in Special Education in the Department of Special Education at the University of Kansas. His research focuses on self-determination and self-determined learning, the application of positive psychology and strengths-based approaches to disability, and the education of students with intellectual or developmental disabilities. He is Director and Senior Scientist at Kansas University's Beach Center on Disability. He formerly directed the Kansas University Center on Developmental Disabilities.

Family support is the support of families with a member with a disability, which may include a child, an adult, or even the parent in the family. In the United States, family support includes "unpaid" or "informal" support by neighbors, families, and friends, "paid services" through specialist agencies providing an array of services termed "family support services", school or parent services for special needs such as respite care, specialized child care or peer companions, or cash subsidies, tax deductions or other financial subsidies. Family support has been extended to different population groups in the US and worldwide. Family support services are currently a "community services and funding" stream in New York and the US which has had variable "application" based on disability groups, administrating agencies, and even, regulatory and legislative intent.

<span class="mw-page-title-main">Steven Reiss</span>

Steven Reiss (1947–2016) was an American psychologist who contributed original ideas, new assessment methods, and influential research studies to four topics in psychology: anxiety disorders, developmental disabilities, intrinsic motivation, and the psychology of religion.

The rapid prompting method (RPM) is a pseudoscientific technique that attempts to aid communication by people with autism or other disabilities to communicate through pointing, typing, or writing. Also known as Spelling to Communicate, it is closely related to the scientifically discredited technique facilitated communication (FC). Practitioners of RPM have failed to assess the issue of message agency using simple and direct scientific methodologies, saying that doing so would be stigmatizing and that allowing scientific criticisms of the technique robs people with autism of their right to communicate. The American Speech-Language-Hearing Association has issued a statement opposing the practice of RPM.

Intellectual functioning refers to the "general mental ability that includes reasoning, planning, problem solving, abstract thinking, comprehending complex ideas, learning quickly and learning from experience". Significantly limited or impaired intellectual functioning characterizes intellectual disabilities.

References

  1. 1 2 "American Association on Intellectual and Developmental Disabilities". Tax Exempt Organization Search. Internal Revenue Service. Retrieved October 10, 2019.
  2. "Contact Us". American Association on Intellectual and Developmental Disabilities. Retrieved October 21, 2019.
  3. 1 2 "Board of Directors". American Association on Intellectual and Developmental Disabilities. Retrieved August 27, 2024.
  4. 1 2 3 4 "Form 990: Return of Organization Exempt from Income Tax". American Association on Intellectual and Developmental Disabilities. Guidestar. August 27, 2024.
  5. "The American Association on Intellectual and Developmental Disabilities (AAIDD) Diagnostic Criteria for Intellectual Disability". March 23, 2019. Retrieved April 9, 2019.
  6. "About AAIDD". aaidd.org. Retrieved May 23, 2019.
  7. 1 2 "Mission". aaidd.org. Retrieved April 9, 2019.
  8. "About us". AAIDD Religion & Spirituality Network. January 23, 2017. Retrieved July 27, 2022.
  9. Intellectual Disability: Definition, Classification, and Systems of Supports. American Association on Intellectual and Developmental Disabilities. (12th ed.). Silver Spring, MD: American Association on Intellectual and Developmental Disabilities. 2010. ISBN   978-0-9983983-6-5. OCLC   1252731833.{{cite book}}: CS1 maint: others (link)
  10. "Intellectual Disability: Definition, Diagnosis, Classification, and Systems of Supports, 12th Edition". www.aaidd.org. American Association on Intellectual and Developmental Disabilities. Retrieved July 13, 2023.
  11. "Identifying behavioural indicators for intellectual functioning and adaptive behavior for ICD-11 disorders of intellectual development". Journal of Intellectual Disability Research. 63 (5): 386–407. 2019. doi:10.1111/jir.12582.
  12. Lemay, K. R.; Kogan, C. S.; Rebello, T. J.; Keeley, J. W.; Bhargava, R.; Sharan, P.; Sharma, M.; Kommu, J. V. S.; Kishore, M. T.; De Jesus Mari, J.; Ginige, P.; Buono, S.; Recupero, M.; Zingale, M.; Zagaria, T.; Cooray, S.; Roy, A.; Reed, G. M. (2022). "An international field study of the ICD-11 behavioural indicators for disorders of intellectual development". Journal of Intellectual Disability Research. 66 (4): 376–391. doi:10.1111/jir.12924. PMID   35170825 . Retrieved August 27, 2024.
  13. "Journals". aaidd.org. Retrieved May 23, 2019.
  14. "American Journal on Intellectual and Developmental Disabilities". Allen Press. Retrieved July 27, 2022.
  15. "Intellectual and Developmental Disabilities". Allen Press. Retrieved July 27, 2022.
  16. "Inclusion". Allen Press. Retrieved July 27, 2022.
  17. "How Organizations Use the Supports Intensity Scales" (PDF). [White Paper}. AAIDD. March 2018. Retrieved August 27, 2024.
  18. "From face-to-face to virtual instruction: Developing competencies to administer a standardized assessment during COVID-19" (PDF). Professional Development: The International Journal of Continuing Social Work Education. 25 (2): 50–57. 2022. Retrieved August 27, 2024.
  19. "Intellectual Disability".
  20. "Education". aaidd.org. Retrieved May 23, 2019.
  21. "aaiddvideos". YouTube. Retrieved May 23, 2019.