Cerebral palsy (CP) is a group of movement disorders that appear in early childhood. Signs and symptoms vary among people and over time, but include poor coordination, stiff muscles, weak muscles, and tremors. There may be problems with sensation, vision, hearing, and speaking. Often, babies with cerebral palsy do not roll over, sit, crawl or walk as early as other children of their age. Other symptoms include seizures and problems with thinking or reasoning, each of which occur in about one-third of people with CP. While symptoms may get more noticeable over the first few years of life, underlying problems do not worsen over time.
Scope is a disability charity in England and Wales that campaigns to change negative attitudes about disability, provides direct services, and educates the public. The organisation was founded in 1952 by a group of parents and social workers who wanted to ensure that their disabled children had the right to a decent education. Originally focused on cerebral palsy, Scope now embraces all conditions and impairment. Scope subscribes to the social model of disability rather than the medical model of disability – that a person is disabled by the barriers placed in front of them by society, not because of their condition or impairment.
Conductive Education (CE) is an educational system, based on the work of Hungarian Professor András Pető, that has been specifically developed for children and adults who have motor disorders of neurological origin such as cerebral palsy.
A selective dorsal rhizotomy (SDR), also known as a rhizotomy, dorsal rhizotomy, or a selective posterior rhizotomy, is a neurosurgical procedure that selectively cut problematic nerve roots of the spinal cord. This procedure has been well-established in the literature as a surgical intervention and is used to relieve negative symptoms of neuromuscular conditions such as spastic diplegia and other forms of spastic cerebral palsy. The specific sensory nerves inducing spasticity are identified using electromyographic (EMG) stimulation and graded on a scale of 1 (mild) to 4. Abnormal nerve responses are isolated and cut, thereby reducing symptoms of spasticity.
United Cerebral Palsy (UCP) is an international nonprofit charitable organization consisting of a network of affiliates. UCP is a leading service provider and advocate for adults and children with disabilities. As one of the largest health nonprofits in the United States, the UCP mission is to advance the independence, productivity and full citizenship of people with disabilities through an affiliate network.
Northcott was established as the New South Wales Society for Crippled Children in 1929 by the Rotary Club of Sydney, in response to the growing number of children left with the effects of illnesses such as polio and tuberculosis.
ADAPT – Able Disabled All People Together is an Indian non-profit and non-governmental organization, working to help people with neuro-muscular and developmental disabilities. It was started on 2 October 1972 by Mithu Alur, to provide education and treatment services for the "spastics".
The William Little Foundation is a London-based charity operating internationally.
Over time, the approach to cerebral palsy management has shifted away from narrow attempts to fix individual physical problems – such as spasticity in a particular limb – to making such treatments part of a larger goal of maximizing the person's independence and community engagement. Much of childhood therapy is aimed at improving gait and walking. Approximately 60% of people with CP are able to walk independently or with aids at adulthood. However, the evidence base for the effectiveness of intervention programs reflecting the philosophy of independence has not yet caught up: effective interventions for body structures and functions have a strong evidence base, but evidence is lacking for effective interventions targeted toward participation, environment, or personal factors. There is also no good evidence to show that an intervention that is effective at the body-specific level will result in an improvement at the activity level, or vice versa. Although such cross-over benefit might happen, not enough high-quality studies have been done to demonstrate it.
Athetoid cerebral palsy, or dyskinetic cerebral palsy, is a type of cerebral palsy primarily associated with damage, like other forms of CP, to the basal ganglia in the form of lesions that occur during brain development due to bilirubin encephalopathy and hypoxic–ischemic brain injury. Unlike spastic or ataxic cerebral palsies, ADCP is characterized by both hypertonia and hypotonia, due to the affected individual's inability to control muscle tone. Clinical diagnosis of ADCP typically occurs within 18 months of birth and is primarily based upon motor function and neuroimaging techniques. While there are no cures for ADCP, some drug therapies as well as speech, occupational therapy, and physical therapy have shown capacity for treating the symptoms.
Spastic cerebral palsy is the type of cerebral palsy characterized by spasticity or high muscle tone often resulting in stiff, jerky movements. Cases of spastic CP are further classified according to the part or parts of the body that are most affected. Such classifications include spastic diplegia, spastic hemiplegia, spastic quadriplegia, and in cases of single limb involvement, spastic monoplegia.
Spastic hemiplegia is a neuromuscular condition of spasticity that results in the muscles on one side of the body being in a constant state of contraction. It is the "one-sided version" of spastic diplegia. It falls under the mobility impairment umbrella of cerebral palsy. About 20–30% of people with cerebral palsy have spastic hemiplegia. Due to brain or nerve damage, the brain is constantly sending action potentials to the neuromuscular junctions on the affected side of the body. Similar to strokes, damage on the left side of the brain affects the right side of the body and damage on the right side of the brain affects the left side of the body. Other side can be effected for lesser extent. The affected side of the body is rigid, weak and has low functional abilities. In most cases, the upper extremity is much more affected than the lower extremity. This could be due to preference of hand usage during early development. If both arms are affected, the condition is referred to as double hemiplegia. Some patients with spastic hemiplegia only experience minor impairments, where in severe cases one side of the body could be completely paralyzed. The severity of spastic hemiplegia is dependent upon the degree of the brain or nerve damage.
Para-cycling classification is the process of classifying participants in para-cycling covering four functional disability types. The classification system includes classes for handcycles for people who have lower limb mobility issues. The sport is governed by the Union Cycliste Internationale (UCI).
Mithu Alur is the founder chairperson of The Spastic Society of India – now rechristened ADAPT – Able Disable All People Together. She is an educator, disability rights activist, researcher, writer and published author on issues concerning people with disability in India.
The Self-Help Group for Cerebral Palsy (SGCP) is a non-governmental and non-profit organization in Nepal dedicated for helping and educating children and adults with cerebral palsy. Cerebral palsy (CP) is a neurological disorder that is caused during childhood which permanently affects body movement and muscle coordination. The organization has one rehabilitation center established in 2005, situated in Dhapakel, Lalitpur that consists of a team of medical professionals, trained teachers and social workers.
A general movements assessment is a type of medical assessment used in the diagnosis of cerebral palsy, and is particularly used to follow up high-risk neonatal cases. The general movements assessment involves measuring movements that occur spontaneously among those less than four months of age and appears to be most accurate test for the condition.
Spastic Society of Gurgaon covers within its scope the programs on occupational therapy, counseling, vocational training and psychotherapy of the children with autism, cerebral palsy, intellectual disability and multiple disabilities in Haryana, India. It is India's first non-profit disability sector organization which was awarded ISO certification by United Kingdom Accreditation Service: United Registrar of Systems for quality of services rendered by it. It also works in the field of imparting counseling and psychotherapy to the parents and guardians of the disabled children. Mass camps are conducted for welfare of children with disabilities. Multiple single window services like assistance in issuance of disability certificates, NIRAMAYA cashless insurance cards, medical check ups, distribution of medicines and medical aids are rendered to disabled people in such camps. Being sponsored by Haryana Government it undertakes disability audits of organizations for assessing accessibility compliance by them.
scosa was a South Australian organisation providing a range of supports to children and adults with disabilities. Initially it focused on people with cerebral palsy. In August 2019, it was announced that scosa was to merge into Novita.
Elizabeth Catherine Usher AO (1911–1996) was a speech disorders therapist and academic. She was the first person from Queensland to study speech therapy.
Diane Louise Damiano is an American biomedical scientist and physical therapist specializing in physical medicine and rehabilitation approaches in children with cerebral palsy. She is chief of the functional and applied biomechanics section at the National Institutes of Health Clinical Center. Damiano has served as president of the Clinical Gait and Movement Analysis Society and the American Academy for Cerebral Palsy and Developmental Medicine.
