Citizen Advocacy organisations

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Citizen Advocacy organisations (Citizen Advocacy programs/programmes) seek to cause benefit by reconnecting people who have become isolated from the ordinary community. Their practice was defined in two key documents: CAPE [1] in 1980 and Learning From Citizen Advocacy Programs [2] in 1987. The theoretical foundation of Citizen Advocacy is found in Citizen Advocacy and protective services for the impaired and handicapped. [3] A central idea on which this practice is based is that the devaluation of a person or group by society has profoundly negative effects on their lives. [4]

Contents

Key ideas

At the heart of the work of a Citizen Advocacy organisation is the belief that how well an individual or group is valued by society (as a whole) affects how society treats them.

If an individual or group is seen as having value then society (as a whole) will treat them well. The result that they will have the full benefit of being part of that society.
If an individual or group is identified by society as 'different', and is seen as having less value (than everyone else) then society will treat them poorly. For instance they will be disempowered and excluded, made into scapegoats, segregated, and put with others seen to be like them. [5] [6]

This idea is seen as particularly powerful in the context of certain groups of people whom society identifies (incorrectly) as being somehow fundamentally negatively different from, and of lower value than, ordinary people (for instance 'the mentally ill' or 'people with special needs' or 'autistic people' or 'asylum seekers').

Citizen Advocacy organisations seek to cause benefit by connecting individual people who have been excluded and devalued with someone generally seen by society as being valued. [1] [2] [7] There are some clear immediate effects on the person's exclusion and sense of self-worth. But also very important are the anticipated effects brought about when the ordinary community sees that a 'valued' person has an ordinary relationship with this person (e.g. a friendship), and that this 'valued' person sees them as an equal (i.e. also a 'valued' person). However, the anticipated effects are even wider than this, in that it is assumed that society (in general) will extend their conclusions to cover the group of people whom the individual has been seen to belong to.

Simplified illustrative example

A Citizen Advocacy organisation connects a person 'labelled' [8] as having a 'learning disability' ('developmental disability') – his name is Helios - with a person of standing in their local community (for instance a well liked shopkeeper) – whose name is Alex. These two people develop a friendship. Helios and Alex are seen together, and other people get to know Helios. Alex and Helios behave as friends, and describe themselves as friends. While they sometimes seek support from the Citizen Advocacy organisation, they do not speak about being connected to it, other than to mention that it was this organisation that introduced them.
People in the community get to know Helios through Alex, which is of immediate benefit to Helios. When Alex finds out that Helios is living in poor housing conditions, he and several other people help to work with Helios to find private rented accommodation and to secure the support he needs to live there.
Several people write to the local authorities and politicians to complain about how people with learning disabilities are being treated. Because the politicians see that it is ordinary members of the public who are interested in this issue, they ensure that the situation improves.

Stories of actual Citizen Advocacy relationships have been written about in many contexts. One set of such stories is found in One person at a time: Citizen Advocacy for people with disabilities. [9]

Related Research Articles

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Community psychology is concerned with the community as the unit of study. This contrasts with most psychology which focuses on the individual. Community psychology also studies the community as a context for the individuals within it, and the relationships of the individual to communities and society. Community psychologists seek to understand the functioning of the community, including the quality of life of persons within groups, organizations and institutions, communities, and society. Their aim is to enhance quality of life through collaborative research and action.

<span class="mw-page-title-main">Social model of disability</span> Societal failure to adapt to disabilities

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Wolf Peregrin Joachim Wolfensberger, Ph.D. (1934–2011) was a German-American academic who influenced disability policy and practice through his development of North American Normalization and social role valorization (SRV). SRV extended the work of his colleague Bengt Nirje in Europe on the normalization of people with disabilities. He later extended his approach in a radical anti-deathmaking direction: he spoke about the Nazi death camps and their targeting of disabled people, and contemporary practices which contribute to deathmaking.

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Mentalism or sanism refers to the systemic discrimination against or oppression of individuals perceived to have a mental disorder or cognitive impairment. This discrimination and oppression are based on numerous factors such as stereotypes about neurodiversity. Mentalism impacts individuals with autism, learning disorders, ADHD, FASD, bipolar, schizophrenia, personality disorders, stuttering, tics, intellectual disabilities, and other cognitive impairments.

Community integration, while diversely defined, is a term encompassing the full participation of all people in community life. It has specifically referred to the integration of people with disabilities into US society from the local to the national level, and for decades was a defining agenda in countries such as Great Britain. Throughout recent decades, community integration programs have been increasingly effective in improving healthcare access for people with disabilities. They have been valued for providing a "voice for the voiceless"

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<span class="mw-page-title-main">Disability in Brazil</span>

Disability in Brazil is defined when individuals struggle or are unable to complete standard everyday tasks. This is measured by the health indicators of daily activities and physical movement. Defining disability differs according to legal contexts of different environments and levels of vulnerability. Brazil is one of the heaviest populated countries in the world and is the largest country in South America, with a population of 212.56 million people in 2020. Due to population rates, there is approximately 16 million people in Brazil with a disability. Of this, 9 million of these are of working age, and 1 million are in the labor force.

References

  1. 1 2 John O'Brien and Wolf Wolfensberger, CAPE Standards for Citizen Advocacy Program Evaluation (1988)
  2. 1 2 Learning from Citizen Advocacy Programs (including a revised short form of CAPE), John O'Brien (1987), Georgia Advocacy Office Inc.
  3. Wolfensberger, W. & Zauha, H. (1973). Citizen Advocacy and protective services for the impaired and handicapped. Toronto, ON: National Institute on Mental Retardation.
  4. Wolfensberger, W. (1998). A brief introduction to Social Role Valorization: A high-order concept for addressing the plight of societally devalued people, and for structuring human services (3rd ed.). Syracuse, NY: Syracuse University Training Institute for Human Service Planning, Leadership & Change Agentry.
  5. An overview of Social Role Valorization Theory, Joe Osburn, at www.diligio.com/osburn.htm Archived 2007-09-28 at the Wayback Machine
  6. The Diligeo Formulation of SRV, Paul Jenkins, at www.diligio.com Archived 2007-07-08 at the Wayback Machine
  7. Principles and Standards in Independent Advocacy organisations and groups, Advocacy 2000 project, Edinburgh Scotland, 2002, p52 (available online Archived 2008-10-05 at the Wayback Machine )
  8. The term 'labelled' is common shorthand for the process in which society identifies a group of people as different and of less value, and provides a name for that different group. See also Labeling theory, and Social role valorization.
  9. Hildebrand, A.J. (2004). One person at a time: Citizen Advocacy for people with disabilities. Newton, MA: Brookline Books. ISBN   978-1-57129-093-9.