Citizen Advocacy organisations (Citizen Advocacy programs/programmes) seek to cause benefit by reconnecting people who have become isolated from the ordinary community. Their practice was defined in two key documents: CAPE [1] in 1980 and Learning From Citizen Advocacy Programs [2] in 1987. The theoretical foundation of Citizen Advocacy is found in Citizen Advocacy and protective services for the impaired and handicapped. [3] A central idea on which this practice is based is that the devaluation of a person or group by society has profoundly negative effects on their lives. [4]
At the heart of the work of a Citizen Advocacy organisation is the belief that how well an individual or group is valued by society (as a whole) affects how society treats them.
This idea is seen as particularly powerful in the context of certain groups of people whom society identifies (incorrectly) as being somehow fundamentally negatively different from, and of lower value than, ordinary people (for instance 'the mentally ill' or 'people with special needs' or 'autistic people' or 'asylum seekers').
Citizen Advocacy organisations seek to cause benefit by connecting individual people who have been excluded and devalued with someone generally seen by society as being valued. [1] [2] [7] There are some clear immediate effects on the person's exclusion and sense of self-worth. But also very important are the anticipated effects brought about when the ordinary community sees that a 'valued' person has an ordinary relationship with this person (e.g. a friendship), and that this 'valued' person sees them as an equal (i.e. also a 'valued' person). However, the anticipated effects are even wider than this, in that it is assumed that society (in general) will extend their conclusions to cover the group of people whom the individual has been seen to belong to.
Stories of actual Citizen Advocacy relationships have been written about in many contexts. One set of such stories is found in One person at a time: Citizen Advocacy for people with disabilities. [9]
Advocacy is an activity by an individual or group that aims to influence decisions within political, economic, and social institutions. Advocacy includes activities and publications to influence public policy, laws and budgets by using facts, their relationships, the media, and messaging to educate government officials and the public. Advocacy can include many activities that a person or organization undertakes, including media campaigns, public speaking, commissioning and publishing research. Lobbying is a form of advocacy where a direct approach is made to legislators on a specific issue or specific piece of legislation. Research has started to address how advocacy groups in the United States and Canada are using social media to facilitate civic engagement and collective action.
Community psychology is concerned with the community as the unit of study. This contrasts with most psychology which focuses on the individual. Community psychology also studies the community as a context for the individuals within it, and the relationships of the individual to communities and society. Community psychologists seek to understand the functioning of the community, including the quality of life of persons within groups, organizations and institutions, communities, and society. Their aim is to enhance quality of life through collaborative research and action.
The social model of disability identifies systemic barriers, derogatory attitudes, and social exclusion, which make it difficult or impossible for disabled people to attain their valued functionings. The social model of disability diverges from the dominant medical model of disability, which is a functional analysis of the body as a machine to be fixed in order to conform with normative values. While physical, sensory, intellectual, or psychological variations may result in individual functional differences, these do not necessarily have to lead to disability unless society fails to take account of and include people intentionally with respect to their individual needs. The origin of the approach can be traced to the 1960s, and the specific term emerged from the United Kingdom in the 1980s.
Americans with disabilities are a significant minority group in the United States, making up a fifth of the overall population and over half of Americans older than eighty. There is a complex history underlying the United States and its relationship with its disabled population, with great progress being made in the last century to improve the livelihood of disabled citizens through legislation providing protections and benefits. Most notably, the Americans with Disabilities Act is a comprehensive anti-discrimination policy that works to protect Americans with disabilities in public settings and the workplace.
Independent living (IL), as seen by its advocates, is a philosophy, a way of looking at society and disability, and a worldwide movement of disabled people working for equal opportunities, self-determination, and self-respect. In the context of eldercare, independent living is seen as a step in the continuum of care, with assisted living being the next step.
The following outline is provided as an overview of and topical guide to autism:
Developmental disability is a diverse group of chronic conditions, comprising mental or physical impairments that arise before adulthood. Developmental disabilities cause individuals living with them many difficulties in certain areas of life, especially in "language, mobility, learning, self-help, and independent living". Developmental disabilities can be detected early on and persist throughout an individual's lifespan. Developmental disability that affects all areas of a child's development is sometimes referred to as global developmental delay.
The Royal Mencap Society is a charity based in the United Kingdom that works with people with a learning disability. Its Charity Number is 222377.
Social role valorization (SRV) is a method for improving the lives of people who are of low status in society.
Person-centred planning (PCP) is a set of approaches designed to assist an individual to plan their life and supports. It is most often used for life planning with people with learning and developmental disabilities, though recently it has been advocated as a method of planning personalised support with many other sections of society who find themselves disempowered by traditional methods of service delivery, including children, people with physical disabilities, people with mental health issues and older people. PCP is accepted as evidence based practice in many countries throughout the world.
"The normalization principle means making available to all people with disabilities patterns of life and conditions of everyday living which are as close as possible to the regular circumstances and ways of life or society." Normalization is a rigorous theory of human services that can be applied to disability services. Normalization theory arose in the early 1970s, towards the end of the institutionalisation period in the US; it is one of the strongest and long lasting integration theories for people with severe disabilities.
The term self-advocacy, which means speaking up for oneself and one's interests, is used as a name for civil rights movements and mutual aid networks for people with intellectual and developmental disabilities. The term arose in the broader civil rights movements of the 1960s and 1970s, and is part of the disability rights movement. Today there are self-advocacy organizations across the world.
Supported living or supportive living refers to a range of services and community living arrangements (CLAs) designed with individuals with disabilities and their families to support disabled citizens to attain or retain their independence or interdependence in their local communities. Supported living is recorded in the history of the NASDDDS, celebrating its 50th Anniversary. Community Supported Living Arrangements (CSLA) was a landmark federal multi-state demonstration to illustrate the federal role in community living in the US. Supported living is considered a core service or program of community living programs funded through federal-state-local partnerships.
Wolf Peregrin Joachim Wolfensberger, Ph.D. (1934–2011) was a German-American academic who influenced disability policy and practice through his development of North American Normalization and social role valorization (SRV). SRV extended the work of his colleague Bengt Nirje in Europe on the normalization of people with disabilities. He later extended his approach in a radical anti-deathmaking direction: he spoke about the Nazi death camps and their targeting of disabled people, and contemporary practices which contribute to deathmaking.
People-first language (PFL), also called person-first language, is a type of linguistic prescription which puts a person before a diagnosis, describing what condition a person "has" rather than asserting what a person "is". It is intended to avoid marginalization or dehumanization when discussing people with a chronic illness or disability. It can be seen as a type of disability etiquette but person-first language can also be more generally applied to any group that would otherwise be defined or mentally categorized by a condition or trait.
Intellectual disability (ID), also known as general learning disability in the United Kingdom and formerly mental retardation, is a generalized neurodevelopmental disorder characterized by significantly impaired intellectual and adaptive functioning. It is defined by an IQ under 70, in addition to deficits in two or more adaptive behaviors that affect everyday, general living. Intellectual functions are defined under DSM-V as reasoning, problem‑solving, planning, abstract thinking, judgment, academic learning, and learning from instruction and experience, and practical understanding confirmed by both clinical assessment and standardized tests. Adaptive behavior is defined in terms of conceptual, social, and practical skills involving tasks performed by people in their everyday lives.
Mentalism or sanism refers to the systemic discrimination against or oppression of individuals perceived to have a mental disorder or cognitive impairment. This discrimination and oppression are based on numerous factors such as stereotypes about neurodiversity. Mentalism impacts individuals with autism, learning disorders, ADHD, FASD, bipolar, schizophrenia, personality disorders, stuttering, tics, intellectual disabilities, and other cognitive impairments.
Community integration, while diversely defined, is a term encompassing the full participation of all people in community life. It has specifically referred to the integration of people with disabilities into US society from the local to the national level, and for decades was a defining agenda in countries such as Great Britain. Throughout recent decades, community integration programs have been increasingly effective in improving healthcare access for people with disabilities. They have been valued for providing a "voice for the voiceless"
Gunnar Dybwad (1909–2001) was an American professor and advocate for the rights of people with disabilities, particularly developmental disabilities. He is best known for his support for the social model of disability, reframing disability accommodations as a matter of civil rights, not medical treatment. The American Association on Intellectual and Developmental Disabilities gives out the Dybwad Humanitarian Award annually in his honor.
Disability in Brazil is defined when individuals struggle or are unable to complete standard everyday tasks. This is measured by the health indicators of daily activities and physical movement. Defining disability differs according to legal contexts of different environments and levels of vulnerability. Brazil is one of the heaviest populated countries in the world and is the largest country in South America, with a population of 212.56 million people in 2020. Due to population rates, there is approximately 16 million people in Brazil with a disability. Of this, 9 million of these are of working age, and 1 million are in the labor force.