The Multiple Sclerosis Trust (MS Trust) is an independent, national UK charity that was established in 1993 by Chris Jones, who lives with MS and her good friend Jill Holt, whose mum and aunt both had MS. They decided enough was enough and founded a small charitable trust - initially raising money through the sale of Christmas cards, to provide information, support and, perhaps most importantly, hope, to people with multiple sclerosis. Over 30 years later, it's a very different landscape, but our promise remains the same. We will always put people with MS at the heart of everything we do.
135 people are diagnosed with multiple sclerosis every week in the UK. That's one person every two hours. An MS diagnosis can be devastating for people with MS and their loved ones. You may feel lost, alone and uncertain about the future. But you don't have to deal with it alone. The MS Trust is here to help everyone affected by the disease, make sense of MS. From the moment of diagnosis and throughout your journey.
The MS Trust fight to make sure everyone affected by MS can access good quality, specialist care and live the best life they possibly can. We support and train your MS health professionals and fund MS specialist nurses and Advanced MS Champions across the UK. We produce practical, evidence-based information, online and in print and our dedicated Helpline team are a friendly and knowledgeable voice to speak to for anyone who needs to know more about MS.
Fundraising
The MS Trust can only continue to do what it does to support people living with MS through the generosity of its supporters. We rely on donations as we receive no additional funding from the NHS. There are many ways you can support the MS Trust to continue its important work https://mstrust.org.uk/get-involved
Multiple sclerosis (MS) is an autoimmune disease in which the insulating covers of nerve cells in the brain and spinal cord are damaged. This damage disrupts the ability of parts of the nervous system to transmit signals, resulting in a range of signs and symptoms, including physical, mental, and sometimes psychiatric problems. Specific symptoms can include double vision, vision loss, eye pain, muscle weakness, and loss of sensation or coordination. MS takes several forms, with new symptoms either occurring in isolated attacks or building up over time. In the relapsing forms of MS, between attacks, symptoms may disappear completely, although some permanent neurological problems often remain, especially as the disease advances. In the progressive forms of MS, bodily function slowly deteriorates and disability worsens once symptoms manifest and will steadily continue to do so if the disease is left untreated.
The Art of Happiness is a book by the 14th Dalai Lama and Howard Cutler, a psychiatrist who posed questions to the Dalai Lama. Cutler quotes the Dalai Lama at length, providing context and describing some details of the settings in which the interviews took place, as well as adding his own reflections on issues raised.
Diabetes UK is a British-based patient, healthcare professional and research charity that has been described as "one of the foremost diabetes charities in the UK". The charity campaigns for improvements in the care and treatment of people with diabetes.
The Multiple Sclerosis Society is the UK's largest charity for people affected by multiple sclerosis (MS). Based in London, it has offices and local groups in England, Northern Ireland, Scotland and Wales. It gained charitable company status in 2010.
The Brain Tumour Charity is a UK-based, Charity Commission registered, charity dedicated to funding research, raising awareness of brain tumours, reducing diagnosis times and providing support and information for people with brain tumours, their families and friends.
The National Multiple Sclerosis Society (NMSS) is an American nonprofit organization founded in 1946. It is an organization dedicated to supporting individuals affected by multiple sclerosis (MS) and funding research to find a cure for the disease. They provide resources, support services, advocacy efforts, and educational programs to improve the lives of people with MS and their families.
The signs and symptoms of multiple sclerosis (MS) encompass a wide range of neurological and physical manifestations, including vision problems, muscle weakness, coordination difficulties, and cognitive impairment, varying significantly in severity and progression among individuals.
Dr. Sarah Marjorie Potts is a fictional character on the New Zealand soap opera Shortland Street, who was portrayed by Amanda Billing from her first appearance in September 2004 until the character's on-screen death in August 2014.
World Lymphoma Awareness Day (WLAD) is held on September 15 every year and is a day dedicated to raising awareness of lymphoma, an increasingly common form of cancer. It is a global initiative hosted by the Lymphoma Coalition (LC), a non-profit network organisation of 83 lymphoma patient groups from 52 countries around the world. WLAD was initiated in 2004 to raise public awareness of both Hodgkin and non-Hodgkin lymphoma in terms of symptom recognition, early diagnosis and treatment.
The Royal Osteoporosis Society (ROS), formerly the National Osteoporosis Society, established in 1986, is the only UK-wide charity dedicated to improving the prevention, diagnosis and treatment of osteoporosis. It is based in Camerton, Somerset, England.
Malaria Consortium is an international non-profit organization based in Cambridge Heath, London, specializing in the comprehensive control of malaria and other communicable diseases – particularly those affecting children under five.
Chronic cerebrospinal venous insufficiency is a term invented by Italian researcher Paolo Zamboni in 2008 to describe compromised flow of blood in the veins draining the central nervous system. Zamboni hypothesized that it might play a role in the cause or development of multiple sclerosis (MS). Zamboni also devised a surgical procedure which the media nicknamed a liberation procedure or liberation therapy, involving venoplasty or stenting of certain veins. Zamboni's ideas about CCSVI are very controversial, with significantly more detractors than supporters, and any treatments based on his ideas are considered experimental.
The National AIDS Trust is a United Kingdom charity with the purpose to stand alongside and defend the rights of everyone living with, affected by or at risk of HIV. Its expertise, research and advocacy secure lasting change to the lives of people living with and at risk of HIV. The charity's key strategic goals are:
Poser criteria are diagnostic criteria for multiple sclerosis (MS). They replaced the older Schumacher criteria, and are now considered obsolete as McDonald criteria have superseded them. Nevertheless, some of the concepts introduced have remained in MS research, like CDMS, and newer criteria are often calibrated against them. The criteria were unveiled in the Annals of Neurology in 1983 by a team led by Dr. Charles M. Poser.
Mike Taylor, also known by the alias Taylor MH, is an English athlete, public speaker, and author from Stourbridge, England. After being diagnosed with multiple sclerosis (MS) at the age of 26, he became the first person with MS to successfully swim a relay of the English Channel in 1997. Despite being unable to use his legs, he later completed a swimming relay of Loch Lomond in Scotland, a relay from Majorca to Menorca in the Balearic Islands, and three team relays from Santa Catalina Island to Santa Monica in California. In each case he raised funds to donate to non-profits such as the Multiple Sclerosis Society and the Myelin Research Project. He also founded the MS charity foundation Turning the Tides (TTT). Taylor is a frequent public speaker and has announced that he is releasing his memoir Making a Splash on History Publishing in 2012.
Current standards for diagnosing multiple sclerosis (MS) are based on the 2018 revision of McDonald criteria. They rely on MRI detection of demyelinating lesions in the CNS, which are distributed in space (DIS) and in time (DIT). It is also a requirement that any possible known disease that produces demyelinating lesions is ruled out before applying McDonald's criteria.
Personal Independence Payment is a welfare benefit in the United Kingdom that is intended to help working age adults with the extra costs of living with a health condition or a disability. It is available in England, Wales and Northern Ireland but not in Scotland where Adult Disabled Payment (ADP) is claimed instead.
George Jelinek is an Australian doctor who is professor and founder, Neuroepidemiology Unit, Melbourne School of Population and Global Health. This unit expressly evaluates modifiable risk factors that predict the progression of Multiple sclerosis. He has served since 2017 as the Chief Editor for Neuroepidemiology in the journal Frontiers in Neurology, and he was Founding Editor – and is currently the Editor Emeritus – for Emergency Medicine Australasia. Jelinek also has the distinction of being the first Professor of Emergency Medicine in Australasia. Between 1987 and 2018, he published more than 150 peer-reviewed papers, seven book forewords and eight books, and received more than 20 research grants. He is a frequent invited speaker.
Aberdeen University Medics RFC is a rugby union club based in Aberdeen, Scotland. The Men's team currently plays in Caledonia North Four.
Multiple Sclerosis Australia, commonly referred to as MS Australia, is a prominent national non-profit organization with a primary focus on research and advocacy in support of individuals affected by Multiple Sclerosis (MS). This organization achieved official registration as a charitable entity in Australia in the year 1975. As of July 2021, there are over 25,000 people living with multiple sclerosis in Australia and MS Australia serves as the peak body for all Australians living with or otherwise affected by MS.
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