National Organization on Fetal Alcohol Syndrome

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National Organization on Fetal Alcohol Syndrome
AbbreviationNOFAS
Formation1990
TypeNon-profit public health charitable organization
PurposeThe issue of fetal alcohol syndrome and fetal alcohol spectrum disorders
LeaderTom Donaldson
Key people
Lisa Murkowski, John McCain, Orrin Hatch

The National Organization on Fetal Alcohol Syndrome (NOFAS) is a non-profit public health charitable organization focused on the issue of fetal alcohol syndrome and fetal alcohol spectrum disorders (FASD). NOFAS was founded in 1990 and advocates for improved public policy for people affected by FASD, provides resources for people living with FASD, and educates the public about FASD and the risks of drinking alcohol while pregnant. NOFAS has a network of over 40 affiliates around the United States.

NOFAS works in collaboration with several U.S. government agencies, such as the Centers for Disease Control and Prevention (CDC). In 2010, the CDC awarded a four-year cooperative agreement to NOFAS to increase FASD support services. [1]

Tom Donaldson serves as director of NOFAS. He has been interviewed for the Chicago Tribune . [2] Kathy Mitchell serves as vice president and national spokesperson. Ms. Mitchell has written about FASD for The Partnership at Drugfree.org. [3] The NOFAS Advisory Board includes many prominent supporters, including U.S. Senators Lisa Murkowski, John McCain, Orrin Hatch, and Tom Coburn, FASD experts Sterling Clarren, Kenneth Jones, and Philip May, TV producer Neal Baer, and others. [4]

NOFAS takes the position that no amount of alcohol is safe to consume during pregnancy and opposes the view that light drinking during pregnancy (an occasional glass of wine) is safe.

NOFAS programs include:

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A birth defect, also known as a congenital disorder, is a condition present at birth regardless of its cause. Birth defects may result in disabilities that may be physical, intellectual, or developmental. The disabilities can range from mild to severe. Birth defects are divided into two main types: structural disorders in which problems are seen with the shape of a body part and functional disorders in which problems exist with how a body part works. Functional disorders include metabolic and degenerative disorders. Some birth defects include both structural and functional disorders.

Fetal alcohol spectrum disorder Group of conditions resulting from maternal alcohol consumption during pregnancy

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High-risk pregnancy Medical condition

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June Oscar

June Oscar AO is an Australian Aboriginal woman of Bunuba descent, Indigenous rights activist, community health and welfare worker, film and theatre producer, and Aboriginal and Torres Strait Islander Social Justice Commissioner. Oscar is best known for her fight against Fetal Alcohol Spectrum Disorder (FASD) and work in improving the lives of Aboriginal people in remote communities. In 2007, she led the successful campaign for alcohol restrictions in the Kimberley town of Fitzroy Valley.

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Alcohol packaging warning messages Warning messages about health issues appearing on alcohol bottles

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Elizabeth Jane Elliott is an Australian clinician scientist. She is a Member of the Order of Australia (AM), for services to paediatrics and child health, as well as an Elected Fellow of the Australian Academy of Health and Medical Science (AAHMS), Fellow of the Royal Society of NSW, and Fellow of the Academy of Child and Adolescent Health. She was the first female to win the James Cook Medal, awarded by the Royal Society of NSW for contributions to human welfare. She is a Distinguished Professor of paediatrics at the University of Sydney and a Consultant Paediatrician at the Sydney Children’s Hospitals Network, Westmead, and regarded as a "pioneer in fetal alcohol spectrum disorder, advocacy and patient care".

Ann Roth Pytkowicz Streissguth is a scientist known for her groundbreaking research on fetal alcohol spectrum disorder. She is an Endowed Professor Emeritus and Founding Director of the Fetal Alcohol Drug Unit at the University of Washington School of Medicine.

References

  1. "CDC - FASD, Training and Education - NCBDDD". Cdc.gov. 2013-04-15. Retrieved 2013-08-30.
  2. "Ask the expert: Maternal drinking and FASD - Chicago Tribune". Articles.chicagotribune.com. 2012-09-26. Retrieved 2013-08-30.
  3. "Commentary: Creating a Circle of Hope to Prevent Fetal Alcohol Syndrome Disorders | The Partnership at". Drugfree.org. Retrieved 2013-08-30.
  4. "NOFAS – Board & Staff". Nofas.org. 1996-01-09. Retrieved 2013-08-30.