POLST (Physician Orders for Life-Sustaining Treatment) is an approach to improving end-of-life care in the United States, encouraging providers to speak with the severely ill and create specific medical orders to be honored by health care workers during a medical crisis. [1] POLST began in Oregon in 1991 and currently exists in 46 states, British Columbia, and South Korea. [2] The POLST document is a standardized, portable, brightly colored single page medical order that documents a conversation between a provider and an individual with a serious illness or frailty towards the end of life. A POLST form allows emergency medical services to provide treatment that the individual prefers before possibly transporting to an emergency facility.
The POLST form is a medical order which means that the POLST form is always signed by a medical professional and, depending upon the state, the person stated on the form can sign as well. A pragmatic rule for initiating a POLST can be if the clinician would not be surprised if the individual were to die within one year. [3] One difference between a POLST form and an advance directive is that the POLST form is designed to be actionable throughout an entire community. [4] It is immediately recognizable and can be used by doctors and first responders (including paramedics, fire departments, police, emergency rooms, hospitals and nursing homes). Comparing to documents like DNI (Do Not Intubate), DNR (Do Not Resuscitate) and advance directive, the POLST form provides more information on the types of end-of-life treatment or intervention that the severely ill wishes to receive. [5]
Organizations that have passed formal resolutions in support of POLST include the American Bar Association [6] and the Society for Post-Acute and Long-Term Care Medicine [7] (AMDA). Other organizations that support POLST include the American Nurses Association [8] (ANA); the Institute of Medicine; [9] National Association of Social Workers [10] (NASW); AARP; [11] the American Academy of Hospice and Palliative Medicine [12] (AAHPM); Pew Charitable Trusts; [13] and the Catholic Health Association of the United States [14] (CHA).
POLST orders are also known by other names in some states: Medical Orders for Life-Sustaining Treatment (MOLST), Medical Orders on Scope of Treatment (MOST), Physician's Orders on Scope of Treatment (POST) or Transportable Physician Orders for Patient Preferences (TPOPP). [15]
POLST represents a significant paradigm change in advance care policy by standardizing provider communications through a plan of care in a portable way, rather than focusing solely on standardizing individuals' communications via advance directives. [3]
The POLST paradigm requires people, their surrogates, and their providers to accomplish three core tasks:
To determine whether a POLST form should be completed, clinicians should ask themselves, "Would I be surprised if this person died in the next year?" If the answer is that the patient's prognosis is one year or less, then a POLST form is appropriate. [19]
In a 2006 consensus report, the National Quality Form observed that "compared with other advance directive programs, POLST more accurately conveys end-of-life preferences and yields higher adherence by medical professionals." The National Quality Forum and other experts have recommended nationwide implementation of the POLST paradigm [20] Implementation of POLST was also recently recommended by the National Academy of Sciences Institute of Medicine in its report, "Dying in America: Improving Quality and Honoring Individual Preferences Near the End of Life." The report was released September 17, 2014.
The POLST form is usually on brightly colored paper that contains options for the individual depending on their health status. The POLST form generally has sections for the individual to decide whether or not they would want cardiopulmonary resuscitation (CPR), the preferred level of medical interventions, or whether they would want artificially administered nutrition. Depending on the state, there could be another section on whether to provide antibiotics or not to the individual being treated. [21]
The first section in most forms across the country is Section A indicating the option between performing cardiopulmonary resuscitation (CPR) or no CPR or do not attempt to resuscitate. The national form indicates mechanical ventilators, defibrillation and cardioversion under the CPR specifications. [22] A study showed that there was a high rate of providers respecting the individual's decisions regarding CPR, which means that the providers respected their wishes according to the POLST forms. [23]
The level of medical intervention is on section B on the POLST form with options of "comfort measures", "limited additional treatment", or "full treatment". [21] This section only comes into play if the individual still has a pulse and/or if they are still breathing. [21] The "comfort measures" allow for natural death and only helps the individual relieve any pain. By checking this box, the individual also prefers to not be transferred within the hospital. [21] The "limited additional treatment" includes the comfort measures in addition to basic medical treatment. [21] “Full treatment” authorizes the medical team to try their best to save the individual and increases their life expectancy with all methods. [21] This option also allows people to choose whether they would like a trial period. A study on nursing home residents has shown the high rate that the medical teams respected peoples’ wishes and gave the treatments according to the orders on section B. [23]
This section comes with options of “no artificial nutrition by tube”, “defined trial period of artificial nutrition by tube” and “long-term artificial nutrition by tube”. [21] If the person is able to chew and swallow, the food will be taken by mouth. Studies have found that orders to withhold artificial nutrition such as feeding tubes are usually executed by the providers. [23]
For most versions of POLST, orders on antibiotics have three aspects: antibiotic use to enhance comfort, the use of intravenous/intramuscular (IV/IM) antibiotics, and the use of antibiotics at time of disease or infection. [23] Studies have found orders on the use of antibiotics for comfort measures tend to have high rates of execution. [23] However, one study has shown that providers do not always obey the individual's wish to not use antibiotics. [23] Because certain types of infection have other means to alleviate symptoms of infections, so physicians' use of antibiotics seem to be generally unaffected by POLST. [23]
Before executing the orders on the POLST form, the provider should talk with individuals with decision-making capacity to obtain the most updated wishes. [5] This process or conversation could involve families and relevant care providers as well to ensure people are well-informed while making the decisions. [5] If the individual has made changes to the POLST form, the provider is responsible for explaining how the updates will likely impact future treatment plans. [5] However, if the individual is not able to make decisions because of his or her disease state, the clinicians have to follow orders on preexisting POLST forms. [5]
An advance directive is a legal document that allows individuals to share their wishes with their health care team during a future medical emergency. [4] The document does so by designating a guardian that the user wants their medical team to work with (also known as a “surrogate”). [24] [4] Competent individuals above 18 years of age can fill out an advance directive. [4] An advance directive allows an individual to state what treatments he or she would want in a medical crisis, but it is not a medical order. [4] Advance directives are not portable in a sense that it is not accessible across medical systems, so it is the individual's responsibility to have the form on them at all times. [4] This can bring up challenges as it can be difficult to locate and may need to be interpreted when it is needed. [4] Because advanced directives are filled out by healthy individuals, the form is considered to be a "living will". [24]
Unlike advance directives, a POLST should only be used when the individual is at the end of life. [15] Typically, if a provider believes that a person's condition will increasingly worsen and make it hard for the individual to survive another year, then a POLST Form is used. [24] A POLST form turns a person's treatment wishes outlined in an advance directive into medical orders. [25] The POLST Form provides explicit guidance to healthcare professionals under predictable future circumstances based on the individual's current medical condition. [1] The POLST form is reviewed more frequently compared to an advance directive to make sure that the form complies with the individual's wishes in treatments as the disease progresses. [24]
Compared to the advanced directive, there is no designated surrogate when using a POLST Form. [24] To designate a health care surrogate, people must use an advance directive. [24] Once a surrogate is established and if the individual does not have the mental capacity to make decisions, the surrogate has the authority to make decisions on the POLST Form; the amount of authority for the surrogate, however, varies per state. [24] An individual does not need to have an advance directive to have a POLST form although health care professionals recommend that all competent adults have advance directives in place; this will help healthcare providers shape a more concise medical decision that better reflects the individual's wishes. [24]
Lastly, the POLST form is very portable unlike the advance directive. It is the physicians' responsibility to make it accessible across different medical facilities. [4]
Supporters suggests that POLST protects individuals’ right to make their own medical decisions and prevents the miscommunications among individuals, their family members and healthcare providers. [21] Most healthcare providers have a positive attitude towards POLST, saying that the form presents peoples’ wishes and they can provide better care at individual's end of life with the form as guidance. [23] This also prevents undesirable interventions as well as unnecessary expense on hospice care in healthcare facilities. [21] For example, the medical teams would not give resuscitation or other medical interventions unless individuals indicate on the form. According to Gundersen lutheran Health System, after they have adopted POLST, about $3000 to $6000 is reduced at the cost for each person because the hospital does not need to use medical devices or interventions to support their lives after they select “comfort measures” on the form. [21] In addition, the formal document is a standard medical order signed by physicians and it is legal and effective in various healthcare settings and states. [21] In other words, if individuals travel to another state with POLST, hospitals in that state may accept the form as a plan of care and fulfill their wishes at the end of life. POLST can be also an implement to examine any discrepancies between the actual treatments and individuals’ preferences, and to make sure that healthcare providers would respect and obey their preferences, [37] which avoids the situations that may go against their wills.
POLST covers the limitations that advance directives and Do Not Resuscitate or Do Not Intubate orders (DNR/DNI) have. [5] For example, illnesses are unsteady as the conditions may change in severity every day. Individuals that are 18 years old and above can fill out the form when they are healthy and competent, but they are not able to foresee what may happen and they may change their mind in treatments; [4] however, advance directives does not take the changes into consideration. [5] The form can be filled out by surrogates who may express individual’s preferences differently or mistakenly. [5] Also, DNR/DNI only considers the situations that are related to CPR or intubation instead of recording individuals’ preferences in various situations at the end of their lives. [5] Some studies have shown that the providers were less likely to give aggressive treatments to individuals with DNR/DNI even if they are not critically ill. A study on nursing home residents has found that most residents with DNR order marked on POLST forms that they would like to have treatments, which indicates that DNR orders do not convey individual’s ideas and POLST is a better tool in communication. [5] [17] Therefore, advance directives and DNR/DNI may not be truly proposed to improve individuals care at the end of life. [5]
Conservative groups like the Media Research Center and the Catholic Medical Association argue that there will be unintended consequences or potential abuses fostered by POLST adoption. [38] [32] [39] In some cases, this results from the way the enabling laws are written. Any document determining an individual's quality of care or life-ending choices carries moral and ethical dilemmas, and POLST instruments (or the protocols and circumstances through which they are explained to people) have been criticized for this by the Catholic Medical Association. The Catholic Health Association answered criticisms in a white paper entitled “The POLST Paradigm and Form: Facts and Analysis.” POLST is viewed to be conflicted with Catholic ideas on “rightful and wrongful refusal decisions” especially on the last section about nutrition and antibiotics, and the Catholic providers feel being forced to follow the order since it seems to violate their beliefs. [21]
Healthcare providers also mention some challenges that have met when introducing POLST to individual's and their families. [23] They may not feel comfortable discussing the content of the form or they have trouble understanding it. [23] People and their family members may also have different opinions when completing the form. [23] In addition, the physicians may not support POLST and refuse to sign because they are worried that they may need to take the blame or have some responsibilities by signing it even if using the form is a part of standard care. [5]
Some people suggested that some of the questions on POLST forms do not apply to actual situations. [40] For example, in the first section on the form is asking if individuals would like to have resuscitation when they do not have pulses. [23] But some individuals may not be hospitalized or they may be living at home and cannot get access to the interventions mentioned on the form; and thus, the question is not suitable for their situations. [40] Some people also doubt whether POLST truly delivers individuals’ wills as they may change their minds in different contexts. [21] Studies have shown that up to 45% of individuals were unsure of their choices when they first filled out the form and up to 70% of individuals had inconsistent answers when the questions were phrased differently. [21]
Several studies have supported the use of POLST as a tool to ensure people's wishes are complied with:
Most of the studies done on the POLST research were done in Oregon where there is a less diverse demographic. [23] The studies done on POLST were mainly done in nursing facilities. Therefore, there is limited data about POLST in other parts of the community. [23] In addition, the training for the physicians for implementing POLST program may not be consistent throughout different healthcare facilities. [23]
Cardiac arrest, also known as sudden cardiac arrest, is when the heart suddenly and unexpectedly stops beating. As a result, blood cannot properly circulate around the body and there is diminished blood flow to the brain and other organs. When the brain does not receive enough blood, this can cause a person to lose consciousness. Coma and persistent vegetative state may result from cardiac arrest. Cardiac arrest is also identified by a lack of central pulses and abnormal or absent breathing.
Advanced cardiac life support, advanced cardiovascular life support (ACLS) refers to a set of clinical guidelines for the urgent and emergent treatment of life-threatening cardiovascular conditions that will cause or have caused cardiac arrest, using advanced medical procedures, medications, and techniques. ACLS expands on Basic Life Support (BLS) by adding recommendations on additional medication and advanced procedure use to the CPR guidelines that are fundamental and efficacious in BLS. ACLS is practiced by advanced medical providers including physicians, some nurses and paramedics; these providers are usually required to hold certifications in ACLS care.
An advance healthcare directive, also known as living will, personal directive, advance directive, medical directive or advance decision, is a legal document in which a person specifies what actions should be taken for their health if they are no longer able to make decisions for themselves because of illness or incapacity. In the U.S. it has a legal status in itself, whereas in some countries it is legally persuasive without being a legal document.
A do-not-resuscitate order (DNR), also known as Do Not Attempt Resuscitation (DNAR), Do Not Attempt Cardiopulmonary Resuscitation (DNACPR), no code or allow natural death, is a medical order, written or oral depending on the jurisdiction, indicating that a person should not receive cardiopulmonary resuscitation (CPR) if that person's heart stops beating. Sometimes these decisions and the relevant documents also encompass decisions around other critical or life-prolonging medical interventions. The legal status and processes surrounding DNR orders vary in different polities. Most commonly, the order is placed by a physician based on a combination of medical judgement and patient involvement.
Dying is the final stage of life which will eventually lead to death. Diagnosing dying is a complex process of clinical decision-making, and most practice checklists facilitating this diagnosis are based on cancer diagnoses.
Life support comprises the treatments and techniques performed in an emergency in order to support life after the failure of one or more vital organs. Healthcare providers and emergency medical technicians are generally certified to perform basic and advanced life support procedures; however, basic life support is sometimes provided at the scene of an emergency by family members or bystanders before emergency services arrive. In the case of cardiac injuries, cardiopulmonary resuscitation is initiated by bystanders or family members 25% of the time. Basic life support techniques, such as performing CPR on a victim of cardiac arrest, can double or even triple that patient's chance of survival. Other types of basic life support include relief from choking, staunching of bleeding by direct compression and elevation above the heart, first aid, and the use of an automated external defibrillator.
Prior to the introduction of brain death into law in the mid to late 1970s, all organ transplants from cadaveric donors came from non-heart-beating donors (NHBDs).
Basic life support (BLS) is a level of medical care which is used for patients with life-threatening illnesses or injuries until they can be given full medical care by advanced life support providers. It can be provided by trained medical personnel, such as emergency medical technicians, and by qualified bystanders.
Terminal illness or end-stage disease is a disease that cannot be cured or adequately treated and is expected to result in the death of the patient. This term is more commonly used for progressive diseases such as cancer, dementia or advanced heart disease than for injury. In popular use, it indicates a disease that will progress until death with near absolute certainty, regardless of treatment. A patient who has such an illness may be referred to as a terminal patient, terminally ill or simply as being terminal. There is no standardized life expectancy for a patient to be considered terminal, although it is generally months or less. Life expectancy for terminal patients is a rough estimate given by the physician based on previous data and does not always reflect true longevity. An illness which is lifelong but not fatal is a chronic condition.
The Vial of Life, also known as Vial of L.I.F.E. is a program that allows individuals to have their complete medical information ready in their home for emergency personnel to reference during an emergency. The program is used to provide the patient's medical information when a patient is not able to speak or remember this information. Vial of Life programs are commonly used by senior citizens and promoted by senior center organizations, fire departments, and other community organizations.
In the field of medicine, a healthcare proxy is a document with which a patient appoints an agent to legally make healthcare decisions on behalf of the patient, when the patient is incapable of making and executing the healthcare decisions stipulated in the proxy. Once the healthcare proxy is effective, the agent continues making healthcare decisions as long as the primary individual is legally competent to decide. Moreover, in legal-administrative functions, the healthcare proxy is a legal instrument akin to a "springing" healthcare power of attorney. The proxy must declare the healthcare agent who will gain durable power attorney. This document also notifies of the authority given from the principal to the agent and states the limitations of this authority.
End-of-life care (EOLC) refers to health care provided in the time leading up to a person's death. End-of-life care can be provided in the hours, days, or months before a person dies and encompasses care and support for a person's mental and emotional needs, physical comfort, spiritual needs, and practical tasks.
In the United States, hospice care is a type and philosophy of end-of-life care which focuses on the palliation of a terminally ill patient's symptoms. These symptoms can be physical, emotional, spiritual or social in nature. The concept of hospice as a place to treat the incurably ill has been evolving since the 11th century. Hospice care was introduced to the United States in the 1970s in response to the work of Cicely Saunders in the United Kingdom. This part of health care has expanded as people face a variety of issues with terminal illness. In the United States, it is distinguished by extensive use of volunteers and a greater emphasis on the patient's psychological needs in coming to terms with dying.
MOLST is an acronym for Medical Orders for Life-Sustaining Treatment. The MOLST Program is an initiative to facilitate end-of-life medical decision-making in New York State, Connecticut, Massachusetts, Rhode Island, Ohio and Maryland, that involves use of the MOLST form. Most other U.S. states have similar initiatives, such as Physician Orders for Life-Sustaining Treatment. In New York state, the MOLST form is a New York State Department of Health form. MOLST is for patients such as a terminally ill patient, whether or not treatment is provided. For this example, assume the patient retains medical decision-making capacity and wants to die naturally in a residential setting, not in the intensive-care unit of a hospital on a ventilator with a feeding tube. Using MOLST, with the informed consent of the patient, the patient's doctor could issue medical orders for life-sustaining treatment, including any or all of the following medical orders: provide comfort measures only; do not attempt resuscitation ; do not intubate; do not hospitalize; no feeding tube; no IV fluids; do not use antibiotics; no dialysis; no transfusions. The orders should be honored by all health care providers in any setting, including emergency responders who are summoned by a 9-1-1 telephone call after the patient loses medical decision-making capacity.
The Family Health Care Decisions Act is a statute adopted in New York state in 2010 that had been pending before the legislature since 1994. The statute was approved by the New York State Senate in July, 2009. The legislation was introduced by state senator Thomas Duane of Manhattan. It was signed into law by Gov. David Paterson on March 16, 2010.
A surrogate decision maker, also known as a health care proxy or as agents, is an advocate for incompetent patients. If a patient is unable to make decisions for themselves about personal care, a surrogate agent must make decisions for them. If there is a durable power of attorney for health care, the agent appointed by that document is authorized to make health care decisions within the scope of authority granted by the document. If people have court-appointed guardians with authority to make health care decisions, the guardian is the authorized surrogate.
Allow Natural Death (AND) is a medical term defining the use of life-extending measures such as cardiopulmonary resuscitation (CPR). These orders emphasize patient comfort and pain management instead of life extension. Currently, American medical communities utilize "do not resuscitate," (DNR) orders to define patients' medical wishes. Those who propose to replace DNR with AND posit that DNR orders are ambiguous and require complex understanding between several parties, while AND orders are clearer. Proponents of replacing DNR with AND believe that AND terminology is more ethically conscientious DNR terminology. Research has been conducted regarding participant preference for AND vs. DNR terminology. The ease with which the terminology change can be practically incorporated depends on many factors such as costs and staff reeducation.
Slow code refers to the practice in a hospital or other medical centre to purposely respond slowly or incompletely to a patient in cardiac arrest, particularly in situations for which cardiopulmonary resuscitation (CPR) is thought to be of no medical benefit by the medical staff. The related term show code refers to the practice of a medical response that is medically futile, but is attempted for the benefit of the patient's family and loved ones. However, the terms are often used interchangeably.
Advance care planning is a process that enables individuals with decisional mental capacity to make plans about their future health care. Advance care plans provide direction to healthcare professionals when a person is not in a position to make and/or communicate their own healthcare choices. Advance care planning is applicable to adults at all stages of life. Participation in advance care planning has been shown to reduce stress and anxiety for patients and their families, and lead to improvements in end of life care. Older adults are more directly concerned as they may experience a situation where advance care planning can be useful. However, a minority use them. A research conducted in Switzerland with people aged 71 to 80 showed that better knowledge on advance care planning dispositions could improve the perception older people have of them. Communication on dispositions should take into account individual knowledge levels and address commonly enunciated barriers that seem to diminish with increased knowledge.
ReSPECT stands for Recommended Summary Plan for Emergency Care and Treatment. It is an emergency care and treatment plan (ECTP) used in parts of the United Kingdom, in which personalized recommendations for future emergency clinical care and treatment are created through discussion between health care professionals and a person. These recommendations are then documented on a ReSPECT form.
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