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The Presidential Commission for the Study of Bioethical Issues (the Bioethics Commission) was created by Executive Order 13521 on November 24, 2009. [1] The Bioethics Commission advised President Barack Obama on bioethical issues arising from advances in biomedicine and related areas of science and technology. It replaces The President's Council on Bioethics appointed by United States President George W. Bush to advise his administration on bioethics, and the National Bioethics Advisory Commission (1996-2001).
Commission-developed bioethics educational materials are freely available for download from the archived Bioethics Commission website . They are intended to be adapted for use in diverse learning contexts, including K-12 and higher education classrooms, professional education, and community settings.
Bioethics Commission educational materials include:
The Bioethics Commission was supported by a staff that provided research, communication, management, and administrative support for its activities. Lisa M. Lee, Ph.D., M.A., M.S. (2012-2017) and Valerie Bonham, J.D. (2010-2011) served as executive director. The research staff, senior advisors, and consultants included public health scientists, educators, lawyers, philosophers, geneticists, and historians, among others.
Bioethics is the study of the ethical issues emerging from advances in biology, medicine and technologies. It proposes the discussion about moral discernment in society and it is often related to medical policy and practice, but also to broader questions as environment and well-being. Bioethics is concerned with the ethical questions that arise in the relationships among life sciences, biotechnology, medicine, politics, law, theology and philosophy. It includes the study of values relating to primary care, other branches of medicine, ethical education in science, animal, and environmental ethics.
Neuroethics refers to two related fields of study: what the philosopher Adina Roskies has called the ethics of neuroscience, and the neuroscience of ethics. The ethics of neuroscience comprises the bulk of work in neuroethics. It concerns the ethical, legal and social impact of neuroscience, including the ways in which neurotechnology can be used to predict or alter human behavior and "the implications of our mechanistic understanding of brain function for society... integrating neuroscientific knowledge with ethical and social thought".
The President's Council on Bioethics (PCBE) was a group of individuals appointed by United States President George W. Bush to advise his administration on bioethics. Established on November 28, 2001, by Executive Order 13237, the council was directed to "advise the President on bioethical issues that may emerge as a consequence of advances in biomedical science and technology". It succeeded and largely replaced the National Bioethics Advisory Commission, appointed by President Bill Clinton in 1996, which expired in 2001.
The Hastings Center is an independent, nonpartisan bioethics research institute and think tank based in Garrison, New York. It was instrumental in establishing the field of bioethics and is among the most prestigious bioethics and health policy institutes in the world.
The Johns Hopkins Berman Institute of Bioethics in Baltimore, Maryland, United States, is an interdisciplinary center serving the entire Johns Hopkins University and Health System. It is dedicated to the study of complex moral and policy issues in biomedical science, health care, and health policy. Established in 1995, the Institute seeks answers to ethical questions by promoting research in bioethics and encouraging moral reflection among a broad range of scholars, professionals, students, and citizens. Contributing to its mission are four divisions of the University: the Zanvyl Krieger School of Arts and Sciences, the Johns Hopkins School of Medicine, the Bloomberg School of Public Health, and the Johns Hopkins School of Nursing.
Ethics or moral philosophy is a branch of philosophy that involves systematizing, defending, and recommending concepts of right and wrong conduct. The field of ethics, along with aesthetics, concern matters of value, and thus comprise the branch of philosophy called axiology.
Paul A. Lombardo is an American legal historian known for his work on the legacy of eugenics and sterilization in the United States. He is currently the Bobby Lee Cook Professor of Law at Georgia State University in Atlanta, Georgia.
Jonathan D. Moreno is an American philosopher and historian who specializes in the intersection of bioethics, culture, science, and national security, and has published seminal works on the history, sociology and politics of biology and medicine.
Human subject research legislation in the United States can be traced to the early 20th century. Human subject research in the United States was mostly unregulated until the 20th century, as it was throughout the world, until the establishment of various governmental and professional regulations and codes of ethics. Notable – and in some cases, notorious – human subject experiments performed in the US include the Tuskegee syphilis experiment, human radiation experiments, the Milgram obedience experiment and Stanford prison experiments and Project MKULTRA. With growing public awareness of such experimentation, and the evolution of professional ethical standards, such research became regulated by various legislation, most notably, those that introduced and then empowered the institutional review boards.
The President's Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research was a bioethics organization in the United States.
Ann M. Mongoven is an American philosophy professor and medical ethicist. She earned her Ph.D. in religious studies/ethics from the University of Virginia in 1996 and a M.P.H. from the Johns Hopkins University Bloomberg School of Public Health in 2006. Mongoven taught courses at Indiana University/Bloomington before going on to teach at Michigan State University where she currently holds a dual appointment with the philosophy department and the Center for Ethics and Humanities in the Life Sciences. Mongoven is also a Michigan State University Lilly Teaching Fellow and was an ethics consultant for the United States Department of Health and Human Services.
The MacLean Center for Clinical Medical Ethics, founded in 1981, is a non-profit clinical medical ethics research institute based in the United States. Founded by its director, Mark Siegler, the MacLean Center for Clinical Medical Ethics aims to improve patient care and outcomes by promoting research in clinical medical ethics by educating physicians, nurses, and other health care professionals and by helping University of Chicago Medicine patients, families, and health care providers identify and resolve ethical dilemmas. The center has trained over 410 fellows, including many physicians, attorneys, PhDs and bioethicists.
Daniel Sulmasy is an American medical ethicist and former Franciscan friar. He has been Acting Director of the Kennedy Institute of Ethics and on the faculty of the Pellegrino Center for Clinical Bioeticswas also named He is the inaugural Andre Hellegers Professor of Biomedical Ethics, with co-appointments in the Departments of Philosophy and Medicine at Georgetown.
The International Neuroethics Society (INS) is a professional organization that studies the social, legal, ethical, and policy implications of advances in neuroscience. Its mission is to encourage and inspire research and dialogue on the responsible use of advances in brain science.
German Ethics Council is an independent council of experts in Germany addressing the questions of ethics, society, science, medicine and law and the probable consequences for the individual and society that result in connection with research and development, in particular in the field of the life sciences and their application to humanity. Its duties include informing the public and encouraging discussion in society, preparing opinions and recommendations for political and legislative action for the Federal Government and the German Bundestag as well as cooperating with national ethics councils and comparable institutions of other states and of international organisations.
Bryn Williams-Jones is a Canadian bioethicist who since 2010 has directed the Bioethics Program at the School of Public Health, Université de Montréal, and is professor in the Department of Social and Preventive Medicine. He is co-founder and editor-in-chief of the Canadian Journal of Bioethics/Revue canadienne de bioéthique, the first open access bilingual bioethics journal in Canada, and is a member of the Public Health Research Institute of the Université de Montréal (IRSPUM) and the Centre for Ethics Research (CRÉ).
Christine I. Mitchell is an American filmmaker and bioethicist and the executive director of the Center for Bioethics at Harvard Medical School (HMS).
Nita A. Farahany is an Iranian-American professor and scholar on the ramifications of new technology on society, law, and ethics. She currently teaches Law and philosophy at Duke University where she is the Robinson O. Everett Distinguished Professor of Law & Philosophy at Duke Law School, the founding director of Duke Initiative for Science and Society as well as a chair of the Bioethics and Science Policy MA program. She is active on many committees, councils, and other groups within the law, emerging technology, and bioethics communities with a focus on technologies that have increasing potential to have ethical and legal issues. In 2010 she was appointed by President Obama to the Presidential Commission for the Study of Bioethical Issues.
Vardit Ravitsky is a bioethicist, researcher, and author. She is a professor at the University of Montreal and a part-time senior lecturer on Global Health and Social Medicine at Harvard Medical School. She is the director of Ethics and Health at the Center for Research on Ethics, the president of the International Association of Bioethics, and a Fellow of the Pierre Elliott Trudeau Foundation, where she Chairs the COVID-19 Impact Committee. She is also Fellow of The Hastings Center and of the Canadian Academy of Health Sciences.
Maxwell J. Smith is a Canadian bioethicist and assistant professor in the Faculty of Health Sciences at Western University in London, Ontario, Canada. He is the Co-Director of Western's Health Ethics, Law, and Policy (HELP) Lab and holds appointments in Western's Department of Philosophy and Rotman Institute of Philosophy. He also serves as a consulting clinical bioethicist at Sunnybrook Health Sciences Centre in Toronto, Ontario, Canada.
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