Cystic fibrosis (CF) is a rare genetic disorder that affects mostly the lungs, but also the pancreas, liver, kidneys, and intestine. Long-term issues include difficulty breathing and coughing up mucus as a result of frequent lung infections. Other signs and symptoms may include sinus infections, poor growth, fatty stool, clubbing of the fingers and toes, and infertility in most males. Different people may have different degrees of symptoms.
Jennifer Ann Agutter is a British actress. She began her career as a child actress in 1964, appearing in East of Sudan, Star!, and two adaptations of The Railway Children—the BBC's 1968 television serial and the 1970 film version. In 1971 she also starred in the critically acclaimed film Walkabout and the TV film The Snow Goose, for which she won an Emmy Award for Outstanding Supporting Actress in a Drama.
Eavan Aisling Boland was an Irish poet, author, and professor. She was a professor at Stanford University, where she had taught from 1996. Her work deals with the Irish national identity, and the role of women in Irish history. A number of poems from Boland's poetry career are studied by Irish students who take the Leaving Certificate. She was a recipient of the Lannan Literary Award for Poetry.
St. Vincent's Hospital is a teaching hospital located at Elm Park, south of the city of Dublin, Ireland. It is at the junction of Merrion Road and Nutley Lane opposite the Merrion Centre and adjacent to Elm Park Golf Club. It is managed by Ireland East Hospital Group.
Lung transplantation, or pulmonary transplantation, is a surgical procedure in which one or both lungs are replaced by lungs from a donor. Donor lungs can be retrieved from a living or deceased donor. A living donor can only donate one lung lobe. With some lung diseases, a recipient may only need to receive a single lung. With other lung diseases such as cystic fibrosis, it is imperative that a recipient receive two lungs. While lung transplants carry certain associated risks, they can also extend life expectancy and enhance the quality of life for those with end stage pulmonary disease.
Mackenzie Rosman is an American actress. She is known for her television role as Ruthie Camden on The WB's long-running drama series 7th Heaven.
Laura Elizabeth Rothenberg was an American author. She wrote a memoir describing her life with cystic fibrosis called Breathing for a Living.
Beaumont Hospital is a large teaching hospital located in Beaumont, Dublin, Ireland. It is managed by RCSI Hospitals - one of the hospital groups established by the Health Service Executive. Its academic partner is the Royal College of Surgeons in Ireland.
Eiléan Ní Chuilleanáin is an Irish poet and academic. She was the Ireland Professor of Poetry (2016–19).
Kirsten Sheridan is an Irish film director and screenwriter. She is best known for co-writing the semi-autobiographical film In America with her father, director Jim Sheridan, and her sister, Naomi Sheridan, for which she was nominated for an Academy Award for Best Original Screenplay and a Golden Globe Award for and Best Screenplay.
Mary Anne Davis is an Irish social entrepreneur, activist and long-term campaigner for the rights and inclusion of children and adults with intellectual disabilities. She has been the chief executive officer of Special Olympics International since May 2016. She previously served as managing director and Regional President of Special Olympics Europe/Eurasia (SOEE), with the responsibility of overseeing the growth and development of Special Olympics across 58 countries in Western Europe, Eastern Europe and Central Asia. Davis also served as Chairperson of Special Olympics Ireland.
Orla Tinsley is a journalist, campaigner and multimedia artist from County Kildare in Ireland.
65_RedRoses is a 2009 documentary film about Eva Markvoort, a young woman from New Westminster, British Columbia, who suffered from cystic fibrosis. Directed by Philip Lyall and Nimisha Mukerji, it follows Markvoort as she lives her life undaunted by her disease, waiting for a lung transplant while blogging about her experiences.
Eva Markvoort was a young woman from New Westminster, British Columbia, Canada who died from cystic fibrosis at the age of 25. She blogged about her life, family and experiences, including undergoing a lung transplant and her subsequent transplant rejection, in her blog "65_Redroses," which is also the name of a documentary film about her, 65 Redroses.
Rita Ann Higgins is an Irish poet and playwright.
The Sarah Murnaghan lung transplant controversy began in late May 2013, when the parents of a ten-year-old Philadelphia area girl with cystic fibrosis, Sarah Murnaghan, launched a campaign to change the under-12 policy of the United Network for Organ Sharing (UNOS), which they asserted was age discrimination. Her plight received considerable media attention, particularly because Kathleen Sebelius, Secretary of Health and Human Services, refused to intervene to grant an exception to the rule.
Claire Lucia Wineland was an American activist, author, speaker and social media personality. Through her non-profit organization, Claire's Place Foundation, she provided support to children and families affected by cystic fibrosis (CF). She died from a blood clot one week after receiving a double lung transplant at the age of 21.
Five Feet Apart is a 2019 American romantic drama film directed by Justin Baldoni and written by Mikki Daughtry and Tobias Iaconis. The film was inspired by Claire Wineland, who suffered from cystic fibrosis. Haley Lu Richardson and Cole Sprouse play two young patients with cystic fibrosis who try to have a relationship despite being forced to stay six feet apart from each other. The film was released in the United States on March 15, 2019 by CBS Films via Lionsgate. It received mixed reviews from critics and grossed $92 million worldwide.
Mallory Beatrice Smith was an author and cystic fibrosis advocate.
