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Ren Michael Pedersen OAM (born "Rene" in Atherton, North Queensland, Australia) is an advocate for children's brain cancer research.
After the death of his daughter Amy from a brain stem cancer known as Diffuse Intrinsic Pontine Glioma (DIPG), Pedersen founded the independent Australian arm of The Cure Starts Now. [1]
Pedersen was awarded an Order of Australia Medal in the 2022 Australia Day Honours for service to the community. [2]
Pedersen was Australia`s first ever advocate for DIPG research and assisted families and institutions with acquiring the first ever DIPG tumor samples for scientific purposes, ie: https://www.youtube.com/watch?v=OKzAIVh5aBk The Cure Starts Now was founded in 2007 by Cincinnati's Keith and Brooke Desserich with Pedersen the former director of the independent Australian branch of the organization. In 2009, the organization became an official DGR Registered Australian charity (Incorporation #IA37656) [3] and then in 2019 a new charity name The Cure Starts Now Australia Limited was registered as a charity. [4]
In 2013 the organisation was awarded a $109,000 Monash Institute of Medical Research Grant to fund "Targeted Drug and Stem Cell Therapy" trials [5] and was featured at the International Symposium on Pediatric Neuro-Oncology in Singapore in 2014. [6]
Pedersen sat on the Cure Starts Now's Strategic Advisory Council, which has overseen the approval of approximately $25M AUD worth of new BT/DIPG research projects in the past decade. [7] Pedersen resigned from the charity he founded in 2022 and is currently assisting the Children`s Cancer Institute of Australia to expedite drug delivery protocols for local DIPG children and families: https://www.ccia.org.au/event/rens-million-dollar-mission
To date approximately $5 million has been directly raised by The Cure Starts Now (Australia) [8] for DIPG brain tumour research, since its 2009 inception [9]
Significant fundraising activities include:
Pedersen is a certified helicopter pilot, attaining his Commercial Pilot License at the age of 52. [24] Ren is the owner and operator of Patriot Logistics since 2004. https://www.facebook.com/patriotcranehire
Cancer Research UK (CRUK) is the world's largest independent cancer research organisation. It is registered as a charity in the United Kingdom and Isle of Man, and was formed on 4 February 2002 by the merger of The Cancer Research Campaign and the Imperial Cancer Research Fund. Cancer Research UK conducts research using both its own staff and grant-funded researchers. It also provides information about cancer and runs campaigns aimed at raising awareness and influencing public policy.
Cancer research is research into cancer to identify causes and develop strategies for prevention, diagnosis, treatment, and cure.
Major Mark Beretta he wa an Australian journalist, best known as a sports reporter on Seven Network program Sunrise, and is has also been an officer in the Australian Army Reserve in public relations since 2019.
Samuel Joseph Johnson is an Australian actor. He is best known for his roles as Evan Wylde in the television series The Secret Life of Us for which he won the AFI award for Best Performance by an Actor in a Leading Role in a Telefeature in 2001, Leon Broznic in Rush, Toby Kirby in After the Deluge and as Molly Meldrum in the miniseries Molly for which he won the AACTA Award for Best Lead Actor in a Television Drama and won the Gold Logie for Most Popular Personality on Television of 2017.
Carrie Bickmore is an Australian radio presenter, comedian and former television presenter. She currently co-hosts the national drive radio show on the Hit Network, Carrie & Tommy, from 3–6pm weeknights alongside Tommy Little. She was previously a co-host on Network 10's talk show The Project from 2009–2022.
Charles Teo AM is an Australian neurosurgeon.
Denise Sheer was appointed professor of human genetics at The Institute of Cell and Molecular Science at Queen Mary, University of London in November 2006. Her fields of expertise include cell and molecular biology; cancer genetics and epigenetics; and molecular pathology of paediatric brain tumours.
Catryna Louise Bilyk is an Australian politician. She is a member of the Australian Labor Party (ALP) and has been a Senator for Tasmania since 2008.
A brainstem glioma is a cancerous glioma tumor in the brainstem. Around 75% are diagnosed in children and young adults under the age of twenty, but have been known to affect older adults as well. Brainstem gliomas start in the brain or spinal cord tissue and typically spread throughout the nervous system.
Plus Therapeutics, Inc. is a clinical-stage pharmaceutical company developing innovative, targeted radiotherapeutics for adults and children with rare and difficult-to-treat cancers. The company is headquartered in Austin, Texas, United States.
The Lowy Cancer Research Centre is a facility at The University of New South Wales. It is Australia's first facility bringing together researchers in childhood and adult cancers, and one of the country's largest cancer research facilities, housing up to 400 researchers. The centre, named for businessman Frank Lowy, who donated $10 million towards the project, was officially opened on 28 May 2010. It is home to researchers from the UNSW Faculty of Medicine and Children's Cancer Institute Australia. The inaugural director is Professor Philip Hogg, winner of the Cancer Institute NSW Premier's Award for Outstanding Cancer Research in 2009.
Diffuse midline glioma, H3 K27-altered (DMG) is a fatal tumour that arises in midline structures of the brain, most commonly the brainstem, thalamus and spinal cord. When located in the pons it is also known as diffuse intrinsic pontine glioma (DIPG).
Michelle Haber is an Australian cancer researcher in the field of childhood cancer research.
Vanessa Hayes is a geneticist conducting research into cancer genomics and comparative human genomics. She leads a research group at the Garvan Institute of Medical Research in Sydney Australia and holds the Petre Chair of Prostate Cancer Research at the University of Sydney.
As we know brain tumour is a huge problem and it can be fatal if it is not cure .Over 300,000 cases reported across the world annually .this brain tumour can in turn into brain cancer so, we need to take a step to cure the brain tumour and for this we started research on brain tumour. Together we will find a cure.
The Children's Cancer Foundation is a registered Australian charity that supports children with cancer and their families.
Clinica 0-19 is a medical clinic in Monterrey, Mexico that claims to treat diffuse intrinsic pontine glioma (DIPG). Although DIPG is currently regarded as one of the most devastating pediatric cancers, with a survival rate of <1% over five years, the clinic states that their treatment, which can cost hundreds of thousands of dollars, has resulted in some patients no longer having any evidence of disease. However, there is no credible evidence to support their claims and at least some of their patients were found to have tumor growth a few months later. Oncologists and others have criticized the clinic's lead doctors, Alberto Siller and Alberto Garcia, for their lack of transparency, for not publishing their treatment protocol or survival rates, for the high costs of treatment, and for discouraging their patients from using radiation therapy.
Misty Rayna Jenkins is an Australian scientist known for her research into lymphocytes and cancer treatment.
Susan J. Clark is an Australian biomedical researcher in epigenetics of development and cancer. She was elected a Fellow of the Australian Academy of Science in 2015, and is a National Health and Medical Research Council (NHMRC) Senior Principal Research Fellow and Research Director and Head of Genomics and Epigenetics Division at the Garvan Institute of Medical Research. Clark developed the first method for bisulphite sequencing for DNA methylation analysis and used it to establish that the methylation machinery of mammalian cells is capable of both maintenance and de novo methylation at CpNpG sites and showed is inheritable. Clark's research has advanced understanding of the role of DNA methylation, non-coding RNA and microRNA in embryogenesis, reprogramming, stem cell development and cancer, and has led to the identification of epigenomic biomarkers in cancer. Clark is a founding member of the International Human Epigenome Consortium (IHEC) and President of the Australian Epigenetics Alliance (AEpiA).
Michelle Leigh Monje-Deisseroth is a neuroscientist and neuro-oncologist. She is a professor of neurology at Stanford University and an investigator with the Howard Hughes Medical Institute. She develops new treatments for diffuse intrinsic pontine glioma.