Sally Elizabeth Thorne CM, PhD, FAAN, FCAHS, RN (born 1951) is a Canadian academic nursing teacher, researcher and author. She researched the human experience of chronic illness and cancer, and qualitative research methodologies including metasynthesis and interpretive description. [1]
Thorne obtained her RN Diploma (1972) from the Atkinson School of Nursing at Toronto Western Hospital, BSN (1979) and MSN (1983) from the University of British Columbia School of Nursing, in Vancouver, Canada, and PhD from the Union Institute for Advanced Studies (1990), now the Union Institute & University, in Cincinnati, OH, USA.
Thorne joined the faculty of the University of British Columbia School of Nursing in 1983, and established a research program and methodological development in the area of health service delivery for patients with cancer and chronic disease.
From 2002 until 2010, Thorne served as the Director of the School. Since 2011, she has resumed an academic career, including political activities on behalf of the profession and a program of scholarship in advancing communication systems in cancer care. She currently serves as Associate Dean, Faculty of Applied Science, speaks and consults internationally, and sits on numerous Boards and committees. She is associate editor of the journal Qualitative Health Research [2] and Editor-in-Chief of Nursing Inquiry . [3]
Cross-cultural communication is a field of study investigating how people from differing cultural backgrounds communicate, in similar and different ways among themselves, and how they endeavor to communicate across cultures. Intercultural communication is a related field of study.
Medical anthropology studies "human health and disease, health care systems, and biocultural adaptation". It views humans from multidimensional and ecological perspectives. It is one of the most highly developed areas of anthropology and applied anthropology, and is a subfield of social and cultural anthropology that examines the ways in which culture and society are organized around or influenced by issues of health, health care and related issues.
Palliative care is an interdisciplinary medical caregiving approach aimed at optimizing quality of life and mitigating suffering among people with serious, complex, and often terminal illnesses. Within the published literature, many definitions of palliative care exist. The World Health Organization (WHO) describes palliative care as "an approach that improves the quality of life of patients and their families facing the problems associated with life-threatening illness, through the prevention and relief of suffering by means of early identification and impeccable assessment and treatment of pain, illnesses including other problems whether physical, psychosocial, and spiritual". In the past, palliative care was a disease specific approach, but today the WHO takes a broader patient-centered approach that suggests that the principles of palliative care should be applied as early as possible to any chronic and ultimately fatal illness. This shift was important because if a disease-oriented approach is followed, the needs and preferences of the patient are not fully met and aspects of care, such as pain, quality of life, and social support, as well as spiritual and emotional needs, fail to be addressed. Rather, a patient-centered model prioritizes relief of suffering and tailors care to increase the quality of life for terminally ill patients.
Qualitative research is a type of research that aims to gather and analyse non-numerical (descriptive) data in order to gain an understanding of individuals' social reality, including understanding their attitudes, beliefs, and motivation. This type of research typically involves in-depth interviews, focus groups, or observations in order to collect data that is rich in detail and context. Qualitative research is often used to explore complex phenomena or to gain insight into people's experiences and perspectives on a particular topic. It is particularly useful when researchers want to understand the meaning that people attach to their experiences or when they want to uncover the underlying reasons for people's behavior. Qualitative methods include ethnography, grounded theory, discourse analysis, and interpretative phenomenological analysis. Qualitative research methods have been used in sociology, anthropology, political science, psychology, communication studies, social work, folklore, educational research, information science and software engineering research.
A chronic condition is a health condition or disease that is persistent or otherwise long-lasting in its effects or a disease that comes with time. The term chronic is often applied when the course of the disease lasts for more than three months. Common chronic diseases include diabetes, functional gastrointestinal disorder, eczema, arthritis, asthma, chronic obstructive pulmonary disease, autoimmune diseases, genetic disorders and some viral diseases such as hepatitis C and acquired immunodeficiency syndrome. An illness which is lifelong because it ends in death is a terminal illness. It is possible and not unexpected for an illness to change in definition from terminal to chronic. Diabetes and HIV for example were once terminal yet are now considered chronic due to the availability of insulin for diabetics and daily drug treatment for individuals with HIV which allow these individuals to live while managing symptoms.
Self-care has been defined as the process of establishing behaviors to ensure holistic well-being of oneself, to promote health, and actively manage illness when it occurs. Individuals engage in some form of self-care daily with food choices, exercise, sleep, and hygiene. Self-care is not only a solo activity, as the community—a group that supports the person performing self-care—overall plays a role in access to, implementation of, and success of self-care activities.
Interpretative phenomenological analysis (IPA) is a qualitative form of psychology research. IPA has an idiographic focus, which means that instead of producing generalization findings, it aims to offer insights into how a given person, in a given context, makes sense of a given situation. Usually, these situations are of personal significance; examples might include a major life event, or the development of an important relationship. IPA has its theoretical origins in phenomenology and hermeneutics, and many of its key ideas are inspired by the work of Edmund Husserl, Martin Heidegger, and Maurice Merleau-Ponty. IPA's tendency to combine psychological, interpretative, and idiographic elements is what distinguishes it from other approaches to qualitative, phenomenological psychology.
Patient advocacy is a process in health care concerned with advocacy for patients, survivors, and caregivers. The patient advocate may be an individual or an organization, concerned with healthcare standards or with one specific group of disorders. The terms patient advocate and patient advocacy can refer both to individual advocates providing services that organizations also provide, and to organizations whose functions extend to individual patients. Some patient advocates are independent and some work for the organizations that are directly responsible for the patient's care.
Florence Wald was an American nurse, former Dean of Yale School of Nursing, and largely credited as "the mother of the American hospice movement". She led the founding of Connecticut Hospice, the first hospice program in the United States. Late in life, Wald became interested in the provision of hospice care within prisons. In 1998, Wald was inducted into the National Women's Hall of Fame.
The philosophy of healthcare is the study of the ethics, processes, and people which constitute the maintenance of health for human beings. For the most part, however, the philosophy of healthcare is best approached as an indelible component of human social structures. That is, the societal institution of healthcare can be seen as a necessary phenomenon of human civilization whereby an individual continually seeks to improve, mend, and alter the overall nature and quality of their life. This perennial concern is especially prominent in modern political liberalism, wherein health has been understood as the foundational good necessary for public life.
A family nurse practitioner (FNP) provides continuing and comprehensive healthcare for the individual and family across all ages, genders, diseases, and body systems. Primary care emphasizes the holistic nature of health and it is based on knowledge of the patient in the context of the family and the community, emphasizing disease prevention and health promotion.
Evidence-based nursing (EBN) is an approach to making quality decisions and providing nursing care based upon personal clinical expertise in combination with the most current, relevant research available on the topic. This approach is using evidence-based practice (EBP) as a foundation. EBN implements the most up to date methods of providing care, which have been proven through appraisal of high quality studies and statistically significant research findings. The goal of EBN is to improve the health and safety of patients while also providing care in a cost-effective manner to improve the outcomes for both the patient and the healthcare system. EBN is a process founded on the collection, interpretation, appraisal, and integration of valid, clinically significant, and applicable research. The evidence used to change practice or make a clinical decision can be separated into seven levels of evidence that differ in type of study and level of quality. To properly implement EBN, the knowledge of the nurse, the patient's preferences, and multiple studies of evidence must all be collaborated and utilized in order to produce an appropriate solution to the task at hand. These skills are taught in modern nursing education and also as a part of professional training.
Sarah Hope Kagan, PhD, RN, FAAN, is an American gerontological nurse, and Lucy Walker Honorary Term Professor of Gerontological Nursing at the University of Pennsylvania.
A pediatric nurse practitioner (PNP) is a nurse practitioner who specializes in care for newborns, infants, toddlers, pre-schoolers, school-aged children, adolescents, and young adults. Nurse practitioners have an in-depth knowledge and experience in pediatric healthcare including well childcare, and prevention/management of common pediatric acute illnesses and chronic conditions. This care is provided to support optimal health of children within the context of their family, community, and environmental setting. In order to be a pediatric nurse practitioner one must be compassionate, resourceful, good at communicating and have good attention to detail.
Carolyn Ellis is an American communication scholar known for her research of autoethnography, a reflexive approach to research, writing, and storytelling that connects the autobiographical and personal to the cultural, social, and political. Her research centers on how individuals negotiate identities, emotions, and meaning making in and through close relationships.
Norman Kent Denzin was an American professor of sociology. He was an emeritus professor in the Department of Sociology at the University of Illinois at Urbana–Champaign, where he was research professor of communications, College of Communications scholar, professor of sociology, professor of cinema studies, professor in the Unit for Criticism and Interpretive Theory. Denzin's academic interests included interpretive theory, performance studies, qualitative research methodology, and the study of media, culture and society.
Margaret Ruth McCorkle FAAN, FAPOS was an American nurse, oncology researcher, and educator. She was the Florence Schorske Wald Professor of Nursing at the Yale School of Nursing.
Janice Margaret Morse in Blackburn, Lancs., UK to New Zealand parents. She is an anthropologist and nurse researcher who is best known as the founder and chief proponent of the field of qualitative health research. She has taught in the United States and Canada. She received PhDs in transcultural nursing and in anthropology at the University of Utah, where she later held the Ida May “Dotty” Barnes and D Keith Barnes Presidential Endowed Chair in the College of Nursing at University of Utah,. She is also an Emerita Distinguished Professor at the University of Utah and Professor Emerita at the University of Alberta. She is founder of three journals and created four scholarly book series on qualitative research. She was Founding Director of the International Institute of Qualitative Methodology at University of Alberta, the longest standing research institute on qualitative inquiry in the world.
Kathleen Marian Charmaz was the developer of constructivist grounded theory, a major research method in qualitative research internationally and across many disciplines and professions. She was professor emerita of sociology at Sonoma State University, Rohnert Park, California, and former director of its Faculty Writing Program. Charmaz’s background was in occupational therapy and sociology. Charmaz’s areas of expertise included grounded theory, symbolic interactionism, chronicity, death and dying, qualitative health research, scholarly writing, sociological theory, social psychology, research methods, health and medicine, aging, sociology of emotions, and the body.
Art-based research is a mode of formal qualitative inquiry that uses artistic processes in order to understand and articulate the subjectivity of human experience.