Autism National Committee

Last updated
Autism National Committee
Autcomlogo.jpg
AbbreviationAutCom
Founded1990;32 years ago (1990) [1]
FounderHerb Lovett
04-3138358 [2]
Legal status 501(c)(3) nonprofit [2]
PurposeTo protect and advance the human rights and civil rights of all persons with autism, Pervasive Developmental Disorder, and related differences of communication and behavior. [3]
Headquarters South Burlington, Vermont, U.S [2]
Coordinates 44°26′41″N73°10′52″W / 44.444584°N 73.181118°W / 44.444584; -73.181118 Coordinates: 44°26′41″N73°10′52″W / 44.444584°N 73.181118°W / 44.444584; -73.181118
Sandra McClennan [4]
Website www.autcom.org

The Autism National Committee (AUTCOM, AutCom) is an American advocacy association of autistic people and their allies. [5] [6] Autism National Committee operates as a 501(c)(3) non-profit organization. [2]

Contents

History and activities

Autism National Committee was founded in 1990 to protect and advance the human rights and civil rights of all persons with autism, Pervasive Development Disorder, and related differences of communication and behavior. It was founded by the late Dr. Herb Lovett. In the face of social policies of devaluation, which are expressed in the practices of segregation, medicalization, and aversive conditioning, AutCom asserts that all individuals are created equal and endowed with certain inalienable rights, and that among these are life, liberty, and the pursuit of happiness. As an independent 501(c)(3) non-profit organization, AutCom works to ensure that people with autism and related disabilities are treated equality and with dignity.[ citation needed ]

In 2012, AutCom published How Safe is the Schoolhouse? An Analysis of State Seclusion and Restraint Policies written by Jessica Butler. The report provides a summary of state restraint and seclusion laws and policies in effect in 2012 for students in school. Approximately 29 states have meaningful legal protections against seclusion and restraint in school. [7]

Public policy

Autism National Committee believes strongly that no person should be subject to restraint, seclusion, aversives, or other forms of abuse. Children in school should receive positive supports and accommodations for their disability needs. The Government Accountability Office (GAO) found that hundreds of children have been subjected to these techniques, including a 7-year-old dying after being held face down for hours by staff, and 5-year-olds tied to chairs with duct tape and suffering broken arms and bloody noses. According to "Unsafe in the Schoolhouse: Abuse of Children with Disabilities", a large number of students who are abused have autism. [7]

Autism National Committee has issued a statement supporting the use of facilitated communication, [8] a pseudoscientific technique which involves holding a non-verbal person's hand to a keyboard with the aim of helping them type messages. [9] It has been proven that the facilitator, rather than the disabled person is the source of messages produced through facilitated communication. CNN reported on the experiences of some users of facilitated communication at Autism National Committee's 2007 conference. [10]

See also

Related Research Articles

Facilitated communication (FC), or supported typing, is a scientifically discredited technique that attempts to aid communication by people with autism or other communication disabilities who are non-verbal. The facilitator guides the disabled person's arm or hand and attempts to help them type on a keyboard or other device.

Disability rights movement Social movement seeking equal rights for disabled people

The disability rights movement is a global social movement that seeks to secure equal opportunities and equal rights for all people with disabilities.

Diagnoses of autism have become more frequent since the 1980s, which has led to various controversies about both the cause of autism and the nature of the diagnoses themselves. Whether autism has mainly a genetic or developmental cause, and the degree of coincidence between autism and intellectual disability, are all matters of current scientific controversy as well as inquiry. There is also more sociopolitical debate as to whether autism should be considered a disability on its own.

In psychology, aversives are unpleasant stimuli that induce changes in behavior via negative reinforcement or positive punishment. By applying an aversive immediately before or after a behavior the likelihood of the target behavior occurring in the future is reduced. Aversives can vary from being slightly unpleasant or irritating to physically, psychologically and/or emotionally damaging. It is not the level of unpleasantness or intention that matter, but rather the level of effectiveness the unpleasant event has on changing (decreasing) behavior that defines something as aversive.

Discrete trial training (DTT) is a technique used by practitioners of applied behavior analysis (ABA) that was developed by Ivar Lovaas at the University of California, Los Angeles (UCLA). DTT uses direct instruction and reinforcers to create clear contingencies that shape new skills. Often employed as an early intensive behavioral intervention (EIBI) for up to 30–40 hours per week for children with autism, the technique relies on the use of prompts, modeling, and positive reinforcement strategies to facilitate the child's learning. It previously used aversives to punish unwanted behaviors. DTT has also been referred to as the "Lovaas/UCLA model", "rapid motor imitation antecedent", "listener responding", errorless learning", and "mass trials".

Bernard Rimland

Bernard Rimland was an American research psychologist, writer, lecturer, and influential person in the field of developmental disorders. Rimland's first book, Infantile Autism, sparked by the birth of a son who had autism, was instrumental in changing attitudes toward the disorder. Rimland founded and directed two advocacy groups: the Autism Society of America (ASA) and the Autism Research Institute. He promoted several since disproven theories about the causes and treatment of autism, including vaccine denial, facilitated communication, chelation therapy, and false claims of a link between secretin and autism. He also supported the ethically controversial practice of using aversives on autistic children.

The following outline is provided as an overview of and topical guide to autism:

Developmental disability is a diverse group of chronic conditions that are due to mental or physical impairments that arise before adulthood. Developmental disabilities cause individuals living with them many difficulties in certain areas of life, especially in "language, mobility, learning, self-help, and independent living". Developmental disabilities can be detected early on and persist throughout an individual's lifespan. Developmental disability that affects all areas of a child's development is sometimes referred to as global developmental delay.

The Autism Society of America (ASA) was founded in 1965 by Bernard Rimland and Ivar Lovaas together with Ruth C. Sullivan and a small group of other parents of children with autism. Its original name was the National Society for Autistic Children; the name was changed to emphasize that children with autism grow up. The ASA's stated goal is to increase public awareness about autism and the day-to-day issues faced by autistic people as well as their families and the professionals with whom they interact. Although the group has promoted the pseudoscientific belief that vaccines cause autism in the past, it now affirms that there is no link between vaccination and autism. In 2021, the ASA launched a new brand including a logo consisting of multicolor lines forming a fabric with a new slogan, "The Connection Is You".

Judge Rotenberg Educational Center American institution for the developmentally disabled, condemned for torture by the U.N.

The Judge Rotenberg Center is an institution in Canton, Massachusetts, United States, for people with developmental disabilities, emotional disorders, and autistic-like behaviors. The center has been condemned for torture by the United Nations Special Rapporteur on Torture. The JRC is known for its use of the graduated electronic decelerator (GED), a device that administers electric shocks to residents through a remote control. The device was designed by Matthew Israel, the institute's founder. While the FDA issued a formal ban on the GED in 2020, the device continued to be used on some residents pending an administrative stay for the duration of the COVID-19 pandemic. In July 2021, the D.C. Circuit Court of Appeals ruled that the FDA could not issue a "partial stay" but must issue a blanket ban or no ban at all, thus allowing the JRC to continue subjecting 55 people to shock in the meantime.

Mel Baggs American blogger

Amelia Evelyn Voicy Baggs, also known as Amelia E. Voicy Baggs, was an American autistic and non-binary blogger who predominantly wrote on the subject of autism and disability, and became well known in the early stages of the autism rights movement. Baggs used a communication device to speak and referred to themselves as low-functioning. Revelations about Baggs's past created some uncertainty about their diagnosis. They died on April 11, 2020.

Disability Rights International (DRI), formerly Mental Disability Rights International, is a Washington, DC based human rights advocacy organization dedicated to promoting the human rights and full participation in society of persons with disabilities worldwide. DRI documents conditions, publishes reports, and promotes international oversight of the rights of persons with disabilities.

The Council of Parent Attorneys and Advocates (COPAA) is an independent national American association of parents of children with disabilities, attorneys, advocates, and related professionals who protect the legal and civil rights of students with disabilities and their families. COPAA has a 22-member Board of Directors who run the organization. Board members are selected to be representative of diversity of COPAA's peer-to-peer network and have significant experience in various aspects of COPAA's work. Currently COPAA has more than 2800 members in all states, the District of Columbia and several territories. Over 90% of all of its members, including professionals, are people with disabilities and/or parents and family members of people with disabilities. COPAA accomplishes its mission largely through the work of its network of volunteers, who are supported by the staff of the organization.

Autistic Self Advocacy Network Non-profit advocacy organization by and for autistic individuals

The Autistic Self Advocacy Network (ASAN) is a 501(c)(3) nonprofit advocacy organization run by and for individuals on the autism spectrum. ASAN advocates for the inclusion of autistic people in decisions that affect them, including: legislation, depiction in the media, and disability services.

Ari Daniel Ne'eman is an American disability rights activist who co-founded the Autistic Self Advocacy Network in 2006. On December 16, 2009, President Barack Obama announced that Ne'eman would be appointed to the National Council on Disability. After an anonymous hold was lifted, Ne'eman was unanimously confirmed by the United States Senate to serve on the Council on June 22, 2010. He chaired the council's Policy & Program Evaluation Committee. Ne'eman has a diagnosis of Asperger syndrome, which made him the first autistic person to serve on the council. In 2015, Ne'eman left the National Council on Disability at the end of his second term. He currently serves as a consultant to the American Civil Liberties Union. As of 2019, he also is a Ph.D. candidate in Health Policy at Harvard University.

The Keeping All Students Safe Act or KASSA is designed to protect children from the abuse of restraint and seclusion in school. The first Congressional bill was introduced in the United States House of Representatives on December 9, 2007, and named the Preventing Harmful Restraint and Seclusion in Schools Act. The primary sponsors of the two bills are Senator Tom Harkin (D-IA), Chair of the Senate Health, Education, Labor, and Pensions Committee, Congressman George Miller (D-CA), Ranking Member of the House Education and Workforce Committee, and Congressman Gregg Harper (R-MS).

Autism-friendly means being aware of social engagement and environmental factors affecting people on the autism spectrum, with modifications to communication methods and physical space to better suit individual's unique and special needs.

Low-functioning autism (LFA) is a degree of autism marked by difficulties with social communication and interaction, challenging behavior, and differences in social or emotional reciprocity. Sleep problems, aggression, stereotypy, and self-injurious behavior are also common symptoms. LFA is not a recognized diagnosis in the DSM-5 or ICD-10, as neither subdivides autism based on intellectual capabilities.

Shain Mahaffey Neumeier is an American autistic and nonbinary transgender attorney from Los Angeles, California. Neumeier advocates against coercive and forced treatment, including advocacy to close the Judge Rotenberg Center, an institution for people with developmental disabilities that has been condemned by the United Nations for torture due to its use of electric shock aversion therapy on people with disabilities. They are also an activist for autism rights, disability rights, youth liberation, asexuality, and transgender rights. Neumeier has multiple disabilities including post-traumatic stress disorder, cleft lip and palate, ectodermal dysplasia, and depression.

Dr. Jessica L. Benham is an American politician and disability rights activist serving as a member of the Pennsylvania House of Representatives for the 36th District. She is the first openly LGBTQ+ woman and first openly autistic person elected to the Pennsylvania General Assembly. Benham is one of the only autistic state lawmakers in the United States. She cofounded the Pittsburgh Center for Autistic Advocacy in 2014.

References

  1. "About". Autism National Committee. Retrieved January 6, 2020.
  2. 1 2 3 4 "Autism National Committee Inc". Tax Exempt Organization Search. Retrieved January 6, 2020.
  3. "About AUTCOM". Autism National Committee. Accessed on February 27, 2016.
  4. Autism National Committee Inc. Guidestar. Retrieved January 6, 2020.
  5. "Autism National Committee". 2006 TASH Conference. 2006. Archived from the original on September 25, 2006.
  6. "Autism National Committee (AUTCOM)". National Institute of Neurological Disorders and Stroke. National Institutes of Health.
  7. 1 2 Butler, Jessica. "Unsafe in the Schoolhouse: Abuse of Children with Disabilities". The Council of Parent Attorneys and Advocates, Inc. May 27, 2009.
  8. Young, Sally. "AUTCOM - The Autism National Committee". www.autcom.org. Retrieved 18 July 2019.
  9. Auerbach, David (12 November 2015). "Facilitated Communication Is a Cult That Won't Die". Slate. Retrieved 30 November 2015.
  10. Gajilan, A. Chris (October 15, 2007). "Giving autism a voice". CNN. Archived from the original on October 17, 2007.