Deej

Last updated

Deej
Directed byRobert Rooy
Written byDavid James Savarese
Release date
  • July 31, 2017 (2017-07-31)(Woods Hole) [1] [2]
Running time
72 minutes

Deej is a 2017 documentary about David James (DJ) Savarese, a nonspeaking autistic teenager with disabilities who is depicted as communicating through the scientifically discredited facilitated communication technique. [3] [4] [5] The film's unskeptical depiction of facilitated communication, including the claims that DJ's degree from Oberlin College is legitimate, and that he is the author of the film's script (rather than it being created by his facilitator), [6] have been the subject of criticism.

Contents

Background

The film was directed by Robert Rooy. David James Savarese, known as DJ or Deej, was also credited as a director and co-producer of the documentary. [7] [3] The film depicts Savarese as an activist with the goal of promoting communication access for nonspeaking autistic people as part of the neurodiversity movement. [8]

Savarese was adopted from the foster care system and diagnosed early in life as autistic. [9] As a child, his adoptive parents struggled to ensure his inclusion in the local public school system. [10] Eventually winning the right for Savarese to receive education in public schools, his parents framed their challenges as a civil rights struggle against ableism. [4] [11] [9] Since the events featured in Deej, Savarese was awarded a degree from Oberlin College for coursework completed through a facilitator. [11] [12]

Deej aired nationally on PBS in October 2017. [13]

Criticism

This film portrays the use of facilitated communication as legitimate. [14] [ dubious ] The documentary does not mention that scientific studies have raised questions about facilitated communication [5] [15] and the film's depiction of facilitated communication was the subject of one critical essay in a peer reviewed journal. [5] Behavioral scientist and author, Craig Foster notes that Deej is never shown independently communicating or exhibiting his "hidden intelligence", even though the documentary implies that he does. Foster argues that "skepticism toward facilitated communication is necessary to ameliorate its harmful influence and to encourage genuine acceptance of people with complex communication needs." [5]

Janyce L. Boynton judges the film in a review to be "uncritical promotion" of facilitated communication and notes that the film's editors "chose to leave out some vital information." She concludes that the documentary is a "missed opportunity to teach people what about what living with autism is really like" and that the story the film tells is "one sided and built on facilitator-authored messages." [16]

Awards

Related Research Articles

Facilitated communication (FC), or supported typing, is a scientifically discredited technique that claims to allow non-verbal people, such as those with autism, to communicate. The technique involves a facilitator guiding the disabled person's arm or hand in an attempt to help them type on a keyboard or other such device which they are unable to properly use if unfacilitated.

<span class="mw-page-title-main">Controversies in autism</span> Controversies about both the cause of autism and the nature of the diagnoses themselves

Diagnoses of autism have become more frequent since the 1980s, which has led to various controversies about both the cause of autism and the nature of the diagnoses themselves. Whether autism has mainly a genetic or developmental cause, and the degree of coincidence between autism and intellectual disability, are all matters of current scientific controversy as well as inquiry. There is also more sociopolitical debate as to whether autism should be considered a disability on its own.

<span class="mw-page-title-main">Neurodiversity</span> Non-pathological explanation of variations in mental functions

Neurodiversity is a framework for understanding human brain function and mental illness. It argues that diversity in human cognition is normal and that some conditions classified as mental disorders are differences and disabilities that are not necessarily pathological.

<span class="mw-page-title-main">Autism rights movement</span> Disability rights movement for autistic people

The autism rights movement, also known as the autistic acceptance movement, is a social movement allied with disability rights that emphasizes a neurodiversity paradigm, viewing autism as a disability with variations in the human brain rather than as a disease to be cured. The movement advocates for several goals, including greater acceptance of autistic traits and behaviors; reforms of services - i.e. services that focus on improving quality of life and well-being instead of suppression and masking of autistic traits that are adaptive or not harmful or imitations of social behaviors of neurotypical (non-autistic) peers ; the creation of social networks and events that allow autistic people to socialize on their own terms; and the recognition of the autistic community as a minority group.

<span class="mw-page-title-main">Jim Sinclair (activist)</span> Autism rights activist

Jim Sinclair is an American autistic activist and writer who is widely considered the founder of the autism rights movement. Sinclair, along with Kathy Lissner Grant and Donna Williams, formed Autism Network International. Sinclair became the original coordinator of ANI. Sinclair is an advocate for the anti-cure position on autism, arguing that autism is an integral part of a person's identity and should not be cured.

<i>Autism Is a World</i> Documentary promoting a discredited communication technique

Autism Is a World is an American short subject documentary film allegedly written in 2004 by Sue Rubin, an autistic woman who is purported to have learned to communicate via the discredited technique of facilitated communication. It was nominated in the 77th annual Academy Awards for Best Documentary Short Subject. The film is controversial for promoting the debunked facilitated communication technique.

The following outline is provided as an overview of and topical guide to autism:

<span class="mw-page-title-main">Mel Baggs</span> American blogger (1980–2020)

Amelia Evelyn Voicy Baggs, also known as Mel Baggs, was an American non-binary blogger who predominantly wrote on the subject of autism and disability. At times, Baggs used a communication device to speak and referred to themself as a low-functioning autistic. Revelations about Baggs's past created some uncertainty about their diagnosis.

<span class="mw-page-title-main">Autistic art</span> Art created by autistic artists to capture the autistic experience

Autistic art is artwork created by autistic artists that captures or conveys a variety of autistic experiences. According to a 2021 article in Cognitive Processing, autistic artists with improved linguistic and communication skills often show a greater degree of originality and attention to detail than their neurotypical counterparts, with a positive correlation between artistic talent and high linguistic functioning. Autistic art is often considered outsider art. Art by autistic artists has long been shown in separate venues from artists without disabilities. The works of some autistic artists have featured in art publications and documentaries and been exhibited in mainstream galleries. Although autistic artists seldom received formal art education in the past, recent inclusivity initiatives have made it easier for autistic artists to get a formal college education. The Aspergers/Autism Network's AANE Artist Collaborative is an example of an art organization for autistic adults.

<span class="mw-page-title-main">Societal and cultural aspects of autism</span>

Societal and cultural aspects of autism or sociology of autism come into play with recognition of autism, approaches to its support services and therapies, and how autism affects the definition of personhood. The autistic community is divided primarily into two camps; the autism rights movement and the Pathology paradigm. The pathology paradigm advocates for supporting research into therapies, treatments, and/or a cure to help minimize or remove autistic traits, seeing treatment as vital to help individuals with autism, while the neurodiversity movement believes autism should be seen as a different way of being and advocates against a cure and interventions that focus on normalization, seeing it as trying to exterminate autistic people and their individuality. Both are controversial in autism communities and advocacy which has led to significant infighting between these two camps. While the dominant paradigm is the pathology paradigm and is followed largely by autism research and scientific communities, the neurodiversity movement is highly popular among most autistic people, within autism advocacy, autism rights organizations, and related neurodiversity approaches have been rapidly growing and applied in the autism research field in the last few years.

The Autistic Self Advocacy Network (ASAN) is an American 501(c)(3) nonprofit advocacy organization run by and for individuals on the autism spectrum. ASAN advocates for the inclusion of autistic people in decisions that affect them, including: legislation, depiction in the media, and disability services.

<i>Wretches & Jabberers</i> Discredited communication technique promotion

Wretches & Jabberers is a 2010 American documentary film directed by Gerardine Wurzburg and produced by Wurzburg and Douglas Biklen that promotes the scientifically discredited facilitated communication technique. The film is about two autistic men, Larry Bissonnette and Tracy Thresher, who travel the world helping other autistic people break out of their isolation. It opened in theaters in New York and California on July 30, 2010.

Autism spectrum disorders (ASDs) or autism spectrum conditions (ASCs) describe a range of conditions classified as neurodevelopmental disorders in the DSM-5, used by the American Psychiatric Association. As with many neurodivergent people and conditions, the popular image of autistic people and autism itself is often based on inaccurate media representations. Additionally, media about autism may promote pseudoscience such as vaccine denial or facilitated communication.

<i>The Reason I Jump</i> 2007 biography book by Naoki Higashida

The Reason I Jump: One Boy's Voice from the Silence of Autism is a biography attributed to Naoki Higashida, a nonverbal autistic person from Japan. It was first published in Japan in 2007. The English translation, by Keiko Yoshida and her husband, English author David Mitchell, was published in 2013.

Discrimination against autistic people is the discrimination, persecution, and oppression that autistic people have been subjected to. Discrimination against autistic people is a form of ableism.

The rapid prompting method (RPM) is a pseudoscientific technique that attempts to aid communication by people with autism or other disabilities to communicate through pointing, typing, or writing. Also known as Spelling to Communicate, it is closely related to the scientifically discredited technique facilitated communication (FC). Practitioners of RPM have failed to assess the issue of message agency using simple and direct scientific methodologies, saying that doing so would be stigmatizing and that allowing scientific criticisms of the technique robs people with autism of their right to communicate. The American Speech-Language-Hearing Association has issued a statement opposing the practice of RPM.

<i>Loving Lampposts</i> 2010 documentary about autism and neurodiversity

Loving Lampposts is a 2010 documentary film directed by Todd Drezner, exploring the neurodiversity movement and the principle of autism acceptance through a series of interviews and candid footage. Drezner is the father of an autistic child whose attachment to and fascination with lampposts gave the film its title.

<i>Citizen Autistic</i> 2013 film

Citizen Autistic is a 2013 documentary film directed by William Davenport exploring the advocacy work of autism rights activists. Citizen Autistic features interviews with autistic activists including Ari Ne'eman, co-founder and former president of the Autistic Self Advocacy Network, and Zoe Gross, creator of the Disability Day of Mourning annual vigils held in honor of filicide victims with disabilities. The documentary covers topics important to neurodiversity such as the debate over whether researchers should seek a cure for autism and controversies surrounding the nonprofit organization Autism Speaks and the Judge Rotenberg Center, a residential institution known for using electric skin shock aversive treatment as a form of behavioral modification.

Vikram Kenneth Jaswal is a developmental psychologist known for his work on autism, particularly augmentative communication supports for nonspeaking autistic people using the discredited method of facilitated communication. He holds the position of Professor of Psychology at the University of Virginia.

References

  1. "26th Annual Woods Hole Film Festival – Woods Hole, MA".
  2. @DeejMovie (July 31, 2017). "The DEEJ World Premiere is tomorrow 7/31 at Woods Hole Film Festival in Cape Cod! 7pm #WHFF #DeejMovie" (Tweet) via Twitter.
  3. 1 2 Inc., POV | American Documentary. "AMERICA REFRAMED UNFILTERED: Inclusion Shouldn't Be a Lottery". POV's Documentary Blog. Archived from the original on May 20, 2018. Retrieved May 20, 2018.{{cite news}}: |last= has generic name (help)
  4. 1 2 Corley, Maria (September 20, 2017). "Deej: A non-verbal autistic man raises his voice for inclusion". Medium. Retrieved May 20, 2018.
  5. 1 2 3 4 Foster, Craig (2019). "Deej‐a Vu: Documentary revisits facilitated communication pseudoscience". Behavioral Interventions. 34 (4): 577–586. doi:10.1002/bin.1687. S2CID   202247479.
  6. Foster, Craig A. (August 9, 2019). "Deej‐a Vu: Documentary revisits facilitated communication pseudoscience". Behavioral Interventions. Online Library. 34 (4): 577–586. doi:10.1002/bin.1687. S2CID   202247479. Archived from the original on July 22, 2020. Retrieved July 22, 2020.
  7. Rooy, Robert (October 17, 2017), Deej , retrieved May 20, 2018
  8. Borha, Imade. "DJ 'Deej' Savarese pursues freedom as a non-speaking autistic man in new documentary". The Frederick News-Post. Retrieved May 20, 2018.
  9. 1 2 Gabbard, Chris (January 31, 2008). "Savarese, Ralph James. Reasonable People: A Memoir of Autism and Adoption". Disability Studies Quarterly. 28 (1). doi: 10.18061/dsq.v28i1.76 . ISSN   2159-8371.
  10. "'Deej' film puts a spotlight on autism and disability rights". The Arizona State Press. Retrieved May 20, 2018.
  11. 1 2 Fishman, Kate. ""Deej" Highlights Interdependence, Challenges Assumptions". The Oberlin Review. Retrieved May 20, 2018.
  12. Gittin, Adam. "Student Panelists Celebrate Neurodiversity". The Oberlin Review. Retrieved May 20, 2018.
  13. "'Deej' film spotlights nonspeaking student with autism | National Center on Disability and Journalism". ncdj.org. Retrieved May 20, 2018.
  14. Savarese, D. J. (December 1, 2009). "Communicate with Me". Disability Studies Quarterly. 30 (1). doi: 10.18061/dsq.v30i1.1051 . ISSN   2159-8371.
  15. Savarese, Ralph. "About Facilitated Communication | Ralph James Savarese". Ralph James Savarese. Retrieved August 3, 2019.
  16. Boynton, Janice L. (March–April 2021). "Fresh Thinking or Exploitation?". Skeptical Inquirer . Amherst, New York: Center for Inquiry. Archived from the original on May 2, 2021. Retrieved December 30, 2021.
  17. "The Best Stories of 2017". peabodyawards.com. May 9, 2018. Retrieved February 16, 2020.
  18. 1 2 3 4 "Deej". Deej. Retrieved February 16, 2020.[ self-published source? ]