Katrina Karkazis

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Katrina Karkazis
Katrina Karkazis at Schulich Law.jpg
Karkazis at Schulich School of Law in 2018
Born1970 (1970)
Nationality American, Greek
Alma mater Columbia University
Awards Guggenheim Fellowship (2016)
Scientific career
FieldsAnthropology and bioethics
Institutions Amherst College, Stanford University, Honors Academy Brooklyn College, Emory University
Thesis Beyond treatment: mapping the connections among gender, genitals, and sexuality in recent controversies over intersexuality  (2002)
Doctoral advisor Carole S. Vance
Other academic advisorsSherry B. Ortner, Shirley Lindenbaum, Lesley Sharp, E. Valentine Daniel
Website katrinakarkazis.com

Katrina Alicia Karkazis (born 1970) [1] is an American anthropologist and bioethicist. She is a professor of Sexuality, Women's and Gender Studies at Amherst College. She was previously the Carol Zicklin Endowed Chair in the Honors Academy at Brooklyn College, City University of New York and a senior research fellow with the Global Health Justice Partnership at Yale University. [2] She has written widely on testosterone, intersex issues, sex verification in sports, treatment practices, policy and lived experiences, and the interface between medicine and society. [3] [4] In 2016, she was jointly awarded a Guggenheim Fellowship with Rebecca Jordan-Young. [5]

Contents

Career

Katrina Karkazis received her PhD in medical and cultural anthropology, and a Masters in Public Health in maternal and child health, from Columbia University. [6] She has an undergraduate degree in Public Policy from Occidental College. Karkazis completed postdoctoral training in empirical bioethics at Stanford Center for Biomedical Ethics. [3] [7] After spending 15 years at Stanford, she was the Carol Zicklin Endowed Chair in the Honors Academy at Brooklyn College, City University of New York. She has been a Visiting Professor at Emory University and is currently a Senior Visiting Fellow with the Global Health Justice Partnership at Yale University. [8]

In 2008, Karkazis published her first book, Fixing Sex , on the medical treatment and lived experience of intersex people. Since the publication of Fixing Sex and co-authoring a 2012 journal article on sex testing in sport, Out of Bounds, Karkazis has widely written and been quoted as an expert on issues of informed consent, bodily diversity, testosterone, and access to sport. Media coverage of sport issues includes American Association for the Advancement of Science, The Guardian , Los Angeles Times , New Scientist , New York Times and Time , often in collaboration with Rebecca Jordan-Young. [9]

In 2015, Karkazis testified before the Court of Arbitration for Sport (CAS) in the case of Dutee Chand v. Athletics Federation of India (AFI) & The International Association of Athletics Federations (IAAF), and in July 2015 the CAS issued a decision to suspend its sex verification policy on excluding women athletes with hyperandrogenism (high levels of testosterone) due to insufficient evidence of a link between high androgen levels and improved athletic performance. [10] [11] The court allowed two further years for convincing evidence to be submitted by the IAAF, after which the regulation will be automatically revoked if evidence has not been provided. [12]

In 2016, Karkazis was awarded a Guggenheim Fellowship by the John Simon Guggenheim Memorial Foundation to work on a book on testosterone, Testosterone: An Unauthorized Biography, published by Harvard University Press in 2019 and written with Rebecca Jordan-Young. [5] In 2018, Karkazis wrote in The New York Review of Books that "T has become a powerful technology for the production of subjectivity, the most consequential of which is gender." [13]

Works

Books

Fixing Sex: Intersex, Medical Authority, and Lived Experience , published by Duke University Press in 2008 presents a history of the medical treatment and lived experience of intersex people and their families. The book has been well received by both clinicians and intersex groups. Gary Berkovitz, writing in the New England Journal of Medicine states that Karkazis's analysis is fair, compelling, and eloquent. [14] Elizabeth Reis, reviewing the book in American Journal of Bioethics, states that the book "masterfully examines the concerns and fears of all those with a stake in the intersex debate: physicians, parents, intersex adults, and activists." [15] Mijeon, in American Journal of Human Genetics writes that the "conclusion is quite fitting", "the history of thinking about the body ... can be highly politicized and controversial". [16] Kenneth Copeland MD, former president of the Lawson Wilkins Pediatric Endocrine Society describes the book as, "Masterfully balancing all aspects of one of the most polarizing, contentious topics in medicine... the most recent authoritative treatise on intersex." [3] Intersex community organization Organisation Intersex International Australia regards the book as "approachable," "compelling and recommended reading", [17] and the book was subsequently cited by the Senate of Australia in 2013. [17] [18]

Testosterone: An Unauthorized Biography, [19] published by Harvard University Press in 2019, focuses on what testosterone does in six domains: reproduction, aggression, risk-taking, power, sports, and parenting. It has been reviewed in Science [20] and Nature. [21]

Peer-reviewed publications

In Out of Bounds? A Critique of the New Policies on Hyperandrogenism in Elite Female Athletes, a collaborative article with Georgiann Davis, Rebecca Jordan-Young, and Silvia Camporesi, published in 2012 in the American Journal of Bioethics , they argue that a new sex testing policy by the International Association of Athletics Federations will not protect against breaches of privacy, will require athletes to undergo unnecessary treatment in order to compete, and will intensify "gender policing". They recommend that athletes be able to compete in accordance with their legal gender. [22] [23] The analysis was described as an "influential critique" in the Los Angeles Times . [24]

In Emotionally and cognitively informed consent for clinical care for differences of sex development, co-authored with Anne Tamar-Mattis, Arlene Baratz, and Katherine Baratz Dalke and published in 2013, the authors write that "physicians continue to recommend certain irreversible treatments for children with differences of sex development (DSD) without adequate psychosocial support". [25]

In What’s in a Name? The Controversy over “Disorders of Sex Development”, co-authored with Ellen Feder and published in 2008, the authors state that "tracing "the history of the terminology applied to those with atypical sex anatomy reveals how these conditions have been narrowly cast as problems of gender to the neglect of broader health concerns and of the well-being of affected individuals." [26] Karkazis and Feder also collaborated in Naming the problem: disorders and their meanings, published in The Lancet in 2008. [27]

Selected bibliography

Awards and recognition

Fixing Sex: Intersex, Medical Authority, and Lived Experience was nominated for the Margaret Mead Award, 2010, and a finalist for the Lambda Literary Award, 2009. [3] In 2016, Karkazis was awarded a Guggenheim Fellowship. [5]

Related Research Articles

Clitoridectomy or clitorectomy is the surgical removal, reduction, or partial removal of the clitoris. It is rarely used as a therapeutic medical procedure, such as when cancer has developed in or spread to the clitoris. It is often performed on intersex newborns. Commonly, non-medical removal of the clitoris is performed during female genital mutilation (FGM).

5α-Reductase 2 deficiency (5αR2D) is an autosomal recessive condition caused by a mutation in SRD5A2, a gene encoding the enzyme 5α-reductase type 2 (5αR2). The condition is rare, affects only genetic males, and has a broad spectrum.

<span class="mw-page-title-main">Sex verification in sports</span>

Sex verification in sports occurs because eligibility of athletes to compete is restricted whenever sporting events are limited to a single sex, which is generally the case, as well as when events are limited to mixed-sex teams of defined composition. Practice has varied tremendously over time, across borders and by competitive level. Issues have arisen multiple times in the Olympic games and other high-profile sporting competitions, for example allegations that certain male athletes attempted to compete as women or that certain female athletes had intersex conditions perceived to give unfair advantage. The topic of sex verification is related to the more recent question of how to treat transgender people in sports. Sex verification is not typically conducted on athletes competing in the male category because there is generally no perceived competitive advantage for a female or intersex athlete to compete in male categories.

<span class="mw-page-title-main">Foekje Dillema</span> Dutch track and field athlete (1926–2007)

Foekje Dillema was a Dutch track and field athlete. She competed in sprinting where she was a rival of Fanny Blankers-Koen. When she refused a sex verification test, she was banned from competition by the International Association of Athletics Federations in 1950. After her death, it was determined that she was an intersex person.

<span class="mw-page-title-main">Intersex medical interventions</span> Performed to modify atypical or ambiguous genitalia

Intersex medical interventions, also known as intersex genital mutilations (IGM), are surgical, hormonal and other medical interventions performed to modify atypical or ambiguous genitalia and other sex characteristics, primarily for the purposes of making a person's appearance more typical and to reduce the likelihood of future problems. The history of intersex surgery has been characterized by controversy due to reports that surgery can compromise sexual function and sensation, and create lifelong health issues. Timing, evidence, necessity and indications for surgeries in infancy, adolescence or adult age have been controversial, associated with issues of consent.

<span class="mw-page-title-main">Clitoromegaly</span> Medical condition

Clitoromegaly is an abnormal enlargement of the clitoris that is mostly congenital or acquired, though deliberately induced clitoris enlargement as a form of genital body modification is achieved through various uses of anabolic steroids, including testosterone. Clitoromegaly is not the same as normal enlargement of the clitoris seen during sexual arousal.

<span class="mw-page-title-main">Intersex</span> Atypical congenital variations of sex characteristics

Intersex people are individuals born with any of several sex characteristics including chromosome patterns, gonads, or genitals that, according to the Office of the United Nations High Commissioner for Human Rights, "do not fit typical binary notions of male or female bodies".

Rebecca M. Jordan-Young, is an American feminist scientist and gender studies scholar. Her research focuses on social medical science, sex, gender, sexuality, and epidemiology. She is an Associate Professor of Women’s, Gender, and Sexuality Studies at Barnard College.

<span class="mw-page-title-main">Hida Viloria</span> American activist (born 1968)

Hida Viloria is a Latine American writer, author, producer, and human rights activist. Viloria is intersex, nonbinary, and gender nonconforming, using they/them pronouns. They are known for their writing, their intersex and non-binary human rights activism, and as one of the first people to come out in national and international media as a nonbinary intersex person. Viloria is Founding Director of the Intersex Campaign for Equality.

Anne Tamar-Mattis is an American attorney, human rights advocate, and founder of interACT. She currently serves as interACT's Legal Director.

<i>Fixing Sex</i>

Fixing Sex: Intersex, Medical Authority, and Lived Experience, a book by Stanford anthropologist and bioethicist Katrina Karkazis, was published in 2008. Described as "thoughtful", "meticulous", and an "authoritative treatise on intersex", the book examines the perspectives of intersex people, their families, and clinicians to offer compassionate look at the treatment of people born with atypical sex characteristics.

Georgiann Davis is an associate professor of sociology at the University of New Mexico and author of the book Contesting Intersex: The Dubious Diagnosis. Davis formerly held similar positions at University of Nevada, Las Vegas and Southern Illinois University Edwardsville. Born with Androgen Insensitivity Syndrome, she writes widely on intersex issues and the sociology of diagnosis.

<span class="mw-page-title-main">Morgan Carpenter</span> Intersex activist

Morgan Carpenter is a bioethicist, intersex activist and researcher. In 2013, he created an intersex flag, and became president of Intersex Human Rights Australia. He is now a co-executive director. In 2015, he cofounded a project to mark Intersex Awareness Day.

Maria José Martínez-Patiño is a Spanish former hurdler, whose dismissal from the Spanish Olympic team in 1986 for failing the gender test is a notable moment in the history of sex verification in sports.

<span class="mw-page-title-main">Intersex and LGBT</span> Relationship between different sex and gender minorities

Intersex people are born with sex characteristics that "do not fit the typical definitions for male or female bodies". They are substantially more likely to identify as lesbian, gay, bisexual, or transgender (LGBT) than the non-intersex population, with an estimated 52% identifying as non-heterosexual and 8.5% to 20% experiencing gender dysphoria. Although many intersex people are heterosexual and cisgender, this overlap and "shared experiences of harm arising from dominant societal sex and gender norms" has led to intersex people often being included under the LGBT umbrella, with the acronym sometimes expanded to LGBTI. Some intersex activists and organisations have criticised this inclusion as distracting from intersex-specific issues such as involuntary medical interventions.

<span class="mw-page-title-main">Intersex rights in the United States</span> Overview of intersex peoples rights in the United States of America

Intersex people in the United States have some of the same rights as other people, but with significant gaps, particularly in protection from non-consensual cosmetic medical interventions and violence, and protection from discrimination. Actions by intersex civil society organizations aim to eliminate harmful practices, promote social acceptance, and equality. In recent years, intersex activists have also secured some forms of legal recognition. Since April 11, 2022 US Passports give the sex/gender options of male, female and X by self determination.

<span class="mw-page-title-main">Intersex rights in France</span> Intersex peoples rights in France

Intersex people in France face significant gaps in protection from non-consensual medical interventions and protection from discrimination. The birth of Herculine Barbin, a nineteenth-century intersex woman, is marked in Intersex Day of Remembrance. Barbin may have been the first intersex person to write a memoir, later published by Michel Foucault.

<span class="mw-page-title-main">Genetic diagnosis of intersex</span>

Intersex people are born with natural variations in physical and sex characteristics including those of the chromosomes, gonads, sex hormones, or genitals that, according to the UN Office of the High Commissioner for Human Rights, "do not fit the typical definitions for male or female bodies". Such variations may involve genital ambiguity, and combinations of chromosomal genotype and sexual phenotype other than XY-male and XX-female. Preimplantation genetic diagnosis allows the elimination of embryos and fetuses with intersex traits and thus has an impact on discrimination against intersex people.

The testosterone regulations in women's athletics are a series of policies first published in 2011 by the IAAF and last updated following a court victory against Caster Semenya in May 2019. The first version of the rules applied to all women with high testosterone, but the current version of the rules only apply to athletes with certain XY disorders of sexual development, and set a 5 nmol/L testosterone limit, which applies only to distances between 400 m and 1 mile (inclusive), other events being unrestricted.

References

  1. "Karkazis, Katrina Alicia, 1970-". Library of Congress. Retrieved 22 August 2017.
  2. "Katrina Karkazis Anthropologist & Bioethicist". Katrina Karkazis. Retrieved 2018-11-17.
  3. 1 2 3 4 Katrina Karkazis, PhD, MPH Archived 2013-12-26 at the Wayback Machine , Stanford University School of Medicine Center for Biomedical Ethics, 2013
  4. About Archived 2013-12-22 at the Wayback Machine , Katrina Karkazis, retrieved 9 January 2014.
  5. 1 2 3 "Katrina Karkazis". John Simon Guggenheim Memorial Foundation . 2016. Retrieved 2016-08-25.
  6. Karkazis, Katrina Alicia (2002). Beyond treatment: mapping the connections among gender, genitals, and sexuality in recent controversies over intersexuality (Ph.D thesis). Columbia University. OCLC   56173510.
  7. Katrina Karkazis, PhD, MPH Archived 2014-01-02 at the Wayback Machine , Stanford University School of Medicine Center for Biomedical Ethics, 2013.
  8. "Katrina Karkazis". Yale Law School . Retrieved 2018-11-17.
  9. Articles:
  10. Fagan, Kate (August 13, 2016). "Katie Ledecky is crushing records, so why are we still worried about Caster Semenya?". ESPN . Retrieved 2016-08-27.
  11. Padawer, Ruth (June 28, 2016). "The Humiliating Practice of Sex-Testing Female Athletes". The New York Times . ISSN   0362-4331 . Retrieved 2016-08-27.
  12. Branch, John (27 July 2015). "Dutee Chand, Female Sprinter With High Testosterone Level, Wins Right to Compete". The New York Times. The New York Times . Retrieved 27 July 2015.
  13. Karkazis, Katrina (June 28, 2018). "The Masculine Mystique of T". The New York Review of Books . Retrieved 2018-08-17.
  14. Berkovitz, Gary (2009). "Book Review Fixing Sex: Intersex, Medical Authority, and Lived Experience By Katrina Karkazis. 365 pp. Durham, NC, Duke University Press, 2008. $84.95 (cloth); $23.95 (paper). 978-0-8223-4302-8 (cloth); 978-0-8223-4318-9 (paper)". New England Journal of Medicine. 360 (16): 1683. doi:10.1056/NEJMbkrev0805101.
  15. Reis, Elizabeth (2009). "Review of Katrina Karkazis, Fixing Sex: Intersex, Medical Authority, and Lived Experience1". The American Journal of Bioethics. 9 (6–7): 105–106. doi:10.1080/15265160902790617. S2CID   147041176.
  16. Migeon, Claude J. (2009). "Fixing Sex: Intersex, Medical Authority, and Lived Experience". The American Journal of Human Genetics. 84 (6): 718–727. doi:10.1016/j.ajhg.2009.04.022. PMC   2694968 .
  17. 1 2 Katrina Karkazis, "Fixing Sex" (recommended reading), Organisation Intersex International Australia, 26 January 2010
  18. Involuntary or coerced sterilisation of intersex people in Australia, Community Affairs Committee, Senate of Australia, October 2013.
  19. Jordan-Young, ebecca M.; Karkazis, Katrina Alicia (2019). Testosterone : an unauthorized biography. Cambridge, Massachusetts. ISBN   978-0-674-72532-4. OCLC   1089998985.{{cite book}}: CS1 maint: location missing publisher (link)
  20. Milam, Erika Lorraine (2019-10-29). "Challenging stereotypes, two scholars unpack the social and cultural contexts of testosterone". Books, Et Al. Retrieved 2019-11-25.
  21. Epstein, Randi Hutter (2019-10-22). "Testosterone book sifts truths from tall tales". Nature. 574 (7779): 474–476. Bibcode:2019Natur.574..474E. doi: 10.1038/d41586-019-03080-8 .
  22. Karkazis, K; Jordan-Young, R; Davis, G; Camporesi, S (2012). "Out of bounds? A critique of the new policies on hyperandrogenism in elite female athletes". Am J Bioeth. 12 (7): 3–16. doi:10.1080/15265161.2012.680533. PMC   5152729 . PMID   22694023.
  23. Karkazis, Katrina (2013). "The Harrison Bergeron Olympics, Response to Letter to the Editor" (PDF). American Journal of Bioethics . 13 (5): 66–69. doi:10.1080/15265161.2013.776375. PMID   23557057. S2CID   6488664. Archived from the original (PDF) on 2014-01-09. Retrieved 2014-01-09.
  24. Is sex testing in the Olympics a fool's errand?, Jon Bardin in Los Angeles Times, July 30, 2012.
  25. Tamar-Mattis, Anne (2013). "Emotionally and cognitively informed consent for clinical care for differences of sex development". Psychology & Sexuality. 5: 44–55. doi:10.1080/19419899.2013.831215. S2CID   144006437.
  26. Feder, Ellen K.; Karkazis, Katrina (2008). "What's in a Name? The Controversy over 'Disorders of Sex Development'". Hastings Center Report. 38 (5): 33–36. doi:10.1353/hcr.0.0062. PMID   18947138. S2CID   39697912.
  27. Karkazis, Katrina; Feder, Ellen (2008). "Naming the problem: disorders and their meanings". The Lancet . 372 (9655): 2016–2017. doi:10.1016/s0140-6736(08)61858-9. PMID   19090028. S2CID   28553695.