This article contains promotional content .(October 2024) |
Founded | 8 September 1998 [1] [2] |
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Type | Nonprofit organization |
Legal status | 501(c)(3) |
Headquarters | Chicago, Illinois |
Services | Raising and granting funds for epilepsy research |
Beth Lewin Dean | |
Website | www |
Citizens United for Research in Epilepsy (CURE Epilepsy) is a parent-founded, research-focused nonprofit committed to finding a cure for epilepsy. Epilepsy is a complex, often debilitating neurological disorder that will affect 1 in 26 Americans in their lifetime. Since 1998, CURE Epilepsy has invested in cutting-edge research and filled critical funding gaps in foundational science to expand the understanding of the underlying mechanisms of epilepsy and help discover a cure. CURE Epilepsy has raised more than $100 million and funded over 300 epilepsy research projects — more than any other non-governmental organization in the United States. Working alongside a community of researchers and clinicians, they've invested in initiatives which have led to breakthroughs in the genetic diagnosis of epilepsy, potential treatments for infantile spasms, and a greater understanding of how to prevent sudden death in epilepsy, among other advances. Research is our greatest hope of finding a cure, and each discovery brings us closer to achieving freedom from seizures and medication side effects for people living with epilepsy.
Epilepsy is a group of non-communicable neurological disorders characterized by recurrent epileptic seizures. An epileptic seizure is the clinical manifestation of an abnormal, excessive, and synchronized electrical discharge in the neurons. The occurrence of two or more unprovoked seizures defines epilepsy. The occurrence of just one seizure may warrant the definition in a more clinical usage where recurrence may be able to be prejudged. Epileptic seizures can vary from brief and nearly undetectable periods to long periods of vigorous shaking due to abnormal electrical activity in the brain. These episodes can result in physical injuries, either directly, such as broken bones, or through causing accidents. In epilepsy, seizures tend to recur and may have no detectable underlying cause. Isolated seizures that are provoked by a specific cause such as poisoning are not deemed to represent epilepsy. People with epilepsy may be treated differently in various areas of the world and experience varying degrees of social stigma due to the alarming nature of their symptoms.
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The Epilepsy Foundation, also Epilepsy Foundation of America (EFA), is a non-profit national foundation, headquartered in Bowie, Maryland, dedicated to the welfare of people with epilepsy and seizure disorders. The foundation was established in 1968 and now has a network of 59 affiliates. The foundation's programs aim to "ensure that people with seizures are able to participate in all life experiences; and to prevent, control and cure epilepsy through research, education, advocacy and services."
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Orrin Devinsky is an American neurologist who is the Director of the NYU Comprehensive Epilepsy Center and the Saint Barnabas Institute of Neurology and Neurosurgery (INN). He is also a professor of Neurology, Neurosurgery, and Psychiatry at NYU Langone School of Medicine. Devinsky specializes in epilepsy and behavioral neurology.
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Epilepsy-intellectual disability in females also known as PCDH19 gene-related epilepsy or epileptic encephalopathy, early infantile, 9 (EIEE9), is a rare type of epilepsy that affects predominately females and is characterized by clusters of brief seizures, which start in infancy or early childhood, and is occasionally accompanied by varying degrees of cognitive impairment. The striking pattern of onset seizures at a young age, genetic testing and laboratory results, potential developmental delays or developmental regression and associated disorders, eases diagnosis.
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