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Leprosy, also known as Hansen's disease (HD), is a long-term infection by the bacteria Mycobacterium leprae or Mycobacterium lepromatosis. Infection can lead to damage of the nerves, respiratory tract, skin, and eyes. This nerve damage may result in a lack of ability to feel pain, which can lead to the loss of parts of a person's extremities from repeated injuries or infection through unnoticed wounds. An infected person may also experience muscle weakness and poor eyesight. Leprosy symptoms may begin within one year, but, for some people, symptoms may take 20 years or more to occur.
The Pan American Health Organization (PAHO) is a specialized agency of the United Nations (UN) in charge of international health cooperation in the Americas. It fosters technical cooperation among member countries to fight communicable and noncommunicable diseases, strengthen health systems, and respond to emergencies and disasters.
The Convention on the Elimination of all Forms of Discrimination Against Women (CEDAW) is an international treaty adopted in 1979 by the United Nations General Assembly. Described as an international bill of rights for women, it was instituted on 3 September 1981 and has been ratified by 189 states. Over fifty countries that have ratified the convention have done so subject to certain declarations, reservations, and objections, including 38 countries who rejected the enforcement article 29, which addresses means of settlement for disputes concerning the interpretation or application of the convention. Australia's declaration noted the limitations on central government power resulting from its federal constitutional system. The United States and Palau have signed, but not ratified the treaty. The Holy See, Iran, Somalia, Sudan, and Tonga are not signatories to CEDAW.
Lepra (Leprosy Relief Association) is a UK-based international charity established in 1924, working to diagnose, treat, and rehabilitate people with leprosy. Lepra currently works in India, Bangladesh, and Zimbabwe.
Leprosy was said to be first recognized in the ancient civilizations of China, Egypt, and India, according to the World Health Organization (WHO). Leprosy, also known as Hansen's disease, was officially eliminated at the national level in China by 1982, meaning prevalence is lower than 1 in 100,000. There are 3,510 active cases today. Though leprosy has been brought under control in general, the situation in some areas is worsening, according to China's Ministry of Health. In the past, leprosy sufferers were ostracized by their communities as the disease was incurable, disfiguring, and wrongly thought to be highly infectious.
Philip Geoffrey Alston is an Australian international law scholar and human rights practitioner. He is John Norton Pomeroy Professor of Law at New York University School of Law, and co-chair of the law school's Center for Human Rights and Global Justice. In human rights law, Alston has held a range of senior UN appointments for over two decades, including United Nations Special Rapporteur on extrajudicial, summary or arbitrary executions, a position he held from August 2004 to July 2010, and UN Special Rapporteur on extreme poverty and human rights from 2014-2020.
Yōhei Sasakawa is chairman of The Nippon Foundation, the World Health Organization Goodwill Ambassador for Leprosy Elimination, and Japan's Ambassador for the Human Rights of People Affected by Leprosy. His global fight against leprosy and its accompanying stigma and social discrimination is an issue to which he has remained highly committed for more than 40 years. As chairman of The Nippon Foundation, Japan's largest charitable foundation, he guides public-interest activities in modern Japan. Sasakawa received his degree from Meiji University’s School of Political Science and Economics. Sasakawa's father was businessman, politician, and philanthropist Ryōichi Sasakawa.
The Yogyakarta Principles is a document about human rights in the areas of sexual orientation and gender identity that was published as the outcome of an international meeting of human rights groups in Yogyakarta, Indonesia, in November 2006. The principles were supplemented and expanded in 2017 to include new grounds of gender expression and sex characteristics and a number of new principles. However, the Principles have never been accepted by the United Nations (UN) and the attempt to make gender identity and sexual orientation new categories of non-discrimination has been repeatedly rejected by the General Assembly, the UN Human Rights Council and other UN bodies.
The National Hansen's Disease Museum is a museum in Higashimurayama, Tokyo, Japan that is dedicated to education about Hansen's disease (leprosy) and to eliminating discriminatory practices against its sufferers. It was formerly (1993–2007) named "His Imperial Highness Prince Takamatsu Memorial Museum of Hansen's Disease".
Leprosy stigma is a type of social stigma, a strong negative feeling towards a person with leprosy relating to their moral status in society. It is also referred to as leprosy-related stigma, leprostigma, and stigma of leprosy. Since ancient times, leprosy instilled the practice of fear and avoidance in many societies because of the associated physical disfigurement and lack of understanding behind its cause. Because of the historical trauma the word "leprosy" invokes, the disease is now referred to as Hansen's disease, named after Gerhard Armauer Hansen who discovered Mycobacterium leprae, the bacterial agent that causes Hansen's disease. Those who have suffered from Hansen's disease describe the impact of social stigma as far worse than the physical manifestations despite it being only mildly contagious and pharmacologically curable. This sentiment is echoed by Weis and Ramakrishna, who noted that "the impact of the meaning of the disease may be a greater source of suffering than symptoms of the disease".
Defamation of religion is an issue that was repeatedly addressed by some member states of the United Nations (UN) from 1999 until 2010. Several non-binding resolutions were voted on and accepted by the UN condemning "defamation of religion". The motions, sponsored on behalf of the Organization of the Islamic Conference (OIC), now known as the Organisation of Islamic Cooperation, sought to prohibit expression that would "fuel discrimination, extremism and misperception leading to polarization and fragmentation with dangerous unintended and unforeseen consequences". Religious groups, human rights activists, free-speech activists, and several countries in the West condemned the resolutions arguing they amounted to an international blasphemy law. Critics of the resolutions, including human rights groups, argued that they were used to politically strengthen domestic anti-blasphemy and religious defamation laws, which are used to imprison journalists, students and other peaceful political dissidents.
The Declaration on the Elimination of Violence Against Women was adopted without a vote by the United Nations General Assembly in the 48/104 resolution of 20 December 1993. Contained within it is the recognition of "the urgent need for the universal application to women of the rights and principles with regard to equality, security, liberty, integrity and dignity of all human beings". It recalls and embodies the same rights and principles as those enshrined in such instruments as the Universal Declaration of Human Rights, and Articles 1 and 2 provide the most widely used definition of violence against women.
Leprosy currently affects approximately a quarter of a million people throughout the world, with the majority of these cases being reported from India.
The Muraiken Undō, or No Leprosy Patients in Our Prefecture Movement, was a government funded Japanese public health and social movement which began between 1929 and 1934. Its mission was to systematically eliminate leprosy,, a readily transmissible, previously incurable, chronic infectious disease caused by M. leprae, from each prefecture in Japan. This was to be achieved by caring for those affected by the disease in government funded sanatoriums.
There has, historically, been fear around leprosy and people with the disease have suffered stigma, isolation and social exclusion. Expulsion of individuals infected with leprosy to quarantined areas or special institutions has been the general protocol since ancient times and was the recommended course of action by the Leprosy Conference of Berlin 1897. As a result, the exclusion and quarantining of people infected with leprosy became law, hence leprosy colonies were formed. The inhabitants of these colonies had very little legal recourse in preventing their exclusion and, even after they were treated and cured, many had trouble reintegrating into society. Even by the 1960s, when leprosy was highly treatable and curable, it still resulted in repulsion, and the exclusion of sufferers, by the general populace. As leprosy became curable, the focus of study shifted towards investigating the social aspects of the disease. This has become relevant due to the fact that the disease is making a resurgence and is proving resistant to previous remedies.
MORHAN or Movement of Reintegration of Persons Afflicted by Hansen's disease in English, is a non-profit organization that operates to reduce leprosy and the stigma of leprosy in Brazil. This organization was initially created to ensure the rights of patients from leper colonies due to their isolation, and today it is one of the most successful Brazilian social movements, with representation in the National Health Council. The group has used several methods to disseminate information about leprosy including, but not limited to, handing out pamphlets, hosting seminars, and organizing puppet shows for children. Morhan also creates its own publications as a means of mobilization and news regarding leprosy. Furthermore, Morhan has worked with anthropologists to provide explanatory models and lay explanations of leprosy within the Brazilian context. Morhan's work has been exemplary in creating partnerships between social groups and the government and received an award from the United Nation’s Millennium Development Goals. The current National Coordinator is Artur Custodio Moreira de Souza.
The history of leprosy was traced to its origins by an international team of 22 geneticists using comparative genomics of the worldwide distribution of Mycobacterium leprae. Monot et al. (2005) determined that leprosy originated in East Africa or the Near East and traveled with humans along their migration routes, including those of trade in goods and slaves. The four strains of M. leprae are based in specific geographic regions where each predominantly occurs:
The Republic of Uruguay is located in South America, between Argentina, Brazil and the South Atlantic Ocean, with a population of 3,332,972. Uruguay gained independence and sovereignty from Spain in 1828 and has full control over its internal and external affairs. From 1973 to 1985 Uruguay was governed by a civil-military dictatorship which committed numerous human rights abuses.
Gerard Quinn is a professor of law at the University of Leeds and at the Wallenberg Institute in the University of Lund, Sweden. He was formerly professor of law at NUI Galway, Ireland, and Director of the university's Centre for Disability Law and Policy at the School of Law. He was appointed to the Council of State by the President of Ireland, Michael D. Higgins in 2012.
(Hilda) Beatriz Miranda-Galarza is an Ecuadorian researcher and the Special Rapporteur on the elimination of discrimination against persons affected by leprosy from 2023.
References
- 1 2 3 4 "Talking Leprosy. Alice Cruz: "A medicalized approach to leprosy is not enough" | ILEP Federation" . Retrieved 23 June 2024.
- 1 2 "OHCHR - SR Leprosy". www.ohchr.org.
- ↑ "OHCHR - Political leaders must stop misusing leprosy as a metaphor for harmful stereotypes, says UN expert". www.ohchr.org.
- ↑ "Ms. Alice Cruz, UN Special Rapporteur on the elimination of discrimination against persons affected by leprosy and their family members - PAHO/WHO | Pan American Health Organization". www.paho.org. Retrieved 23 June 2024.
- ↑ "Current and former mandate holders (existing mandates)". OHCHR. 1 May 2024. Retrieved 23 June 2024.
- ↑ "Statement by Ms. Alice Cruz, Special Rapporteur on the elimination of discrimination against persons affected by leprosy (Hansen's disease) and their family members" (PDF). United Nations meetings. Retrieved 23 June 2023.