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Autism-Europe aisbl | |
Abbreviation | AE [1] |
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Pronunciation |
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Formation | 1983 |
Founded at | Ghent, Belgium |
Legal status | Nonprofit organization |
Purpose | activism, education, advocacy |
Headquarters | Brussels, Belgium |
Region | Worldwide |
Fields | Autism |
Membership (2019) | Belgium, Czech Rep., Croatia, Denmark, Finland, France, Germany, Greece, Hungary, Iceland, Ireland, Lithuania, Luxembourg, Malta, Netherlands, Norway, Portugal, Romania, Russia, Serbia, Slovakia, Spain, Sweden, Switzerland, United Kingdom, Bulgaria, Estonia, Italy, Slovenia, Turkey, Ukraine, Albania, Kuwait, Morocco, Saudi Arabia |
Official language | English, French |
President | Harald Neerland |
Director | Aurélie Baranger |
Website | http://www.autismeurope.org/ |
Autism-Europe is an international non-profit association located in Brussels, Belgium. The organisation is co-funded by the European Union. [2]
The association's mission is to advance the rights of people with autism in all areas of life through advocacy work and raising awareness. This includes representing people with autism in European institutions, promoting access to habilitation and education, and promoting the exchange of information, good practices, and experiences. Autism-Europe operates as an umbrella organization, bringing together 80 autism organisations in 34 European countries, including 26 European Union member states. [3] [4] [5]
Autism-Europe was founded in 1983 by a group of national and regional parents' associations. It was established following the first European Conference of Associations of Parents in Ghent, Belgium, in 1980. [6]
Under its first president, Jean Charles Salmon, the organisation identified its three main functions as monitoring, advocacy and recommendation; more specifically:
Autism-Europe was founded in the context of a changing public understanding of all disabilities. A new conception of disability was emerging, called the "social model of disability" (as opposed to the "medical model of disability"), which aimed to redefine disability to focus on the relationship between people and their environment. This understanding is based on the idea that social barriers must be removed to enable people with disabilities to participate fully in society, becoming active members who can represent themselves and exercise their rights. [7]
In 1992, Autism-Europe members created the "Charter for Persons with Autism", a Charter which outlined the rights of autistic people in all aspects of life. [8] Following that, Autism-Europe decided that for the charter to have relevance at the European level, it must also have political endorsement. Autism-Europe therefore campaigned for political support and approval for the charter. The charter was adopted as a written declaration by the European Parliament in 1996. [9]
Autism-Europe launched the first collective complaint before the Council of Europe on behalf of people with disabilities in 2002. [10] Autism-Europe was represented by Evelyne Friedel, a lawyer with an autistic son. [11]
In 2004, the Council of Europe publicly announced its condemnation of France for having failed its educational obligations to persons with autism under the revised European Social Charter. The Council of Europe's decision put pressure on France and other countries in the Council of Europe to live up to their obligations under the European Social Charter by providing education for people with autism, both within mainstream and specialised schools. [12]
Following the decision, the French government launched its first "Autism Plan", which included measures to create new facilities and include children with autism in mainstream schools. [13]
In 2006, after four years of negotiations, the United Nations General Assembly adopted a new convention specifically for people with disabilities. The Convention on the Rights of Persons with Disabilities reaffirms that all people with all types of disabilities, including autism, must enjoy all human rights and fundamental freedoms. It is legally binding for countries that ratify it. [14]
Autism-Europe took part in the consultation process leading to the drafting and adoption of the UN Convention, and continues taking part in the review process of the European Union by the United Nations. [15] The convention has since been ratified by most countries in Europe, as well as the European Union, and therefore must be implemented in these countries and within the EU's fields of competence.
Following the collective complaint on the right to education in France in 2002, the Council of Europe established a group of experts – of which Autism-Europe was a member – to look into the issue of access to education for children with autism. [16] This resulted in the Council of Europe's "Resolution ResAP (2007)4 on the education and social inclusion of children and young people with autism", which was adopted as a recommendation in 2009 (CM/ Rec(2009)9). [17]
While this recommendation is not binding for the members of the Council of Europe, it applies pressure to implement policies promoting access to education and the inclusion of people with autism.
In September 2015, the European Parliament officially adopted the Written Declaration on Autism, co-signed by 418 Members of the European Parliament. The document, co-drafted by Autism-Europe, calls on the European Union and its member states to adopt a European strategy for autism that will support accurate detection and diagnosis across Europe, promote evidence-based treatment and support services for all ages, foster research and prevalence studies, and encourage the exchange of best practices. [18]
Autism-Europe operates as an umbrella organisation, bringing together 80 member autism organisations in 34 European countries, including 26 European Union Member States. [3] It works at raising public awareness and influencing European decision-makers on issues relating to the rights of people with autism and other disabilities.
Autism-Europe has established a structured dialogue with the European Institutions and is also active with the World Health Organization and the United Nations. It also participates as a non-governmental organisation in the Council of Europe. [19]
Autism-Europe's main activities revolve around its advocacy work at the EU and national level, awareness-raising campaigns, and dissemination of information. Its main publication is its biannual LINK magazine, which presents news on the subject of autism and member activity. Autism-Europe also publishes research publications to support its advocacy activities, which have recently focused on education, [20] employment [21] and ageing. [22] Every three years, Autism-Europe organize an international congress dedicated to sharing knowledge regarding advances in the field of autism.
The disability rights movement is a global social movement that seeks to secure equal opportunities and equal rights for all people with disabilities.
Neurodiversity is a framework for understanding human brain function that recognizes the diversity of human cognition as a biological fact. The neurodiversity paradigm argues that diversity in human cognition is normal and that some conditions classified as mental disorders are differences and disabilities that are not necessarily pathological.
The post-autistic economics movement, or movement of students for the reform of economics teaching, is a political movement that criticises neoclassical economics and advocates for pluralism in economics. The movement gained attention after an open letter signed by almost a thousand economics students at French universities and grandes ecoles was published in Le Monde in 2000.
The autism rights movement, also known as the autistic acceptance movement, is a social movement allied with disability rights that emphasizes a neurodiversity paradigm, viewing autism as a disability with variations in the human brain rather than as a disease to be cured. The movement advocates for several goals, including greater acceptance of autistic traits and behaviors; reforms of services – i.e. services that focus on improving quality of life and well-being instead of suppression and masking of autistic traits that are adaptive or not harmful or imitations of social behaviors of allistic (non-autistic) peers ; the creation of social networks and events that allow autistic people to socialize on their own terms; and the recognition of the autistic community as a minority group.
Autistic Pride Day is a pride celebration for autistic people held on 18 June each year. Autistic pride recognises the importance of pride for autistic people and its role in bringing about positive changes in the broader society.
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People-first language (PFL), also called person-first language, is a type of linguistic prescription which puts a person before a diagnosis, describing what condition a person "has" rather than asserting what a person "is". It is intended to avoid marginalization or dehumanization when discussing people with a chronic illness or disability. It can be seen as a type of disability etiquette but person-first language can also be more generally applied to any group that would otherwise be defined or mentally categorized by a condition or trait.
Societal and cultural aspects of autism or sociology of autism come into play with recognition of autism, approaches to its support services and therapies, and how autism affects the definition of personhood. The autistic community is divided primarily into two camps; the autism rights movement and the pathology paradigm. The pathology paradigm advocates for supporting research into therapies, treatments, and/or a cure to help minimize or remove autistic traits, seeing treatment as vital to help individuals with autism, while the neurodiversity movement believes autism should be seen as a different way of being and advocates against a cure and interventions that focus on normalization, seeing it as trying to exterminate autistic people and their individuality. Both are controversial in autism communities and advocacy which has led to significant infighting between these two camps. While the dominant paradigm is the pathology paradigm and is followed largely by autism research and scientific communities, the neurodiversity movement is highly popular among most autistic people, within autism advocacy, autism rights organizations, and related neurodiversity approaches have been rapidly growing and applied in the autism research field in the last few years.
The Autistic Self Advocacy Network (ASAN) is an American 501(c)(3) nonprofit advocacy organization run by and for individuals on the autism spectrum. ASAN advocates for the inclusion of autistic people in decisions that affect them, including: legislation, depiction in the media, and disability services.
The Mental Disability Advocacy Center (MDAC) is an international human rights organisation founded in Hungary in 2002. It is headquartered in Budapest.
Ari Daniel Ne'eman is an American disability rights activist and researcher who co-founded the Autistic Self Advocacy Network in 2006. On December 16, 2009, President Barack Obama announced that Ne'eman would be appointed to the National Council on Disability. After an anonymous hold was lifted, Ne'eman was unanimously confirmed by the United States Senate to serve on the Council on June 22, 2010. He chaired the council's Policy & Program Evaluation Committee making him the first autistic person to serve on the council. In 2015, Ne'eman left the National Council on Disability at the end of his second term. He currently serves as a consultant to the American Civil Liberties Union. As of 2019, he also is a Ph.D. candidate in Health Policy at Harvard University.
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Lydia X. Z. Brown is an American autistic disability rights activist, writer, attorney, and public speaker who was honored by the White House in 2013. They are the chairperson of the American Bar Association Civil Rights & Social Justice Disability Rights Committee. They are also Policy Counsel for Privacy & Data at the Center for Democracy & Technology, and Director of Policy, Advocacy, & External Affairs at the Autistic Women & Nonbinary Network. In 2022, they unsuccessfully ran for the Maryland House of Delegates in District 7A, losing to state delegate Kathy Szeliga and delegate-elect Ryan Nawrocki.
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The history of autism in France is marked by the strong influence of psychoanalysis, and by the persistence of institutionalization practices that violate the fundamental rights of autistic people. According to estimates at the end of 2016, 0.7 to 1% of the French population has an autism spectrum disorder, most of which is undiagnosed, leading to varying degrees of disability.