Brainkind (formerly The Disabilities Trust) is a UK charity founded in the 1980s [1] [2] in Burgess Hill, West Sussex, as The Disabled Housing Trust. Brainkind provides residential, day services, care, rehabilitation and support to meet the needs of people with acquired brain injury (ABI), traumatic brain injury (TBI) and neurological conditions. [3] Brainkind also provides care and support to enable living in the community and support at home. [4]
The charity's stated values declare that "People with disabilities are at the heart of all that we do. While meeting care and support needs, we will endeavour at all times to enhance their independence and promote the rights of disabled people as equal members of society." [5]
Between 1979 and 1989, Brainkind opened two residential services [6] in Sussex for adults with physical disabilities. Both these services were formally opened by Diana, Princess of Wales. [7]
In 1991, the Brain Injury Rehabilitation Trust (BIRT) was established, and The Trust's first specialist brain injury rehabilitation service was opened in Milton Keynes. [8] The Brain Injury Rehabilitation Trust grew to be one of Europe's largest providers of specialist brain injury rehabilitation. [9]
Brainkind continued to grow throughout the 1990s and 2000s and extended its provision to include services for adults with autism and special education for children with autism and Asperger syndrome.
In September 2023, The Disabilities Trust rebranded to Brainkind.
Brainkind campaigns on behalf of the people who use their services to give a voice to people who are disabled and raise awareness of key issues. [10]
Brain Injury Rehabilitation Trust (BIRT) was established in 1991 to provide clinical neurobehavioural rehabilitation for people with acquired and/or traumatic brain injuries. [11]
The Disabilities Trust Foundation was founded in 2009 to utilise the Trust's knowledge through research and the piloting of new ideas designed to initiate and enhance good practice and direct or influence policy within the fields of Brain Injury, Learning Disabilities, Autism and Physical Disabilities. [12]
Physical medicine and rehabilitation (PM&R), also known as physiatry, is a branch of medicine that aims to enhance and restore functional ability and quality of life to people with physical impairments or disabilities. This can include conditions such as spinal cord injury, brain injury, musculoskeletal injury, stroke, pain and spasticity from muscle, ligament, or nerve damage. PM&R physicians lead rehabilitation teams and are trained in medication management, electrodiagnosis, and targeted injections. A physician having completed training in this field may be referred to as a physiatrist.
Developmental disability is a diverse group of chronic conditions, comprising mental or physical impairments that arise before adulthood. Developmental disabilities cause individuals living with them many difficulties in certain areas of life, especially in "language, mobility, learning, self-help, and independent living". Developmental disabilities can be detected early on and persist throughout an individual's lifespan. Developmental disability that affects all areas of a child's development is sometimes referred to as global developmental delay.
The Royal Hospital for Neuro-disability, in Putney, South West London, is an independent medical charity that provides rehabilitation and long-term care to people with complex neurological disabilities caused by damage to the brain or other parts of the nervous system. This damage is often caused by traffic accidents and progressive neurological conditions such as Huntington's disease and multiple sclerosis. The chief executive is Paul Allen. The hospital is a Grade II-listed building.
Residential care refers to long-term care given to adults or children who stay in a residential setting rather than in their own home or family home.
GF Strong Rehabilitation Centre is the largest rehabilitation hospital in British Columbia. It is located in the South Cambie neighbourhood of Vancouver.
Neurorehabilitation is a complex medical process that aims to aid recovery from a nervous system injury and minimize and/or compensate for any functional alterations.
St Andrew's Healthcare is a large independent charity based at St Andrew's Hospital in Northampton, which provides psychiatric services. It also has sites in Essex, Birmingham and Nottinghamshire. It runs specialist services for adolescents, men, women and older people with mental illness, learning disability, brain injury, autism and dementia and hosts the National Brain Injury Centre. It is a psychiatric hospital and service provider that caters for individuals requiring inpatient care and rehabilitation, and step-down housing.
The Huntercombe Group is a specialist health provider in the United Kingdom specialising in the Child and Adolescent Mental Health Services (CAMHS), Adult Mental Health, Brain Injury Rehabilitation and Neurological Care Centre, Adult Learning Disability and Children's Complex Needs. It operates 12 hospitals and specialist centres located throughout England and Scotland.
MedStar National Rehabilitation Network is located in Washington, D.C., and specializes in treating persons with physical disabilities. The National Rehabilitation Hospital was founded in 1986 by Edward A. Eckenhoff, and is a member of the MedStar Health system, the Washington, D.C.-Baltimore region's largest non-profit healthcare organization.
Autism Anglia is an organisation and registered charity that provides services to those affected by autism in Essex, Suffolk, Norfolk and Cambridge. It began life in 1973 when Anthony Boobier discovered there were no specialist autism services for his newly diagnosed son. Its first establishment opened in 1977 and it opened adult services in 1983 when the original children grew up and it was realised that there was no specialised adult autism provision for them. In 2008, The Essex Autistic Society took over the Norfolk Autistic Community Housing Association and the Norfolk Autistic Society and changed the name of the new charity to Autism Anglia to better reflect the enlarged area of operation. In 2013 Autism Anglia took over the Cambridge-based charity East Anglian Autistic Support Trust (EAST).
Kessler Foundation, established in 1985, is a nonprofit in the field of rehabilitation research for people with disabilities. Kessler Foundation has its roots in the Kessler Institute, founded in 1949 to improve medical outcomes and employment of people disabled by brain or spinal injury. Kessler Foundation conducts rehabilitation research with the goal of increasing function for cognition, mobility, and long-term outcomes, including employment, for people with neurological disabilities caused by diseases and injuries of the brain and spinal cord.
The Children's Trust is the UK's leading charity for children with brain injury.
ARC Association for Real Change is a UK membership organisation, which supports providers of services to people with a learning disability.
Magee Rehabilitation Hospital, part of Jefferson Health, founded in 1958, is a 96-bed specialty medical rehabilitation hospital providing physical and cognitive rehabilitation services. Magee's flagship facility is located in Center City Philadelphia. In addition to the main campus that offers comprehensive services for spinal cord injury, brain injury, stroke, orthopaedic replacement, amputation, pain management and work injury, Magee provides an expanding outpatient network serving the surrounding communities.
The Rehab Group is an international not-for-profit organisation providing health and social care, training and education, rehabilitation, employment and commercial services. Operating primarily in Ireland and the United Kingdom, it was originally established in 1949 as the Rehabilitation Institute, and provided training services to people with tuberculosis. In 2014 and 2015, a number of controversies involving the Rehab Group resulted in the resignation of the organisation's then CEO, a reduction in donations to several charities, and changes to the regulation of charities in Ireland.
Chailey Heritage School is a special school located in North Chailey, East Sussex, England. It is owned and operated by the Chailey Heritage Foundation. The school is for children and young adults, aged between 3 and 19, with complex physical disabilities and associated learning difficulties. The school has a sixth form. It is a charity. There is boarding accommodation on the site. NHS services are based at the same location.
For many elderly carers of a relative who has a learning or other disability, future planning is an issue. The population of older parents who have children with a learning disability is growing and many of their children are likely to outlive them. In many cases the caring role can span up to seven decades, ending only with their death. Governments and other service providers cannot ignore the pressing needs of this population and their parent and sibling carers. In most countries, family carers provide inexpensive care for a person with a learning disability and other disabilities. This trend is set to continue in England. Demographic changes and the health needs of these two growing populations must be considered against government policy constraints and limited in-home and external care options in order to avoid a crisis. The consequences of not supporting these family carers will lead to crisis management, increase in distress and care giving burdens, and increased spending on unsuitable crisis placements. Housing and financial guidance are issues for caregivers.
Lifeways Group is a British social care company founded in 1995, which provides supported living services for adults with learning disabilities, autism, and brain injuries. It also offers tailored holidays, or “respite breaks”, for the people it supports.
YAI, previously known as the Young Adult Institute, is an organization serving people with Intellectual and developmental disabilities (IDD) in the United States. YAI launched as a pilot program at a small school in Brooklyn, New York, in February 1957. The pilot program was run by co-founders Bert MacLeech and Pearl Maze and served seven people with I/DD. Today, YAI has expanded to a team of over 4,000 employees and supports over 20,000 people in the I/DD community. YAI supports people with Autism, Down syndrome, and Cerebral palsy, among others.