Founded | 1939 |
---|---|
Founder | Patricia Carey & Frederic Morena |
Type | Charitable organisation |
Registration no. | England & Wales (1108335) Scotland (SC038863) |
Location |
|
Origins | London, England (UK) |
Area served | UK |
Website | www |
Formerly called | The Infantile Paralysis Fellowship |
The British Polio Fellowship is a charitable organisation supporting and empowering people in the UK living with the late effects of polio and post-polio syndrome (PPS). It provides information, welfare and support to those affected, to enable them to live full, independent and integrated lives and campaigns to raise awareness of PPS. [1]
The charity's purpose is to empower and support all people in the UK living with the effects of polio and PPS by providing information, welfare and support to enable them to live full independent and integrated lives; by supporting a regional/branch/group structure that enables mutual support amongst members to be carried out in a caring and inclusive environment; and by developing worldwide alliances with other polio and post-polio groups. It aims to be the first resource on polio and post polio syndrome. [2]
It is a membership organisation with branches and groups across the UK. It publishes a quarterly magazine, the bulletin; and campaigns to raise awareness of PPS among healthcare professionals, members of parliament and the general public and supports the efforts of fellow polio organisations in their attempts to eradicate the disease worldwide. [3]
The British Polio Fellowship, then called The Infantile Paralysis Fellowship, was founded on 29 January 1939 by Patricia Carey, who had contracted polio aged eight, and Frederic Morena, who had contracted the disease at the age of 42, as a self-help and mutual aid society for those affected by polio. They called a meeting in January 1938 at Bloomsbury, London which was attended by 30 people and which acted as the foundation of the organisation being formed the following year. The first issue of the charity’s newsletter was published in April 1939. On 18 May 1939 a letter from Hugh Moulton, Liberal politician, was published informing the public of the formation of the Infantile Paralysis Fellowship which "seeks to help the sufferers help themselves and to afford each other mutual aid and sympathy". The letter went on to say the principal objective of the Fellowship was to help members find work and suggested that there were (at that time) somewhere between 5,000-7,000 people with the after-effects of infantile paralysis in Britain. [4] [5]
Over time the focus of the charity's work has shifted due to the eradication of polio in the UK during the 1980s and the discovery of post-polio syndrome, and the fellowship's work has become more about supporting those with PPS. [4]
Poliomyelitis, commonly shortened to polio, is an infectious disease caused by the poliovirus. Approximately 70% of cases are asymptomatic, mild symptoms which can occur include sore throat and fever; in a proportion of cases more severe symptoms develop such as headache, neck stiffness, and paresthesia. These symptoms usually pass within one or two weeks. A less common symptom is permanent paralysis, and possible death in extreme cases. Years after recovery, post-polio syndrome may occur, with a slow development of muscle weakness similar to that which the person had during the initial infection.
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Post-polio syndrome is a group of latent symptoms of poliomyelitis (polio), occurring at about a 25–40% rate. These symptoms are caused by the damaging effects of the viral infection on the nervous system. Symptoms typically occur 15 to 30 years after an initial acute paralytic attack. Symptoms include decreasing muscular function or acute weakness with pain and fatigue. The same symptoms may also occur years after a nonparalytic polio (NPP) infection.
March of Dimes is a United States nonprofit organization that works to improve the health of mothers and babies. The organization was founded by President Franklin D. Roosevelt in 1938, as the National Foundation for Infantile Paralysis, to combat polio. The name "March of Dimes" was coined by Eddie Cantor. After funding Jonas Salk's polio vaccine, the organization expanded its focus to the prevention of birth defects and infant mortality. In 2005, as preterm birth emerged as the leading cause of death for children worldwide, research and prevention of premature birth became the organization's primary focus.
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March of Dimes Canada (MODC), officially the Rehabilitation Foundation for Disabled Persons, Canada is a registered national charity established in 2005 by Ontario March of Dimes. MODC aims to provide community-based rehabilitation services and resources across the country to people with physical disabilities.
The history of polio (poliomyelitis) infections began during prehistory. Although major polio epidemics were unknown before the 20th century, the disease has caused paralysis and death for much of human history. Over millennia, polio survived quietly as an endemic pathogen until the 1900s when major epidemics began to occur in Europe. Soon after, widespread epidemics appeared in the rest of the world. By 1910, frequent epidemics became regular events throughout the developed world primarily in cities during the summer months. At its peak in the 1940s and 1950s, polio would paralyze or kill over half a million people worldwide every year.
In organization theory, mutual aid is a voluntary reciprocal exchange of resources and services for mutual benefit. Mutual aid projects can be a form of political participation in which people take responsibility for caring for one another and changing political conditions.
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Thomas Ferguson RodgerCBE FRCP Glas FRCP Ed FRCPsych was a Scottish physician who was Professor of Psychological Medicine at the University of Glasgow from 1948 to 1973, and Emeritus Professor thereafter. He joined the Royal Army Medical Corps during the Second World War and rose to become a consultant psychiatrist with the rank of Brigadier.
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