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The Charity Foundation for Special Diseases, as a public and NGO entity, started its activities in May 1995 with the support of H.E. Hashemi Rafsanjani and Dr. Fatemeh Rafsanjani and other philanthropists.
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The Charity Foundation for Special Diseases, as a public and NGO entity, started its activities in May 1995 with the support of H.E. Hashemi Rafsanjani and Dr. Fatemeh Rafsanjani and other philanthropists.
The idea behind establishing such an entity came about when President of the foundation met few kidney and thalassemia patients in 1991. Their inappropriate living and medical condition forced her to travel to provinces to collect first hand information and get herself more familiarized with patients. Due to the following prevailing conditions for patients, she had to report the result of fact finding missions to her father and asked for his immediate intervention:
During these years, the Foundation has expanded its coverage from patients with Dialysis, Thalassemia and Hemophilia to other patients with severe illnesses : Cancer, M.S., Kidney transplants, Diebetic and E.B. due to its epidemic and high cost of treatments.
Nephrology is a specialty of adult internal medicine and pediatric medicine that concerns the study of the kidneys, specifically normal kidney function and kidney disease, the preservation of kidney health, and the treatment of kidney disease, from diet and medication to renal replacement therapy. The word "renal" is an adjective meaning "relating to the kidneys", and its roots are French or late Latin. Whereas according to some opinions, "renal" and "nephro" should be replaced with "kidney" in scientific writings such as "kidney medicine" or "kidney replacement therapy", other experts have advocated preserving the use of renal and nephro as appropriate including in "nephrology" and "renal replacement therapy", respectively.
Kidney failure, also known as end-stage kidney disease, is a medical condition in which the kidneys can no longer adequately filter waste products from the blood, functioning at less than 15% of normal levels. Kidney failure is classified as either acute kidney failure, which develops rapidly and may resolve; and chronic kidney failure, which develops slowly and can often be irreversible. Symptoms may include leg swelling, feeling tired, vomiting, loss of appetite, and confusion. Complications of acute and chronic failure include uremia, hyperkalaemia, and volume overload. Complications of chronic failure also include heart disease, high blood pressure, and anaemia.
Kidney disease, or renal disease, technically referred to as nephropathy, is damage to or disease of a kidney. Nephritis is an inflammatory kidney disease and has several types according to the location of the inflammation. Inflammation can be diagnosed by blood tests. Nephrosis is non-inflammatory kidney disease. Nephritis and nephrosis can give rise to nephritic syndrome and nephrotic syndrome respectively. Kidney disease usually causes a loss of kidney function to some degree and can result in kidney failure, the complete loss of kidney function. Kidney failure is known as the end-stage of kidney disease, where dialysis or a kidney transplant is the only treatment option.
Chronic kidney disease (CKD) is a type of kidney disease in which a gradual loss of kidney function occurs over a period of months to years. Initially generally no symptoms are seen, but later symptoms may include leg swelling, feeling tired, vomiting, loss of appetite, and confusion. Complications can relate to hormonal dysfunction of the kidneys and include high blood pressure, bone disease, and anemia. Additionally CKD patients have markedly increased cardiovascular complications with increased risks of death and hospitalization.
Ramipril, sold under the brand name Altace among others, is an ACE inhibitor type medication used to treat high blood pressure, heart failure, and diabetic kidney disease. It can also be used as a preventative medication in patients over 55 years old to reduce the risk of having a heart attack, stroke or cardiovascular death in patients shown to be at high risk, such as some diabetics and patients with vascular disease. It is a reasonable initial treatment for high blood pressure. It is taken by mouth.
Kidney transplant or renal transplant is the organ transplant of a kidney into a patient with end-stage kidney disease (ESRD). Kidney transplant is typically classified as deceased-donor or living-donor transplantation depending on the source of the donor organ. Living-donor kidney transplants are further characterized as genetically related (living-related) or non-related (living-unrelated) transplants, depending on whether a biological relationship exists between the donor and recipient. The first successful kidney transplant was performed in 1954 by a team including Joseph Murray, the recipient’s surgeon, and Hartwell Harrison, surgeon for the donor. Murray was awarded a Nobel Prize in Physiology or Medicine in 1990 for this and other work. In 2018, an estimated 95,479 kidney transplants were performed worldwide, 36% of which came from living donors.
The National Kidney Foundation, Inc. (NKF) is a voluntary health organization in the United States, headquartered in New York City, with over 30 local offices across the country. Its mission is to prevent kidney and urinary tract diseases, improve the health and well-being of individuals and families affected by these diseases, and increase the availability of all organs for transplantation. NKF is the largest, most comprehensive, and longstanding patient-centric organization dedicated to the awareness, prevention and treatment of kidney disease in the United States.
The American Kidney Fund (AKF) is a publicly supported non-profit organization founded in 1971.
The Government Medical College, Thiruvananthapuram, also known as Trivandrum Medical College, is a public medical college in Thiruvananthapuram, Kerala, India. Founded in 1951, it was inaugurated by Prime Minister Jawaharlal Nehru and is Kerala's first ever Medical College.
Northwest Kidney Centers is a regional, not-for-profit community-based provider of kidney dialysis, public health education, and research into the causes and treatments of chronic kidney disease. Established in Seattle in 1962, it was the world's first out-of-hospital dialysis provider. It offers dialysis throughout the greater Seattle area in 20 free-standing clinics, eight hospitals and its home dialysis program. It opened its first clinic in Everett in 2020, the organization's first in Snohomish county.
Robert Provenzano is an American nephrologist. He is also an Associate Clinical Professor of Medicine at Wayne State University School of Medicine.
Children's Hospital Oakland Research Institute (CHORI) is a biomedical research institute affiliated with California’s pediatric medical center, UCSF Benioff Children's Hospital Oakland.
The King Hussein Cancer Foundation (KHCF) and Center (KHCC) ,an independent Jordanian non-governmental, non-profit institution. It was established in 2001 by a royal decree issued and is led by Princess Ghida Talal. The Foundation's mission is to combat cancer through awareness, prevention, and early detection programs, providing comprehensive care for cancer patients from Jordan and the Arab world, in addition to promoting research and innovation.
The Rogosin Institute is an independent, not-for-profit treatment and research center with facilities throughout New York City that treat patients with kidney disease, including dialysis and kidney transplantation; lipid disorders; and hypertension. It is affiliated with NewYork-Presbyterian Hospital, Weill Cornell Medical College and is a leader in research programs for cancer and diabetes.
Dialysis Clinic, Inc. is a nonprofit medical corporation founded in 1971 and chartered as a 501(c)(3) tax-exempt organization under IRS regulations.
The National Kidney and Transplant Institute is a tertiary referral hospital located in Central, Quezon City, Philippines. The hospital opened on January 16, 1981.
ISMETT, in Italian, Istituto Mediterraneo per i Trapianti e Terapie ad Alta Specializzazione translated as the Mediterranean Institute for Transplantation and Advanced Specialized Therapies, is a center for organ transplantation located in Palermo, Italy. ISMETT was founded in 1997 as a partnership between the Region of Sicily, the Civico and Cervello hospitals in Palermo, and the University of Pittsburgh Medical Center (UPMC).
The National Kidney Foundation Singapore (NKF) is a non-profit health organisation in Singapore. Its mission is to render services to kidney patients, encourage and promote renal research, as well as to carry out public education programs on kidney diseases. As of February 2016, NKF has 29 dialysis centres in Singapore.