Deafblind UK is a national charity in the United Kingdom supporting people with sight and hearing loss to live the lives they want. Founded in 1928, Deafblind UK has its headquarters in Peterborough, Cambridgeshire. [1] The charity help people to live with deafblindness by making connections, and building their confidence and independence through a range of services and campaigns. Run by staff and volunteers, [2] the current CEO is Steve Conway, [3] [4] who has been in position since 2018. The current chairman in Robert Nolan. [5]
The foundations of Deafblind UK began in 1928, when a small group of deafblind people and their carers founded the National Deaf Blind League. [6]
The following year in 1929 the first magazine for deafblind people, Braille Rainbow, [7] was launched. During the Second World War, Rainbow was considered so important that it was one of very few publications exempt from paper rationing. Today, Rainbow is called ‘Open Hand’ and is still produced by Deafblind UK.
In 1936, Fellowship House in Hoylake was opened, [8] which was the UK's first holiday home specifically for people with deafblindness.
In 1963, the charity built Rainbow Court, a complex of residential flats that were designed to enable deafblind adults to live independently.
The National Deaf Blind League became Deafblind UK in 1996.
A new National Centre for Deafblindness was opened in 2003 Peterborough, Cambridgeshire, which acted as the headquarters conference centre for the charity. In 2020, this building was sold and headquarters were relocated to the Rainbow Court site. [9]
Deafblind UK offer the following services: [10]
Deafblind Awareness Week [16] [17] runs at the end of June to coincide with the birthday of Helen Keller. [18] In 2021, it fell on the week of 28 June - 4 July. [19] The week aims to make dual sensory loss a more widely known condition; educating people about what it is and letting them know what to look out for in themselves and others.
Deafblind UK is funded by donations from the public, [20] corporate partnerships, [21] community fundraising, [22] legacies and charitable trusts. [23]
In 2019, Deafblind UK opened their first charity shop [24] in Werrington, Cambridgeshire, which was the start of a new funding stream.
Perkins School for the Blind, in Watertown, Massachusetts, was founded in 1829 and is the oldest school for the blind in the United States. It has also been known as the Perkins Institution for the Blind.
The Royal National Institute of Blind People (RNIB) is a UK charity offering information, support and advice to almost two million people in the UK with sight loss. The charity affords practical and emotional support to those affected by sight issues and acts as an advocacy body.
Deafblindness is the condition of little or no useful hearing and little or no useful sight. Different degrees of vision loss and auditory loss occur within each individual. Because of this inherent diversity, each deafblind individual's needs regarding lifestyle, communication, education, and work need to be addressed based on their degree of dual-modality deprivation, to improve their ability to live independently. In 1994, an estimated 35,000–40,000 United States residents were medically deafblind. Helen Keller was a well-known example of a deafblind individual. To further her lifelong mission to help the deafblind community to expand its horizons and gain opportunities, the Helen Keller National Center for Deaf-Blind Youths and Adults, with a residential training program in Sands Point, New York, was established in 1967 by an act of Congress.
Tactile signing is a common means of communication used by people with deafblindness. It is based on a sign language or another system of manual communication.
NextSense, formerly the Royal Institute for Deaf & Blind Children, in Sydney provides a range of educational services for students with vision and/or hearing impairment, including specialist schools for signing Deaf students, oral deaf students, and students with sensory and intellectual disabilities.
Galloway's Society for the Blind, also known as Galloways, is a charity based in Lancashire, England, which supports people with sight loss. It is one of Lancashire's oldest charities, established in 1867 following a public meeting in the Corn Exchange, Preston. It was originally the Preston Industrial Institute for the Blind, then the Institute for Blind Welfare and until 2000 the Preston and North Lancashire Blind Welfare Society. It is now named after William Wilding Galloway, a cotton merchant from Preston who left £40,000 to local charities including £10,000 to the society when he died in 1936. The Society renamed itself in July 2000, to avoid its cumbersome previous name which was commonly abbreviated to the ambiguous "The Blind Society" and to honour its greatest benefactor.
The Royal National College for the Blind (RNC) is a co-educational specialist residential college of further education based in the English city of Hereford. Students who attend the college are aged 16 to 25 and blind or partially sighted. They can study a wide range of qualifications at RNC, from academic subjects such as English and Mathematics to more vocational topics such as Massage and Complementary Therapies. Alongside regular further education subjects and vocational training, the college offers training in mobility, assistive technology, Braille, independent living skills and personal development.
Leeds Society for Deaf and Blind People is a charity based in Leeds, West Yorkshire, England, that provides practical services to deaf, hard of hearing, deafblind, blind and partially sighted people in the region. The charity has existed since 1866 and is one of the only charities of its kind in the country to provide services to those with both a hearing and/or visual impairment.
Christian Record Services for the Blind is a non-profit organization that serves people who are legally blind and visually impaired. "Christian Record Services for the Blind is an international organization serving blind and visually impaired individuals in approximately 70 countries worldwide and employs about 15 people." It is a ministry of the Seventh-day Adventist Church but services blind people regardless of beliefs.
Kent Association for the Blind is a registered charity providing rehabilitation services for children and adults with visual impairment to support them and help them live independent lives. Services are provided by six, specialist rehabilitation teams based in offices in Kent, Medway and Bromley. Additional specialist support is provided in Bexley.
Henshaws Society for Blind People is a specialist charity providing support, advice and training to anyone affected by sight loss and other disabilities.
Sight Scotland is a Scottish Charity based in Edinburgh, Scotland founded in 1793. The charity provides care, education and employment for people of all ages who are blind or partially sighted. Sight Scotland provides the following services: Royal Blind School, Forward Vision, Braeside House, Jenny's Well, Scottish Braille Press and Kidscene. Sight Scotland’s sister charity is Sight Scotland Veterans.
Helen Keller Day is a commemorative holiday to celebrate the birth of Helen Keller, observed on June 27 annually. The holiday observance was created by presidential proclamation in 2006, as well as by international organizations, particularly those helping the blind and the deaf. The holiday is generally known for its fashion show held on June 27 annually for fundraising purposes.
Father Cyril Bernhard Axelrod,, CSsR is a deafblind Catholic priest of the Redemptorist Order, known for his work with deaf and deafblind people. He has ministered to the deaf and deafblind around the world, including in South Africa, China and the United Kingdom. In 2014 he became the first deafblind person to become an Officer of the Order of the British Empire.
Richard Kinney was an American educator and school administrator. Blind at age six and deaf by age twenty, Kinney was the third deafblind person in the United States to earn a college degree. Kinney published four volumes of poetry and was president of the Hadley School for the Blind from 1975 until his death in 1979.
Haben Girma is an American disability rights advocate, and the first deafblind graduate of Harvard Law School.
Geraldine Jerrie Lawhorn was a figure of the American deafblind community, a performer, actress, pianist, then instructor at the Hadley Institute for the Blind and Visually Impaired. At 67 years old, she became the first deafblind African American to earn a college degree in the United States of America.
Sense is a charitable organization based in the United Kingdom. The charity exists to support people who are deafblind or who have a hearing or vision impairment and another disability and campaigns for the rights of disabled people in the UK. It operates in England, Northern Ireland and Wales.
Anindya Bapin Bhattacharyya is an Indian American technology instructor for the deafblind. He coordinates the National Outreach Technology Development and Training Program at the Helen Keller National Center for DeafBlind Youths and Adults, traveling the country teaching deafblind people to use adaptive technology. Deaf from birth and blind at the age of nine, Bhattacharyya has been an advocate for deafblind individuals in the United States and beyond.
Satoshi Fukushima is a Japanese researcher and advocate for people with disabilities. Blind since age nine and deaf from the age of eighteen, Fukushima was the first deafblind student to earn a degree from a Japanese university when he graduated from Tokyo Metropolitan University in 1987. Fukushima leads the Barrier-Free Laboratory, part of the Research Center for Advanced Science and Technology at the University of Tokyo; the research done by members of the lab's staff focuses on accessibility.