Disability justice is a social justice movement which focuses on examining disability and ableism as they relate to other forms of oppression and identity such as race, class and gender. [1] [2] It was developed in 2005 by the Disability Justice Collective, a group including Patty Berne, Mia Mingus, Stacey Milbern, Leroy F. Moore Jr., and Eli Clare. [1] In disability justice, disability is not considered to be defined in "white terms, or male terms, or straight terms." [1] The movement also believes that ableism makes other forms of prejudice possible and that systems of oppression are intertwined. [1] The disability justice framework is being applied to a intersectional reexamination of a wide range of disability, human rights, and justice movements. [3] [4] [5] [6]
Initially conceived by queer, disabled women of color, Patty Berne, Mia Mingus, and Stacey Milbern, in the San Francisco Bay Area, disability justice was built in reaction to their exclusion from mainstream disability rights movement and disability studies discourse and activism, as well as the ableism in activist spaces. [1] They were later joined by Leroy Moore, Eli Clare, and Sebastian Margaret. [1] Disability justice centers "disabled people of color, immigrants with disabilities, queers with disabilities, trans and gender non-conforming people with disabilities, people with disabilities who are houseless, people with disabilities who are incarcerated, people with disabilities who have had their ancestral lands stolen, amongst others." [1]
As mentioned before, disability justice movements discuss the various systems of oppression even within the disability community. One specific example for the Asian American community would be how oftentimes, members are unable and refuse to get help for mental health because it is seen as "taboo" in their culture. Since mental health is an "untouchable" topic in Asian culture, members who struggle with it hide it due to shame and embarrassment, and therefore are not able to share their experiences with their community and society in general. This reflects how the identities of being an Asian American and also possessing a mental disability cause these members to have a "lesser" voice in society. The disability justice movement seeks to spread awareness on how ableism is much more complex than people struggling with a disability [ies].
Sins Invalid, the group through which the founders were connected, defines disability justice through ten key principles: intersectionality, leadership by those most affected, anti-capitalism, solidarity across different activist causes and movements, recognizing people as whole people, sustainability, solidarity across different disabilities, interdependence, collective access, and collective liberation. [7] [8] [1] [9]
The disability justice work of the Bay Area activists has informed the development of the Disability Justice Initiative in Washington, D.C. On July 26, 2018, the 28th anniversary of the Americans With Disabilities Act (ADA), the Center for American Progress (CAP) formally announced its Disability Justice Initiative, under the direction of Rebecca Cokley. [10] CAP is the first public policy think tank to specifically focus on disability. [10] [11] Recognition of the need for an intentional and intersectional approach was driven in part by attempts to cut the Affordable Care Act. [11]
In April 2019, Performance Space New York hosted a three-day festival developed around the disability justice framework. Performance Space New York worked with the political arts group Arika, the Whitney Museum of American Art and others to bring together disabled artists and writers. Entitled I wanna be with you everywhere (IWBWYE), the festival attempted to create an experience of "access intimacy", in which needs were "respected, anticipated, and lovingly welcomed". [12] [13]
Sins Invalid has detailed the following 10 principles of disability justice: [14]
Like earlier critiques of reproductive rights by reproductive justice activists and critiques of environmentalism by environmental justice activists, [1] the founders of the disability justice movement thought the disability rights movement and disability studies overly focused on straight white men with physical disabilities to the exclusion of others. [15]
Many in the disability justice movement were also critical of an emphasis on rights without a broader examination of systems of oppression (for example, the right to an education does not mean that all education is equitable). [3]
Writer and activist Audre Lorde is frequently referenced as inspirational to the disability justice movement, for works such as her essay "A Burst of Light: Living with Cancer", which addresses disability, illness, and racial justice, [5] emphasizing that "We do not live single issue lives". [6] Writers such as Catherine Jampel have emphasized the importance of disability justice to an intersectional reexamination of environmental justice. [6] Writers such as Jina B. Kim draw upon disability justice and "crip-of-color" critiques in an attempt to develop an intersectional critical disability methodology which emphasizes that all lives are "enriched, enabled, and made possible" through a variety of means of support. [5]
Disability is the experience of any condition that makes it more difficult for a person to do certain activities or have equitable access within a given society. Disabilities may be cognitive, developmental, intellectual, mental, physical, sensory, or a combination of multiple factors. Disabilities can be present from birth or can be acquired during a person's lifetime. Historically, disabilities have only been recognized based on a narrow set of criteria—however, disabilities are not binary and can be present in unique characteristics depending on the individual. A disability may be readily visible, or invisible in nature.
Identity politics is politics based on a particular identity, such as ethnicity, race, nationality, religion, denomination, gender, sexual orientation, social background, caste, and social class. The term encompasses various often-populist political phenomena and rhetoric, such as governmental migration policies that regulate mobility and opportunity based on identities, left-wing agendas involving intersectional politics or class reductionism, and right-wing nationalist agendas of exclusion of national or ethnic "others."
Disability studies is an academic discipline that examines the meaning, nature, and consequences of disability. Initially, the field focused on the division between "impairment" and "disability", where impairment was an impairment of an individual's mind or body, while disability was considered a social construct. This premise gave rise to two distinct models of disability: the social and medical models of disability. In 1999 the social model was universally accepted as the model preferred by the field.
Leah Lakshmi Piepzna-Samarasinha is a Canadian-American poet, writer, educator and social activist. Their writing and performance art focuses on documenting the stories of queer and trans people of color, abuse survivors, mixed-race people and diasporic South Asians and Sri Lankans. A central concern of their work is the interconnection of systems of colonialism, abuse and violence. They are also a writer and organizer within the disability justice movement.
Laura Ann Hershey was a poet, journalist, popular speaker, feminist, and a disability rights activist and consultant. Known to have parked her wheelchair in front of buses, Hershey was one of the leaders of a protest against the paternalistic attitudes and images of people with disabilities inherent to Jerry Lewis's MDA Telethon. She was a regular columnist for the Christopher and Dana Reeve Foundation, and on her own website, Crip Commentary, and was published in a variety of magazines and websites. She was admired for her wit, her ability to structure strong arguments in the service of justice, and her spirited refusal to let social responses to her spinal muscular atrophy define the parameters of her life as anything less than a full human existence. She was also the mother of an adopted daughter.
Ecofeminism integrates feminism and political ecology. Ecofeminist thinkers draw on the concept of gender to analyse relationships between humans and the natural world. The term was coined by the French writer Françoise d'Eaubonne in her book Le Féminisme ou la Mort (1974). Ecofeminist theory introduces a feminist perspective to Green politics and calls for an egalitarian, collaborative society in which there is no one dominant group. Today, there are several branches of ecofeminism, with varying approaches and analyses, including liberal ecofeminism, spiritual/cultural ecofeminism, and social/socialist ecofeminism. Interpretations of ecofeminism and how it might be applied to social thought include ecofeminist art, social justice and political philosophy, religion, economics, contemporary feminism, and literature.
Kay Ulanday Barrett is a published poet, performer, educator, food writer, cultural strategist, and transgender, gender non-conforming, and disability advocate based in New York and New Jersey, whose work has been showcased nationally and internationally. Their second book, More Than Organs received a 2021 Stonewall Honor Book Award by the American Library Association and is a 2021 Lambda Literary Award for Transgender Literature Finalist. They are a 2020 James Baldwin Fellowship recipient, three-time Pushcart Prize Nominee, and two-time Best of the Net Nominee. Barrett's writing and performance centers on the experience of queer, transgender, people of color, mixed race people, Asian, and Filipino/a/x community. The focus of their artistic work navigates multiple systems of oppression in the context of the U.S.
Southerners on New Ground is a social justice, advocacy and capacity building organization serving and supporting queer and lesbian, gay, bisexual and transgender (LGBT) people, uniquely focusing its work in the southern United States through community organizing for economic and racial justice. The organization is unique, as most of the places it does work in do not have an LGBTQ organization like it.
Leroy F. Moore Jr. is an African American writer, poet, and community activist. He was born November 2, 1967, in New York City. He is one of the founders of Krip Hop.
Sins Invalid is a disability justice-based performance project that focuses on artists with disabilities, artists of color, and LGBTQ / gender-variant artists. Led by disabled people of color, Sins Invalid's performance work explores the themes of sexuality, embodiment and the disabled body. In addition to multidisciplinary performances by people with disabilities, Sins Invalid organizes visual art exhibitions, readings, and a bi-monthly educational video series. Sins Invalid collaborates with other movement-building projects and provides disability justice training.
Lydia X. Z. Brown is an American autistic disability rights activist, writer, attorney, and public speaker who was honored by the White House in 2013. They are the chairperson of the American Bar Association Civil Rights & Social Justice Disability Rights Committee. They are also Policy Counsel for Privacy & Data at the Center for Democracy & Technology, and Director of Policy, Advocacy, & External Affairs at the Autistic Women & Nonbinary Network. In 2022, they unsuccessfully ran for the Maryland House of Delegates in District 7A, losing to state delegate Kathy Szeliga and delegate-elect Ryan Nawrocki.
Crip, slang for cripple, is a term in the process of being reclaimed by disabled people. Wright State University suggests that the current community definition of crip includes people who experience any form of disability, such as one or more impairments with physical, mental, learning, and sensory, though the term primarily targets physical and mobility impairment. People might identify as a crip for many reasons. Some of these reasons are to show pride, to talk about disability rights, or avoid ranking types of disability.
Alexandre Baril, is a Canadian writer and since 2018 an associate professor at the School of Social Work, at the University of Ottawa. He researches sexual and gender diversity, bodily diversity, and linguistic diversity. He considers his work to be intersectional, involving queer, trans, feminist and gender studies, as well as sociology of the body, health, social movements, and of critical suicidology.
Mia Mingus is an American writer, educator, and community organizer who focuses on issues of disability justice. She is known for coining the term "access intimacy". She advocates for disability studies and activism to centralize the experiences of marginalized people within disability organizing. She is a prison abolitionist, and she advocates for transformative justice in her work against child sexual abuse.
Patricia Berne is an author, artist, film director, disability justice organizer and co-founder of Sins Invalid, a disability justice-based performance project that incubates artists with disabilities, centralizing artists of color and LGBTQ/gender-variant artists. They are a founder member of the disability justice movement.
Stacey Park Milbern was a Korean-American disability justice activist. She helped create the Disability Justice movement and advocated for fair treatment of disabled people.
Eli Clare is an American writer, activist, educator, and speaker. His work focuses on queer, transgender, and disability issues. Clare was one of the first scholars to popularize the bodymind concept.
In disability studies, the term bodymind refers to the intricate and often inseparable relationship between the body and the mind, and how these two units might act as one. Disability scholars use the term bodymind to emphasize the interdependence and inseparability of the body and mind.
Disability and LGBTQ+ identity can both play significant roles in the life of an individual. Disability and sexuality can often intersect, for many people being both disabled and LGBTQ+ can result in double marginalization. The two identities, either by themselves or in tandem, can complicate questions of discrimination and can effect access to resources such as accommodations, support groups, and elder care.
Models of disability are analytic tools in disability studies used to articulate different ways disability is conceptualized by individuals and society broadly. Disability models are useful for understanding disagreements over disability policy, teaching people about ableism, providing disability-responsive health care, and articulating the life experiences of disabled people.