The Eating Disorders Coalition (EDC) is a Washington, D.C. advocacy organization working to advance the federal recognition of eating disorders as a public health priority. The EDC was founded in 2000 and is incorporated in Massachusetts. The full legal name of the organization is the Eating Disorders Coalition for Research, Policy & Action.
The EDC works with the U.S. Congress, with the executive branch of government, with national nonprofit organizations, and with the media to focus attention on the need for better treatment, research, and prevention of anorexia nervosa (AN), bulimia nervosa (BN), binge eating disorder (BED), and eating disorders not otherwise specified (ED-NOS).
The United States spends relatively little money on eating disorder-specific programs and research. For example, in 2006 the U.S. spent $21 million on eating disorders research for a population of 5-10 million affected individuals.[citation needed] By comparison, in 2006 over $300 million was spent on schizophrenia, which impacts approximately the same number of people as eating disorders.[citation needed]
In 2008, the Eating Disorders Coalition provided extensive support for a national public awareness campaign organized by Congressman Patrick Kennedy of Rhode Island and Congressman Jim Ramstad of Minnesota. The campaign included town hall rallies across the country in which people with eating disorders or their surviving family members spoke about barriers to treatment and called for legislation to expand access to care. The EDC also identified speakers for a series of congressional hearings organized by Rep. Kennedy. Congress passed the Mental Health Parity Act later that year.
An eating disorder is a mental disorder defined by abnormal eating behaviors that negatively affect a person's physical or mental health. Only one eating disorder can be diagnosed at a given time. Types of eating disorders include binge eating disorder, where the patient eats a large amount in a short period of time; anorexia nervosa, where the person has an intense fear of gaining weight and restricts food or overexercises to manage this fear; bulimia nervosa, where individuals eat a large quantity (binging) then try to rid themselves of the food (purging); pica, where the patient eats non-food items; rumination syndrome, where the patient regurgitates undigested or minimally digested food; avoidant/restrictive food intake disorder (ARFID), where people have a reduced or selective food intake due to some psychological reasons ; and a group of other specified feeding or eating disorders. Anxiety disorders, depression and substance abuse are common among people with eating disorders. These disorders do not include obesity. People often experience comorbidity between an eating disorder and OCD. It is estimated 20-60% of patients with an ED have a history of OCD.
Bulimia nervosa, also known as simply bulimia, is an eating disorder characterized by binge eating followed by purging or fasting, and excessive concern with body shape and weight. The aim of this activity is to expel the body of calories eaten from the binging phase of the process. Binge eating refers to eating a large amount of food in a short amount of time. Purging refers to the attempts to get rid of the food consumed. This may be done by vomiting or taking laxatives. Other efforts to lose weight may include the use of diuretics, stimulants, water fasting, or excessive exercise. Most people with bulimia are at a normal weight. The forcing of vomiting may result in thickened skin on the knuckles, breakdown of the teeth and effects on metabolic rate and caloric intake which cause thyroid dysfunction. Bulimia is frequently associated with other mental disorders such as depression, anxiety, borderline personality disorder, bipolar disorder and problems with drugs or alcohol. There is also a higher risk of suicide and self-harm. Clinical studies show a relationship between bulimia and vulnerable narcissism as caused by childhood 'parental invalidation' leading to a later need for social validation.
The National Institute of Neurological Disorders and Stroke (NINDS) is a part of the U.S. National Institutes of Health (NIH). It conducts and funds research on brain and nervous system disorders and has a budget of just over US$2.03 billion. The mission of NINDS is "to reduce the burden of neurological disease—a burden borne by every age group, every segment of society, and people all over the world". NINDS has established two major branches for research: an extramural branch that funds studies outside the NIH, and an intramural branch that funds research inside the NIH. Most of NINDS' budget goes to fund extramural research. NINDS' basic science research focuses on studies of the fundamental biology of the brain and nervous system, genetics, neurodegeneration, learning and memory, motor control, brain repair, and synapses. NINDS also funds clinical research related to diseases and disorders of the brain and nervous system, e.g. AIDS, Alzheimer's disease, epilepsy, muscular dystrophy, multiple sclerosis, Parkinson's disease, spinal cord injury, stroke, and traumatic brain injury.
Binge eating disorder (BED) is an eating disorder characterized by frequent and recurrent binge eating episodes with associated negative psychological and social problems, but without the compensatory behaviors common to bulimia nervosa, OSFED, or the binge-purge subtype of anorexia nervosa.
Patrick Joseph Kennedy II is an American politician and mental health advocate. From 1995 to 2011, he served as a Democratic member of the United States House of Representatives from Rhode Island's 1st congressional district. He is a former member of the President's Commission on Combatting Drug Addiction and the Opioid Crisis, and co-founder of One Mind.
Beat is the UK's leading charity supporting those affected by eating disorders and campaigning on their behalf. Founded in 1989 as the Eating Disorders Association, it celebrated its 30th anniversary in 2019.
The New Freedom Commission on Mental Health was established by U.S. President George W. Bush through Executive Order 13263 on April 29, 2002 to conduct a comprehensive study of the U.S. mental health service delivery system and make recommendations based on its findings. The commission has been touted as part of his commitment to eliminate inequality for Americans with disabilities.
The Mental Health Parity Act (MHPA) is legislation signed into United States law on September 26, 1996 that requires annual or lifetime dollar limits on mental health benefits to be no lower than any such dollar limits for medical and surgical benefits offered by a group health plan or health insurance issuer offering coverage in connection with a group health plan. Prior to MHPA and similar legislation, insurers were not required to cover mental health care and so access to treatment was limited, underscoring the importance of the act.
Paul David Tonko is an American politician serving as the U.S. representative from New York's 20th congressional district. A staunch progressive, he is a member of the Democratic Party. Following the 2020 redistricting cycle and effective for the 118th Congress, the 20th district will include all of Albany, Saratoga, and Schenectady counties, and part of Rensselaer County.
College health is a desired outcome created by a constellation of services, programs and policies directed at advancing the health and wellbeing of individuals enrolled in an institution of higher education, while also addressing and improving both population health and community health. Many colleges and universities worldwide apply both health promotion and health care as processes to achieve key performance indicators in college health. The variety of healthcare services provided by any one institution range from first aid stations employing a single nurse to large, accredited, multi-specialty ambulatory healthcare clinics with hundreds of employees. These services, programs and policies require a multidisciplinary team, the healthcare services alone include physicians, physician assistants, administrators, nurses, nurse practitioners, mental health professionals, health educators, athletic trainers, dietitians and nutritionists, and pharmacists. Some of the healthcare services extend to include massage therapists and other holistic health care professionals. While currently changing, the vast majority of college health services are set up as cost centers or service units rather than as parts of academic departments or health care delivery enterprises.
The American Sexual Health Association (ASHA), formally known as the American Social Hygiene Association and the American Social Health Association, is an American nonprofit organization established in 1914, that cites a mission to improve the health of individuals, families, and communities, with an emphasis on sexual health, as well as a focus on preventing sexually transmitted infections and their harmful consequences. ASHA uses tools such as education, communication, advocacy and policy analysis activities with the intent to heighten public, patient, provider, policymaker and media awareness of STI prevention, screening, diagnosis and treatment strategies.
The National Eating Disorders Association (NEDA) is an American non-profit organization devoted to preventing eating disorders, providing treatment referrals, and increasing the education and understanding of eating disorders, weight, and body image. The National Eating Disorders Association organizes and sponsors National Eating Disorders Week. Also known as NEDAwareness Week, it takes place during the last week of February, and is "a collective effort of primarily volunteers, including eating disorder professionals, health care providers, students, educators, social workers, and individuals committed to raising awareness of the dangers surrounding eating disorders and the need for early intervention and treatment."
The National Association of Anorexia Nervosa and Associated Disorders (ANAD) is the oldest organization aimed at fighting eating disorders in the United States. ANAD assists people struggling with eating disorders such as anorexia nervosa and bulimia nervosa and also provides resources for families, schools and the eating disorder community. Headquartered in Naperville, Illinois, ANAD is a non-profit organization working in the areas of support, awareness, advocacy, referral, education, and prevention.
Families Empowered and Supporting Treatment of Eating Disorders (F.E.A.S.T.) is an international organization created by and for families who are helping loved ones recover from eating disorders. F.E.A.S.T. promotes evidence-based treatment to reduce the suffering associated with eating disorders such as anorexia nervosa (A.N.), bulimia nervosa (B.N.), and eating disorders not otherwise specified (E.D.N.O.S.). The organization provides information, mutual support, and advocates for research and education on behalf of families.
Anorexia nervosa, often referred to simply as anorexia, is an eating disorder characterized by low weight, food restriction, body image disturbance, fear of gaining weight, and an overpowering desire to be thin. Anorexia is a term of Greek origin: an- and orexis, translating literally to "a loss of appetite"; the adjective nervosa indicating the functional and non-organic nature of the disorder. Anorexia nervosa was coined by Gull in 1873 but, despite literal translation, the feeling of hunger is frequently present and the pathological control of this instinct is a source of satisfaction for the patients.
Gürze Books, LLC is a Carlsbad, California based publishing company specializing on books addressing eating disorders and body image. It has been an imprint of Turner Publishing Company since 2018.
The Anna Westin Act of 2015, is a proposed bill which is aimed at training school officials and healthcare professionals on how to identify those with eating disorders and on how to intervene. 30 million Americans suffer from eating disorders. Eating disorders have the highest mortality rate out of any mental illness and affects women 2.5 times more than men. Additionally, eating disorders research to improve identification and treatment is limited. Eating disorder research receives some of the lowest amounts of research funding compared to all other diseases at $30 research dollars per person affected versus $188 research dollars for Autism and $682 research dollars for Breast Cancer.
The 21st Century Cures Act is a United States law enacted by the 114th United States Congress in December 2016 and then signed into law on December 13, 2016. It authorized $6.3 billion in funding, mostly for the National Institutes of Health. The act was supported especially by large pharmaceutical manufacturers and was opposed especially by some consumer organizations.
Project HEAL is a nonprofit organization in the U.S. focused on equitable treatment access for eating disorders. Project HEAL is the only major direct service nonprofit in the U.S. focused on equitable healthcare access for people with eating disorders. The organization's mission is to break down systemic, healthcare, and financial barriers to eating disorder treatment. The mission is delivered through four core Treatment Support programs: Insurance Navigation, Treatment Placement, Cash Assistance, and Clinical Assessment. Project HEAL is also active in research, education, and advocacy at the national level. The organization's vision is that everyone with an eating disorder has the resources and opportunities they need to recover.
Paul E. Garfinkel is a Canadian psychiatrist, researcher and an academic leader. He is a Professor at the University of Toronto and a Staff Psychiatrist at Centre for Addiction and Mental Health (CAMH).
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