Cerebral palsy (CP) is a group of movement disorders that appear in early childhood. Signs and symptoms vary among people and over time, but include poor coordination, stiff muscles, weak muscles, and tremors. There may be problems with sensation, vision, hearing, and speaking. Often, babies with cerebral palsy do not roll over, sit, crawl or walk as early as other children of their age. Other symptoms include seizures and problems with thinking or reasoning, each of which occur in about one-third of people with CP. While symptoms may get more noticeable over the first few years of life, underlying problems do not worsen over time.
The International Classification of Functioning, Disability and Health (ICF) is a classification of the health components of functioning and disability.
Health care in Ireland is delivered through public and private healthcare. The public health care system is governed by the Health Act 2004, which established a new body to be responsible for providing health and personal social services to everyone living in Ireland – the Health Service Executive. The new national health service came into being officially on 1 January 2005; however the new structures are currently in the process of being established as the reform programme continues. In addition to the public-sector, there is also a large private healthcare market.
Shriners Children's is a network of non-profit medical facilities across North America. Children with orthopaedic conditions, burns, spinal cord injuries, and cleft lip and palate are eligible for care and receive all services in a family-centered environment, regardless of the patients' ability to pay. Care for children is usually provided until age 18, although in some cases, it may be extended to age 21.
The Lanterman Developmental Disabilities Act, also known as the Lanterman Act, is a California law that was initially proposed by Assembly member Frank D. Lanterman in 1973 and passed in 1977 and gives people with developmental disabilities the right to services and supports that enable them to live a more independent and normal life.
Holland Bloorview Kids Rehabilitation Hospital is Canada's largest children's rehabilitation hospital. It is located in Toronto, Ontario, Canada. It was founded in 1899, by a group of community-minded women who met in Toronto to discuss the creation of a "Home for Incurable Children".
A group home, congregate living facility, care home, adult family home, etc., is a structured and supervised residence model that provides assisted living and medical care for those with complex health needs. Traditionally, the model has been used for children or young people who cannot live with their families or afford their own homes, people with chronic disabilities who may be adults or seniors, or people with dementia and related aged illnesses. Typically, there are no more than six residents, and there is at least one trained caregiver there 24 hours a day. In some early "model programs", a house manager, night manager, weekend activity coordinator, and four part-time skill teachers were reported. Originally, the term group home referred to homes of 8 to 16 individuals, which was a state-mandated size during deinstitutionalization. Residential nursing facilities, also included in this article, may be as large as 100 individuals in 2015, which is no longer the case in fields such as intellectual and developmental disabilities. Depending on the severity of the condition requiring one to need to live in a group home, some clients are able to attend day programs and most clients are able to live normal lifestyles.
Conductive Education (CE) is an educational system, based on the work of Hungarian Professor András Pető, that has been specifically developed for children and adults who have motor disorders of neurological origin such as cerebral palsy.
The Council on Quality and Leadership offers accreditation, training, certification, research, and consultation services to agencies.
United Cerebral Palsy (UCP) is an international nonprofit charitable organization consisting of a network of affiliates. UCP is a leading service provider and advocate for adults and children with disabilities. As one of the largest health nonprofits in the United States, the UCP mission is to advance the independence, productivity and full citizenship of people with disabilities through an affiliate network.
ADAPT – Able Disabled All People Together is an Indian non-profit and non-governmental organization, working to help people with neuro-muscular and developmental disabilities. It was started on 2 October 1972 by Mithu Alur, to provide education and treatment services for the "spastics".
Colorado Amendment 51 was a citizen's initiative proposed by Wendy B. Rosanova of Centennial, CO, and Marijo Rymer, executive director of The Arc of Colorado. It was turned down by 62.4% of the voters. If it had passed, Amendment 51 would have amended the Colorado statutes to:
Over time, the approach to cerebral palsy management has shifted away from narrow attempts to fix individual physical problems – such as spasticity in a particular limb – to making such treatments part of a larger goal of maximizing the person's independence and community engagement. Much of childhood therapy is aimed at improving gait and walking. Approximately 60% of people with CP are able to walk independently or with aids at adulthood. However, the evidence base for the effectiveness of intervention programs reflecting the philosophy of independence has not yet caught up: effective interventions for body structures and functions have a strong evidence base, but evidence is lacking for effective interventions targeted toward participation, environment, or personal factors. There is also no good evidence to show that an intervention that is effective at the body-specific level will result in an improvement at the activity level, or vice versa. Although such cross-over benefit might happen, not enough high-quality studies have been done to demonstrate it.
Athetoid cerebral palsy, or dyskinetic cerebral palsy, is a type of cerebral palsy primarily associated with damage, like other forms of CP, to the basal ganglia in the form of lesions that occur during brain development due to bilirubin encephalopathy and hypoxic–ischemic brain injury. Unlike spastic or ataxic cerebral palsies, ADCP is characterized by both hypertonia and hypotonia, due to the affected individual's inability to control muscle tone. Clinical diagnosis of ADCP typically occurs within 18 months of birth and is primarily based upon motor function and neuroimaging techniques. While there are no cures for ADCP, some drug therapies as well as speech, occupational therapy, and physical therapy have shown capacity for treating the symptoms.
Cerebral Palsy Alliance is an Australian nonprofit organisation helping babies, children, teenagers and adults living with cerebral palsy and other neurological and physical disabilities. Its therapy teams work with individuals and families to maximise their participation in the community.
Family support is the support of families with a member with a disability, which may include a child, an adult, or even the parent in the family. In the United States, family support includes "unpaid" or "informal" support by neighbors, families, and friends, "paid services" through specialist agencies providing an array of services termed "family support services", school or parent services for special needs such as respite care, specialized child care or peer companions, or cash subsidies, tax deductions or other financial subsidies. Family support has been extended to different population groups in the US and worldwide. Family support services are currently a "community services and funding" stream in New York and the US which has had variable "application" based on disability groups, administrating agencies, and even, regulatory and legislative intent.
Emma Pendleton Bradley Hospital, known as Bradley Hospital, is the nation's first psychiatric hospital devoted exclusively to children and adolescents.
The Self-Help Group for Cerebral Palsy (SGCP) is a non-governmental and non-profit organization in Nepal dedicated for helping and educating children and adults with cerebral palsy. Cerebral palsy (CP) is a neurological disorder that is caused during childhood which permanently affects body movement and muscle coordination. The organization has one rehabilitation center established in 2005, situated in Dhapakel, Lalitpur that consists of a team of medical professionals, trained teachers and social workers.
Disability in Kenya "results from the interaction between individuals with a health condition with personal and environmental factors including negative attitudes, inaccessible transport and public buildings, and limited social support. A person's environment has a huge effect on the experience and extent of disability." Having a disability can limit a citizen's access to basic resources, basic human rights, and social, political and economic participation in Kenyan society. There are three forms of limitation of access linked to disability: impairment, disability, and handicap. An impairment is "the loss or abnormality of psychological, physiological or anatomical structure or function." A disability results from an impairment as "the restriction or lack of ability to perform an activity in the manner considered normal for a human being", and the requirement for accommodation. Finally, a handicap "results from a disability, and limits or prevents the fulfilment of a role that is normal for that individual."
