The Union for International Cancer Control or UICC is a non-governmental organisation with some 1,180 member organisations in more than 170 countries.
The European Organisation for Research and Treatment of Cancer (EORTC) is a unique pan-European non-profit clinical cancer research organisation established in 1962 operating as an international association under Belgium law. It develops, conducts, coordinates and stimulates high-quality translational and clinical trial research to improve the survival and quality of life of cancer patients. This is achieved through the development of new drugs and other innovative approaches, and the testing of more effective therapeutic strategies, using currently approved drugs, surgery and/or radiotherapy in clinical trials conducted under the auspices of a vast network of clinical cancer researchers supported by 220 staff members based in Brussels. The EORTC has the expertise to conduct large and complex trials especially specific populations such as the older patient and rare tumours.
Health advocacy or health activism encompasses direct service to the individual or family as well as activities that promote health and access to health care in communities and the larger public. Advocates support and promote the rights of the patient in the health care arena, help build capacity to improve community health and enhance health policy initiatives focused on available, safe and quality care. Health advocates are best suited to address the challenge of patient-centered care in our complex healthcare system. The Institute of Medicine (IOM) defines patient-centered care as: Health care that establishes a partnership among practitioners, patients, and their families to ensure that decisions respect patients’ wants, needs, and preferences and that patients have the education and support they need to make decisions and participate in their own care. Patient-centered care is also one of the overreaching goals of health advocacy, in addition to safer medical systems, and greater patient involvement in healthcare delivery and design.
Patient advocacy is a process in health care concerned with advocacy for patients, survivors, and caregivers. The patient advocate may be an individual or an organization, concerned with healthcare standards or with one specific group of disorders. The terms patient advocate and patient advocacy can refer both to individual advocates providing services that organizations also provide, and to organizations whose functions extend to individual patients. Some patient advocates are independent and some work for the organizations that are directly responsible for the patient's care.
The Federation of European Cancer Societies (FECS), founded in 1981, was an international non-profit association that co-ordinated collaboration between European societies active in different fields of cancer research, prevention and treatment with the ultimate goal of providing the best possible treatment and care for all European cancer patients. After consulting many professionals in the oncology community, FECS was transformed into the European Cancer Organisation in 2007.
Alzheimer’s Disease International (ADI) is a not-for-profit, international federation of Alzheimer and dementia associations from around the world. The organization is in official relations with the World Health Organization (WHO). ADI advocates for people living with Alzheimer’s disease and all other types of dementia.
The Society for Immunotherapy of Cancer (SITC), previously known as the International Society for Biological Therapy of Cancer (iSBTc), is a professional society of scientists, academicians, researchers, clinicians, government representatives, and industry leaders from around the world dedicated to improving outcomes in patients with cancer by advancing the science and application of cancer immunotherapy. Currently, SITC has more than 2,400 members, representing 22 medical specialties from 42 countries around the world, who are engaged in the research and treatment of cancer.
Oncology is a branch of medicine that deals with the study, treatment, diagnosis and prevention of cancer. A medical professional who practices oncology is an oncologist. The name's etymological origin is the Greek word ὄγκος (ónkos), meaning "tumor", "volume" or "mass". Oncology is concerned with:
The Community Oncology Alliance (COA) is a non-profit organization in the United States that advocates for patients with cancer and their providers in the independent, community oncology setting. There are more than 6,500 providers at 950 community cancer clinics that treat the majority of Americans with cancer.
The Oncology Nursing Society (ONS) is a nonprofit membership organization of more than 35,000 members committed to promoting excellence in oncology nursing and the transformation of cancer care.
Michael John Peckham was a British oncologist and artist. As a cancer physician he is best known for his contribution to the treatment of testicular cancer. His paintings were first exhibited in 1962 and he showed in numerous mixed and solo exhibitions.
The Cancer Support Community (CSC) focuses on three areas of support: direct service delivery, research, and advocacy.
Patrick Schöffski is a German medical doctor specializing in internal medicine, hematology and medical oncology.
The Binaytara Foundation (BTF) was established in 2007 by Dr. Binay Shah and wife Tara Shah with the goal of promoting health and education in underprivileged societies. The BTF is a Washington State nonprofit organization exempt from taxation pursuant to Section 501(c)(3) of the Internal Revenue Code. BTF has founded multiple programs in underdeveloped and developing countries to improve access to healthcare. Recent accomplishments include building a 25-bed cancer hospital in Nepal in 2018 and breaking ground on their new 200-bed facility in 2022.
Pramod Kumar Julka, is an Indian cancer specialist (oncologist), medical educationist and writer, known for performing the first peripheral blood stem cell transplant following high dose chemotherapy in Metastatic Breast Cancer in India. He was honoured by the Government of India, in 2013, by bestowing on him the Padma Shri, the fourth highest civilian award, for his contributions to the fields of medicine and medical education. The American Society of Clinical Oncology (ASCO) has awarded him by bestowing on him the honorary membership.
Europa Donna – The European Breast Cancer Coalition is an independent non-profit organisation whose members are affiliated groups from 47 countries throughout Europe. The organisation was set up by a group of women from various European countries in 1994. Its head office is in Milan, Italy.
ISPOR—The Professional Society for Health Economics and Outcomes Research, better known as ISPOR, is a nonprofit global professional organization in health economics and outcomes research. It was founded in 1995 as an international multidisciplinary professional organization that advances the policy, science, and practice of pharmacoeconomics and outcomes research. The society's mission is to promote health economics and outcomes research to improve decision making for health globally.
The Association for Molecular Pathology is a professional association of individuals serving patients through molecular diagnostics testing. Founded in 1995, the Association has more than 2,800 members in over 50 countries.
The European Liver Patients' Association (ELPA) is an international non-governmental organisation best known for its role in patient advocacy concerning liver diseases. ELPA is an umbrella organisation representing more than 30 members stemming from 25 European and non-European countries.
Transhealth, Inc. is an American independent and comprehensive trans healthcare center that services trans and gender-diverse individuals and families. Transhealth was founded in Western Massachusetts in 2021 to provide clinical care, research, advocacy, and education related to gender-affirming healthcare.
