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Evan Roden is a campaigner for legislative changes in organ donation laws in New York, advocating for mandatory organ-donation education, increased benefits for living organ donors, and implementing a presumed consent system. Roden founded the organization Youth Coalition for Organ Donation (YCOD) in 2017. [1]
While in high school, Evan Roden contributed to drafting and advocating for legislation promoting a presumed consent system of organ donation, which was introduced in 2019 by Assembly member David DiPietro. [2] Roden has addressed potential concerns about informed consent in the organ-donation process. [3]
In 2017, Roden co-founded the Youth Coalition for Organ Donation (YCOD), which campaigned for an “opt-out” organ donation system in New York that would be similar to those in several European nations and Nova Scotia, Canada. [4] [5] In 2019, YCOD presented an initial proposal, which did not become law. In 2022, YCOD, in partnership with Waitlist Zero, achieved legislative success with the Living Donor Support Law in New York State. [6]
Roden also campaigns using platforms to raise awareness about the importance of organ donation and encourages youth participation in political advocacy. His efforts have been locally and nationally recognized. [7] [8] In 2021, Tulane University invited Roden to present at their TEDx program, speaking on youth political advocacy and his own experience with YCOD. [9]
Roden received the Real Heroes Award from the American Red Cross in 2022, [10] in partnership with former Erie County Executive Joel Giambra, who had recently received a donor from a constituent in the community. [11]
In 2023, Loyola University of New Orleans invited Roden to join a team of students in submitting a redesign of the neighborhood New Orleans East and placed among winners. The Mayor of New Orleans invited Roden to present the group's design plan. [12]
Roden joined the Organ Donor Awareness Corporation's series of fireside chats in 2023. [13]
Organ donation is the process when a person authorizes an organ of their own to be removed and transplanted to another person, legally, either by consent while the donor is alive, through a legal authorization for deceased donation made prior to death, or for deceased donations through the authorization by the legal next of kin.
Organ transplantation is a medical procedure in which an organ is removed from one body and placed in the body of a recipient, to replace a damaged or missing organ. The donor and recipient may be at the same location, or organs may be transported from a donor site to another location. Organs and/or tissues that are transplanted within the same person's body are called autografts. Transplants that are recently performed between two subjects of the same species are called allografts. Allografts can either be from a living or cadaveric source.
The Uniform Anatomical Gift Act (UAGA), and its periodic revisions, is one of the Uniform Acts drafted by the National Conference of Commissioners on Uniform State Laws (NCCUSL), also known as the Uniform Law Commission (ULC), in the United States with the intention of harmonizing state laws between the states.
Kidney transplant or renal transplant is the organ transplant of a kidney into a patient with end-stage kidney disease (ESRD). Kidney transplant is typically classified as deceased-donor or living-donor transplantation depending on the source of the donor organ. Living-donor kidney transplants are further characterized as genetically related (living-related) or non-related (living-unrelated) transplants, depending on whether a biological relationship exists between the donor and recipient. The first successful kidney transplant was performed in 1954 by a team including Joseph Murray, the recipient’s surgeon, and Hartwell Harrison, surgeon for the donor. Murray was awarded a Nobel Prize in Physiology or Medicine in 1990 for this and other work. In 2018, an estimated 95,479 kidney transplants were performed worldwide, 36% of which came from living donors.
The Australian Organ Donor Register (AODR) is a government register, recording individuals who have agreed to donate organs and tissues in the event of their death. The register is operated by the Organ and Tissue Authority (OTA) and Services Australia through Medicare.
Organ transplantation in China has taken place since the 1960s, and is one of the largest organ transplant programmes in the world, peaking at over 13,000 liver and kidney transplants a year in 2004.
Organ procurement is a surgical procedure that removes organs or tissues for reuse, typically for organ transplantation.
Organ trade is the trading of human organs, tissues, or other body products, usually for transplantation. According to the World Health Organization (WHO), organ trade is a commercial transplantation where there is a profit, or transplantations that occur outside of national medical systems. There is a global need or demand for healthy body parts for transplantation, which exceeds the numbers available.
Many countries have laws, regulations, or recommendations that effectively prohibit donations of blood or tissue for organ and corneal transplants from men who have sex with men (MSM), a classification irrespective of their sexual activities with same-sex partners and of whether they identify themselves as bisexual or gay. Temporary restrictions are sometimes called "deferrals", since blood donors who are found ineligible may be found eligible at a later date. However, many deferrals are indefinite meaning that donations are not accepted at any point in the future, constituting a de facto ban. Even men who have monogamous relations with their same-sex partners are found ineligible.
In December 2006, The UK Government set up the Organ Donation Taskforce to identify barriers to organ donation and recommend actions needed to increase organ donation and procurement within the current legal framework.
Hélène Campbell is a Canadian activist who has raised awareness for organ donation, largely through documenting her own need for new lungs via social media and by attracting support from celebrities including Justin Bieber and Ellen DeGeneres.
The Human Transplantation (Wales) Act 2013 is an act of the National Assembly for Wales, passed in July 2013. It permits an opt-out system of organ donation, known as presumed consent, or deemed consent. The act allows hospitals to presume that people aged 18 or over, who have been resident in Wales for over 12 months, want to donate their organs at their death, unless they have objected specifically. The act varies the Law of England and Wales in Wales, which relied on an opt-in system; whereby only those who have signed the NHS organ donation register, or whose families agreed, were considered to have consented to be organ donors.
MOHAN Foundation is a not-for-profit, registered non-government charity organisation in India that works in the field of deceased organ donation and transplantation. MOHAN is an acronym for Multi Organ Harvesting Aid Network. It has offices in Chennai, Hyderabad, Bengaluru, Delhi, Mumbai, Chandigarh, Nagpur, Jaipur and information centers at Kerala and Imphal.
Organ donation is when a person gives their organs after they die to someone in need of new organs. Transplantation is the process of transplanting the organs donated into another person. This process extends the life expectancy of a person suffering from organ failure. The number of patients requiring organ transplants outweighs the number of donor organs available.
The current law in Ireland requires a potential donor to opt in to becoming an organ donor. However, it is ultimately up to their family to make the decision whether or not the person can donate their organs after they die.
The Organ Donation Act 2019 is an Act of the Parliament of the United Kingdom. The Act changed the law regarding organ donation so that unless someone expressly opted out, they would be deemed as having given consent. It was a private member's bill introduced by Geoffrey Robinson and Lord Hunt of Kings Heath.
Organ transplantation in the Indian state of Tamil Nadu is regulated by India's Transplantation of Human Organs Act, 1994 and is facilitated by the Transplant Authority of Tamil Nadu (TRANSTAN) of the Government of Tamil Nadu and several NGOs. Tamil Nadu ranks first in India in deceased organ donation rate at 1.8 per million population, which is seven times higher than the national average.
Organ donation in India is regulated by the Transplantation of Human Organs and Tissues Act, 1994. The law allows both deceased and living donors to donate their organs. It also identifies brain death as a form of death. The National Organ and Tissue Transplant Organisation (NOTTO) functions as the apex body for activities of relating to procurement, allotment and distribution of organs in the country.
The Youth Coalition for Organ Donation (YCOD) is a multinational nonpartisan NY-based 501(c)(4) lobbying group formed with the goal of increasing the number of organ donations in the US. The YCOD promotes organ donation through various online campaigns, including social media messaging, news appearances, and public lobbying campaigns.
Elizabeth Despard Ward was a British healthcare campaigner known for pioneering organ donor cards and founding the charity Kidney Care UK. She helped raise £70 million for hospital renal units, including at Great Ormond Street Hospital. Ward also advocated for the UK's introduction of opt-out consent for organ donation.