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German Center for Pediatric and Adolescent Rheumatology | |
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Geography | |
Location | Bavaria, DE |
Coordinates | 47°29′16″N11°06′10″E / 47.487730°N 11.102670°E |
Organisation | |
Funding | Public hospital |
Type | Specialist |
Affiliated university | Ludwig Maximilian University of Munich |
History | |
Opened | 1952 |
Links | |
Website | www |
The German Center for Pediatric and Adolescent Rheumatology in Garmisch-Partenkirchen (also called the 'Kinderrheumaklinik', i.e. the Pediatric Rheumatology Hospital) is the largest specialized center for the treatment of children and adolescents with rheumatic diseases and chronic pain syndromes in Europe. [1]
The Pediatric Rheumatology Hospital [2] [3] evolved out of a pediatric facility for treating tuberculosis. Dr. Elizabeth Stoeber, the first chief of medicine, was able to use funds from the Marshall Plan to convert the facility to a full pediatric hospital. Initially, mainly patients with rheumatic fever were treated. However, by the end of the decade focus shifted towards patients with Still's disease and juvenile idiopathic arthritis.
With increasing availability of steroids and non-steroidal antirheumatic drugs as well as the addition of facilities for physiotherapy, the 1960s saw the development of a program for the therapy of the often severely impaired and handicapped children. In addition, hospital schooling starting in 1952 was developed into a full hospital school by 1975. Donation from various sources, especially the German branch of the Lions Club allowed significant expansion of the facilities. [4] By 1971, a new hospital building was inaugurated, including a gymnasium and exercise pool. [5]
The 1980s saw international recognition of pediatric rheumatology as a subspecialty with increasing competition from outpatient clinics in university hospitals. The Pediatric Rheumatology Hospital continued with a focus on clinical work and physiotherapy. [6] Modifications to the building created more space for physiotherapy, occupational therapy and balneotherapy. At the same time, social support was improved by obtaining a house nearby providing lodging and other facilities to families of inpatients.
In 2004, the general hospital wing was moved to the newly constructed Garmisch General Hospital. The Pediatric Rheumatology Hospital, renamed the 'German Center for Pediatric and Adolescent Rheumatology', was now the only facility in Europe exclusively dedicated to treating rheumatic diseases in childhood. Starting in 2002, the hospital building was renovated in several stages. As the Inner Mission sold the hospital in 2010, the Pediatric Rheumatology Hospital was taken over by the chief of medicine, Professor J.-P. Haas with the help of private investors. [7]
The Center for Pediatric and Adolescent Rheumatology treats children and adolescents with rheumatic diseases including juvenile idiopathic arthritis, but also systemic lupus erythematosus, juvenile dermatomyositis, scleroderma and other connective tissue disorders. Patients, originating mostly from Germany, but also a significant number of international patients, are mainly treated as inpatients. A smaller part of patients is also treated on an outpatient basis. Children and adolescents with chronic pain syndromes are treated in a specialized ward setting. Also integrated into the hospital are outpatient facilities for pediatric cardiology and developmentally delayed children.
The Pediatric Rheumatology Hospital uses a team-based approach with a multidisciplinary treatment concept. [8] The basis of this concept is to treat the child or adolescent as individual, using five 'columns': medical therapy, nursing therapy, physical therapy, psychosocial and educational therapy and the hospital school. Using these columns, an individual treatment concept is tailored to the needs of the patient during his stay.
Arthritis is a term often used to mean any disorder that affects joints. Symptoms generally include joint pain and stiffness. Other symptoms may include redness, warmth, swelling, and decreased range of motion of the affected joints. In some types of arthritis, other organs are also affected. Onset can be gradual or sudden.
Rheumatology is a branch of medicine devoted to the diagnosis and management of disorders whose common feature is inflammation in the bones, muscles, joints, and internal organs. Rheumatology covers more than 100 different complex diseases, collectively known as rheumatic diseases, which includes many forms of arthritis as well as lupus and Sjögren's syndrome. Doctors who have undergone formal training in rheumatology are called rheumatologists.
Ankylosing spondylitis (AS) is a type of arthritis characterized by long-term inflammation of the joints of the spine, typically where the spine joins the pelvis. With AS, eye and bowel problems—as well as back pain—may occur. Joint mobility in the affected areas sometimes worsens over time. Ankylosing spondylitis is believed to involve a combination of genetic and environmental factors. More than 90% of people affected in the UK have a specific human leukocyte antigen known as the HLA-B27 antigen. The underlying mechanism is believed to be autoimmune or autoinflammatory. Diagnosis is based on symptoms with support from medical imaging and blood tests. AS is a type of seronegative spondyloarthropathy, meaning that tests show no presence of rheumatoid factor (RF) antibodies.
The National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) is one of the institutes and centers that make up the National Institutes of Health, an agency of the United States Department of Health and Human Services (HHS).
Rheumatism or rheumatic disorders are conditions causing chronic, often intermittent pain affecting the joints or connective tissue. Rheumatism does not designate any specific disorder, but covers at least 200 different conditions, including arthritis and "non-articular rheumatism", also known as "regional pain syndrome" or "soft tissue rheumatism". There is a close overlap between the term soft tissue disorder and rheumatism. Sometimes the term "soft tissue rheumatic disorders" is used to describe these conditions.
Juvenile idiopathic arthritis (JIA), formerly known as juvenile rheumatoid arthritis (JRA), is the most common chronic rheumatic disease of childhood, affecting approximately 3.8 to 400 out of 100,000 children. Juvenile, in this context, refers to disease onset before 16 years of age, while idiopathic refers to a condition with no defined cause, and arthritis is inflammation within the joint.
Shriners Children's is a network of non-profit medical facilities across North America. Children with orthopaedic conditions, burns, spinal cord injuries, and cleft lip and palate are eligible for care and receive all services in a family-centered environment, regardless of the patients' ability to pay. Care for children is usually provided until age 18, although in some cases, it may be extended to age 21.
Hospital for Special Surgery (HSS) is an academic medical center and research institution headquartered in New York City that specializes in the treatment of orthopedic and rheumatologic conditions. Its main campus is located at 535 East 70th Street in Manhattan and there are locations in New York, New Jersey, Connecticut, and Florida. The hospital was founded in 1863 by James Knight. HSS is the oldest orthopedic hospital in the United States and is consistently ranked as the world's top orthopedic hospital. Bryan T Kelly served as the former surgeon-in-chief and currently serves as president and chief executive officer. Douglas E. Padgett serves as the current surgeon-in-chief.
Barbara Mary Ansell, CBE, FRCP, FRCS was a British medical doctor and the founder of the field of paediatric rheumatology. Ansell was notable for outstanding contributions to the advancement of paediatric knowledge, specifically defining chronic joint disorders and the improvement of their management.
Musgrave Park Hospital is a specialist hospital in Belfast, Northern Ireland. It specialises in orthopaedics, rheumatology, sports medicine and rehabilitation of patients of all ages. These specialties are spread out across a large site in the leafy suburbs of South Belfast. The Hospital is named after the 48 acres (19 ha) of adjacent municipal parkland known as Musgrave Park, first opened to the public in 1920. The hospital is managed by the Belfast Health and Social Care Trust.
Childhood arthritis is an umbrella term used to describe any rheumatic disease or chronic arthritis-related condition which affects individuals under the age of 16. Most types are autoimmune disorders.
St. Cloud Hospital is a hospital in St. Cloud, Minnesota, United States. It is a Catholic-affiliated, not-for-profit institution and part of CentraCare Health. The hospital has more than 9,000 employees, 400 physicians and 1,200 volunteers. It serves 690,000 people in a 12-county area.
Adult-onset Still's disease (AOSD) is a form of Still's disease, a rare systemic autoinflammatory disease characterized by the classic triad of fevers, joint pain, and a distinctive salmon-colored bumpy rash. The disease is considered a diagnosis of exclusion. Levels of the iron-binding protein ferritin may be extremely elevated with this disorder. AOSD may present in a similar manner to other inflammatory diseases and to autoimmune diseases, which must be ruled out before making the diagnosis.
MedStar National Rehabilitation Network is located in Washington, D.C., and specializes in treating persons with physical disabilities. The National Rehabilitation Hospital was founded in 1986 by Edward A. Eckenhoff, and is a member of the MedStar Health system, the Washington, D.C.-Baltimore region's largest non-profit healthcare organization.
Monroe Carell Jr. Children's Hospital at Vanderbilt, also known as Children's Hospital at Vanderbilt, is a nationally ranked pediatric acute care children's teaching hospital and entity of Vanderbilt University Medical Center in Nashville, Tennessee. The hospital is affiliated with Vanderbilt University School of Medicine's Department of Pediatrics.
Enteropathic arthropathy commonly referred to as enteropathic arthritis, is a type of arthritis linked to Crohn's disease, ulcerative colitis, and chronic inflammatory bowel diseases.
Pediatric massage is the complementary and alternative treatment that uses massage therapy, or "the manual manipulation of soft tissue intended to promote health and well-being" for children and adolescents. Its goal is to reduce pain, anxiety, loneliness and fear when children are hospitalized or diagnosed with a debilitating medical condition. Pediatric massage therapy takes into consideration each child's individual physical development, cognitive development and health care needs.
Terri H. Finkel is an American pediatric rheumatologist and immunologist who is the Children's Foundation of Memphis Endowed Chair and tenured professor of pediatrics at the University of Tennessee Health Science Center and St. Jude Children's Research Hospital. Previously, she was the pediatrician-in-chief, chair of pediatrics and chief scientific officer at Nemours Children's Hospital. She is known for her research into autoimmunity, AIDS, juvenile rheumatoid arthritis, lupus, and cancer. Her work has been recognized in more than 200 publications, 10 U.S. patents, and 4 licensed technologies. Finkel has been placed in the top one percent of American pediatric rheumatologists by U.S. News & World Report. Her numerous honors include being named among America's Top Doctors by Castle Connolly every year since 2011 and induction into the Colorado Women's Hall of Fame in 1996.
Children's Specialized Hospital (CSH) is a children's rehabilitation hospital in New Brunswick, New Jersey. It has 140 beds. Founded in 1891, the hospital supports a wide range of research with five core areas of research focus - autism, mobility, cognition, brain injury, and chronic illness. It treats infants, children, teens, and young adults up until the age of 21. Its largest campus is in New Brunswick campus which is a member of the greater Children's Academic Health Campus.
Amita Aggarwal is an Indian clinical immunologist, rheumatologist and a Professor and Head at the Department of Clinical Immunology and Rheumatology of the Sanjay Gandhi Postgraduate Institute of Medical Sciences, Lucknow. Known for her studies in autoimmune rheumatic diseases, Aggarwal is a recipient of the Shakuntala Amir Chand Award of the Indian Council of Medical Research and an elected fellow of the National Academy of Sciences, India, National Academy of Medical Sciences and the National Academy of Medical Sciences. The Department of Biotechnology of the Government of India awarded her the National Bioscience Award for Career Development, one of the highest Indian science awards, for her contributions to biosciences in 2004.