German Center for Pediatric and Adolescent Rheumatology

Last updated
German Center for Pediatric and Adolescent Rheumatology
Logo Neu DZKJR 2015.jpg
German Center for Pediatric and Adolescent Rheumatology
Geography
LocationBavaria, DE
Coordinates 47°29′16″N11°06′10″E / 47.487730°N 11.102670°E / 47.487730; 11.102670 Coordinates: 47°29′16″N11°06′10″E / 47.487730°N 11.102670°E / 47.487730; 11.102670
Organisation
Funding Public hospital
Type Specialist
Affiliated university Ludwig Maximilian University of Munich
History
Opened1952
Links
Website www.rheuma-kinderklinik.de

The German Center for Pediatric and Adolescent Rheumatology in Garmisch-Partenkirchen (also called the 'Kinderrheumaklinik', i.e. the Pediatric Rheumatology Hospital) is the largest specialized center for the treatment of children and adolescents with rheumatic diseases and chronic pain syndromes in Europe. [1]

Contents

History

The Pediatric Rheumatology Hospital [2] [3] evolved out of a pediatric facility for treating tuberculosis. Dr. Elizabeth Stoeber, the first chief of medicine, was able to use funds from the Marshall plan to convert the facility to a full pediatric hospital. Initially, mainly patients with rheumatic fever were treated. However, by the end of the decade focus shifted towards patients with Still's disease and juvenile idiopathic arthritis.

The Pediatric Hospital of the Inner Mission in Garmisch-Partenkirchen with the newly constructed rheumatology wing, approx. 1965 1 jetziger Prof. Stoeber Weg mit Rheumabau ca. 1965.jpg
The Pediatric Hospital of the Inner Mission in Garmisch-Partenkirchen with the newly constructed rheumatology wing, approx. 1965

With increasing availability of steroids and non-steroidal antirheumatic drugs as well as the addition of facilities for physiotherapy, the 1960s saw the development of a program for the therapy of the often severely impaired and handicapped children. In addition, hospital schooling starting in 1952 was developed into a full hospital school by 1975. Donation from various sources, especially the German branch of the Lions Club allowed significant expansion of the facilities. [4] By 1971, a new hospital building was inaugurated, including a gymnasium and exercise pool. [5]

The 1980s saw international recognition of pediatric rheumatology as a subspecialty with increasing competition from outpatient clinics in university hospitals. The Pediatric Rheumatology Hospital continued with a focus on clinical work and physiotherapy. [6] Modifications to the building created more space for physiotherapy, occupational therapy and balneotherapy. At the same time, social support was improved by obtaining a house nearby providing lodging and other facilities to families of inpatients.

In 2004, the general hospital wing was moved to the newly constructed Garmisch General Hospital. The Pediatric Rheumatology Hospital, renamed the 'German Center for Pediatric and Adolescent Rheumatology', was now the only facility in Europe exclusively dedicated to treating rheumatic diseases in childhood. Starting in 2002, the hospital building was renovated in several stages. As the Inner Mission sold the hospital in 2010, the Pediatric Rheumatology Hospital was taken over by the chief of medicine, Professor J.-P. Haas with the help of private investors. [7]

Structure of the Hospital

The Center for Pediatric and Adolescent Rheumatology today Kinderrheumaklinik heute.jpg
The Center for Pediatric and Adolescent Rheumatology today

The Center for Pediatric and Adolescent Rheumatology treats children and adolescents with rheumatic diseases including juvenile idiopathic arthritis, but also systemic lupus erythematosus, juvenile dermatomyositis, scleroderma and other connective tissue disorders. Patients, originating mostly from Germany, but also a significant number of international patients, are mainly treated as inpatients. A smaller part of patients is also treated on an outpatient basis. Children and adolescents with chronic pain syndromes are treated in a specialized ward setting. Also integrated into the hospital are outpatient facilities for pediatric cardiology and developmentally delayed children.

The Garmisch Treatment Concept

The Pediatric Rheumatology Hospital uses a team-based approach with a multidisciplinary treatment concept. [8] The basis of this concept is to treat the child or adolescent as individual, using five 'columns': medical therapy, nursing therapy, physical therapy, psychosocial and educational therapy and the hospital school. Using these columns, an individual treatment concept is tailored to the needs of the patient during his stay.

Related Research Articles

<span class="mw-page-title-main">Arthritis</span> Type of joint disorder

Arthritis is a term often used to mean any disorder that affects joints. Symptoms generally include joint pain and stiffness. Other symptoms may include redness, warmth, swelling, and decreased range of motion of the affected joints. In some types of arthritis, other organs are also affected. Onset can be gradual or sudden.

Rheumatology is a branch of medicine devoted to the diagnosis and management of disorders whose common feature is inflammation in the bones, muscles, joints, and internal organs. Rheumatology covers more than 100 different complex diseases, collectively known as rheumatic diseases, which includes many forms of arthritis as well as lupus and Sjögren's syndrome. Doctors who have undergone formal training in rheumatology are called rheumatologists.

<span class="mw-page-title-main">Ankylosing spondylitis</span> Type of arthritis in which there is long-term inflammation of the joints of the spine

Ankylosing spondylitis (AS) is a type of arthritis characterized by long-term inflammation of the joints of the spine typically where the spine joins the pelvis. Occasionally areas affected may include other joints such as the shoulders or hips. Eye and bowel problems may occur as well as back pain. Joint mobility in the affected areas generally worsens over time.

The National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) is one of the institutes and centers that make up the National Institutes of Health, an agency of the United States Department of Health and Human Services (HHS).

Rheumatism or rheumatic disorders are conditions causing chronic, often intermittent pain affecting the joints or connective tissue. Rheumatism does not designate any specific disorder, but covers at least 200 different conditions, including arthritis and "non-articular rheumatism", also known as "regional pain syndrome" or "soft tissue rheumatism". There is a close overlap between the term soft tissue disorder and rheumatism. Sometimes the term "soft tissue rheumatic disorders" is used to describe these conditions.

Juvenile idiopathic arthritis (JIA) is the most common, chronic rheumatic disease of childhood, affecting approximately 16-150 in 100,000 children. Juvenile, in this context, refers to disease onset before 16 years of age, while idiopathic refers to a condition with no defined cause, and arthritis is inflammation within the joint.

<span class="mw-page-title-main">Shriners Hospitals for Children</span> Network of hospitals for children

Shriners Children's is a network of non-profit medical facilities across North America. Children with orthopaedic conditions, burns, spinal cord injuries, and cleft lip and palate are eligible for care and receive all services in a family-centered environment, regardless of the patients' ability to pay. Care for children is usually provided until age 18, although in some cases, it may be extended to age 21.

<span class="mw-page-title-main">Hospital for Special Surgery</span> Hospital in New York, United States

Hospital for Special Surgery (HSS) is a hospital in New York City that specializes in orthopedic surgery and the treatment of rheumatologic conditions.

<span class="mw-page-title-main">Barbara Ansell</span> English physician (1923–2001)

Barbara Mary Ansell, CBE, FRCP, FRCS was the founder of paediatric rheumatology. Ansell was notable for outstanding contributions to the advancement of paediatric knowledge, specifically defining chronic joint disorders and the improvement of their management.

<span class="mw-page-title-main">Musgrave Park Hospital</span> Hospital in Northern Ireland, United Kingdom

Musgrave Park Hospital is a specialist hospital in Belfast, Northern Ireland. It specialises in orthopaedics, rheumatology, sports medicine and rehabilitation of patients of all ages. These specialties are spread out across a large site in the leafy suburbs of South Belfast. The Hospital is named after the 48 acres (19 ha) of adjacent municipal parkland known as Musgrave Park, first opened to the public in 1920. The hospital is managed by the Belfast Health and Social Care Trust.

Tocilizumab, sold under the brand name Actemra among others, is an immunosuppressive drug, used for the treatment of rheumatoid arthritis, systemic juvenile idiopathic arthritis, a severe form of arthritis in children, and COVID‑19. It is a humanized monoclonal antibody against the interleukin-6 receptor (IL-6R). Interleukin 6 (IL-6) is a cytokine that plays an important role in immune response and is implicated in the pathogenesis of many diseases, such as autoimmune diseases, multiple myeloma and prostate cancer. Tocilizumab was jointly developed by Osaka University and Chugai, and was licensed in 2003 by Hoffmann-La Roche.

Childhood arthritis is an umbrella term used to describe any rheumatic disease or chronic arthritis-related condition which affects individuals under the age of 16. Most types are autoimmune disorders.

St. Cloud Hospital is a hospital in St. Cloud, Minnesota, United States. It is a Catholic-affiliated, not-for-profit institution and part of the CentraCare Health System. The hospital has more than 9,000 employees, 400 physicians and 1,200 volunteers. It serves 690,000 people in a 12-county area.

Adult-onset Still's disease (AOSD) is a form of Still's disease, a rare systemic autoinflammatory disease characterized by the classic triad of fevers, joint pain, and a distinctive salmon-colored bumpy rash. The disease is considered a diagnosis of exclusion. Levels of the iron-binding protein ferritin may be extremely elevated with this disorder. AOSD may present in a similar manner to other inflammatory diseases and to autoimmune diseases, which must be ruled out before making the diagnosis.

<span class="mw-page-title-main">Mt. Washington Pediatric Hospital</span> Hospital in Maryland, United States

Mt. Washington Pediatric Hospital is a United States 102-bed non-profit children's hospital set in the scenic neighborhood of Mt. Washington in Baltimore, Maryland, that provides long-term care for children with complex health problems. MWPH is jointly owned by Johns Hopkins Medical System and University of Maryland Medical System. Funded by patient revenue and private charitable donations, Mt. Washington Pediatric Hospital is a comprehensive sub-acute care facility for children from birth to young adult; MWPH provides transitional and support care for a variety of conditions, including premature birth, serious and chronic illness, traumatic injury, ADHD, autism spectrum disorder, cerebral palsy, childhood obesity, diabetes, feeding problems, among others. Mt. Washington Pediatric Hospital also has a unit at Prince George's Hospital Center in Cheverly, Maryland. MWPH accreditations include Commission on Accreditation of Rehabilitation Facilities and The Joint Commission.

Pediatric massage is the complementary and alternative treatment that uses massage therapy, or "the manual manipulation of soft tissue intended to promote health and well-being" for children and adolescents. Its goal is to reduce pain, anxiety, loneliness and fear when children are hospitalized or diagnosed with a debilitating medical condition. Pediatric massage therapy takes into consideration each child's individual physical development, cognitive development and health care needs.

Terri H. Finkel is an American pediatric rheumatologist and immunologist who is the Children's Foundation of Memphis Endowed Chair and tenured professor of pediatrics at the University of Tennessee Health Science Center and St. Jude Children's Research Hospital. Previously, she was the pediatrician-in-chief, chair of pediatrics and chief scientific officer at Nemours Children's Hospital. She is known for her research into autoimmunity, AIDS, juvenile rheumatoid arthritis, lupus, and cancer. Her work has been recognized in more than 200 publications, 10 U.S. patents, and 4 licensed technologies. Finkel has been placed in the top one percent of American pediatric rheumatologists by U.S. News & World Report. Her numerous honors include being named among America's Top Doctors by Castle Connolly every year since 2011 and induction into the Colorado Women's Hall of Fame in 1996.

<span class="mw-page-title-main">Children's Specialized Hospital</span> Hospital in New Jersey, United States

Children's Specialized Hospital (CSH) is a children's rehabilitation hospital in New Brunswick, New Jersey. It has 140 beds. Founded in 1891, the hospital supports a wide range of research with five core areas of research focus - autism, mobility, cognition, brain injury, and chronic illness. It treats infants, children, teens, and young adults up until the age of 21. Its largest campus is in New Brunswick campus which is a member of the greater Children's Academic Health Campus.

Ross E. Petty is a Canadian pediatric rheumatologist. He is a professor emeritus in the Department of Pediatrics at the University of British Columbia and a pediatric rheumatologist at BC Children’s Hospital in Vancouver, Canada. He established Canada’s first formal pediatric rheumatology program at the University of Manitoba in 1976, and three years later, he founded a similar program at the University of British Columbia.

<span class="mw-page-title-main">Antiarthritics</span>

An antiarthritic is any member of the group of drugs used to relieve or prevent arthritic symptoms, such as joint pain and joint stiffness. Depending on the antiarthritic drug class, it can be responsible for managing pain, reducing inflammation and/or acting as an immunosuppressant. These drugs are typically given orally, topically or through administration by injection. The choice of antiarthritic medication is often determined by the type/nature of arthritis, the severity of symptoms as well as other factors, such as the tolerability of side effects.

References

  1. "Bavarian State Ministry of the Environment and Public Health". Archived from the original on 2013-10-04. Retrieved 2012-07-21.
  2. E. Stoeber, L. Sänger: Zur Geschichte der Kinderklinik und Rheumakinderklinik in Garmisch-Partenkirchen, 1992
  3. Schaller, Jane G (2005). "The History of Pediatric Rheumatology". Pediatric Research. Springer Science and Business Media LLC. 58 (5): 997–1007. doi: 10.1203/01.pdr.0000182823.85717.48 . ISSN   0031-3998. PMID   16183803. S2CID   6244580.
  4. "Lions Club - die Rheumaklinik - Hilfe für das rheumakranke Kind e. V." Archived from the original on 2013-10-29. Retrieved 2012-11-18.
  5. "Sozialarbeit mit Familien rheumakranker Kinder - 4 Möglichkeiten der Sozialarbeit: Hilfe im klinischen Bereich - 4.1 die Kinderklinik Garmisch-Partenkirchen – Rheumaklinik für Kinder und Jugendliche". Archived from the original on 2016-03-03. Retrieved 2012-11-18.
  6. Second Workshop on Physiotherapy in JCA (Garmisch-Partenkirchen), Rheumatology 1993;32(5):425
  7. Seiler, Andreas (16 June 2021). "Kinderklinik: Geordnete Übernahme". Merkur.de (in German). Retrieved 7 March 2022.
  8. Hafner R, Beisken C (2004). "Clinical Symptoms in Rheumatoid Pain – Physiotherapeutic Intervention". Akt Rheumatol. 29 (3): 133–136. doi:10.1055/s-2004-813305.