The Hilgos Foundation is a nonprofit organization that supports the ongoing process of artistic creation for people who have different forms of memory impairment such as Alzheimer's disease.
The Hilgos Foundation was founded by Berna Huebner in 1999. [1] Huebner enlisted art students to work with her mother Hilda (Hilgos) Gorenstein who had Alzheimer's disease. The use of art opened a dialogue of communication that had been closed for years. In memory of her mother, Huebner founded the Hilgos Foundation which provides grants to art students who work with Alzheimer's patients. [2] Students in the Hilgos project, in which "Hilgos scholars" participate each academic year, have served hundreds of people with Alzheimer's. [3]
To further raise visibility of the arts and Alzheimer's, the Hilgos Foundation co-produced an international documentary film, I Remember Better When I Paint , narrated by Olivia de Havilland. The film, co-directed by Huebner and filmmaker Eric Ellena, was inspired by the words of Hilgos who in the midst of Alzheimer's said "I remember better when I paint." [4] The documentary shows how the creative arts can help improve quality of life for Alzheimer's patients not only through creation and performance of art and music but also from exposure to the arts around the world, such as the Louvre museum. The documentary also shares findings by leading neurologists offering scientific support regarding the transforming power of the arts for people with Alzheimer's. The film includes an interview with Yasmin Aga Khan, actress Rita Hayworth's daughter; Hayworth developed early-onset Alzheimer's and also had painted. [5] The film has been broadcast nationwide on public television stations in the United States. [6]
The Foundation has also produced a book based on Hilgos entitled I Remember Better When I Paint: Art and Alzheimer's: Opening Doors, Making Connections [7] describing how people affected with dementia can be reconnected to themselves and how communications channels can be reopened through the creative arts. [8]
The Hilgos Foundation was a 2015 Shorty Awards finalist in the charity category. [9] Also known as the Shorties, it is an annual awards event that honors the best in social media. From the seven finalists, the 2015 Shorty Award for the best in charity was awarded to the Gates Foundation. [10] In 2020, the Hilgos Foundation account was named among the top ten best in Twitter in the annual WEGO Health Activists Awards. [11] The Hilgos Foundation is the co-host and founder of the weekly Twitter driven dementia caregiver discussion #AlzChat. [12]
Art therapy is a distinct discipline that incorporates creative methods of expression through visual art media. Art therapy, as a creative arts therapy profession, originated in the fields of art and psychotherapy and may vary in definition. Art therapy encourages creative expression through painting, drawing, or modelling. It may work by providing a person with a safe space to express their feelings and allow them to feel more in control over their life.
Princess Yasmin Aga Khan is a Swiss-born American philanthropist known for raising public awareness of Alzheimer's disease.
Alzheimer's Society is a United Kingdom care and research charity for people with dementia and their carers. It operates in England, Wales and Northern Ireland, while its sister charities Alzheimer Scotland and Alzheimer Society of Ireland cover Scotland and the Republic of Ireland respectively.
Gary Mex Glazner, is a poet and author. He was the Managing Director of the Bowery Poetry Club in New York City, 2007 to 2010.
This article provides a list of media documents portraying Alzheimer's disease as a critical feature of the main plot:
Psychological therapies for dementia are starting to gain some momentum. Improved clinical assessment in early stages of Alzheimer's disease and other forms of dementia, increased cognitive stimulation of the elderly, and the prescription of drugs to slow cognitive decline have resulted in increased detection in the early stages. Although the opinions of the medical community are still apprehensive to support cognitive therapies in dementia patients, recent international studies have started to create optimism.
As populations age, caring for people with dementia has become more common. Elderly caregiving may consist of formal care and informal care. Formal care involves the services of community and medical partners, while informal care involves the support of family, friends, and local communities. In most mild-to-medium cases of dementia, the caregiver is a spouse or an adult child. Over a period of time, more professional care in the form of nursing and other supportive care may be required medically, whether at home or in a long-term care facility. There is evidence to show that case management can improve care for individuals with dementia and the experience of their caregivers. Furthermore, case management may reduce overall costs and institutional care in the medium term. Millions of people living in the United States take care of a friend or family member with Alzheimer’s disease or a related dementia.
Memory Bridge, founded in 2004 as The Foundation for Alzheimer's and Cultural Memory, is an American nonprofit organization that creates programs that connect people with Alzheimer's disease to family, friends, and other people in their local community.
Hilda Goldblatt Gorenstein (1905–1998) was an American oil painter and watercolorist. A native of Montreal, Canada, who grew up in Portland, Oregon, U.S. Gorenstein started painting as a teenager at a time when women artists weren't very well received. A reflection of the times in which she lived, she signed her work "Hilgos", an androgynous professional working name. She was later the inspiration for the documentary film, I Remember Better When I Paint.
Eric Elléna is a French film maker.
I Remember Better When I Paint is a feature length international documentary film about the positive impact of art and other creative therapies in people with Alzheimer's disease and how these approaches can change the way the disease is viewed by society. The film examines the way creative arts bypass the limitations of dementia disorders such as Alzheimer's and shows how patients' still-vibrant imaginations are strengthened through therapeutic art.
The Bel Air International Film Festival, first held in 2008, is an annual international film festival which takes place in Bel Air and the greater Los Angeles area. The festival honors films in the following categories: Film Fashion, Documentaries, Shorts, Comedy Shorts, Comedy, Drama, Animation, Foreign Films, Music Video, and Student Film.
Berna G. Huebner is the founder of the Hilgos Foundation in Chicago, Illinois which supports and encourages the ongoing process of artistic creation with people who have different forms of dementia including Alzheimer's.
The use case of art in dementia care is a valuable tool in enriching and enhancing the lives of people with dementia.
Pacific Standard, founded as Miller–McCune, was an American nonprofit magazine that reported on issues of social and environmental justice. Founded in 2008, the magazine was published in print and online for its first ten years. It was published by The Social Justice Foundation, headquartered in Santa Barbara, California. On August 16, 2019, a week after its primary funder backed away, it posted its last new article.
The Society for the Arts in Dementia Care is a non-profit organisation, with branches in Canada and Australia, dedicated to knowledge dissemination and education that focuses on improving the quality of lives of seniors living with dementia by using the visual and performing arts.
Arts & Minds is a non-profit organization committed to improving quality of life for people living with Alzheimer's disease and other dementias.
For patients with Alzheimer's disease, music therapy provides a beneficial interaction between a patient and an individualized musical regimen and has been shown to increase cognition and slow the deterioration of memory loss. Music therapy is a clinical and evidence-based intervention that involves music in some capacity and includes both a participant and a music therapist who have completed an accredited music therapy program.
Alive Inside: A Story of Music and Memory is a 2014 American documentary film directed and produced by Michael Rossato-Bennett. The film premiered in the competition category of U.S. Documentary Competition program at the 2014 Sundance Film Festival on January 18, 2014. It won the Audience Award: U.S. Documentary at the festival. The documentary explores diseases that impair neurological function, such as Alzheimer's disease and dementia, and proposes a treatment option that is claimed to improve a patient's quality of life. It discusses that the elderly community are on the decline in social status and that western society neglects old age to idealize youth. It includes a series of interviews with individuals of neurology, geriatrics, and music. The documentary tells the story of patients and their experience with music therapy and creating personalized playlists for elderly patients with dementia and Alzheimer's disease based on their music preferences.
William Charles Utermohlen was an American figurative artist known for his late-period self-portraits completed after his diagnosis of probable Alzheimer's disease. He was diagnosed in 1995, having had progressive memory loss since 1991. After diagnosis he began a series of self-portraits influenced by both the figurative painter Francis Bacon and cinematographers from the German Expressionism movement. The last of his self-portraits was completed c. 2001, some six years before his death.