International Albinism Awareness Day

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International Albinism Awareness Day (IAAD) is celebrated annually on June 13 to celebrate the human rights of persons with albinism worldwide.

Contents

History

Early developments

Around the mid-2000s, reports made public a rising number of violent attacks on and murders of persons with albinism in Tanzania. [1] Many reports have accused perpetrators of attributing magical powers to the bodies of persons with albinism, and thus being motivated to use them for lucky charms and occult rituals. [2] [3] Until 2015, perpetrators killed more than 70 victims and harmed many more. [4] In response, the Tanzania Albinism Society (TAS) and other NGOs began campaigning for the human rights of persons with albinism. [5] TAS celebrated the first Albino Day on May 4, 2006. [6] It became National Albino Day from 2009 onwards and was eventually called National Albinism Day.

United Nations observance

On an international level, the Canadian NGO Under the Same Sun (UTSS) joined late Ambassador of the Mission of Somalia to the United Nations (UN), Yusuf Mohamed Ismail Bari-Bari, in his effort to pass a resolution promoting and protecting the rights of persons with albinism. [7] [3] Such a resolution came about when the Human Rights Council on June 13, 2013, adopted the first resolution ever on albinism. [8] Later on, in its resolution 26/10 of June 26, 2014, the Human Rights Council recommended June 13 to be proclaimed as International Albinism Awareness Day by the United Nations' General Assembly. [9] The UN's General Assembly, then, adopted on December 18, 2014, resolution 69/170 to proclaim, with effect from 2015, June 13 as International Albinism Awareness Day. [10] [11] [3] The chosen date is reminiscent of the UN’s first ever resolution which was passed on June 13 a year before. [12] Today, IAAD is celebrated around the world from Tanzania, [13] to Argentina, [14] to Senegal, [15] to Fiji, [16] France, [17] the United Kingdom [18] and Namibia. [19]

Yearly themes

Each year a theme is chosen to set the tone for the days celebrations. So far, they have been the following:

YearTheme
2016Celebrate diversity; promote inclusion; protect our rights [18]
2017Advancing with renewed hope [20]
2018Shining our light to the world [21]
2019Still standing strong [22]
2020Made to shine [23]
2021Strength beyond all odds [24]
2022United in making our voice heard
2023Inclusion is strength

Related Research Articles

<span class="mw-page-title-main">Albinism in humans</span> Condition characterized by partial or complete absence of pigment in the skin, hair and eyes

Albinism is a congenital condition characterized in humans by the partial or complete absence of pigment in the skin, hair and eyes. Albinism is associated with a number of vision defects, such as photophobia, nystagmus, and amblyopia. Lack of skin pigmentation makes for more susceptibility to sunburn and skin cancers. In rare cases such as Chédiak–Higashi syndrome, albinism may be associated with deficiencies in the transportation of melanin granules. This also affects essential granules present in immune cells, leading to increased susceptibility to infection.

<span class="mw-page-title-main">Tanzania</span> Country in East Africa

Tanzania, officially the United Republic of Tanzania, is a country in East Africa within the African Great Lakes region. It borders Uganda to the north; Kenya to the northeast; the Indian Ocean to the east; Mozambique and Malawi to the south; Zambia to the southwest; and Rwanda, Burundi, and the Democratic Republic of the Congo to the west. Mount Kilimanjaro, Africa's highest mountain, is in northeastern Tanzania. According to the 2022 national census, Tanzania has a population of nearly 62 million, making it the most populous country located entirely south of the equator.

<span class="mw-page-title-main">United Nations Human Rights Council</span> United Nations body tasked with the promotion of human rights

The United Nations Human Rights Council (UNHRC) is a United Nations body whose mission is to promote and protect human rights around the world. The Council has 47 members elected for staggered three-year terms on a regional group basis. The headquarters of the Council are at the United Nations Office at Geneva in Switzerland.

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<span class="mw-page-title-main">Human right to water and sanitation</span> Human right recognized by the United Nations General Assembly in 2010

The human right to water and sanitation (HRWS) is a principle stating that clean drinking water and sanitation are a universal human right because of their high importance in sustaining every person's life. It was recognized as a human right by the United Nations General Assembly on 28 July 2010. The HRWS has been recognized in international law through human rights treaties, declarations and other standards. Some commentators have based an argument for the existence of a universal human right to water on grounds independent of the 2010 General Assembly resolution, such as Article 11.1 of the International Covenant on Economic, Social and Cultural Rights (ICESCR); among those commentators, those who accept the existence of international ius cogens and consider it to include the Covenant's provisions hold that such a right is a universally binding principle of international law. Other treaties that explicitly recognize the HRWS include the 1979 Convention on the Elimination of All Forms of Discrimination Against Women (CEDAW) and the 1989 Convention on the Rights of the Child (CRC).

Albinism organisations and others have expressed criticism over the portrayal of individuals with albinism in popular culture, specifically in movies and fictional works, citing the overwhelmingly negative depiction. There is concern that such depictions could increase social bias and discrimination against individuals with albinism. This phenomenon is often referred to as the "evil albino" plot device.

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The National Organization for Albinism and Hypopigmentation (NOAH) is a non-profit organization that assists people who have albinism. NOAH was created in 1982 and is based in East Hampstead, New Hampshire.

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<span class="mw-page-title-main">Persecution of people with albinism</span> Persecution of albinos

Persecution of people with albinism is based on the belief that certain body parts of albinistic people can transmit magical powers. Such superstition is present especially in some parts of the African Great Lakes region, it has been promulgated and exploited by witch doctors and others who use such body parts as ingredients in rituals, concoctions and potions with the claim that their magic will bring prosperity to the user.

<span class="mw-page-title-main">World Autism Awareness Day</span> Internationally recognized day on April 2

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<span class="mw-page-title-main">Vicky Ntetema</span> Tanzanian journalist (born 1958)

Vicky Ntetema is a Tanzanian journalist known for breaking the story about the murder of persons with albinism in Tanzania. Later, she became Executive Director of Under the Same Sun (UTSS) in Tanzania.

<span class="mw-page-title-main">Ikponwosa Ero</span> Nigerian lawyer and advocate (born 1981)

Ikponwosa "I.K." Lauretta Ero is a lawyer and advocate in the field of international human rights. She is the first United Nations Independent Expert on the enjoyment of human rights by persons with albinism. Ero was a key player in drawing global attention to the human rights issues faced by people with albinism worldwide, particularly in the region of Africa where they were being attacked for their body parts.

References

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