International Bureau for Epilepsy

Last updated
International Bureau for Epilepsy
AbbreviationIBE
Formation1961
Founded atWashington DC, USA
TypeNonprofit organisation
Website https://www.ibe-epilepsy.org/

The International Bureau for Epilepsy (IBE) is a non-for-profit started in 1961 [1] which aims to improve the social condition and quality of life of people with epilepsy. [2] The organization addresses social problems such as employment, education, driving license restrictions and public awareness. [3] Its members are from both the lay public and a professional background. [4] IBE has a network of 140 chapters in 100 countries [5] and often collaborates with the International League Against Epilepsy (ILAE) to increase understanding about epilepsy. [6]

Contents

History

The IBE was formed in 1961, after it was recognised at the ILAE congress the need to establish an organisation that specifically addressed the psycho-social aspects of epilepsy. In 1997, the IBE, the World Health Organization and the ILAE launched the 'Out of the Shadows' Global Campaign against epilepsy, [7] with the aim of improving acceptability, treatment, services and epilepsy preventions globally, as well as working towards closing the treatment gap. [8]

Global Chapters

The International Bureau for Epilepsy consists of chapters representing national epilepsy associations globally, organized into seven regional structures. [9]

International Epilepsy Day

International Epilepsy Day began in 2015 and is organised each year on the second Monday of February by the IBE and the ILAE aimed at raising awareness of epilepsy. [10] In recent years, International Epilepsy Day drives the implementation of the World Health Organization's (WHO) 10-year Intersectoral Global Action Plan on Epilepsy and other Neurological Disorders (IGAP). [11]

Related Research Articles

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Epilepsy is a group of non-communicable neurological disorders characterized by recurrent epileptic seizures. An epileptic seizure is the clinical manifestation of an abnormal, excessive, and synchronized electrical discharge in the neurons. The occurrence of two or more unprovoked seizures defines epilepsy. The occurrence of just one seizure may warrant the definition in a more clinical usage where recurrence may be able to be prejudged. Epileptic seizures can vary from brief and nearly undetectable periods to long periods of vigorous shaking due to abnormal electrical activity in the brain. These episodes can result in physical injuries, either directly such as broken bones or through causing accidents. In epilepsy, seizures tend to recur and may have no detectable underlying cause. Isolated seizures that are provoked by a specific cause such as poisoning are not deemed to represent epilepsy. People with epilepsy may be treated differently in various areas of the world and experience varying degrees of social stigma due to the alarming nature of their symptoms.

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Henri Jean Pascal Gastaut was a French neurologist and epileptologist.

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Non-epileptic seizures (NES), also known as non-epileptic events, are paroxysmal events that appear similar to an epileptic seizure but do not involve abnormal, rhythmic discharges of neurons in the brain. Symptoms may include shaking, loss of consciousness, and loss of bladder control.

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Charlotte Dravet is a French paediatric psychiatrist and epileptologist.

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References

  1. "Mission, Objectives and Strategy for Epilepsy". International Bureau for Epilepsy. Archived from the original on 8 January 2014. Retrieved 10 January 2014.
  2. "'About Us'". International Bureau for Epilepsy. 11 April 2024.
  3. "IBE - International Bureau for Epilepsy". European Patients Forum. 17 April 2024.
  4. "International epilepsy organisations" . Retrieved 10 January 2014.
  5. Trinka, Eugen (7 September 2020). "Joint Statement for the International League Against Epilepsy (ILAE) and the International Bureau for Epilepsy (IBE)" (PDF). World Health Organization. Retrieved 11 April 2024.
  6. "Epilepsy.org" . Retrieved 14 May 2014.
  7. Prasher, edited by Vee P.; Kerr, Mike P. (2008). Epilepsy and intellectual disabilities. New York: Springer. p. 212. ISBN   9781848002593.{{cite book}}: |first= has generic name (help)
  8. "Global Campaign Against Epilepsy". International League Against Epilepsy. 26 April 2024.
  9. "IBE Chapters". International Bureau for Epilepsy. 11 April 2024.
  10. "IBE Strategic Plan" (PDF). International Bureau for Epilepsy. 26 April 2024.
  11. "International Epilepsy Day". International Epilepsy Day. 17 April 2024.