The International Bureau for Epilepsy (IBE) is a non-for-profit started in 1961 [1] which aims to improve the social condition and quality of life of people with epilepsy [2] . Its members are from both the lay public and a professional background. [3] IBE has a network of 140 chapters in 100 countries [4] and often collaborates with the International League Against Epilepsy (ILAE) to increase understanding about epilepsy. [5]
The organization along with the World Health Organization and ILAE runs the "Global Campaign Against Epilepsy". [6] This campaign was started in 1997 to increase countries efforts to deal with issues facing those with epilepsy. [7]
The International Bureau for Epilepsy (IBE) consists of chapters representing national epilepsy associations globally, organized into seven regional structures. [8]
Epilepsy is a group of non-communicable neurological disorders characterized by recurrent epileptic seizures. An epileptic seizure is the clinical manifestation of an abnormal, excessive, and synchronized electrical discharge in the neurons. The occurrence of two or more unprovoked seizures defines epilepsy. The occurrence of just one seizure may warrant the definition in a more clinical usage where recurrence may be able to be prejudged. Epileptic seizures can vary from brief and nearly undetectable periods to long periods of vigorous shaking due to abnormal electrical activity in the brain. These episodes can result in physical injuries, either directly such as broken bones or through causing accidents. In epilepsy, seizures tend to recur and may have no detectable underlying cause. Isolated seizures that are provoked by a specific cause such as poisoning are not deemed to represent epilepsy. People with epilepsy may be treated differently in various areas of the world and experience varying degrees of social stigma due to the alarming nature of their symptoms.
The United Nations (UN) is a diplomatic and political international organization whose stated purposes are to maintain international peace and security, develop friendly relations among nations, achieve international cooperation, and serve as a centre for harmonizing the actions of nations. It is the world's largest international organization. The UN is headquartered in New York City, and the UN has other offices in Geneva, Nairobi, Vienna, and The Hague, where the International Court of Justice is headquartered at the Peace Palace.
A non-governmental organization (NGO) is an organization that generally is formed independent from government. They are typically nonprofit entities, and many of them are active in humanitarianism or the social sciences; they can also include clubs and associations that provide services to their members and others. NGOs can also be lobby groups for corporations, such as the World Economic Forum. NGOs are distinguished from international and intergovernmental organizations (IOs) in that the latter are more directly involved with sovereign states and their governments.
Henri Jean Pascal Gastaut was a French neurologist and epileptologist.
Consumer organizations are advocacy groups that seek to protect people from corporate abuse like unsafe products, predatory lending, false advertising, astroturfing and pollution.
Non-epileptic seizures (NES), also known as non-epileptic events, are paroxysmal events that appear similar to an epileptic seizure but do not involve abnormal, rhythmic discharges of neurons in the brain. Symptoms may include shaking, loss of consciousness, and loss of bladder control.
William Gordon Lennox was an American neurologist and epileptologist who was a pioneer in the use of electroencephalography (EEG) for the diagnosis and treatment of epilepsy. He graduated from Colorado College and Harvard Medical School.
In the field of neurology, seizure types are categories of seizures defined by seizure behavior, symptoms, and diagnostic tests. The International League Against Epilepsy (ILAE) 2017 classification of seizures is the internationally recognized standard for identifying seizure types. The ILAE 2017 classification of seizures is a revision of the prior ILAE 1981 classification of seizures. Distinguishing between seizure types is important since different types of seizures may have different causes, outcomes, and treatments.
Childhood absence epilepsy (CAE), formerly known as pyknolepsy, is an idiopathic generalized epilepsy which occurs in otherwise normal children. The age of onset is between 4–10 years with peak age between 5–7 years. Children have absence seizures which although brief, they occur frequently, sometimes in the hundreds per day. The absence seizures of CAE involve abrupt and severe impairment of consciousness. Mild automatisms are frequent, but major motor involvement early in the course excludes this diagnosis. The EEG demonstrates characteristic "typical 3Hz spike-wave" discharges. The presence of any other seizure type at time of diagnosis rules out the diagnose of CAE. Prognosis is usually good in well-defined cases of CAE with most patients "growing out" of their epilepsy.
Jean Aicardi was a French pediatric neurologist and epileptologist. He was known as one of the most distinguished and respected neuropediatricians of his time. He, along with Alexis Arzimanoglou, created the journal Epileptic Disorders in 1999.
Juhn Atsushi Wada was a Japanese–Canadian neurologist known for research into epilepsy and human brain asymmetry, including his description of the Wada test for cerebral hemispheric dominance of language function. The Wada Test remains the gold standard for establishing cerebral dominance and is conducted worldwide prior to epilepsy surgery.
Epileptic Disorders is a peer-reviewed medical journal focusing on quality scientific and educational content related to all aspects of epilepsy including its diagnosis, natural history, and management. The current editor-in-chief is Sandor Beniczky and it is published by John Libbey Eurotext. As of 2021, the impact factor of the journal is 2.333. In 2013, Epileptic Disorders became the official educational journal of the International League Against Epilepsy (ILAE).
The International Bureau of Education (IBE-UNESCO) is a UNESCO category 1 institute mandated as the Centre of Excellence in curriculum and related matters. Consistent with the declaration of the decision of the 36th session of the General Conference and to ensure a higher effectiveness and a sharper focus, the IBE has defined the scope of its work as pertaining to: curriculum, learning, teaching, and assessment. The IBE-UNESCO provides tailored technical support and expertise to all UNESCO Member States facilitating the provision and delivery of equitable, inclusive, high-quality education within the framework of Education 2030 Agenda.
Epilepsia is a peer-reviewed medical journal focusing on all aspects of epilepsy. The journal was established in 1909. It is the official journal of the International League Against Epilepsy (ILAE).
Early myoclonic encephalopathy (EME) is a rare neonatal-onset epilepsy developmental and epileptic encephalopathy (DEE) with an onset at neonatal period or during the first 3 months of life. This syndrome is now included as part of the Early infantile developmental and epileptic encephalopathy (EIDEE) under the 2022 ILAE syndrome classification.
Tedros Adhanom Ghebreyesus is an Ethiopian public health official, researcher, diplomat, and the Director-General of the World Health Organization since 2017. Tedros is the first African to become WHO Director-General, receiving an endorsement for the role by the African Union. He played a role in the response to the Ebola virus epidemic, the COVID-19 pandemic, and the 2022–2023 mpox outbreak.
The International League Against Epilepsy was started in 1909. Its goal is to improve the lives of people with epilepsy through research.
Charlotte Dravet is a French paediatric psychiatrist and epileptologist.
Ennapadam Srinivas KrishnamoorthyFRCPS(G)-P, is a neuropsychiatrist with special interests in epilepsy and dementia. He is founder and director of Neurokrish the neuropsychiatry centre and TRIMED - chain of integrative medical specialties based in Chennai, India. He is Professor of Neuropsychiatry, Neurology and Clinical Neuroscience at The Institute of Neurological Sciences, Voluntary Health Services Multispeciality Hospital and Research Institute affiliated to The Tamil Nadu Dr. M.G.R. Medical University. He is the founder of Buddhi Clinic - a chain of integrative health centers for the brain & mind in Chennai, India.
Meir Bialer is an Israeli pharmacologist who is a David H. Eisenberg Emeritus (active) Professor of Pharmacy at the School of Pharmacy, Faculty of Medicine, of The Hebrew University of Jerusalem in Israel.
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