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Patients Know Best is a British social enterprise, [1] with an aim of putting patients in control of their own medical records. [2] Its Chairman is Dr Richard Smith (editor). Dr Mohammad Al-Ubaydli is the cofounder and chief executive officer.
The company operates a Single Patient Record (SPR) architecture across its customer base [3] . The patient can see data in the SPR the company's Personal Health Record viewer [4] . The Population Health Management Engine (PHM) uses data from the SPR to show explanations to the patient in the PHR [5] . The explanations include matching for clinical trials [6] and medication optimisation [7] .
PKB receives data in a patient's record in a number of ways:
The data ownership model of PKB is for the patient to own their record [13] . The patient shares who can access the record and what parts they can access [14] . The sharing is either explicit consent manually from the patient or implicit consent automatically from providers of direct care to the patient. The Privacy Notice provides more details [15] .
Patients Know Best works directly with governments at national scale [16] , alongside its customers who are health care providers.
The system is the preferred personal health record for London. [20] It is in use in 22 different languages [21] at more than 60 hospitals throughout the UK, Ireland, Germany, Hong Kong, the US and the Netherlands.
After trials conducted by Abertawe Bro Morgannwg University Health Board it is to be rolled out across Wales in 2017. [22]
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