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Phoenix Society for Burn Survivors is an American non-profit organization. As "one of the first burn support organizations in the United States", it is "dedicated to empowering anyone affected by a burn injury". [1] It is based in Grand Rapids, Michigan. [2]
The organization was founded in 1977 by Alan Breslau, a man who was extensively burned due to a commercial airliner crash in 1963. [1] After visiting a boy at a burn center several years earlier, Breslau recognized a need for peer support for those with burn injuries. [1]
The Phoenix Society offers an array of support to those it serves. It has an online community to connect these people. Its program SOAR is focused on one-on-one peer support for people recently affected by burn injuries with those who have already been affected and involved in recovery, including family, friends, and caregivers. A special subset of this type of care for youngsters and adolescents also exists to address the special needs of this group. [3]
The organization holds an annual international conference, The Phoenix World Burn Congress, where "900 burn survivors, their families, caregivers, burn care professionals, and firefighters" meet and exchange information, ideas, and support. [4]
The Phoenix Society also organizes events and demonstrations to educate the public, and to raise awareness and funds for their cause. [5]
The Canadian Red Cross Society is a Canadian humanitarian charitable organization, and one of 192 national Red Cross and Red Crescent societies. The organization receives funding from both private donations and from Canadian government departments.
Peer support occurs when people provide knowledge, experience, emotional, social or practical help to each other. It commonly refers to an initiative consisting of trained supporters, and can take a number of forms such as peer mentoring, reflective listening, or counseling. Peer support is also used to refer to initiatives where colleagues, members of self-help organizations and others meet, in person or online, as equals to give each other connection and support on a reciprocal basis.
The Alzheimer's Association is a nonprofit voluntary health organization that focuses on Alzheimer's disease care, support and research.
Factitious disorder imposed on another (FDIA), also known as fabricated or induced illness by carers (FII) and first named as Munchausen syndrome by proxy (MSbP) after Munchausen syndrome, is a mental health disorder in which a caregiver creates the appearance of health problems in another person, typically their child, and sometimes (rarely) when an adult simulates an illness in another adult partner. This might include altering test samples or injuring a child. The caregiver or partner then presents the person as being sick or injured. Permanent injury or death of the victim can occur as a result of the disorder. The behaviour might be motivated by the caregiver or partner seeking sympathy or attention.
Compassion fatigue is an evolving concept in the field of traumatology. The term has been used interchangeably with secondary traumatic stress (STS), which is sometimes simply described as the negative cost of caring. Secondary traumatic stress is the term commonly employed in academic literature, although recent assessments have identified certain distinctions between compassion fatigue and secondary traumatic stress (STS).
The sandwich generation is a group of middle-aged adults who care for both their aging parents and their own children. It is not a specific generation or cohort in the sense of the Greatest Generation or the Baby boomer generation, but a phenomenon that can affect anyone whose parents and children need support at the same time.
A caregiver, carer or support worker is a paid or unpaid person who helps an individual with activities of daily living. Caregivers who are members of a care recipient's family or social network, and who may have no specific professional training, are often described as informal caregivers. Caregivers most commonly assist with impairments related to old age, disability, a disease, or a mental disorder.
Providence Healthcare is a hospital and long-term care centre in Scarborough, Toronto, Ontario, Canada. It specializes in physical therapy for patients who have experienced strokes, orthopaedic surgery, or lower limb amputation.
Family caregivers are "relatives, friends, or neighbors who provide assistance related to an underlying physical or mental disability for at-home care delivery and assist in the activities of daily living (ADLs) who are unpaid and have no formal training to provide those services."
Jose Rene Martinez is an American actor, motivational speaker, and former U.S. Army soldier. Starting in 2008, he played the role of Brot Monroe on the ABC daytime drama All My Children. He is the winner of Season 13 of ABC's Dancing with the Stars. Martinez served as the Grand Marshal of the 2012 Rose Parade. He also costarred on the syndicated action series SAF3.
Wounded Warrior Project (WWP) is an American charity and veterans service organization that operates as a nonprofit 501(c)(3). WWP offers a variety of programs, services and events for wounded veterans who incurred a physical or mental injury, illnesses, or co-incident to their military service on or after September 11, 2001. Military family members and caregivers are also eligible for WWP programs.
Caregiver syndrome or caregiver stress is a condition that strongly manifests exhaustion, anger, rage, or guilt resulting from unrelieved caring for a chronically ill patient. This condition is not listed in the United States' Diagnostic and Statistical Manual of Mental Disorders, although the term is often used by many healthcare professionals in that country. The equivalent used in many other countries, the ICD-11, does include the condition.
Magee Rehabilitation Hospital, part of Jefferson Health, founded in 1958, is a 96-bed specialty medical rehabilitation hospital providing physical and cognitive rehabilitation services. Magee's flagship facility is located in Center City Philadelphia. In addition to the main campus that offers comprehensive services for spinal cord injury, brain injury, stroke, orthopaedic replacement, amputation, pain management and work injury, Magee provides an expanding outpatient network serving the surrounding communities.
The Pancreatic Cancer Action Network (PanCAN) is a United States–based 501(c)(3) charity that funds research, provides patient/caregiver support, conducts community outreach and advocates for increased federal research funding for those affected by pancreatic cancer.
The Cancer Support Community (CSC) focuses on three areas of support: direct service delivery, research, and advocacy.
Mental health in the Philippines is a survey of the status of psychological, psychiatric, and emotional health care in the Philippines from both past and present programs.
Caregiving by country is the regional variation of caregiving practices as distinguished among countries.
Imerman Angels is a non-profit organization founded in the United States in 2006 that provides guidance and resources with an emphasis on one-on-one support for cancer fighters and caregivers. Jonny Imerman founded the organization after being diagnosed with testicular cancer in 2003 and realizing the need for one-on-one mental support. Imerman Angels connects cancer patients with cancer survivors to provide support through their journey from having cancer to being cancer-free. Patients are connected with nearby mentors through a database of over 6,000 cancer survivors.
Omar Bah is a Gambian American psychologist, author, former journalist, refugee, and global survivor leader residing in the United States. He is the founder and executive director of the Refugee Dream Center in Providence, Rhode Island, United States. In 2022, he ran for the United States House of Representatives in Rhode Island's 2nd congressional district.
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