The Pasteur Institute is a French non-profit private foundation dedicated to the study of biology, micro-organisms, diseases, and vaccines. It is named after Louis Pasteur, who invented pasteurization and vaccines for anthrax and rabies. The institute was founded on 4 June 1887 and inaugurated on 14 November 1888.
Muscular Dystrophy Association (MDA) is an American nonprofit organization dedicated to supporting people living with muscular dystrophy, ALS, and related neuromuscular diseases. Founded in 1950 by Paul Cohen, who lived with muscular dystrophy, MDA accelerates research, advances care, and works to empower families to live longer and more independent lives. Renowned for The MDA Labor Day Telethon, the annual telecast aired live from 1966 to 2010 and was hosted by Jerry Lewis, who also served as MDA's national chairman.
Maria Reiche Grosse-Neumann was a German-born Peruvian mathematician, archaeologist, and technical translator. She is known for her research into the Nazca Lines, which she first saw in 1941 together with American historian Paul Kosok. Known as the "Lady of the Lines", Reiche made the documentation, preservation and public dissemination of the Nazca Lines her life's work.
The Paralyzed Veterans of America was established in 1946 with the goal of serving the needs of disabled veterans. The organization was created to assist members, such as veterans of the armed forces living with spinal cord injuries or diseases like multiple sclerosis (MS) or amyotrophic lateral sclerosis (ALS) in living with increased independence and dignity.
The Russian American Medical Association (RAMA) is a non-profit organization of Russian American physicians founded in 2002 with a mission to facilitate and enable Russian American physicians and health care professionals to excel in patient care, teaching and research, and to pursue their aspirations in professional, humanitarian and community affairs. RAMA is partnering with a number of professional organizations, including such key collaborators as Russian American Dental Association, Russian American Scientists Association (RASA) and American Business Association of Russian Professionals (AmBAR). This and other partnerships foster collaboration among doctors, scientists, entrepreneurs, and medical researchers of European, American and Asian descent in the areas of medical education, biomedical and clinical research, as well as innovation and improvement of health care.
James Heywood is an American MIT mechanical engineer who founded with his family the ALS Therapy Development Institute when his younger brother Stephen Heywood was diagnosed with amyotrophic lateral sclerosis (ALS) in December 1998. He is currently a director at AOBiome, as well as founder and CEO of PatientsLikeMe.
Jenifer Estess was a Moline, Illinois-born theatre producer. She began her career as an actor after graduating from New York University with a B.A. in drama.
The Crohn's & Colitis Foundation (CCF) is a non-profit organization in the US that works to fund research to find cures for Crohn's disease and ulcerative colitis, as well as ways to improve the quality of life of people affected by these digestive diseases. Founded by Shelby Modell and Irwin M. Rosenthal,and formerly known as The National Foundation for Ileitis and Colitis, and The Crohn's and Colitis Foundation of America.It was incorporated on December 17, 1965.CCF has more than 50,000 members, served by the national headquarters, as well as over 40 chapters nationwide.
Eva Harris is a professor in the School of Public Health at the University of California, Berkeley, and the founder and president of the Sustainable Sciences Institute. She focuses her research efforts on combating diseases that primarily afflict people in developing nations.
The ALS Therapy Development Institute is a non-profit biotechnology research organization focused on finding treatments for amyotrophic lateral sclerosis (ALS). With a staff including more than 30 scientists, it operates a research and development program centered on ALS.
Prize4Life is a non-profit organization dedicated to the discovery of treatments and a cure for amyotrophic lateral sclerosis (ALS). The organization uses the inducement prize contest model. It was founded in 2007 by Avi Kremer, an Israeli student at Harvard Business School, who was diagnosed with ALS at the age of 29.
The Allen Institute for Brain Science is a division of the Allen Institute, based in Seattle, Washington, that focuses on bioscience research. Founded in 2003, it is dedicated to accelerating the understanding of how the human brain works. With the intent of catalyzing brain research in different areas, the Allen Institute provides free data and tools to scientists.
Naked Angels is an American theater company founded in 1986 and based in New York City. It was named after John Tytell's book about the Beat Generation, Naked Angels. It has produced plays on controversial social topics such as the critically acclaimed Broadway transfer Next Fall, and featured many Hollywood stars.
PatientsLikeMe (PLM) is an integrated community, health management, and real-world data platform. The platform currently has over 830,000 members who are dealing with more than 2,900 conditions, such as ALS, MS, and epilepsy. Data generated by patients themselves are collected and quantified with the goal of providing an environment for peer support and learning. These data capture the influences of different lifestyle choices, socio-demographics, conditions and treatments on a person's health.
Leadiant Biosciences, formerly known as Sigma-Tau Industrie Farmaceutiche Riunite, was founded in 1957 by research chemist Claudio Cavazza.
The Brain Research Foundation (BRF) is a non-profit private organization in Chicago, Illinois. The foundation was established in 1953 to promote and support scientific research concerning the brain. The BRF aides scientists in their pursuits to understand, prevent, treat, and cure brain disorders. Brain tumors, multiple sclerosis, Alzheimer's and Parkinson's diseases, epilepsy, amyotrophic lateral sclerosis (ALS), learning disorders, depression and many others are disorders the BRF has helped raise awareness for.
The ALS Society of Canada is a registered, not-for-profit Canadian organization. ALS Canada, founded in 1977, is a national voluntary health organization dedicated to the fight against amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig's disease, and to providing support for those living with ALS.
Betty Lou Bumpers was an American politician, advocate for childhood immunizations, and world peace activist, who served as the First Lady of Arkansas from 1971 to 1975. Together, she and Rosalynn Carter ran a successful campaign to ensure that all American school children were immunized. Bumpers was the wife of Dale Bumpers, who served as governor of Arkansas from 1971 to 1975 and as a U.S. Senator from 1975 to 1999.
The International Society for NeuroVirology (ISNV) was founded to promote research into disease-causing viruses that infect the human brain and nervous system. The ISNV membership includes scientists and clinicians from around the world who work in the fields of basic, translational, and clinical neurovirology.
Chan Zuckerberg Biohub, or simply Biohub, is a nonprofit research organization. In addition to supporting and conducting original research, CZ Biohub acts as a hub and fosters science collaboration between UC Berkeley, UC San Francisco (UCSF) and Stanford. The Biohub is funded by a $600 million contribution from Facebook CEO and founder Mark Zuckerberg and his wife Priscilla Chan. It was co-led by Stephen Quake and Joseph DeRisi from its inception in 2016 until 2022, when Quake left to become president of the Biohub Network. Sandra Schmid joined as Chief Scientific Officer in 2020.
