Project Inform

Last updated
Project Inform
Formation1984
Headquarters San Francisco, California
Interim Executive Director
David Evans
Website

Project Inform is an American advocacy group dedicated to improving the health of and empowering people with HIV and hepatitis C, involving them in the process of developing therapies for the disease, and ending the AIDS pandemic. The organization deliberately focuses its efforts on issues that few other agencies address. Main areas of focus include drug development, bio-medical prevention, education and health care access.

In the years since its founding the work of Project Inform helped to found the community-based HIV research movement, helped to proliferate HIV treatment education and make it available to patients and care providers, and lead a national movement to accelerate approval by the U. S. Food and Drug Administration of critical drugs and other treatments for AIDS. [1] [2] [3]

PI was founded in 1984 by Martin Delaney and Joe Brewer. [4] Linda Grinberg served on the board of Project Inform before her death in 2002, and received the group's Activism Award in 1996. [5]

Related Research Articles

<span class="mw-page-title-main">HIV/AIDS in the United States</span> HIV/AIDS epidemic in the United States

The AIDS epidemic, caused by HIV, found its way to the United States between the 1970s and 1980s, but was first noticed after doctors discovered clusters of Kaposi's sarcoma and pneumocystis pneumonia in homosexual men in Los Angeles, New York City, and San Francisco in 1981. Treatment of HIV/AIDS is primarily via the use of multiple antiretroviral drugs, and education programs to help people avoid infection.

<span class="mw-page-title-main">HIV/AIDS denialism</span> False belief that HIV does not cause AIDS

HIV/AIDS denialism is the belief, despite conclusive evidence to the contrary, that the human immunodeficiency virus (HIV) does not cause acquired immune deficiency syndrome (AIDS). Some of its proponents reject the existence of HIV, while others accept that HIV exists but argue that it is a harmless passenger virus and not the cause of AIDS. Insofar as they acknowledge AIDS as a real disease, they attribute it to some combination of sexual behavior, recreational drugs, malnutrition, poor sanitation, haemophilia, or the effects of the medications used to treat HIV infection (antiretrovirals).

<span class="mw-page-title-main">ACT UP</span> International AIDS activism, direct action and advocacy group

AIDS Coalition to Unleash Power is an international, grassroots political group working to end the AIDS pandemic. The group works to improve the lives of people with AIDS through direct action, medical research, treatment and advocacy, and working to change legislation and public policies.

<span class="mw-page-title-main">Treatment Action Campaign</span> South African HIV/AIDS activist organization

The Treatment Action Campaign (TAC) is a South African HIV/AIDS activist organisation which was co-founded by the HIV-positive activist Zackie Achmat in 1998. TAC is rooted in the experiences, direct action tactics and anti-apartheid background of its founder. TAC has been credited with forcing the reluctant government of former South African President Thabo Mbeki to begin making antiretroviral drugs available to South Africans.

<span class="mw-page-title-main">Sociology of health and illness</span> Branch of sociology

The sociology of health and illness, sociology of health and wellness, or health sociology examines the interaction between society and health. As a field of study it is interested in all aspects of life, including contemporary as well as historical influences, that impact and alter our health and wellbeing.

amfAR Nonprofit AIDS research organization

amfAR, the Foundation for AIDS Research, known until 2005 as the American Foundation for AIDS Research, is an international nonprofit organization dedicated to the support of AIDS research, HIV prevention, treatment education, and the advocacy of AIDS-related public policy.

<span class="mw-page-title-main">HIV/AIDS in India</span>

HIV/AIDS in India is an epidemic. The National AIDS Control Organisation (NACO) estimated that 3.14 million people lived with HIV/AIDS in India in 2023. Despite being home to the world's third-largest population of persons with HIV/AIDS, the AIDS prevalence rate in India is lower than that of many other countries. In 2016, India's AIDS prevalence rate stood at approximately 0.30%—the 80th highest in the world. Treatment of HIV/AIDS is via a combination of antiretroviral drugs and education programs to help people avoid infection.

AIDS service organizations are community-based organizations that provide support for people affected by HIV/AIDS. This article focuses on HIV/AIDS service organizations in the United States only. However, similar organizations in other countries, such as Canada, also played significant roles during the HIV/AIDS crisis and share many common experiences and challenges.

<span class="mw-page-title-main">HIV/AIDS in Russia</span> Situation around HIV/AIDS in Russia

The situation with the spread of HIV/AIDS in Russia is described by some researchers as an epidemic. The first cases of human immunodeficiency virus infection were recorded in the USSR in 1985-1987. Patient zero is officially considered to be a military interpreter who worked in Tanzania in the early 1980s and was infected by a local man during sexual contact. After 1988—1989 Elista HIV outbreak, the disease became known to the general public and the first AIDS centers were established. In 1995-1996, the virus spread among injecting drug users (IDUs) and soon expanded throughout the country. By 2006, HIV had spread beyond the vulnerable IDU group, endangering their heterosexual partners and potentially the entire population.

<span class="mw-page-title-main">Whitman-Walker Health</span> Non-profit community health center in the Washington, D.C. metropolitan area

Whitman-Walker Health (WWH), formerly Whitman-Walker Clinic, is a non-profit community health center in the Washington, D.C. metropolitan area with a special expertise in HIV/AIDS healthcare and LGBT healthcare. Chartered as an affirming health center for the gay and lesbian community in 1978, Whitman-Walker was one of the first responders to the HIV/AIDS epidemic in D.C. and became a leader in HIV/AIDS education, prevention, diagnosis and treatment. In recent years, Whitman-Walker has expanded its services to include primary healthcare services, a stronger focus on queer women's care and youth services.

With less than 0.1 percent of the population estimated to be HIV-positive, Bangladesh is a low HIV-prevalence country.

Honduras is the Central American country most adversely affected by the HIV/AIDS epidemic. It is estimated that the prevalence of HIV among Honduran adults is 1.5%.

<span class="mw-page-title-main">Avert (HIV and AIDS organisation)</span> British charitable organization

Avert is an international charity that uses digital communications to increase health literacy on HIV and sexual health, among those most affected in areas of greatest need, in order to reduce new infections and improve health and well-being.

<span class="mw-page-title-main">HIV/AIDS in Canada</span>

HIV/AIDS was first detected in Canada in 1982. In 2018, there were approximately 62,050 people living with HIV/AIDS in Canada. It was estimated that 8,300 people were living with undiagnosed HIV in 2018. Mortality has decreased due to medical advances against HIV/AIDS, especially highly active antiretroviral therapy (HAART).

Martin "Marty" Delaney was an advocate for HIV/AIDS treatments. In 1985, he founded Project Inform, an education and public policy advocacy group concerned with HIV and AIDS, and continued to lead the organization until 2008. Delaney's efforts to streamline the US Food and Drug Administration's drug approval process have been credited with saving thousands of people from early AIDS deaths.

The Catholic Church is a major provider of medical care to HIV/AIDS patients. Much of its work takes place in developing countries, although it has also had a presence in the global north. Its opposition to condoms, despite their effectiveness in preventing the spread of HIV, has invited criticism from public health officials and anti-AIDS activists.

Discrimination against people with HIV/AIDS or serophobia is the prejudice, fear, rejection, and stigmatization of people with HIV/AIDS. Marginalized, at-risk groups such as members of the LGBTQ+ community, intravenous drug users, and sex workers are most vulnerable to facing HIV/AIDS discrimination. The consequences of societal stigma against PLHIV are quite severe, as HIV/AIDS discrimination actively hinders access to HIV/AIDS screening and care around the world. Moreover, these negative stigmas become used against members of the LGBTQ+ community in the form of stereotypes held by physicians.

Julio S. G. Montaner is an Argentine-born Canadian physician, professor and researcher. He is the director of the British Columbia Centre for Excellence in HIV/AIDS, the chair in AIDS Research and head of the Division of AIDS in the Faculty of Medicine at the University of British Columbia and the past-president of the International AIDS Society. He is also the director of the John Ruedy Immunodeficiency Clinic, and the Physician Program Director for HIV/AIDS PHC. He is known for his work on HAART, a role in the discovery of triple therapy as an effective treatment for HIV in the late 1990s, and a role in advocating the "Treatment as Prevention" Strategy in the mid-2000s, led by Myron Cohen of the HPTN 052 trial.

<span class="mw-page-title-main">HIV/AIDS activism</span> Social movement advocating for a larger societal response to HIV/AIDS

Socio-political activism to raise awareness about HIV/AIDS as well as to advance the effective treatment and care of people with AIDS (PWAs) has taken place in multiple locations since the 1980s. The evolution of the disease's progress into what's known as the HIV/AIDS pandemic has resulted in various social movements fighting to change both government policies and the broader popular culture inside of different areas. These groups have interacted in a complex fashion with others engaged in related forms of social justice campaigning, with this continuing on to this day.

<span class="mw-page-title-main">Linda Grinberg</span> American film librarian

Linda Gwen Grinberg was an American film librarian and HIV/AIDS activist, based in Los Angeles.

References

  1. Sawyer, Eric (January 27, 2009). "In Memory of Martin Delaney: The Founder of Project Inform". UNAIDS . Retrieved July 17, 2010.
  2. Roehr, Bob (January 27, 2009). "Tribute: HIV Treatment Activist Martin Delaney". Medscape . Retrieved July 17, 2010.
  3. Whiting, Sam (January 25, 2009), "Martin Delaney, HIV patient advocate, dies", San Francisco Chronicle
  4. Kahn, Arthur D. (2005), AIDS, the Winter War: A Testing of America, Bloomington, Indiana: iUniverse, p. 14, ISBN   978-0-595-36637-8
  5. "Linda Grinberg, 51; Film Librarian and Activist against AIDS". The Los Angeles Times. May 30, 2002. p. 23. Retrieved June 7, 2022 via Newspapers.com.