Formation | 1984 |
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Headquarters | San Francisco, California |
Interim Executive Director | David Evans |
Website |
Project Inform is an American advocacy group dedicated to improving the health of and empowering people with HIV and hepatitis C, involving them in the process of developing therapies for the disease, and ending the AIDS pandemic. The organization deliberately focuses its efforts on issues that few other agencies address. Main areas of focus include drug development, bio-medical prevention, education and health care access.
In the years since its founding the work of Project Inform helped to found the community-based HIV research movement, helped to proliferate HIV treatment education and make it available to patients and care providers, and lead a national movement to accelerate approval by the U. S. Food and Drug Administration of critical drugs and other treatments for AIDS. [1] [2] [3]
PI was founded in 1984 by Martin Delaney and Joe Brewer. [4] Linda Grinberg served on the board of Project Inform before her death in 2002, and received the group's Activism Award in 1996. [5]
The AIDS epidemic, caused by HIV, found its way to the United States between the 1970s and 1980s, but was first noticed after doctors discovered clusters of Kaposi's sarcoma and pneumocystis pneumonia in homosexual men in Los Angeles, New York City, and San Francisco in 1981. Treatment of HIV/AIDS is primarily via the use of multiple antiretroviral drugs, and education programs to help people avoid infection.
HIV/AIDS denialism is the belief, despite conclusive evidence to the contrary, that the human immunodeficiency virus (HIV) does not cause acquired immune deficiency syndrome (AIDS). Some of its proponents reject the existence of HIV, while others accept that HIV exists but argue that it is a harmless passenger virus and not the cause of AIDS. Insofar as they acknowledge AIDS as a real disease, they attribute it to some combination of sexual behavior, recreational drugs, malnutrition, poor sanitation, haemophilia, or the effects of the medications used to treat HIV infection (antiretrovirals).
AIDS Coalition to Unleash Power is an international, grassroots political group working to end the AIDS pandemic. The group works to improve the lives of people with AIDS through direct action, medical research, treatment and advocacy, and working to change legislation and public policies.
The Treatment Action Campaign (TAC) is a South African HIV/AIDS activist organisation which was co-founded by the HIV-positive activist Zackie Achmat in 1998. TAC is rooted in the experiences, direct action tactics and anti-apartheid background of its founder. TAC has been credited with forcing the reluctant government of former South African President Thabo Mbeki to begin making antiretroviral drugs available to South Africans.
HIV/AIDS in India is an epidemic. The National AIDS Control Organisation (NACO) estimated that 3.14 million people lived with HIV/AIDS in India in 2023. Despite being home to the world's third-largest population of persons with HIV/AIDS, the AIDS prevalence rate in India is lower than that of many other countries. In 2016, India's AIDS prevalence rate stood at approximately 0.30%—the 80th highest in the world. Treatment of HIV/AIDS is via a combination of antiretroviral drugs and education programs to help people avoid infection.
The situation with the spread of HIV/AIDS in Russia is described by some researchers as an epidemic. The first cases of human immunodeficiency virus infection were recorded in the USSR in 1985-1987. Patient zero is officially considered to be a military interpreter who worked in Tanzania in the early 1980s and was infected by a local man during sexual contact. After 1988—1989 Elista HIV outbreak, the disease became known to the general public and the first AIDS centers were established. In 1995-1996, the virus spread among injecting drug users (IDUs) and soon expanded throughout the country. By 2006, HIV had spread beyond the vulnerable IDU group, endangering their heterosexual partners and potentially the entire population.
The Ryan White Comprehensive AIDS Resources Emergency Act was an act of the United States Congress and is the largest federally funded program in the United States for people living with HIV/AIDS. The act made federal funding available through contingency grants to states for low-income, uninsured, and under-insured people to be treated with the chemotherapeutic drug AZT. The act is named in honor of Ryan White, an Indiana teenager who contracted HIV through a tainted blood transfusion. He was diagnosed with AIDS in 1984 at age 13 and was subsequently expelled from school because of the disease. White became a well-known advocate for AIDS research and awareness until his death in 1990 at age 18.
Whitman-Walker Health (WWH), formerly Whitman-Walker Clinic, is a non-profit community health center in the Washington, D.C. metropolitan area with a special expertise in HIV/AIDS healthcare and LGBT healthcare. Chartered as an affirming health center for the gay and lesbian community in 1978, Whitman-Walker was one of the first responders to the HIV/AIDS epidemic in D.C. and became a leader in HIV/AIDS education, prevention, diagnosis and treatment. In recent years, Whitman-Walker has expanded its services to include primary healthcare services, a stronger focus on queer women's care and youth services.
With less than 0.1 percent of the population estimated to be HIV-positive, Bangladesh is a low HIV-prevalence country.
The Philippines has one of the lowest rates of infection of HIV/AIDS, yet has one of the fastest growing number of cases worldwide. The Philippines is one of seven countries with growth in number of cases of over 25%, from 2001 to 2009.
Honduras is the Central American country most adversely affected by the HIV/AIDS epidemic. It is estimated that the prevalence of HIV among Honduran adults is 1.5%.
With less than 1 percent of the population estimated to be HIV-positive, Egypt is a low-HIV-prevalence country. However, between the years 2006 and 2011, HIV prevalence rates in Egypt increased tenfold. Until 2011, the average number of new cases of HIV in Egypt was 400 per year, but in 2012 and 2013, it increased to about 600 new cases, and in 2014, it reached 880 new cases per year. According to 2016 statistics from UNAIDS, there are about 11,000 people currently living with HIV in Egypt. The Ministry of Health and Population reported in 2020 over 13,000 Egyptians are living with HIV/AIDS. However, unsafe behaviors among most-at-risk populations and limited condom usage among the general population place Egypt at risk of a broader epidemic.
Avert is an international charity that uses digital communications to increase health literacy on HIV and sexual health, among those most affected in areas of greatest need, in order to reduce new infections and improve health and well-being.
HIV/AIDS was first detected in Canada in 1982. In 2018, there were approximately 62,050 people living with HIV/AIDS in Canada. It was estimated that 8,300 people were living with undiagnosed HIV in 2018. Mortality has decreased due to medical advances against HIV/AIDS, especially highly active antiretroviral therapy (HAART).
Martin "Marty" Delaney was an advocate for HIV/AIDS treatments. In 1985, he founded Project Inform, an education and public policy advocacy group concerned with HIV and AIDS, and continued to lead the organization until 2008. Delaney's efforts to streamline the US Food and Drug Administration's drug approval process have been credited with saving thousands of people from early AIDS deaths.
The Catholic Church is a major provider of medical care to HIV/AIDS patients. Much of its work takes place in developing countries, although it has also had a presence in the global north. Its opposition to condoms, despite their effectiveness in preventing the spread of HIV, has invited criticism from public health officials and anti-AIDS activists.
Dawn Averitt is an American HIV/AIDS treatment policy advocate and activist.
Julio S. G. Montaner is an Argentine-born Canadian physician, professor and researcher. He is the director of the British Columbia Centre for Excellence in HIV/AIDS, the chair in AIDS Research and head of the Division of AIDS in the Faculty of Medicine at the University of British Columbia and the past-president of the International AIDS Society. He is also the director of the John Ruedy Immunodeficiency Clinic, and the Physician Program Director for HIV/AIDS PHC. He is known for his work on HAART, a role in the discovery of triple therapy as an effective treatment for HIV in the late 1990s, and a role in advocating the "Treatment as Prevention" Strategy in the mid-2000s, led by Myron Cohen of the HPTN 052 trial.
Socio-political activism to raise awareness about HIV/AIDS as well as to advance the effective treatment and care of people with AIDS (PWAs) has taken place in multiple locations since the 1980s. The evolution of the disease's progress into what's known as the HIV/AIDS pandemic has resulted in various social movements fighting to change both government policies and the broader popular culture inside of different areas. These groups have interacted in a complex fashion with others engaged in related forms of social justice campaigning, with this continuing on to this day.
Linda Gwen Grinberg was an American film librarian and HIV/AIDS activist, based in Los Angeles.