The Autism Community in Action

Last updated
The Autism Community in Action
AbbreviationTACA
FoundedFebruary 13, 2000;24 years ago (2000-02-13)
FounderLisa Ackerman
27-0048002
Legal status 501(c)(3) nonprofit organization
Headquarters Irvine, California, United States [1]
LeaderGlen Ackerman
Volunteers
498
Website www.tacanow.org
Formerly called
Talk About Curing Autism
(until February 2019 [2] )

The Autism Community in Action (TACA) (formerly known as Talk About Curing Autism) is a nonprofit organization founded in 2000 by Lisa Ackerman [3] and based in Irvine, California. The mission statement is "TACA provides education, support and hope to families living with autism". [4] As of 2023, there are 41 chapters of TACA throughout the United States.

Contents

TACA Programming includes Parent Education and Support through Chapter Meetings & Coffee Talks, Education Events, Autism Journey Guides Website & Support Hotline, Community Events, Parent Mentoring, National Conferences in California and Georgia, Webinars, and online parent education. [5]

TACA has been known to support unscientific views on Autism treatment and conspiracy theories. Group founder Lisa Ackerman used to attribute autism to a wide range of causes, urging parents to get rid of flame-retardant clothing or mattresses and new carpeting. She advocated for vitamin shots and hyperbaric oxygen chamber treatments. [6] However, TACA has not been known to market an anti-vaccination or pseudoscience position since around 2018. [7]

History

The TACA began with 10 families in a living room in 2000.

In 2001, TACA established chapters in San Fernando Valley, CA. [8]

In 2002, TACA sent out its first e-newsletter and launched the TACAnow.org website. TACA in Costa Mesa moved to a larger location due to the increasing number of parents attending meetings. The first version of the parent binder became available around this time. It is later renamed the Autism Journey Guide. TACA established two California chapters in the Inland Empire and South Bay. 200,000 of TACA’s “My Child Has Autism” cards are distributed for the first time.

In 2003, Coffee Talk is held at the Cosa Mesa Chapter for the first time.

In 2004, Lisa Ackerman became a full-time volunteer TACA executive director. TACA then established the Visalia and Santa Rosa Chapters. Grandma Sharon and Julie Ward were present at the first Recovered Kids Meeting. The first TACA picnic is held at Camp James in Irvine, CA.

In 2005, TACA’s first family and friends campaign raised $30,000. TACA established the 1st Adopt a Family holiday program.

In 2006, TACA’s first printed newsletter was distributed. Autism Journey Guide and DVD is released. TACA & Jack FM team up for Jack’s first show concert.

In 2007, the first TACA Leadership conference was held. TACA establishes the Los Angeles chapter. 1st Ante Up for Autism raises $370,000. [9]

In 2008, the 2nd Annual Leadership Conference with 60 in attendance takes place. TACA goes nationwide with new chapters in California, Georgia, Hawaii, Illinois, Minnesota, North Dakota, Virginia, Washington and Wisconsin. TACA’s Live Chat is launched at TACAnow.org. [10]

In 2014, TACA joined with six other anti-autism rights organizations to form the Autism Policy Reform Coalition, an umbrella organization dedicated to reverting the provisions of the Autism CARES Act of 2014 so they are the same as those of the Combating Autism Act of 2006. [11]

In 2019, TACA changed their name's abbreviation from Talk About Curing Autism to The Autism Community in Action. [12] This was in part to distance itself with its former reputation. "The Autism Community in Action expresses exactly who we are and what we do," said Lisa Ackerman, co-founder and Executive Director. "While we are changing our name, there will be no change to our programs or services which are provided to the autism community almost entirely at no charge."

More recently, TACA has released news publications to raise awareness to the rates of autism in America, citing a CDC study finding that 1:36 Americans fell within the autism spectrum. [13]

Relationship with the anti-vaccine movement

2000s

Among other critics, David Gorski identified TACA as "a group that promotes the idea that vaccines cause autism, as well as advocates dubious 'biomedical' treatments to 'cure' autism". [14]

TACA was one of the sponsor groups of the Green our Vaccines march in Washington, D.C., on June 4, 2008, along with Generation Rescue.[ citation needed ] Actress and noted anti-vaccine activist Jenny McCarthy and then-boyfriend Jim Carrey were prominently featured at the rally, along with several speakers making specific links between vaccines and autism.[ citation needed ]

2010s

In 2010, when the medical journal The Lancet issued a full retraction of Andrew Wakefield's research paper linking vaccines and autism, Rebecca Estepp, speaking for TACA, insisted she still trusted Wakefield's research. [15] [16]

In 2015, the co-coordinator of TACA's Maryland chapter indicated that even though they question vaccines, her group was not a follower of McCarthy. [17]

2020s

TACA’s stance post-COVID-19 to vaccinations seems to hold a hands-off approach, and have distanced themselves from much of the medical advice they gave in the past. In their FAQ, it states: “TACA supports all families living with autism regardless of vaccine status. […] TACA encourages families to work with their doctor to make the best medical decisions for their families.” [18]

Board of directors

Lisa Ackerman – secretary/executive director
Carolyn Baker – development director
Glen Ackerman – president
Dan Carney – CFO
Keith Banning – director
Elizabeth McCoy – director
Robby Saggu – director
Erich Kreidler – director
Kim Yang-Uk – director
Inna Kassatkina Jones – director
Bill Oldbam – director
Celena Hallstead – director
Cheryl Foster – director [19]

See also

Related Research Articles

Diagnoses of autism have become more frequent since the 1980s, which has led to various controversies about both the cause of autism and the nature of the diagnoses themselves. Whether autism has mainly a genetic or developmental cause, and the degree of coincidence between autism and intellectual disability, are all matters of current scientific controversy as well as inquiry. There is also more sociopolitical debate as to whether autism should be considered a disability on its own.

<span class="mw-page-title-main">Bernard Rimland</span> American psychologist (1928–2006)

Bernard Rimland was an American research psychologist, writer, lecturer, and influential person in the field of developmental disorders. Rimland's first book, Infantile Autism, sparked by the birth of a son who had autism, was instrumental in changing attitudes toward the disorder. Rimland founded and directed two advocacy groups: the Autism Society of America (ASA) and the Autism Research Institute. He promoted several since disproven theories about the causes and treatment of autism, including vaccine denial, facilitated communication, chelation therapy, and false claims of a link between secretin and autism. He also supported the ethically controversial practice of using aversives on autistic children.

Generation Rescue is a nonprofit organization that advocates the scientifically disproven view that autism and related disorders are primarily caused by environmental factors, particularly vaccines. The organization was established in 2005 by Lisa and J.B. Handley. Today, Generation Rescue is known as a platform for Jenny McCarthy's autism related anti-vaccine advocacy.

The thiomersal vaccine controversy centers around public concerns and debates over the safety of thiomersal, a mercury-based preservative used in vaccines, with some fearing it could cause neurological disorders such as autism, despite extensive scientific research showing no credible evidence linking thiomersal to such conditions.

A vaccine adverse event (VAE), sometimes referred to as a vaccine injury, is an adverse event believed to have been caused by vaccination. The World Health Organization (WHO) knows VAEs as Adverse Events Following Immunization (AEFI).

<span class="mw-page-title-main">Jenny McCarthy</span> American actress and model (born 1972)

Jennifer Ann McCarthy-Wahlberg is an American actress, model, and television personality. She began her career in 1993 as a nude model for Playboy magazine and was later named their Playmate of the Year. McCarthy then had a television and film acting career, beginning as a co-host on the MTV game show Singled Out (1995–1997) and afterwards starring in the eponymous sitcom Jenny (1997–1998), as well as films including BASEketball (1998), Scream 3 (2000), Dirty Love (2005), John Tucker Must Die (2006), and Santa Baby (2006). In 2013, she hosted her own television talk show The Jenny McCarthy Show, and became a co-host of the ABC talk show The View, appearing on the program until 2014. Since 2019, McCarthy has been a judge on the Fox musical competition show The Masked Singer.

The Autistic Self Advocacy Network (ASAN) is an American 501(c)(3) nonprofit advocacy organization run by and for individuals on the autism spectrum. ASAN advocates for the inclusion of autistic people in decisions that affect them, including: legislation, depiction in the media, and disability services.

<i>Mother Warriors</i> Book by Jenny McCarthy

Mother Warriors: A Nation of Parents Healing Autism Against All Odds is the fifth book published by New York Times bestselling author, activist and television personality Jenny McCarthy. Her previous book, Louder Than Words, reached #3 on the New York Times bestseller list, and has more than 200,000 hardcovers in print after five printings. Many of McCarthy's assertions within the book, such as that she cured her son's autism and the benefits of chelation are highly disputed within the medical and scientific community, as chelation therapy has been fatal in at least one instance. The foreword was written by her son's pediatrician, Jay Gordon.

<span class="mw-page-title-main">Autism Speaks</span> American advocacy organization

Autism Speaks Inc. is an American non-profit autism awareness organization and the largest autism research organization in the United States. It sponsors autism research and conducts awareness and outreach activities aimed at families, governments, and the public. It was founded in February 2005 by Bob Wright and his wife Suzanne, a year after their grandson Christian was diagnosed with autism. The same year as its founding, the organization merged with Autism Coalition for Research and Education. It then merged with the National Alliance for Autism Research in 2006 and Cure Autism Now in 2007.

<span class="mw-page-title-main">Bruce Lipton</span> American writer and lecturer

Bruce Harold Lipton is an American writer and lecturer whose work has been dismissed by some peers as pseudoscience. By his own admission, Lipton's ideas have not received attention from mainstream science. Lipton has not published original scientific research in a peer-reviewed medical journal in 30 years.

The Autism Science Foundation (ASF) is a non-profit organization that funds evidence-based autism research and supports autism families. The organization was founded in April 2009 by Alison Tepper Singer, a former senior executive of Autism Speaks and the longest-serving public member of the Interagency Autism Coordinating Committee (IACC), and Karen Margulis London, co-founder of the National Alliance for Autism Research. Both Singer and London are parents of autistic children.

Jay N. Gordon is an American pediatrician, lecturer, and author. He is well-known within the anti-vaccine movement for his promotion of vaccine hesitancy. He does encourage vaccinating but at the discretion of the parent. He is also a long-time advocate of breastfeeding; he became a member of the International Health Advisory Council of the La Leche League in 2005.

<i>Vaxxed</i> 2016 anti-vaccination documentary film

Vaxxed: From Cover-Up to Catastrophe is a 2016 American pseudoscience propaganda film alleging a cover-up by the Centers for Disease Control and Prevention (CDC) of a purported link between the MMR vaccine and autism. According to Variety, the film "purports to investigate the claims of a senior scientist at the U.S. Centers for Disease Control and Prevention who revealed that the CDC had allegedly manipulated and destroyed data on an important study about autism and the MMR vaccine"; critics derided Vaxxed as an anti-vaccine propaganda film.

Texans for Vaccine Choice (TFVC) is an anti-vaccine Facebook group turned political action committee in Texas which advocates for personal belief exemptions to vaccination requirements, based on "a collection of fake news, half- truths, and conspiracy theories". Andrew Wakefield, the disgraced former medical researcher and originator of the MMR autism hoax, and infectious disease specialist Peter Hotez, both describe TFVC's lobbying as very effective, with the rate of Texas students opting out of at least one vaccine at least doubling in around five years and over 50,000 Texas schoolchildren not being vaccinated.

CEASE therapy is a pseudoscientific practice used by naturopaths who claim that it can treat or even cure people with autism, claims which have been adjudicated by the UK's Advertising Standards Authority as "bogus". It involves a mixture of supplements, high-dose vitamin C, 'orthomolecular support', dietary restrictions, and homeopathy. The therapy was developed by Dutch doctor Tinus Smits, who claimed to have used it to treat over 300 children with autism. It became more notable in 2017/2018 because of regulatory action taken by professional bodies in The Netherlands, UK, and Canada following a series of complaints about unfounded claims.

Extensive investigation into vaccines and autism has shown that there is no relationship between the two, causal or otherwise, and that vaccine ingredients do not cause autism. Vaccinologist Peter Hotez researched the growth of the false claim and concluded that its spread originated with Andrew Wakefield's fraudulent 1998 paper, with no prior paper supporting a link.

Children's Health Defense (CHD) is an American 501(c)(3) nonprofit activist group mainly known for anti-vaccine disinformation, and which has been called one of the main sources of misinformation on vaccines. Founded under the name World Mercury Project in 2007, it is chaired by Robert F. Kennedy Jr. The group has been campaigning against various public health programs, such as vaccination and fluoridation of drinking water. The group has been contributing to vaccine hesitancy in the United States, encouraging citizens and legislators to support anti-vaccine regulations and legislation. Arguments against vaccination are contradicted by overwhelming scientific consensus about the safety and effectiveness of vaccines. Its $15-million budget is funded through donations from individuals and affiliate marketing revenues.

<span class="mw-page-title-main">Vaccine Choice Canada</span> Canadian anti-vaccination group

Vaccine Choice Canada (VCC) is Canada's main anti-vaccination group. It was founded in the 1980s under the name Vaccination Risk Awareness Network (VRAN) and adopted its current name in 2014. The group has been contributing to vaccine hesitancy in Canada, encouraging citizens to forgo immunization and legislators to support anti-vaccine regulations and legislation.

The New Jersey Coalition for Vaccination Choice (NJCVC) is a state-level anti-vaccination group advocating against mandatory vaccination. Scientists and medical experts have countered many of these statements, arguments against vaccination being contradicted by overwhelming scientific consensus about the safety and efficacy of vaccines.

References

  1. "Return from organization exempt from income tax" (PDF). Guidestar.org. Retrieved October 9, 2017.
  2. The Autism Community in Action (TACA) (February 5, 2019). "Talk About Curing Autism Announces Name Change to The Autism Community in Action". PR Newswire .
  3. "Accomplishments & History". The Autism Community in Action. Retrieved 2019-02-12.
  4. "Who We Are". The Autism Community in Action. Retrieved 2022-04-16.
  5. "The Autism Community in Action (TACA)". Great Nonprofits. Retrieved 2022-04-19.
  6. "As The Facts Win Out, Vaccinations May, Too". NPR. January 9, 2011. Retrieved October 9, 2017.
  7. "Facebook has a surprise for autistic users – it thinks we need to be 'cured'". 27 April 2018. Archived from the original on 2022-12-09. Retrieved 2023-08-02.
  8. "Who We Are". TACA. Archived from the original on 2023-06-10. Retrieved 2023-08-02.
  9. "Problematic Organization: Talk About Curing Autism". Fierce Autie 2. 31 August 2019. Archived from the original on 2022-01-24. Retrieved 2023-08-02.
  10. "In the Autism Wars, she leads with her heart". OCRegister. Archived from the original on 2008-08-03. Retrieved 2023-08-02.
  11. "Autism Policy Reform Coalition". 26 November 2020.
  12. "Talk About Curing Autism Announces Name Change to The Autism Community in Action" (Press release). PR Newswire. Archived from the original on 2019-02-05. Retrieved 2023-08-02.
  13. "Autism Prevalence is Now 1 in 36, Signifying the 18% Increase in Prevalence Rates Reported by the CDC Since 2021". PR Newswire. 2023-03-23. Archived from the original on 2023-08-26. Retrieved 2023-08-26.
  14. Gorski, David (April 30, 2018). "Autism prevalence increases to 1 in 59, and antivaxers lose it...yet again". Science-Based medicine. Archived from the original on February 27, 2019. Retrieved February 27, 2019.
  15. Park, Madison (February 2, 2010). "Medical journal retracts study linking autism to vaccine". CNN . Retrieved October 10, 2017.
  16. Cox, Lauren (February 1, 2010). "Doctor Who Started Vaccine, Autism Debate in Ethics Row". ABC News. Retrieved October 10, 2017.
  17. "Parents with doubts about vaccinations face backlash". Twin Cities Pioneer Press. February 7, 2015. Retrieved October 9, 2017.
  18. "What is TACA's stance on vaccines?". TACA. Archived from the original on 2023-01-26. Retrieved 2023-08-02.
  19. "2022 Form 990" (PDF). TACA. Retrieved 2023-12-05.