The Michael J. Fox Foundation

Last updated
The Michael J. Fox Foundation for Parkinson's Research
AbbreviationMJFF
FoundedOctober 31, 2000;24 years ago (2000-10-31) [1]
Founder Michael J. Fox
13-4141945 [2]
Legal status 501(c)(3) Non-profit
PurposeFunding research for better treatments and a cure for Parkinson's disease [2]
Headquarters New York City [2]
Fields Parkinson's disease clinical research
Skip Irving [3]
Deborah W. Brooks [4]
AffiliationsMJFF Canada [2]
Website michaeljfox.org

The Michael J. Fox Foundation for Parkinson's Research is a US non-profit organization founded in 2000 by Canadian-American actor Michael J. Fox to find treatments [5] and a cure for Parkinson's disease.

Contents

Business model

The organization funds grants directly to scientists it assesses as having the best chance of finding a cure. [4] It maintains closer control over and supervision of projects than is typical from other medical-research foundations. [4] [6]

Fundraising

In 2006 it was the "largest private funder of research" into Parkinson's, according to The Guardian . [7] As of 2023, it had raised $2 billion for Parkinson's research projects. [8] [4] According to Town and Country, in 2022 the organization funded more Parkinson's research than the US government. [4] According to Fox Business , it is the largest nonprofit funder of Parkinson's research in the world. [9]

Work

In 2023, a longitudinal study funded by the organization, the Parkinson's Progression Markers Initiative, released results in Lancet Neurology showing Parkinson's can be detected by the presence of a biomarker protein, abnormal alpha-synuclein. [4] [10] [11] [12] The biomarker can be detected before the onset of symptoms. [13]

The organization hosts the Fox Trial Finder, a website for presenting clinical trials in Parkinson's disease research. [14]

References

  1. ↑ "The Michael J. Fox Foundation for Parkinson's Research Archived 2016-09-20 at the Wayback Machine ". Division of Corporations. Delaware Department of State. Accessed on May 18, 2016.
  2. 1 2 3 4 "Form 990: Return of Organization Exempt from Income Tax" (PDF). The Michael J. Fox Foundation for Parkinson's Research. December 31, 2014 – via Guidestar.
  3. ↑ "Skip Irving | Parkinson's Disease". www.michaeljfox.org. Archived from the original on 2022-12-26. Retrieved 2022-12-26.
  4. 1 2 3 4 5 6 Goldman, Andrew (2023-11-02). "Michael J. Fox Didn't Get Mad, He Got Motivated". Town & Country Magazine . Retrieved 2024-01-20.
  5. ↑ Polinski, Nicole K. Polinski (20 Dec 2023). "The Michael J. Fox Foundation's quest for a cure for Parkinson's disease: an interview with Nicole Polinski". Disease Models & Mechanisms. 16 (12) dmm050605. doi:10.1242/dmm.050605. PMC   10753186 . PMID   38116678.
  6. ↑ Piller, Charles (2016-08-30). "As Parkinson's patients wait, Fox Foundation and scientist feud over drug trial". Stat . Retrieved 2024-01-20.
  7. ↑ Pilkington, Ed (October 20, 2006). "Radio host apologises for claim Michael J Fox faked symptoms". The Guardian .
  8. ↑ Burleson, Nate; Breen, Kerry (November 9, 2023). "Michael J. Fox talks funding breakthrough research for Parkinson's disease". CBS News. Archived from the original on November 24, 2023. Retrieved January 20, 2024.
  9. ↑ Genovese, Daniella (2019-09-30). "Billionaire Ken Griffin, Michael J. Fox Foundation stage $10M competition for 'game-changing' Parkinson's research". Fox Business . Retrieved 2024-01-20.
  10. ↑ Hodgson, J. L. (2023-04-17). "Michael J. Fox's foundation finds groundbreaking discovery about Parkinson's". Diario AS . Retrieved 2024-01-20.
  11. ↑ Schnell, Mychael (2021-12-02). "Michael J. Fox Foundation studying early signs of Parkinson's disease". The Hill . Retrieved 2024-01-20.
  12. ↑ Paynter, Ben (9 May 2018). "Michael J. Fox's Foundation Is Using This Alphabet Smartwatch To Research Parkinson's". Fast Company .
  13. ↑ Michaud, Mark. "What You Need to Know about the New Parkinson's Biomarker". University of Rochester Medical Center . Retrieved 2024-01-20.
  14. ↑ Weiner, Michael W.; Nosheny, Rachel; Camacho, Monica; Truran-Sacrey, Diana; Mackin, R. Scott; Flenniken, Derek; Ulbricht, Aaron; Insel, Philip; Finley, Shannon; Fockler, Juliet; Veitch, Dallas (August 2018). "The Brain Health Registry: An internet-based platform for recruitment, assessment, and longitudinal monitoring of participants for neuroscience studies". Alzheimer's & Dementia . 14 (8): 1063–1076. doi:10.1016/j.jalz.2018.02.021. ISSN   1552-5260. PMC   6126911 . PMID   29754989.
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