A major contributor to this article appears to have a close connection with its subject.(September 2019) |
Purpose | To improve the quality of life of the U.S. Chinese population through education, research, and sustainable community-engagement. |
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Location |
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Methods | Community-based participatory research |
Official language | English, Mandarin, Cantonese, Taishanese, Teochew |
Main organ | Chinese Health, Aging, and Policy Program, Rush Institute for Healthy Aging, Rush University Medical Center |
Affiliations | Northwestern University, Chinese American Service League, Xilin Asian Community Center |
Budget | NIH funded |
Website | chinesehealthyaging |
The PIETY Study is a U.S. longitudinal study of Chinese families derived from the PINE Study. [1] [ predatory publisher ] It is the product of a synergistic collaboration between the Chinese Health, Aging, and Policy Program (CHAP) at Rush University, Northwestern University, and many community-based organizations and social service providers. This academic-community partnership is led by XinQi Dong MD, MPH, at Rush University, Melissa A Simon, MD, MPH, at Northwestern University, and Esther Wong, ACSW and Bernarda Wong, ACSW, at Chinese American Service League. [2]
The goal of the PIETY Study is to better understand the health and well-being of Chinese adult children, and understand the factors impacting the health and aging of Chinese older adults from the perspectives and experiences of adult children. [3]
Since 2011, more than 4,000 face-to-face interviews were conducted. Each interview was personalized according to languages or dialects the participant preferred, including English, Mandarin, Cantonese, Toishanese, and Teochew. [1]
The population of U.S. Chinese adults aged 65 and above has increased four times quicker than the general U.S. older adult population. [4] This rapid growth means there is an increasing demand for elder care within Chinese families. Traditionally, family-oriented values influence the planning and organization of elder care in Chinese families. Filial piety prescribes that adult children are obligated to provide adequate support to their elderly parents. This demand and cultural precedent calls for a better research understanding of Chinese adult children as family caregivers. [3]
Current data collection efforts mostly aggregate Asian as a single category, and therefore social and health data regarding Chinese Americans as specific ethnic group have been scarce. Moreover, conceptual frameworks that have been used in prior research were developed based on Western populations, failing to identify the importance of cultural values within minority populations. In light of those factors, the knowledge of culture and caregiving within Chinese families was rudimentarily understood. Without a full understanding, public health and policy goals remain under-developed to adequately support the family caregiving practices of Chinese adult children. With this mission in mind, the PIETY Study is built to understand the health and well-being of Chinese families in the Chicago metropolitan area. [3]
The PIETY Study is a community-based participatory population study investigating Chinese adult Children, who lives in the Chicago area. The criteria of participation are:
Data collection is through face-to-face interviews using the website-based application. The survey is composed of questionnaires and qualitative questions, which capture adult children's perspectives on the topics regarding filial piety and caregiving. [1]
The data collected from the PIETY Study show that Chinese American adult children confront significant life and health challenges in providing care for their aging parents due to multiple social, structural, cultural and linguistic barriers. Nevertheless, these health challenges also represent tremendous opportunities for family members, community stakeholders, researchers, health professionals, social service agencies, and policy makers to work in concert to improve the health and well-being of all Chinese Americans. [3]
Longitudinal studies are needed to better understand changes of biological, behavioral, familial, social, and cultural factors over time. Currently, the PIETY Study is undergoing the second wave of data collection. The third wave is starting in 2017 to examine how the health and intergenerational relationships of Chinese adults change, in order to better understand the causes of certain health outcomes. [3] [7]
The one-child policy was a population planning initiative in China implemented between 1979 and 2015 to curb the country's population growth by restricting many families to a single child. The program had wide-ranging social, cultural, economic, and demographic effects, although the contribution of one-child restrictions to the broader program has been the subject of controversy. Its efficacy in reducing birth rates and defensibility from a human rights perspective have been subjects of controversy.
Grandparents, individually known as grandmother and grandfather, are the parents of a person's father or mother – paternal or maternal. Every sexually-reproducing living organism who is not a genetic chimera has a maximum of four genetic grandparents, eight genetic great-grandparents, sixteen genetic great-great-grandparents, thirty-two genetic great-great-great-grandparents, sixty-four genetic great-great-great-great grandparents, etc. In the history of modern humanity, around 30,000 years ago, the number of modern humans who lived to be a grandparent increased. It is not known for certain what spurred this increase in longevity, but it is generally believed that a key consequence of three generations being alive together was the preservation of information which could otherwise have been lost; an example of this important information might have been where to find water in times of drought.
Attachment theory is a psychological, evolutionary and ethological theory concerning relationships between humans. The most important tenet is that young children need to develop a relationship with at least one primary caregiver for normal social and emotional development. The theory was formulated by psychiatrist and psychoanalyst John Bowlby.
In Confucianism, Chinese Buddhism, and Daoist ethics, filial piety is a virtue of respect for one's parents, elders, and ancestors. The Confucian Classic of Filial Piety, thought to be written around the late Warring States-Qin-Han period, has historically been the authoritative source on the Confucian tenet of filial piety. The book—a purported dialogue between Confucius and his student Zengzi—is about how to set up a good society using the principle of filial piety. Filial piety is central to Confucian role ethics.
A form of child abuse, child neglect is an act of caregivers that results in depriving a child of their basic needs, such as the failure to provide adequate supervision, health care, clothing, or housing, as well as other physical, emotional, social, educational, and safety needs. All societies have established that there are necessary behaviours a caregiver must provide for a child to develop physically, socially, and emotionally. Causes of neglect may result from several parenting problems including mental disorders, unplanned pregnancy, substance use disorder, unemployment, over employment, domestic violence, and, in special cases, poverty.
A stay-at-home dad is a father who is the main caregiver of the children and is generally the homemaker of the household. The female equivalent is the stay-at home-mom or housewife. As families have evolved, the practice of being a stay-at-home dad has become more common and socially acceptable. Pre-industrialization, the family worked together as a unit and was self-sufficient. When affection-based marriages emerged in the 1830s, parents began devoting more attention to children and family relationships became more open. Beginning with the Industrial Revolution, mass production replaced the manufacturing of home goods; this shift, coupled with prevailing norms governing sex or gender roles, dictated that the man become the breadwinner and the mother the caregiver of their children.
Kinship care is a term used in the United States and Great Britain for the raising of children by grandparents, other extended family members, and unrelated adults with whom they have a close family-like relationship such as godparents and close family friends because biological parents are unable to do so for whatever reason. Legal custody of a child may or may not be involved, and the child may be related by blood, marriage, or adoption. This arrangement is also known as "kincare" or "relative care." Kinship placement may reduce the number of home placements children experience; allow children to maintain connections to communities, schools, and family members; and increase the likelihood of eventual reunification with birth parents. It is less costly to taxpayers than formal foster care and keeps many children out of the foster care system. "Grandfamily" is a recently coined term in the United States that refers to families engaged in kinship care.
The little emperor syndrome is an aspect or view of Mainland China's one-child policy where children of the modern upper class and wealthier Chinese families gain seemingly excessive amounts of attention from their parents and grandparents. Combined with increased spending power within the family unit due to China's growing economic strength, and parents' general desire for their child to experience the benefits they themselves were denied, the phenomenon is generally considered to be controversial. The British journalist Andrew Marshall even argues that it is shaping modern Chinese society in unexpected ways that may culminate into a future "behavioral time-bomb".
A caregiver, carer or support worker is a paid or unpaid member of a person's social network who helps them with activities of daily living. Since they have no specific professional training, they are often described as informal caregivers. Caregivers most commonly assist with impairments related to old age, disability, a disease, or a mental disorder.
Family caregivers are “relatives, friends, or neighbors who provide assistance related to an underlying physical or mental disability for at-home care delivery and assist in the activities of daily living (ADLs) who are unpaid and have no formal training to provide those services.”
Caregiver syndrome or caregiver stress is a condition that strongly manifests exhaustion, anger, rage, or guilt resulting from unrelieved caring for a chronically ill patient. This condition is not listed in the United States' Diagnostic and Statistical Manual of Mental Disorders, although the term is often used by many healthcare professionals in that country. The equivalent used in many other countries, the ICD-11, does include the condition.
An informal or primary caregiver is an individual in a cancer patient's life that provides unpaid assistance and cancer-related care. Due to the typically late onset of cancer, caregivers are often the spouses and/or children of patients, but may also be parents, other family members, or close friends. Informal caregivers are a major form of support for the cancer patient because they provide most care outside of the hospital environment. This support includes:
The Future of Families and Child Wellbeing Study (FFCWS) is a longitudinal birth cohort study of American families. Formerly known as the Fragile Families and Child Wellbeing Study, the study’s name was changed in January 2023.
In the United States there are approximately 50 million people who are caring at home for family members including elderly parents, and spouses and children with disabilities and/or chronic illnesses. Without this home-care, most of these cared for would require permanent placement in institutions or health care facilities.
The motherhood penalty is a term coined by sociologists who argue that in the workplace, working mothers encounter disadvantages in pay, perceived competence, and benefits relative to childless women. Specifically, women may suffer a per-child wage penalty, resulting in a pay gap between non-mothers and mothers that is larger than the gap between men and women. Mothers may also suffer worse job-site evaluations indicating that they are less committed to their jobs, less dependable, and less authoritative than non-mothers. Thus, mothers may experience disadvantages in terms of hiring, pay, and daily job experience. The motherhood penalty is not limited to one simple cause but can rather be linked to many theories and societal perceptions. However, one prominent theory that can be consistently linked to this penalty is the work-effort theory. It is also based on the mother's intersectionality. There are many effects developed from the motherhood penalty including wage, hiring, and promotion penalties. These effects are not limited to the United States and have been documented in over a dozen other industrialized nations including Japan, South Korea, The United Kingdom, The Netherlands, Poland, and Australia. The penalty has not shown any signs of declining over time.
Caregiving by country is the regional variation of caregiving practices as distinguished among countries.
The Population Study of ChINese Elderly (PINE) Study is a collaborative effort between the Chinese Health, Aging, and Policy Program at Rutgers University, Northwestern University and several community services organizations, including Chinese American Service League, Midwest Asian Health Association (MAHA) and Xilin Asian Community Center as the main community partners. This synergistic academic-community partnership is led by XinQi Dong MD, MPH, at Rutgers University, Melissa A Simon, MD, MPH, Esther Wong, ACSW, Bernarda Wong, ACSW, and utilizes a community-based participatory research approach.
Caregiver burden is the stress which is perceived by caregivers due to the home care situation. The subjective burden is considered to be one of the most important predictors of negative outcomes from the home care situation.
XinQi Dong is a doctor of medicine in geriatric medicine and internal medicine, and President and CEO of the Institute for Population Health Sciences.Founded in 2022, the Institute for Population Health Sciences (IPHS) seeks to advance population health sciences through scientific research, adaptive training and coaching, and partnership development to improve health and wellbeing of diverse populations.
Filial piety has been an important aspect of Buddhist ethics since early Buddhism, and was essential in the apologetics and texts of Chinese Buddhism. In the Early Buddhist Texts such as the Nikāyas and Āgamas, filial piety is prescribed and practiced in three ways: to repay the gratitude toward one's parents; as a good karma or merit; and as a way to contribute to and sustain the social order. In Buddhist scriptures, narratives are given of the Buddha and his disciples practicing filial piety toward their parents, based on the qualities of gratitude and reciprocity. Initially, scholars of Buddhism like Kenneth Ch'en saw Buddhist teachings on filial piety as a distinct feature of Chinese Buddhism. Later scholarship, led by people such as John Strong and Gregory Schopen, has come to believe that filial piety was part of Buddhist doctrine since early times. Strong and Schopen have provided epigraphical and textual evidence to show that early Buddhist laypeople, monks and nuns often displayed strong devotion to their parents, concluding that filial piety was already an important part of the devotional life of early Buddhists.