The Tick-Borne Disease Alliance (TBDA) was a US national not-for-profit charity that was dedicated to raising awareness, supporting initiatives and promoting advocacy to find a cure for tick-borne diseases, including Lyme.
TBDA was formed in the spring of 2012by Staci Grodin, the co-founder of the Turn the Corner Foundation, and David Roth, the co-founder of the Tick-Borne Disease Initiative. Roth has stated that he knew very little about Lyme disease or any other tick-borne diseases until he was diagnosed with Lyme himself, motivating him to raise awareness and increase funding for diagnostic testing.
Lyme disease, also known as Lyme borreliosis, is an infectious disease caused by a bacterium named Borrelia spread by ticks. The most common sign of infection is an expanding area of redness on the skin, known as erythema migrans, that appears at the site of the tick bite about a week after it occurred. The rash is typically neither itchy nor painful. Approximately 70–80% of infected people develop a rash. Other early symptoms may include fever, headache and tiredness. If untreated, symptoms may include loss of the ability to move one or both sides of the face, joint pains, severe headaches with neck stiffness, or heart palpitations, among others. Months to years later, repeated episodes of joint pain and swelling may occur. Occasionally, people develop shooting pains or tingling in their arms and legs. Despite appropriate treatment, about 10 to 20% of people develop joint pains, memory problems, and tiredness for at least six months.
In 2013, TBDA launched the Bite Back for a Cure campaign, a national grassroots campaign to build support for the fight against tick-borne diseases through raising awareness and through supporting tick-borne disease research. Candice Accola, star of The Vampire Diaries , is a spokesperson.
The Vampire Diaries is an American supernatural teen drama television series developed by Kevin Williamson and Julie Plec, based on the popular book series of the same name written by L. J. Smith. The series premiered on The CW on September 10, 2009, and concluded on March 10, 2017, airing 171 episodes over eight seasons.
TBDA held its first annual gala on May 16, 2012, at Chelsea Piers in New York City. The benefit helped support TBDA's public awareness and advocacy campaign, and helped raise money for research to find an accurate diagnostic tool.On May 2, 2013, TBDA held the Tick-Borne Disease Alliance 2nd Annual Benefit, also at Chelsea Piers. Candice Accola was the host.
Chelsea Piers is a series of piers in Chelsea, on the West Side of Manhattan in New York City. Located to the west of the West Side Highway and Hudson River Park and to the east of the Hudson River, they were originally a passenger ship terminal in the early 1900s that was used by the RMS Lusitania and was the destination of the RMS Titanic. The piers replaced a hodgepodge of run-down waterfront structures with a row of grand buildings embellished with pink granite facades.
On March 11, 2013, TBDA hosted a forum with U.S. Senators Kirsten Gillibrand (D-N.Y.), Richard Blumenthal (D-CT) and Congressman Chris Gibson (R-NY) at Weill Cornell Medical College in New York City to discuss the fight against the silent epidemic of tick-borne diseases, including Lyme disease. Gillibrand, Blumenthal, Weill Cornell Medical College's dean Dr. Laurie H. Glimcher and co-chairman of TBDA David Roth were distinguished speakers at the forum.
Kirsten Elizabeth Gillibrand is an American attorney and politician serving as the junior United States Senator from New York since 2009. A member of the Democratic Party, she previously served as U.S. Representative for New York's 20th congressional district from 2007 to 2009.
Richard L. Blumenthal is an American attorney and politician who has served as a United States Senator from Connecticut since 2011. He is a member of the Democratic Party. He has been the state's senior senator since 2013 and is ranked as the second wealthiest member of the Senate, with a net worth of about $67 million. Previously, he served as Attorney General of Connecticut from 1991 to 2011.
In February 2014, TBDA merged with the Stamford-based Lyme Research Alliance to form a new charity, the Global Lyme Alliance.
Tick-borne encephalitis (TBE) is a viral infectious disease involving the central nervous system. The disease most often manifests as meningitis, encephalitis, or meningoencephalitis. Long-lasting or permanent neuropsychiatric consequences are observed in 10 to 20% of infected patients.
The New York 20th congressional district election for the 110th Congress was held on November 7, 2006. Incumbent John E. Sweeney was the nominee for the Republican Party, while attorney Kirsten Gillibrand was the nominee for the Democratic Party. Gillibrand defeated Sweeney with 53% of the vote.
Wilhelm "Willy" Burgdorfer was an American scientist born and educated in Basel, Switzerland, considered an international leader in the field of medical entomology. He discovered the bacterial pathogen that causes Lyme disease, a spirochete named Borrelia burgdorferi in his honor.
The Siberian chipmunk or common chipmunk appears across northern Asia from central Russia to China, Korea, and Hokkaidō in northern Japan. The Siberian chipmunk was imported from South Korea and introduced in Europe as a pet in the 1960s. It is the only chipmunk found outside North America, and this animal is classed either as the only living member of the genus Eutamias, or as a member of a genus including all chipmunks.
Babesia, also called Nuttallia, is an Apicomplexan parasite that infects red blood cells, transmitted by ticks. Originally discovered by the Romanian bacteriologist Victor Babeș, over 100 species of Babesia have since been identified.
The Infectious Diseases Society of America (IDSA) is a medical association representing physicians, scientists and other health care professionals who specialize in infectious diseases. It was founded in 1963 and is based in Arlington, Virginia. As of 2013, IDSA had more than 9,000 members from across the United States and nearly 100 other countries on six different continents. IDSA's purpose is to improve the health of individuals, communities, and society by promoting excellence in patient care, education, research, public health, and prevention relating to infectious diseases.
Powassan virus is a flavivirus transmitted by ticks, found in North America and in the Russian Far East. It is named after the town of Powassan, Ontario, where it was identified in a young boy who eventually died from it. It can cause encephalitis, an infection of the brain. No vaccine or antiviral drug exists. Prevention of tick bites is the best precaution.
Lyme disease, or borreliosis, is caused by spirochetal bacteria from the genus Borrelia, which has 52 known species. Three main species are the main causative agents of the disease in humans, while a number of others have been implicated as possibly pathogenic. Borrelia species in the species complex known to cause Lyme disease are collectively called Borrelia burgdorferisensu lato (s.l.) not to be confused with the single species in that complex Borrelia burgdorferi sensu stricto which is responsible for all cases of Lyme disease in North America.
The Arthritis Foundation is a nonprofit organization that is dedicated to addressing the needs of people living with arthritis in the United States. There are more than 50 million adults and 300,000 children living with arthritis, the nation’s leading cause of disability. The Foundation works to provide information and resources, access to care, advancements in science and community connections.
Allen Caruthers Steere is a professor of rheumatology at Harvard University and previously at Tufts University and Yale University. Steere and his colleague, Stephen Malawista of Yale University, are credited with discovering and naming Lyme disease, and he published almost 200 scholarly articles on Lyme disease between 1977 and 2007. At a ceremony in Hartford, Connecticut in 1998, Governor John G. Rowland declared September 24 to be "Allen C. Steere Day."
In epidemiology, a disease vector is any agent who carries and transmits an infectious pathogen into another living organism; most agents regarded as vectors are organisms, such as intermediate parasites or microbes, but it could be an inanimate medium of infection such as dust particles.
Under Our Skin: The Untold Story of Lyme Disease is a 2008 film promoting "chronic Lyme disease", a controversial and unrecognized diagnosis. The film was directed by Andy Abrahams Wilson, who became interested in the subject after his sister identified as a "chronic Lyme" patient. The film had its theatrical premiere on June 19, 2009 at the IFC Center in New York City.
The brown dog tick, commonly called kennel tick, or pan-tropical dog tick, is a species of tick which is found worldwide, but more commonly in warmer climates. This species is unusual among ticks in that its entire life cycle can be completed indoors.
The 2010 United States Senate special election in New York took place on November 2, 2010, concurrently with other elections to the United States Senate in other states as well as elections to the United States House of Representatives and various state and local elections. Governor David Paterson had appointed Kirsten Gillibrand to serve as United States Senator from New York until the 2010 special election, replacing former Senator Hillary Clinton, who resigned to serve as Secretary of State in the Barack Obama administration. The winner of the special election was to complete the term ending in January 2013. The special election took place concurrently with the regular election for the Senate seat held by Charles Schumer and the 2010 New York gubernatorial election.
Kirsten Gillibrand is the junior United States Senator from New York and a member of the Democratic Party. Formerly a member of the United States House of Representatives from the generally conservative 20th congressional district, she was appointed to the Senate in 2009, representing a generally liberal state.
Chronic Lyme disease is a generally rejected diagnosis that encompasses "a broad array of illnesses or symptom complexes for which there is no reproducible or convincing scientific evidence of any relationship to Borrelia burgdorferi infection." Despite numerous studies, there is no clinical evidence that "chronic" Lyme disease is caused by a persistent infection. It is distinct from post-treatment Lyme disease syndrome, a set of lingering symptoms which may persist after successful treatment of infection with Lyme spirochetes. The symptoms of "chronic Lyme" are generic and non-specific "symptoms of life".
The 2020 Iowa caucuses are expected to be the first votes of that year's U.S. presidential cycle and are currently scheduled to take place on February 3, 2020.