Tick-Borne Disease Alliance

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The Tick-Borne Disease Alliance (TBDA) was a US national not-for-profit charity that was dedicated to raising awareness, supporting initiatives and promoting advocacy to find a cure for tick-borne diseases, including Lyme. [1]

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TBDA was formed in the spring of 2012 [2] by Staci Grodin, the co-founder of the Turn the Corner Foundation, and David Roth, the co-founder of the Tick-Borne Disease Initiative. Roth has stated that he knew very little about Lyme disease or any other tick-borne diseases until he was diagnosed with Lyme himself, motivating him to raise awareness and increase funding for diagnostic testing. [3]

Lyme disease infectious disease caused by Borrelia bacteria, spread by ticks

Lyme disease, also known as Lyme borreliosis, is an infectious disease caused by a bacterium named Borrelia spread by ticks. The most common sign of infection is an expanding area of redness on the skin, known as erythema migrans, that appears at the site of the tick bite about a week after it occurred. The rash is typically neither itchy nor painful. Approximately 70–80% of infected people develop a rash. Other early symptoms may include fever, headache and tiredness. If untreated, symptoms may include loss of the ability to move one or both sides of the face, joint pains, severe headaches with neck stiffness, or heart palpitations, among others. Months to years later, repeated episodes of joint pain and swelling may occur. Occasionally, people develop shooting pains or tingling in their arms and legs. Despite appropriate treatment, about 10 to 20% of people develop joint pains, memory problems, and tiredness for at least six months.

Bite Back for a Cure

In 2013, TBDA launched the Bite Back for a Cure campaign, a national grassroots campaign to build support for the fight against tick-borne diseases through raising awareness and through supporting tick-borne disease research. Candice Accola, star of The Vampire Diaries , is a spokesperson. [4]

<i>The Vampire Diaries</i> American television series

The Vampire Diaries is an American supernatural teen drama television series developed by Kevin Williamson and Julie Plec, based on the popular book series of the same name written by L. J. Smith. The series premiered on The CW on September 10, 2009, and concluded on March 10, 2017, airing 171 episodes over eight seasons.

Fundraising

TBDA held its first annual gala on May 16, 2012, at Chelsea Piers in New York City. The benefit helped support TBDA's public awareness and advocacy campaign, and helped raise money for research to find an accurate diagnostic tool. [5] On May 2, 2013, TBDA held the Tick-Borne Disease Alliance 2nd Annual Benefit, also at Chelsea Piers. Candice Accola was the host. [6]

Chelsea Piers architectural structure

Chelsea Piers is a series of piers in Chelsea, on the West Side of Manhattan in New York City. Located to the west of the West Side Highway and Hudson River Park and to the east of the Hudson River, they were originally a passenger ship terminal in the early 1900s that was used by the RMS Lusitania and was the destination of the RMS Titanic. The piers replaced a hodgepodge of run-down waterfront structures with a row of grand buildings embellished with pink granite facades.

Advocacy

On March 11, 2013, TBDA hosted a forum with U.S. Senators Kirsten Gillibrand (D-N.Y.), Richard Blumenthal (D-CT) and Congressman Chris Gibson (R-NY) at Weill Cornell Medical College in New York City to discuss the fight against the silent epidemic of tick-borne diseases, including Lyme disease. Gillibrand, Blumenthal, Weill Cornell Medical College's dean Dr. Laurie H. Glimcher and co-chairman of TBDA David Roth were distinguished speakers at the forum. [7]

Kirsten Gillibrand United States Senator from New York

Kirsten Elizabeth Gillibrand is an American attorney and politician serving as the junior United States Senator from New York since 2009. A member of the Democratic Party, she previously served as U.S. Representative for New York's 20th congressional district from 2007 to 2009.

Richard Blumenthal American politician

Richard L. Blumenthal is an American attorney and politician who has served as a United States Senator from Connecticut since 2011. He is a member of the Democratic Party. He has been the state's senior senator since 2013 and is ranked as the second wealthiest member of the Senate, with a net worth of about $67 million. Previously, he served as Attorney General of Connecticut from 1991 to 2011.

Merger

In February 2014, TBDA merged with the Stamford-based Lyme Research Alliance to form a new charity, the Global Lyme Alliance. [8]

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