Tick-Borne Disease Alliance

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The Tick-Borne Disease Alliance (TBDA) was a US national not-for-profit charity that was dedicated to raising awareness, supporting initiatives and promoting advocacy to find a cure for tick-borne diseases, including Lyme. [1]

Contents

TBDA was formed in the spring of 2012 [2] by Staci Grodin, the co-founder of the Turn the Corner Foundation, and David Roth, the co-founder of the Tick-Borne Disease Initiative. Roth has stated that he knew very little about Lyme disease or any other tick-borne diseases until he was diagnosed with Lyme himself, motivating him to raise awareness and increase funding for diagnostic testing. [3]

Bite Back for a Cure

In 2013, TBDA launched the Bite Back for a Cure campaign, a national grassroots campaign to build support for the fight against tick-borne diseases through raising awareness and through supporting tick-borne disease research. Candice Accola, star of The Vampire Diaries , is a spokesperson. [4]

Fundraising

TBDA held its first annual gala on May 16, 2012, at Chelsea Piers in New York City. The benefit helped support TBDA's public awareness and advocacy campaign, and helped raise money for research to find an accurate diagnostic tool. [5] On May 2, 2013, TBDA held the Tick-Borne Disease Alliance 2nd Annual Benefit, also at Chelsea Piers. Candice Accola was the host. [6]

Advocacy

On March 11, 2013, TBDA hosted a forum with U.S. Senators Kirsten Gillibrand (D-N.Y.), Richard Blumenthal (D-CT) and Congressman Chris Gibson (R-NY) at Weill Cornell Medical College in New York City to discuss the fight against the silent epidemic of tick-borne diseases, including Lyme disease. Gillibrand, Blumenthal, Weill Cornell Medical College's dean Dr. Laurie H. Glimcher and co-chairman of TBDA David Roth were distinguished speakers at the forum. [7]

Merger

In February 2014, TBDA merged with the Stamford-based Lyme Research Alliance to form a new charity, the Global Lyme Alliance. [8] The GLA has been criticized for promoting the pseudoscientific diagnosis of chronic Lyme disease, with David Gorski of Science-Based Medicine commenting the Alliance "appears very much into chronic Lyme disease woo." [9]

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Lyme disease Infectious disease caused by Borrelia bacteria, spread by ticks

Lyme disease, also known as Lyme borreliosis, is an infectious disease caused by the Borrelia bacterium which is spread by ticks. The most common sign of infection is an expanding red rash, known as erythema migrans, that appears at the site of the tick bite about a week after it occurred. The rash is typically neither itchy nor painful. Approximately 70–80% of infected people develop a rash. Other early symptoms may include fever, headache and tiredness. If untreated, symptoms may include loss of the ability to move one or both sides of the face, joint pains, severe headaches with neck stiffness, or heart palpitations, among others. Months to years later, repeated episodes of joint pain and swelling may occur. Occasionally, people develop shooting pains or tingling in their arms and legs. Despite appropriate treatment, about 10 to 20% of people develop joint pains, memory problems, and tiredness for at least six months.

<i>Borrelia burgdorferi</i> Species of bacteria

Borrelia burgdorferi is a bacterial species of the spirochete class of the genus Borrelia. B. burgdorferi exists in North America and Europe and until 2016 was the only known cause of Lyme disease in North America. Borrelia species are considered gram-negative.

Relapsing fever is a vector-borne disease caused by infection with certain bacteria in the genus Borrelia, which is transmitted through the bites of lice or soft-bodied ticks.

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<i>Ixodes scapularis</i> Species of tick

Ixodes scapularis is commonly known as the deer tick or black-legged tick, and in some parts of the US as the bear tick. It is a hard-bodied tick found in the eastern and northern Midwest of the United States as well as in southeastern Canada. It is a vector for several diseases of animals, including humans and is known as the deer tick owing to its habit of parasitizing the white-tailed deer. It is also known to parasitize mice, lizards, migratory birds, etc. especially while the tick is in the larval or nymphal stage.

Allen Caruthers Steere is a professor of rheumatology at Harvard University and previously at Tufts University and Yale University. Steere and his mentor, Stephen Malawista of Yale University, are credited with discovering and naming Lyme disease, and he has published almost 300 scholarly articles on Lyme disease during his more than 40 years of studies of this infection. At a ceremony in Hartford, Connecticut in 1998, Governor John G. Rowland declared September 24 to be "Allen C. Steere Day."

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<i>Rhipicephalus sanguineus</i> Species of species of tick found worldwide

Rhipicephalus sanguineus, commonly called the brown dog tick, kennel tick, or pantropical dog tick, is a species of tick found worldwide, but more commonly in warmer climates. This species is unusual among ticks in that its entire lifecycle can be completed indoors. The brown dog tick is easily recognized by its reddish-brown color, elongated body shape, and hexagonal basis capituli. Adults are 2.28 to 3.18 mm in length and 1.11 to 1.68 mm in width. They do not have ornamentation on their backs.

Rocky Mountain Laboratories

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<i>Ixodes hexagonus</i> Species of tick

Ixodes hexagonus, also known by the common name hedgehog tick, is a tick species in the genus Ixodes. It is a parasite of the European hedgehog.

Laurie Hollis Glimcher is an American physician-scientist who was appointed president and CEO of Dana-Farber Cancer Institute in October 2016. She was elected a Member of the American Philosophical Society in 2019.

Chronic Lyme disease (CLD) is the name used by some people with "a broad array of illnesses or symptom complexes for which there is no reproducible or convincing scientific evidence of any relationship to Borrelia burgdorferi infection" to describe their condition and their beliefs about its cause. Both the label and the belief that these people's symptoms are caused by this particular infection are generally rejected by medical professionals, and the promotion of chronic lyme disease is an example of health fraud. Chronic Lyme disease in this context should not be confused with genuine Lyme disease, a known medical disorder caused by infection with Borrelia burgdorferi, or with post-treatment Lyme disease syndrome, a set of lingering symptoms which may persist after successful treatment of infection with Lyme bacteria.

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Amblyomma gervaisi is a hard-bodied tick of the genus Amblyomma. The tick is a parasite of snakes, such as Naja naja, Python molurus species and monitor species such as Varanus ocellatus, Varanus yemenensis, Varanus benghalensis, Varanus griseus and many other Varanus species in southeastern Asia and Asia-minor. They exhibit sexual dimorphism. They can be found in Sri Lanka, India, Yemen, Saudi Arabia. It is a potential vector for Coxiella burnetii.

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References

  1. "About TBDA" . Retrieved 30 July 2013.CS1 maint: discouraged parameter (link)
  2. "TBDA" . Retrieved 30 July 2013.CS1 maint: discouraged parameter (link)
  3. "TBDA's David Roth on NBC New York Nightly News" . Retrieved 30 July 2013.CS1 maint: discouraged parameter (link)
  4. "Actress Candice Accola Launches Bite Back for a Cure, Tick-Borne Disease Alliance's National Grassroots Campaign to Fight Devastating Tick-Borne Diseases" . Retrieved 30 July 2013.CS1 maint: discouraged parameter (link)
  5. "The New Tick-Borne Disease Alliance" . Retrieved 5 August 2013.CS1 maint: discouraged parameter (link)
  6. "Candice Accola MCs Annual Tick-Borne Disease Alliance Benefit" . Retrieved 5 August 2013.CS1 maint: discouraged parameter (link)
  7. "U.S. Sen. Kirsten Gillibrand, U.S. Sen. Richard Blumenthal, Tick-Borne Disease Alliance (TBDA), and Weill Cornell Medical College Host NYC Forum on Silent Epidemic of Lyme and Tick-Borne Diseases on Monday, March" . Retrieved 5 August 2013.CS1 maint: discouraged parameter (link)
  8. "Kobre named chairman of Global Lyme Alliance". Greenwich Sentinel. Greenwich, Connecticut. June 26, 2015. Retrieved 5 October 2016.
  9. Gorski, David. "Robert F. Kennedy, Jr. promotes an awful epidemiology study linking vaccines and neurological conditions from…Yale? | Science-Based Medicine". Science-Based Medicine. Retrieved 22 April 2021. Global