Transitional age youth (alternatively: TAY, Transition Aged Youth, Transition-Age Youth, Transitional Age Youth, Transitioning Youth, Transitional Youth, and Youth in Transition) can reference both a developmental period and be a descriptor regarding eligibility for certain services. While there are variations in definitions, the age ranges do consistently overlap and include late adolescence (15-16 years of age) to early adulthood (24-26 years). This range is considered a critical period in human development characterized by several changes socially, environmentally, and cognitively. During this time, individuals can experience changes in their social roles and function, family and peer supports, exposure to substance use, educational and vocational programs, as well as changes in healthcare providers from pediatric to adult settings. [1]
The phrase transitional aged youth (TAY and the variations listed above) originated in the foster care system but has since taken on broad applicability to other (primarily healthcare) sectors. Specifically, youth “in transition” can refer to “aging out” or being ineligible for pediatric health care services after turning 18 years old, or being ineligible for children’s mental health services at 18 years old in certain places. [2] The adult outcomes for youth involved in various child-serving systems (special education, pediatric primary care, child and adolescent mental health, child welfare, and juvenile justice) came under scrutiny in the 1980s. As a result, planning around the transition from child to adult services became a focus across many systems. In mental health systems, the term transitional aged youth (TAY) has historically been associated with youth and young adults at high risk of poor transition outcomes due to complex needs, lack of a support system, and multiple challenges. [3] Earlier studies on young adult outcomes used the term to describe individuals from 16-25 years old who have, or are at risk of having, Serious Mental Illness (SMI) or Serious Emotional Disturbance (SED), defined as serious emotional or behavioral difficulties that are psychological in origin, in combination with significant functional impairment, and arise by age 18 years. [2] [4] Terminology has since evolved, both in mental health and in federal initiatives. For example, the Substance Abuse and Mental Health Services Administration (SAMHSA) has broadened its scope to include TAY with SED and in the general public, through its Now Is The Time Healthy Transitions program. [5] This expansion likely reflects the growing knowledge that all youth of transition age are at risk for mental health issues, substance abuse disorders, and suicide. Therefore, TAY is being used more often to refer to all individuals within an age range, regardless of presence of SED or service system involvement. Other terms which overlap with TAY include Emerging Adulthood (EA), coined by Arnett who proposes EA as a normal discrete developmental phase for all persons 18-25; [6] Adolescents and Young Adults (AYAs), historically those with cancer but now more generally referring to all health needs of 10-25 year-olds; [7] and Youth and Young Adults (YAYAs). Sometimes, the acquisition of tasks during this developmental phase has been colloquially termed, “adulting”. [8]
Like many other developmental stages, the period of transition from adolescence to early adulthood is faced with many unique challenges. TAY must consolidate and build upon the tasks that they started in adolescence, including the enrichment of their identity, independence, and relationships. During this period, their bodies begin to reach physical and sexual maturity, while cognitive and psychological development often trail behind. Physically, TAY undergo puberty mediated by sex hormones, including increases in testosterone and estrogen, and begin to develop secondary sex and traditional gender role characteristics. Cognitively, they start to form a moral code, combining aspects of societal expectations and rights as well as universal ethical principles. As they work towards independence, TAY must acquire skills for adulthood, such as learning how to manage finances, housing, and medical and legal decision-making, in order to move away from reliance upon family for basic needs. Smaller steps needed to gain success include learning how to create and maintain a budget, identifying “needs versus wants,” and opening a bank account. Legally, many youth will continue to require their guardian’s consent/permission for many medical procedures, medications (including psychiatric), and services until they reach the age of majority.
Independence also involves forming and maintaining fulfilling relationships outside of the family unit. As dependence on the family lessens, relationships shift to companionship, support, and intimacy with peers. Friendships become more important as TAY further individualize and psychologically discover who they are. Intimate relationships are often more challenging to develop, and many may not find a partner during this developmental period, as TAY navigate the stresses of biological and hormonal drives, psychological wants for intimacy and acceptance, and weigh potential negatives including parental disapproval, possible pregnancy, sexually transmitted diseases, and peer rejection.
In 2020, the global population of 15-24 year olds was estimated to be 1.2 billion, accounting for about 15% of the world’s total population. [9] The health of adolescents is a critical component of a successful transition to adulthood. This period is marked by significant physical, cognitive, and psychosocial growth, and is an important time for building foundations for good health. While young people are typically seen as healthy, this period can correlate with a rise in health problems, including the emergence of mental health issues. [10] In the last decade, depression, anxiety, and injuries (road injuries, self-harm, and interpersonal violence) were among the top ten causes of death in 10-24 year olds. [11]
There are many factors that can affect the health of this population. As part of normal development, adolescents become increasingly independent and may experiment with adult behaviors that affect future patterns of adult health. Behaviors such as driving, sexual experimentation, tobacco, alcohol, and substance use, and diet and exercise habits can impact health in the short- and long-term. [12] Since 2014, e-cigarettes (or “vaping”) have been the most commonly used nicotine product among youth. The high level of use in this population led the U.S. Surgeon General to declare e-cigarette use an epidemic. Concerns about the negative effects of nicotine on the adolescent brain include addiction, impact on learning, memory, and attention, toxic effects on lungs from aerosol, and use of e-cigarettes for marijuana. [13] [14] In addition to substance use, factors that affect health in this population should be considered from a comprehensive perspective and include sexual and reproductive health, HIV and other infectious diseases, nutritional deficiencies, injury and violence, chronic physical health problems, and mental health disorders. [10]
Significant barriers may impact the successful transition from pediatric to adult health care, which in turn can negatively impact health outcomes. Taking responsibility for managing one’s own health care can be a struggle for young adults. As youth transition to adulthood, responsibility shifts from the family to the youth. Some youth with pre-existing illnesses might decide that treatment is no longer necessary. The myth of invulnerability and fear of being ill may reduce a young adult’s motivation to seek treatment. Young adults who do seek treatment must learn how to obtain health insurance, schedule medical appointments, remember to take medication, and obtain refills. They must acquire these new skills while learning how to balance employment or increased academic demands (for those in college), wellness and social activities, and with decreased support. In some countries, there are financial burdens related to the costs of high-quality healthcare. Finally, transportation issues may impact access to care, and worries about money are also widespread in the young adult population and may limit treatment options. [15]
The transitional aged youth years coincide with the onset of many mental health conditions. Approximately 75% of serious psychiatric disorders present with symptoms before the age of 25 (i.e., schizophrenia, bipolar disorder, substance use disorders, etc.). [16] [17] Studies have shown that in the “transitional aged brain”, a mismatch occurs between the early maturation of the subcortical brain regions, and the delayed maturation of the prefrontal cortex and the white matter tracts connecting them. The subcortical areas, known as the amygdala and nucleus accumbens, influence motivation, passion, pleasure, and aversive experiences, while the prefrontal cortex and connecting white matter tracts are important for attention, emotional and impulse control, flexibility, planning, and judgment. Even with external control and expectations, this group remains at very high risk for morbidity and mortality associated with suicide, substance use, psychiatric illness, and accidents. At the same time that these youth and their maturing brains need more external regulatory support and lower risk environments, they instead have easier access to alcohol and drugs, high-risk social activities, and loss of close parenting and supervision. [18] Exposure to toxins (e.g., drugs, infections, extreme stress, or hypoxia) and trauma (“toxic stress”) during childhood and adolescence can also affect adult functioning. For example, adolescent exposure to marijuana may increase the risk of psychosis in vulnerable youths. [19] A growing body of literature implicates Adverse Childhood Experiences, including physical, sexual, and emotional abuse, in a broad range of negative health consequences including depression, anxiety, suicidality, and cardiovascular and immune disease. [20]
According to the NIMH, in 2019 young adults aged 18-25 years had the highest prevalence of serious mental illness (SMI) (8.6%) compared to adults aged 26-49 years (6.8%) and aged 50 and older (2.9%). TAY with untreated mental health disorders are at high risk for substance abuse, physical assault, and encounters with the correctional system. [21]
Because of the early terminology applied to this population, there is a core body of research related to TAY and youth in foster care. Upwards of 80% of foster youth have developmental, behavioral, or mental health concerns. [22] [23] Foster care alumni have higher rates of mental health disorders than the general population, such as depression, PTSD [24] and substance use disorders. [25] [26] Former foster youth with mental illness often have past trauma histories, such as being a victim of child abuse and neglect, that make it challenging for them to develop and maintain healthy adult relationships. Their mood may easily become dysregulated as a result of insecure attachments. [27] Some researchers have shown that the more placements a child experiences, the higher risk of attachment issues which can lead to a high risk of psychiatric morbidity in adulthood. [28]
Compared to other Medicaid-eligible youth, foster youth have higher rates of behavioral health expenditures. [29] Foster youth are prescribed psychotropic medications at 2-8 times the rate of other Medicaid-eligible youth (GAO, 2011). [30] Foster youth are at risk for inappropriate prescribing because of limited access to youth behavioral health information and history, fragmented and/or inadequately coordinated care, insufficient time for assessment, treatment, and collaboration; un- or misdiagnosed trauma-related conditions, limited access to effective psychosocial and psychiatric treatments, and ineffective advocacy for foster youth. [31]
The prime importance of developing treatment approaches to engage and maintain TAY in psychiatric treatment has been well documented in the literature. According to the 2014 Substance Abuse and Mental Health Services Administration (SAMHSA) study report: one-fifth of young adults of age 18 to 25 had a mental health illness in the past year, yet two-thirds of those did not receive treatment. [32] Youth with serious mental health conditions can have significant delays in their psychosocial development that can impair their ability to function as they enter adulthood. [2]
Foster care is and was intended to be a temporary situation for children, however many children entering foster care, 25-30% (Kelly) remain there until the age of 18. According to the U.S. Census Bureau, in 2005, of the approximately 500,000 (was 550,000 in 2000) children in the foster care system in the United States, an estimated 24,000 foster youth age out of care each year and attempt to live independently. (Gardner)
Homelessness for youth aging out could be lessened using the Chafee Independent Living Program of 1999. According to this program states are allowed to use up to 30% of their independent living funds on room and board for former foster youth who are at least 18 years old but not yet 21. It also requires states to use at least some portion of their funds to provide follow-up services to foster youth after they age out. (Dworsky) The previous program, Title IV-E Independent Living Program of 1990, did not allow the state to use any of its funding for room and board, independent living subsidies, or transitional housing for youth aging out. (Dworsky)
The Fostering Connections to Success and Increasing Adoptions Act of 2008 contains several provisions aimed at promoting permanent family connections for youth in foster care. (Dworsky) The following are changes made by the Fostering Connections to Success and Increasing Adoptions Act of 2008 to improve the connection between foster youth and extended family members:
This Act helps youth who turn 18 in foster care without permanent families to remain in care, at state option, to age 19, 20, or 21 with continued federal support to increase their opportunities for success as they transition to adulthood. (Children's Defense Fund) This Act also assists foster youth with extra support surrounding their education and healthcare needs as the age out.
24,000 youth age out of foster care every year. The majority of them will be dependent on government assistance at some point whether it is for medical care because of the lack of insurance, food assistance because of the lack of income, housing assistance because of the lack of income, or in some cases their children will be in the foster care system perpetuating the foster care cycle. Society as a whole needs to recognize the consequences of foster youth aging out without the education, experience, knowledge, or skills needed to become a successful adult. Changes to the foster care system can be made, but it will take time, patience, endurance, persistence, and ingenuity from not only the workers in the system and the foster youth, but from a society that recognizes the impact foster youth aging out will make on the future.
Foster care youth are more likely to experience a lack of social support before they enter the system and are more likely to come from low income households with higher rates of physical and verbal abuse (Lindquist & Santavirts, 2014). Their experiences therefore shape their journey throughout the foster care system and into adulthood. When foster youth leave the system, they are more likely to face disadvantages and challenges when compared to their peers in the general population (Gypen et al., 2017).
Foster care youth are less likely to graduate from high school than their peers in the general population (Gypen et al., 2017). Those who are able to attain a high school diploma often find struggles when it comes to higher education. Foster care youth who enroll in college are twice as likely to drop out in their first year compared to their peers in the general population (Gypen et al., 2017). They are also less likely to complete 2-year degrees, and those who do make it to a 4-year university are more likely to drop out after 2 years (Gypen et al., 2017). This can then impact their ability to find employment as they are less likely to find stable employment once they exit the foster care system (Gypen et al., 2017). Although around 80% of former foster youth do find employment within 2 years of leaving the system, most of these jobs are part time and often require little skill or minimal pay (Dworsky, 2005). This then impacts their earnings, as they are more likely to earn less than non-foster care youth, and are more likely to live in poverty due to the low earnings (Gypen et al., 2017). When it comes to housing, the low earnings and lack of support then makes foster care youth more likely to experience unstable housing situations and, in some cases, homelessness. Around 28% of former foster care youth can secure their own place, while around .3% end up homeless, and most of the transitional youth end up in some sort of supported household (i.e. extended relative, foster parent, friend) (Gypen et al., 2017).
Mental health issues, substance abuse and alcohol abuse issues are also challenges that many transitional age youth face once they exit the foster care system. Foster care alumni are more likely to come from a past of neglect and/or physical/verbal abuse. Therefore, they are more likely to suffer from mental health issues such as disruptive disorders, depression, and PTSD (Gypen et al., 2017). Up to 63% of former foster care youth are likely to qualify for some sort of psychiatric disorder at some point in their lifetime (Gypen et al., 2017). In addition, foster care youth, particularly men, are more likely to suffer from substance abuse and mental health issues, and their chances of suffering from these issues increase as they get older (Gypen et al., 2017).
Gender dysphoria (GD) is the distress a person experiences due to a mismatch between their gender identity—their personal sense of their own gender—and their sex assigned at birth. The term replaced the previous diagnostic label of gender identity disorder (GID) in 2013 with the release of the diagnostic manual DSM-5. The condition was renamed to remove the stigma associated with the term disorder.
Conduct disorder (CD) is a mental disorder diagnosed in childhood or adolescence that presents itself through a repetitive and persistent pattern of behavior that includes theft, lies, physical violence that may lead to destruction, and reckless breaking of rules, in which the basic rights of others or major age-appropriate norms are violated. These behaviors are often referred to as "antisocial behaviors", and is often seen as the precursor to antisocial personality disorder; however, the latter, by definition, cannot be diagnosed until the individual is 18 years old. Conduct disorder may result from parental rejection and neglect and can be treated with family therapy, as well as behavioral modifications and pharmacotherapy. Conduct disorder is estimated to affect 51.1 million people globally as of 2013.
Alcohol abuse encompasses a spectrum of alcohol-related substance abuse, ranging from the consumption of more than 2 drinks per day on average for men, or more than 1 drink per day on average for women, to binge drinking or alcohol use disorder.
Foster care is a system in which a minor has been placed into a ward, group home, or private home of a state-certified caregiver, referred to as a "foster parent", or with a family member approved by the state. The placement of a "foster child" is normally arranged through the government or a social service agency. The institution, group home, or foster parent is compensated for expenses unless with a family member.
Child psychopathology refers to the scientific study of mental disorders in children and adolescents. Oppositional defiant disorder, attention-deficit hyperactivity disorder, and autism spectrum disorder are examples of psychopathology that are typically first diagnosed during childhood. Mental health providers who work with children and adolescents are informed by research in developmental psychology, clinical child psychology, and family systems. Lists of child and adult mental disorders can be found in the International Statistical Classification of Diseases and Related Health Problems, 10th Edition (ICD-10), published by the World Health Organization (WHO) and in the Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition (DSM-5), published by the American Psychiatric Association (APA). In addition, the Diagnostic Classification of Mental Health and Developmental Disorders of Infancy and Early Childhood is used in assessing mental health and developmental disorders in children up to age five.
Gender dysphoria in children (GD), also known as gender incongruence of childhood, is a formal diagnosis for children who experience significant discontent due to a mismatch between their assigned sex and gender identity. The diagnostic label gender identity disorder in children (GIDC) was used by the Diagnostic and Statistical Manual of Mental Disorders (DSM) until it was renamed gender dysphoria in children in 2013 with the release of the DSM-5. The diagnosis was renamed to remove the stigma associated with the term disorder.
Adolescent medicine, also known as adolescent and young adult medicine, is a medical subspecialty that focuses on care of patients who are in the adolescent period of development. This period begins at puberty and lasts until growth has stopped, at which time adulthood begins. Typically, patients in this age range will be in the last years of middle school up until college graduation. In developed nations, the psychosocial period of adolescence is extended both by an earlier start, as the onset of puberty begins earlier, and a later end, as patients require more years of education or training before they reach economic independence from their parents.
Childhood trauma is often described as serious adverse childhood experiences (ACEs). Children may go through a range of experiences that classify as psychological trauma; these might include neglect, abandonment, sexual abuse, emotional abuse, and physical abuse, witnessing abuse of a sibling or parent, or having a mentally ill parent. These events have profound psychological, physiological, and sociological impacts and can have negative, lasting effects on health and well-being such as unsocial behaviors, attention deficit hyperactivity disorder (ADHD), and sleep disturbances. Similarly, children whose mothers have experienced traumatic or stressful events during pregnancy have an increased risk of mental health disorders and other neurodevelopmental disorders.
Aging out is American popular culture vernacular used to describe any time a youth leaves a formal system of care designed to provide services below a certain age level.
Child and adolescent psychiatry is a branch of psychiatry that focuses on the diagnosis, treatment, and prevention of mental disorders in children, adolescents, and their families. It investigates the biopsychosocial factors that influence the development and course of psychiatric disorders and treatment responses to various interventions. Child and adolescent psychiatrists primarily use psychotherapy and/or medication to treat mental disorders in the pediatric population.
A residential treatment center (RTC), sometimes called a rehab, is a live-in health care facility providing therapy for substance use disorders, mental illness, or other behavioral problems. Residential treatment may be considered the "last-ditch" approach to treating abnormal psychology or psychopathology.
Substance abuse prevention, also known as drug abuse prevention, is a process that attempts to prevent the onset of substance use or limit the development of problems associated with using psychoactive substances. Prevention efforts may focus on the individual or their surroundings. A concept that is known as "environmental prevention" focuses on changing community conditions or policies so that the availability of substances is reduced as well as the demand. Individual Substance Abuse Prevention, also known as drug abuse prevention involves numerous different sessions depending on the individual to help cease or reduce the use of substances. The time period to help a specific individual can vary based upon many aspects of an individual. The type of Prevention efforts should be based upon the individual's necessities which can also vary. Substance use prevention efforts typically focus on minors and young adults — especially between 12–35 years of age. Substances typically targeted by preventive efforts include alcohol, tobacco, marijuana, inhalants, coke, methamphetamine, steroids, club drugs, and opioids. Community advocacy against substance use is imperative due to the significant increase in opioid overdoses in the United States alone. It has been estimated that about one hundred and thirty individuals continue to lose their lives daily due to opioid overdoses alone.
The Foster Care Independence Act of 1999 aims to assist youth aging out of foster care in the United States in obtaining and maintaining independent living skills. Youth aging out of foster care, or transitioning out of the formal foster care system, are one of the most vulnerable and disadvantaged populations. As youth age out of the foster care system at age 18, they are expected to become self-sufficient immediately, even though on average youth in the United States are not expected to reach self-sufficiency until age 26.
Youth suicide is when a young person, generally categorized as someone below the legal age of majority, deliberately ends their own life. Rates of youth suicide and attempted youth suicide in Western societies and other countries are high. Amoung youth, attempting suicide is more common among girls; however, boys are more likely to actually perform suicide. Among youth, the rate of suicide nearly tripled between the 1960s and 1980s. For example, in Australia suicide is second only to motor vehicle accidents as its leading cause of death for people aged 15 to 25.
Major depressive disorder, often simply referred to as depression, is a mental disorder characterized by prolonged unhappiness or irritability. It is accompanied by a constellation of somatic and cognitive signs and symptoms such as fatigue, apathy, sleep problems, loss of appetite, loss of engagement, low self-regard/worthlessness, difficulty concentrating or indecisiveness, or recurrent thoughts of death or suicide.
Transgender youth are children or adolescents who do not identify with the sex they were assigned at birth. Because transgender youth are usually dependent on their parents for care, shelter, financial support, and other needs, they face different challenges compared to adults. According to the World Professional Association for Transgender Health, the American Psychological Association, and the American Academy of Pediatrics, appropriate care for transgender youth may include supportive mental health care, social transition, and/or puberty blockers, which delay puberty and the development of secondary sex characteristics to allow children more time to explore their gender identity.
In a study in Western societies, homeless people have a higher prevalence of mental illness when compared to the general population. They also are more likely to suffer from alcoholism and drug dependency. A 2009 US study, estimated that 20–25% of homeless people, compared with 6% of the non-homeless, have severe mental illness. Others estimate that up to one-third of the homeless have a mental illness. In January 2015, the most extensive survey ever undertaken found 564,708 people were homeless on a given night in the United States. Depending on the age group in question and how homelessness is defined, the consensus estimate as of 2014 was that, at minimum, 25% of the American homeless—140,000 individuals—were seriously mentally ill at any given point in time. 45% percent of the homeless—250,000 individuals—had any mental illness. More would be labeled homeless if these were annual counts rather than point-in-time counts.
Youth homelessness is the problem of homelessness of young people around the globe.
Adverse childhood experiences (ACEs) include childhood emotional, physical, or sexual abuse and household dysfunction during childhood. The categories are verbal abuse, physical abuse, contact sexual abuse, a battered mother/father, household substance abuse, household mental illness, incarcerated household members, and parental separation or divorce. The experiences chosen were based upon prior research that has shown to them to have significant negative health or social implications, and for which substantial efforts are being made in the public and private sector to reduce their frequency of occurrence. Scientific evidence is mounting that such adverse childhood experiences (ACEs) have a profound long-term effect on health. Research shows that exposure to abuse and to serious forms of family dysfunction in the childhood family environment are likely to activate the stress response, thus potentially disrupting the developing nervous, immune, and metabolic systems of children. ACEs are associated with lifelong physical and mental health problems that emerge in adolescence and persist into adulthood, including cardiovascular disease, chronic obstructive pulmonary disease, autoimmune diseases, substance abuse, and depression.
Out-of-home placements are an alternative form of care when children must be removed from their homes. Children who are placed out of the home differ in the types and severity of maltreatment experienced compared to children who remain in the home. One-half to two-thirds of youth have experienced a traumatic event leading to increased awareness and growing literature on the impact of trauma on youth. The most common reasons for out-of-home placements are due to physical or sexual abuse, violence, and neglect. Youth who are at risk in their own homes for abuse, neglect, or maltreatment, as well as youth with severe emotional and behavior issues, are placed out of the home with extended family and friends, foster care, or in residential facilities. Out-of-home placements aim to provide children with safety and stability. This temporary, safe environment allows youth to have their physical, mental, moral, and social needs met. However, these youth are in a vulnerable position for experiencing repeated abuse and neglect.
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