World Lymphoma Awareness Day (WLAD) is held on September 15 every year and is a day dedicated to raising awareness of lymphoma, an increasingly common form of cancer. It is a global initiative hosted by the Lymphoma Coalition (LC), a non-profit network organisation of 83 lymphoma patient groups from 52 countries around the world. WLAD was initiated in 2004 to raise public awareness of both Hodgkin and non-Hodgkin lymphoma in terms of symptom recognition, early diagnosis and treatment. [1]
Lymphoma is increasing in incidence [2] [3] and is a potentially life-threatening disease. One million people worldwide live with lymphoma [4] and nearly 1,000 people are diagnosed with the disease every day, [4] but there continues to be very little awareness of the signs and symptoms of lymphoma. [5]
2008 Global Patient Survey shows that:
Increasing awareness of lymphoma will allow people around the world to better recognize its signs and symptoms, leading to earlier diagnosis and more timely treatment. Greater awareness will also empower patients and their families to demand specialist treatment and care from qualified lymphoma physicians as well as gain access to the most up-to-date information, support and treatment.
Know Your Nodes
Know Your Nodes is a public awareness campaign created with the insight that people know little about their lymphatic systems and, in turn, lymphoma. An international survey conducted in 2006 by the Lymphoma Coalition revealed that nearly three-quarters (74 per cent) of people did not know lymphoma was a type of cancer and less than half (49 per cent) knew anything about lymphoma at all. With this knowledge in mind, the Know Your Nodes campaign was created to take people back to the basics and learn more about their lymph nodes, lymphatic systems and lymphoma in time for WLAD. [7]
Know Your Nodes engages people around the world in learning more about their lymph nodes, the lymphatic system, and the signs and symptoms of lymphoma. Lymphoma’s signs and symptoms can be similar to other, less serious illnesses, and increasing awareness of lymphoma will allow people around the world to better recognise its signs and symptoms, leading to earlier diagnosis and more timely treatment.
Beacons of Hope
The Beacons of Hope program was created in 2006 to celebrate inspiring people around the world that have been affected by lymphoma. Lymphoma Coalition members were asked to nominate individuals affected by lymphoma who acted as global Beacons of Hope ambassadors. [8] [9] [10] [11] [12] The ambassadors spread the word of hope across the world, bringing real life experience to WLAD. [13]
The Lymphoma Club
The Lymphoma Club was founded in 2010 to recognize those affected by all lymphomas (Hodgkin's and non-Hodgkin's lymphoma) and to help raise awareness for lymphoma.
Since its launch in 2004, WLAD has made its mark internationally, from inspirational showcases of art in Argentina, to bike tours in France, and patient seminars in New Zealand. The global campaign continues to provide a platform for doctors, nurses, patient support groups, patients and their families to share vital knowledge about lymphoma, its signs and symptoms, and how it affects lives of thousands of people around the world. [14] [15]
In 2007, Lymphoma Coalition launched the Know Your Nodes campaign internationally to help people learn more about lymph nodes, the lymphatic system and lymphoma.
Lymphoma Coalition is a non-profit network organisation of lymphoma patient groups. Established in 2003, it is a global initiative dedicated to raising awareness of lymphoma, a common form of cancer, and promoting the well-being of people affected by lymphoma worldwide. Its mission is to:
Lymphedema, also known as lymphoedema and lymphatic edema, is a condition of localized swelling caused by a compromised lymphatic system. The lymphatic system functions as a critical portion of the body's immune system and returns interstitial fluid to the bloodstream. Lymphedema is most frequently a complication of cancer treatment or parasitic infections, but it can also be seen in a number of genetic disorders. Though incurable and progressive, a number of treatments can improve symptoms. Tissues with lymphedema are at high risk of infection because the lymphatic system has been compromised.
Non-Hodgkin lymphoma (NHL) is a group of blood cancers that includes all types of lymphomas except Hodgkin lymphomas. Symptoms include enlarged lymph nodes, fever, night sweats, weight loss and tiredness. Other symptoms may include bone pain, chest pain or itchiness. Some forms are slow-growing, while others are fast-growing.
Lymphoma is a group of blood malignancies that develop from lymphocytes. The name often refers to just the cancerous versions rather than all such tumours. Signs and symptoms may include enlarged lymph nodes, fever, drenching sweats, unintended weight loss, itching, and constantly feeling tired. The enlarged lymph nodes are usually painless. The sweats are most common at night.
The lymphatic system, or lymphoid system, is an organ system in vertebrates that is part of the circulatory system and the immune system. It is made up of a large network of lymph, lymphatic vessels, lymph nodes, lymphatic or lymphoid organs, and lymphoid tissues. The vessels carry a clear fluid called lymph towards the heart.
A lymph node, or lymph gland, is a kidney-shaped organ of the lymphatic system, and the adaptive immune system. A large number of lymph nodes are linked throughout the body by the lymphatic vessels. They are major sites of lymphocytes that include B and T cells. Lymph nodes are important for the proper functioning of the immune system, acting as filters for foreign particles including cancer cells, but have no detoxification function.
Testicular cancer is cancer that develops in the testicles, a part of the male reproductive system. Symptoms may include a lump in the testicle, or swelling or pain in the scrotum. Treatment may result in infertility.
Anaplastic large-cell lymphoma (ALCL) is a form of cancer. It is a type of non-Hodgkin lymphoma involving aberrant T cells or null lymphocytes. The term anaplastic large-cell lymphoma (ALCL) encompasses at least four different clinical entities with the same name, which on histological examination share the presence of large pleomorphic cells that express CD30 and T-cell markers. Two types of ALCL present as systemic disease and are considered as aggressive lymphomas, while two types present as localized disease and may progress locally. Anaplastic large cell lymphoma is associated with various types of medical implants.
Ann Arbor staging is the staging system for lymphomas, both in Hodgkin's lymphoma and non-Hodgkin lymphoma. It was initially developed for Hodgkin's, but has some use in NHL. It has roughly the same function as TNM staging in solid tumors.
Follicular lymphoma (FL) is a cancer that involves certain types of white blood cells known as lymphocytes. The cancer originates from the uncontrolled division of specific types of B-cells known as centrocytes and centroblasts. These cells normally occupy the follicles in the germinal centers of lymphoid tissues such as lymph nodes. The cancerous cells in FL typically form follicular or follicle-like structures in the tissues they invade. These structures are usually the dominant histological feature of this cancer.
Lymphangitis is an inflammation or an infection of the lymphatic channels that occurs as a result of infection at a site distal to the channel. The most common cause of lymphangitis in humans is Streptococcus pyogenes, hemolythic streptococci, and in some cases, mononucleosis, cytomegalovirus, tuberculosis, syphilis, and the fungus Sporothrix schenckii. Lymphangitis is sometimes mistakenly called "blood poisoning". In reality, "blood poisoning" is synonymous with sepsis.
Lymphoma (lymphosarcoma) in animals is a type of cancer defined by a proliferation of malignant lymphocytes within solid organs such as the lymph nodes, bone marrow, liver and spleen. The disease also may occur in the eye, skin, and gastrointestinal tract.
T-cell lymphoma is a rare form of cancerous lymphoma affecting T-cells. Lymphoma arises mainly from the uncontrolled proliferation of T-cells and can become cancerous.
Supraclavicular lymph nodes are lymph nodes found above to the clavicle, that can be felt in the supraclavicular fossa. The supraclavicular lymph nodes on the left side are called Virchow's nodes.
Lymphatic disease is a class of disorders which directly affect the components of the lymphatic system.
Hodgkin lymphoma (HL) is a type of lymphoma in which cancer originates from a specific type of white blood cells called lymphocytes. Symptoms may include fever, night sweats, and weight loss. Often there will be non-painful enlarged lymph nodes in the neck, under the arm, or in the groin. Those affected may feel tired or be itchy.
Cervical lymphadenopathy refers to lymphadenopathy of the cervical lymph nodes. The term lymphadenopathy strictly speaking refers to disease of the lymph nodes, though it is often used to describe the enlargement of the lymph nodes. Similarly, the term lymphadenitis refers to inflammation of a lymph node, but often it is used as a synonym of lymphadenopathy.
Thyroid lymphoma is a rare cancer constituting 1% to 2% of all thyroid cancers and less than 2% of lymphomas. Thyroid lymphomas are classified as non–Hodgkin's B-cell lymphomas in a majority of cases, although Hodgkin's lymphoma of the thyroid has also been identified.
Carcinoma of the tonsil is a type of squamous cell carcinoma. The tonsil is the most common site of squamous cell carcinoma in the oropharynx. It comprises 23.1% of all malignancies of the oropharynx. The tumors frequently present at advanced stages, and around 70% of patients present with metastasis to the cervical lymph nodes. . The most reported complaints include sore throat, otalgia or dysphagia. Some patients may complain of feeling the presence of a lump in the throat. Approximately 20% patients present with a node in the neck as the only symptom.
Unicentric Castleman disease is a subtype of Castleman disease, a group of lymphoproliferative disorders characterized by lymph node enlargement, characteristic features on microscopic analysis of enlarged lymph node tissue, and a range of symptoms and clinical findings
Indolent lymphoma, also known as low-grade lymphoma, is a group of slow growing non-Hodgkin Lymphoma (NHL). Because indolent lymphoma is usually very slow growing and slow to spread, it tends to have fewer signs and symptoms when first diagnosed and may not require treatment straight away. Possible symptoms include one or more swollen but painless lymph nodes, unexplained fever and unintended weight loss.